Cognitive Behavioral Therapy

I hope one day we get real treatments instead of fake ones like CBT and TRT. We're people who count natural remission as the "treatment " helping. If TRT or CBT helped you, you would have been able to do it just the same without it. Like people saying they couldn't have done this or that without God, they could have. Wild. Give yourself and your body some credit. It wasn't TRT or CBT that did it. It was you.

If you can mind over matter and power through the damage you have by putting more sound in your system, you just aren't that bad, and you are lucky. It's so dangerous to promote TRT as a treatment, and talk therapy/CBT is just that. Positive thinking can't change the level of damage you have. Damage control is better than TRT. Time, quiet, rest, and as much sleep as possible, as well as avoiding medications that can make tinnitus worse, are your safest options.

I get pain, and my tinnitus increases from every sound. Let's put more sound in & just think positively about my body getting more and more damaged! Regular sounds can't hurt me. What a crock.
I agree that TRT is a scam. At first, I thought it was viable. However, I looked deeper at the science and found the following:

1) It's not supported. It has succeeded in 1 trial and failed in most. A quick meta-analysis would show that it's ineffective.

2) I have only seen some anecdotal evidence, which, as you say, without the same person cloning to have a placebo, is meaningless. Habituation and time could have played a role. The people claiming success have no placebo to rule out the above.

3) It's not recommended on the NHS.

So that leaves CBT, which isn't a treatment but is recommended to help with psychological distress and help manage the condition. Would you give CBT a go?
 
I agree that positive thinking (or any sort of thinking) cannot change anyone's tinnitus. But there are a lot of things in between experiencing tinnitus and not experiencing tinnitus. For myself, and I assume any human, when we're engaged in something we have our full attention on, we are not focused on the tinnitus.

Trust me, if I am having sex, I am ONLY having sex, and for all intents and purposes, I may not even have tinnitus. Now, someone can determine whether or not that is this type of thinking or that type of thinking. It makes no difference. During that experience, there is no perception of tinnitus at all. Zero. That doesn't mean I no longer have tinnitus, but it does mean that at different points in my life, I am not experiencing it.

That's good enough for me. It means I am not locked into it 24/7, and I certainly don't hear it or experience it when I'm sleeping. So if positive thinking (beats negative thinking, LOL) or what you have helps us to experience tinnitus less, then it's a good thing. I don't know why people are so focused on "curing' tinnitus. As it stands, there is no more chance of that happening than there is of curing a broken leg. If you have a broken leg, you don't go around walking on it; it only aggravates the issue. It's counterproductive.

Similarly, not watching our diet, not being engaged in pleasurable activities, etc., just aggravates tinnitus. We have the power to seek out diversions and escapes, to have a great life despite it, and to not do things that just make it worse. So we're not powerless; we can work with it. We have options. If we choose not to go with options, then that's on us; that's our problem, not the tinnitus's.
 
As it stands, there is no more chance of that happening than there is of curing a broken leg
I broke my ankle and got a cast on my ankle; after eight weeks, they took the cast off my ankle, and within six months, it was as if my ankle had never been broken at all.

Four or five years ago, I got tinnitus; I've done every treatment imaginable for tinnitus. I am still aware of tinnitus a substantial portion of my day, moments of sex or other intense concentration aside.

There is a cure for a broken bone; there is no cure for tinnitus.

CBT can help. I've done CBT for Tinnitus with Dr. Hubbard. It gives some skills and strategies for dealing with tinnitus and not making things worse. It is particularly well suited for those still in the trauma stage of tinnitus, as it may help you get through it more quickly.

If you are going to habituate, the sooner you can defocus and calm down, the better; CBT will help with that. Of course, I am the lucky person who doesn't get to habituate, but at least I am more at peace with it now.
 
Trust me, if I am having sex, I am ONLY having sex, and for all intents and purposes, I may not even have tinnitus. Now, someone can determine whether or not that is this type of thinking or that type of thinking. It makes no difference. During that experience, there is no perception of tinnitus at all. Zero. That doesn't mean I no longer have tinnitus, but it does mean that at different points in my life, I am not experiencing it.

That's good enough for me. It means I am not locked into it 24/7, and I certainly don't hear it or experience it when I'm sleeping. So if positive thinking (beats negative thinking, LOL) or what you have helps us to experience tinnitus less, then it's a good thing. I don't know why people are so focused on "curing' tinnitus.
Distractions don't work for me. I can get involved in a movie or be around a group of people that distracts me from my tinnitus for a while, but I still feel high anxiety. My subconscious still picks up on it, even if I'm directing my focus elsewhere, and there's that automatic response from the sympathetic nervous system engaging the flight or fight response. There's still that layer of brain fog caused by tinnitus, even when I'm focusing on something else. If only it were that easy, I would have figured it out a long time ago. Although, years ago, when I had mild tinnitus, it was much easier. Having severe tinnitus is a whole different matter.

I apparently still hear it when I'm sleeping because I keep waking up after not sleeping for over two years. If not a cure, we at least need an effective treatment that significantly lowers tinnitus. Benzos help temporarily, at least, but that's not a good path to take.
 
I prefer Acceptance over CBT. I found it to be way more beneficial personally. I mean, I'm still not thrilled with my tinnitus at all and it can still very much bother me, but acceptance has helped me manage it better throughout the day.

We still need proper treatments though. 100%

Me too! This idea of volume doesn't matter is not my experience at all.
Volume definitely matters. This is why I hope we can measure it objectively one day to assess perceived loudness instead of depending on subjective reports. Through objective methods, we can show people how loud tinnitus can get.

It would be the best way to demonstrate the changing nature of this condition.
 
Distractions don't work for me. I can get involved in a movie or be around a group of people that distracts me from my tinnitus for a while, but I still feel high anxiety. My subconscious still picks up on it, even if I'm directing my focus elsewhere, and there's that automatic response from the sympathetic nervous system engaging the flight or fight response. There's still that layer of brain fog caused by tinnitus, even when I'm focusing on something else. If only it were that easy, I would have figured it out a long time ago. Although, years ago, when I had mild tinnitus, it was much easier. Having severe tinnitus is a whole different matter.

I apparently still hear it when I'm sleeping because I keep waking up after not sleeping for over two years. If not a cure, we at least need an effective treatment that significantly lowers tinnitus. Benzos help temporarily, at least, but that's not a good path to take.
Was there a cause for your increase in 2022? Or was it spontaneous? How would you rate it before and after?
 
Was there a cause for your increase in 2022? Or was it spontaneous? How would you rate it before and after?
I think it was the noise trauma from a loud, continuous chirping sound that started between a Bluetooth transmitter and Bluetooth earbuds (or headphones) that continued for a few minutes while I was using a treadmill. I would probably rate my old tinnitus a 3 or 4, and I rate it a 7 to 9 these days since it's variable. But those ratings don't mean much since everyone has their own idea of how to rate their tinnitus, and tinnitus has no limit. So, I usually just say it's severe tinnitus.
 
Hello,

I am considering CBT counseling and have an in-person appointment today. However, I'm wondering if it's worth it compared to an online course. What are the community's recommendations for the best online CBT courses?

Thanks!
 
Bruce Hubbard does a very well developed online CBT for Tinnitus course.
Yes, but it costs a 1000 freaking bucks.

I also found these two:
Cost: unknown.
Cost: 295 - 625 pounds (depending on how many personal consultations you want).

I have not found other courses.

Han anyone tried these? Thoughts?
 
Han anyone tried these? Thoughts?
My NHS audiology dept. promised me CBT a couple years ago but never got back in touch (even to this day). I dabbled with the idea of paying privately and ended up having an email exchange with Debbie Featherstone, who provides the CBT4T programme you've linked to above.

I was really impressed by how much she appeared to care about my predicament. She also wrote me a very heartfelt, detailed message that set out what one can, and perhaps cannot, expect to gain from this type of therapy.

I was very keen to point out to Debbie that I am a veteran of tinnitus who experienced a significant worsening aggravated by hyperacusis. Reading the client testimonials on her website, I noted that those who'd volunteered the information about duration since tinnitus onset seemed to be in the very early stages and perhaps more treatable.

I don't think it would be proper to publish further details of our email exchange here on the above point; suffice it to say, I was more than satisfied by the end of our conversation that Debbie had encountered many patients like me over her professional career.

For various reasons, I decided not to do the programme for now. I just kind of grit my teeth and bear it. On the more important question of whether or not CBT could "work" for you and me, all I can say is; I like to keep reminding myself that CBT4T is a programme aimed at reducing tinnitus distress and not the tinnitus itself.
 
My NHS audiology dept. promised me CBT a couple years ago but never got back in touch (even to this day). I dabbled with the idea of paying privately and ended up having an email exchange with Debbie Featherstone, who provides the CBT4T programme you've linked to above.

I was really impressed by how much she appeared to care about my predicament. She also wrote me a very heartfelt, detailed message that set out what one can, and perhaps cannot, expect to gain from this type of therapy.
Thanks very much for the useful feedback. Distress has now become a bigger problem than the tinnitus itself, so I am almost convinced to try CBT.
 
I know @gameover didn't have a good experience with Hubbard:
I did his course, and it is what it is. CBT is a tool set that, at its best, creates a virtuous cycle of a deescalation of reaction that leads to a state of habituation.

I think that this outcome is possible for many people with moderate and lower tinnitus; for those with very severe symptoms, it might be of some limited use but really isn't much of an answer.

He was quite forthright in telling me that with the symptom set that I described and having no underlying anxiety or OCD issues, CBT would likely be of limited use to me.
 
I did two private sessions with Dr. Bruce Hubbard (not cheap) and completed his online course. He's a nice enough guy, but as others have mentioned, CBT didn't feel groundbreaking to me. Essentially, it focused on encouraging you to resume normal activities and being mindful of negative thoughts. Unless I missed something, there didn't seem to be much more to CBT than that. Many of the tips were things anyone who's browsed this forum or done some quick research would have already seen, like sound masking. It does a disservice to severe cases to consider CBT a one-size-fits-all solution.
 
Essentially, it focused on encouraging you to resume normal activities and being mindful of negative thoughts. Unless I missed something, there didn't seem to be much more to CBT than that. Many of the tips were things anyone who's browsed this forum or done some quick research would have already seen, like sound masking. It does a disservice to severe cases to consider CBT a one-size-fits-all solution.
I've just had my fourth or fifth session over Microsoft Teams, and it was a complete waste of time. I gave it a try, but ultimately, this is substandard treatment for tinnitus. It's almost 2025, are we still relying on CBT for conditions like this?

CBT for epilepsy, anyone? Unacceptable.
 
I've just had my fourth or fifth session over Microsoft Teams, and it was a complete waste of time. I gave it a try, but ultimately, this is substandard treatment for tinnitus. It's almost 2025, are we still relying on CBT for conditions like this?

CBT for epilepsy, anyone? Unacceptable.
I think the value of any intervention depends on who is providing it, the severity of the sufferer's condition, and having realistic expectations. For most nonsevere cases, the value often lies in meaningful communication with someone who truly understands the condition, and that can vary widely.

In my case, the person providing support was a double cochlear implant recipient who also experiences tinnitus when she turns her implants off. She was honest and made it clear that even at eight months, she had zero expectation that it would go away. This honesty helped me move past the false hope of "healing," which is a common thought during the first year.

I do not believe that someone explaining to me what I already knew only in less detail was helpful. Could it benefit someone who is less curious or not prone to obsessive thinking? Maybe. However, the only real value I found was the reassurance that I was already doing everything in my power to manage my condition and take back some control. Like you, I also wanted to be able to say, "I gave that approach a shot" if new treatments become available because they will likely require patients to have tried CBT first.

Even my visit with an audiologist about sound therapy was disappointing. It was frustrating how little they knew or seemed to care about the condition. They had not even heard of things like tonic tensor tympani syndrome.

In my opinion, CBT is essentially counseling for mild to moderately severe cases. It provides support for people who need time to adjust and habituate, along with a safety net in case psychiatric intervention becomes necessary.
 
Even my visit with an audiologist about sound therapy was disappointing. It was frustrating how little they knew or seemed to care about the condition. They had not even heard of things like tonic tensor tympani syndrome.

In my opinion, CBT is essentially counseling for mild to moderately severe cases. It provides support for people who need time to adjust and habituate, along with a safety net in case psychiatric intervention becomes necessary.
@IYIiKe, 100% agree. Has your condition worsened over the last couple of months? I'm sure I read something here where you mentioned struggling more.

The hopelessness sets in when you realize they have no real understanding or explanations for tinnitus, reactive tinnitus, loudness hyperacusis, pain hyperacusis, TTTS, or the causes of hearing loss.

It's like taking your car to a mechanic and leaving with a leaflet advising you to get counseling.
 
I agree with everything @IYIiKe and @Nick47 have said. CBT is likely a somewhat effective tool for those who initially experience mild, single tone tinnitus. This type of tinnitus can often be masked by everyday sounds and is primarily noticeable in quiet rooms. I completely understand how this can be a massive shock for someone just starting to experience it, leading to tinnitus distress. CBT seems helpful for guiding these individuals toward habituation.

Ironically, I dealt with this form of tinnitus for over a decade without experiencing any distress. I remember thinking, "I probably deserve this after years of loud music," and just went about my life. At night, I would sometimes think, "Wow, that is loud," but I would still fall asleep without much trouble.

Fast forward to a couple of years ago: I developed TTTS, reactive tinnitus, shock like sensations (likely due to nerve damage), and mild hyperacusis after a poorly fitted hearing protection episode during an NHS MRI. Now, I have a severe quality of life issue primarily driven by the physical symptoms I endure. No amount of CBT can address this.

I have mentioned before that I am under the care of a local NHS audiologist who provides counseling. However, it focuses mainly on the idea that anger fuels the emotional impact of tinnitus. It feels like the wild west, as every provider seems to create their own version of CBT, counseling, or relaxation techniques. For example, the audiologist was shocked that one of the world's leading middle ear doctors had prescribed medication for tinnitus, arguing that NICE guidelines do not recommend it.

The severity of some people's conditions and their impact on quality of life are often misunderstood. Everyone is treated as though their condition is the same, which simply is not accurate. To use a somewhat imperfect analogy: would you treat someone with a small, nonmalignant skin cancer the same way you would treat someone with an invasive tumor?
 
@IYIiKe, 100% agree. Has your condition worsened over the last couple of months? I'm sure I read something here where you mentioned struggling more.

The hopelessness sets in when you realize they have no real understanding or explanations for tinnitus, reactive tinnitus, loudness hyperacusis, pain hyperacusis, TTTS, or the causes of hearing loss.

It's like taking your car to a mechanic and leaving with a leaflet advising you to get counseling.
I am beginning to understand that my primary issue is not necessarily the fluctuation of my tinnitus (though it does fluctuate) but its intrusiveness. When I am more aware of it, I find it more bothersome, but this awareness seems to happen subconsciously. Stress plays a role, of course, but the intrusiveness can increase even without stress. When my awareness of it is heightened and it feels more intrusive, I become more determined to seek out research, try to learn, and even work on building Gantt charts of existing tinnitus studies.

Concurrent factors, like driving (I experience ear pressure from even extremely minor changes in elevation), also increase my awareness that I am living with a disability. Similarly, when TTTS flares up and my ears react to sounds like clicks, plates, or utensils, it serves as a reminder that something is damaged. Combined with the tinnitus, hearing what no one else can, and the occasional dull ear pain that comes out of nowhere, I am constantly reminded that things could always get worse.

The most frustrating part is the attitude or assumption that there must be something wrong with me psychologically for being bothered by it. Talking to someone who is supposed to be an expert in what I am describing, only to find them dumbfounded, is disheartening. The only solace I find is in being able to share knowledge about upcoming treatments (like noninvasive implants or Susan Shore Device) in the hope that these experts will take it upon themselves to stay informed and offer better options in the future. In a way, it feels like a duty to the community, so that perhaps someone else might have access to better information than I had.
 
The severity of some people's conditions and their impact on quality of life are often misunderstood. Everyone is treated as though their condition is the same, which simply is not accurate. To use a somewhat imperfect analogy: would you treat someone with a small, nonmalignant skin cancer the same way you would treat someone with an invasive tumor?
100%. I was given an MRI after mentioning that sound made my tinnitus worse. I was herded into the machine like cattle by a private company focused on making money. They provided broken hearing protection and had a "get in, get out, and go" attitude.

The severity of tinnitus is measured solely by the patient's reaction to it. Yet, when I walk into a modern hospital building, the quality of care in Audiology and ENT departments feels stuck in the 1970s; primitive, much like eyecare was back then.
 
I did two private sessions with Dr. Bruce Hubbard (not cheap) and completed his online course. He's a nice enough guy, but as others have mentioned, CBT didn't feel groundbreaking to me. Essentially, it focused on encouraging you to resume normal activities and being mindful of negative thoughts. Unless I missed something, there didn't seem to be much more to CBT than that. Many of the tips were things anyone who's browsed this forum or done some quick research would have already seen, like sound masking. It does a disservice to severe cases to consider CBT a one-size-fits-all solution.
I want to weigh in on Bruce Hubbard's course. I also took his self-guided course. I enrolled in the course at a point when I was really struggling with tinnitus due to other events. My two cents echo @Cmspgran's thoughts: The course mainly consists of rehashing the same themes you find online that form the foundation of TRT. The mantra is always the same: you will adapt and get used to it once you accept the tinnitus.

One frustrating thing about Hubbard is his constant insistence that his course is evidence-based and that CBT is "the only evidence-backed treatment." The first issue with this claim is that he constantly shows the same recovery chart, which shows that, as time progresses, the tinnitus annoyance goes down. However, by his admission, this chart is based on his personal experience. Not research. Second, once you start looking at the cited studies (very few are actually cited), CBT indeed has a statistically significant effect on tinnitus annoyance. But the effects are really small. The best you can expect is to nibble a few points from your annoyance. But that's it. In summary, CBT may be the best option, but as most of us know, it's not good enough. We deserve better than a bunch of motivational quotes and breathing exercises.

What about Bruce Hubbard's own "motivating" story? What about him (and some others) being completely habituated to very bad tinnitus? Maybe this is true. However, my personal opinion (hypothesis) is that variability between people makes some people adapt while others do not. No matter how much CBT you throw at the second category of people, the effects will be minimal. The idea that "everyone can do it because I did it" is just naive. Or worse: it leaves the rest of us wondering what we do wrong.

In short, the only one guaranteed to benefit from Bruce Hubbard's course is Bruce Hubbard.
 
I want to reiterate that I think the value of CBT lies in its similarity to virtually any form of therapy: it provides an opportunity to talk with someone who can empathize with what you're going through while helping you process and adapt to tinnitus.

A good therapist, in my opinion, would be upfront about the fact that there's no guaranteed improvement in your tinnitus. Instead, the focus would be on the value of discussing your experiences with someone outside your immediate support network. For many of us, this can be incredibly helpful.

Most of us likely want to avoid overburdening our families and friends, especially during the acute phase of tinnitus. For severe sufferers, this phase might be their first major health crisis or, at the very least, the most impactful one. Having an outlet to vent, someone who isn't part of our family or close circle, can help alleviate some of the stress and guilt we feel about how our condition affects others.
 
Hi, Just think back to the last time you were so engrossed in some activity that you didn't notice your Tinnitus. That is what focussing is all about and that's how you retrain your brain to focus away from tinnitus until eventually you notice that you don't notice it anymore.
This is true. It really is that simple, at least on the surface! The key, I think, is to engage in something that naturally absorbs your attention, something you enjoy or find challenging. For example, if I have a cold and end up staying home without much to do, I notice my tinnitus much more.
 
I'm experiencing moderate to severe tinnitus (by my own estimation, as we all know there is no objective measure). I am considering a CBT course, such as the one offered by Dr. Hubbard. While I would love for the tinnitus to go away, I have accepted that it might not. I refuse to spend my life wishing for something that may never happen. Instead, I want to learn to be okay with things as they are, noisy, distracting, and sometimes distressing.

I am already a meditator, but meditation has become incredibly difficult since developing tinnitus. This is one reason I found Dr. Hubbard's story so appealing; he also had a mindfulness practice before experiencing loud tinnitus. His journey makes me feel like there is hope for someone in my position.

That said, I am still unsure. What if I just end up wasting money? I considered TRT to help speed up the adjustment process, but I am hesitant to introduce additional sounds to my ears, given that this issue originally stemmed from sound exposure.

I hope this makes me a good candidate for CBT, an MBSR course, or something similar.
 
I think you can still frame the experience as positive if you approach it with the understanding that it might not help. Even so, it's worth trying, as it could be valuable if a future treatment becomes available.

Spending money on your well-being is easier to view positively than simply losing it on something like roulette.
 
I'm experiencing moderate to severe tinnitus (by my own estimation, as we all know there is no objective measure). I am considering a CBT course, such as the one offered by Dr. Hubbard. While I would love for the tinnitus to go away, I have accepted that it might not. I refuse to spend my life wishing for something that may never happen. Instead, I want to learn to be okay with things as they are, noisy, distracting, and sometimes distressing.

I am already a meditator, but meditation has become incredibly difficult since developing tinnitus. This is one reason I found Dr. Hubbard's story so appealing; he also had a mindfulness practice before experiencing loud tinnitus. His journey makes me feel like there is hope for someone in my position.

That said, I am still unsure. What if I just end up wasting money? I considered TRT to help speed up the adjustment process, but I am hesitant to introduce additional sounds to my ears, given that this issue originally stemmed from sound exposure.

I hope this makes me a good candidate for CBT, an MBSR course, or something similar.
I am a former patient of Dr. Hubbard, mostly in-person, although some of our sessions were done via video calls on SKYPE, etc. You can learn how to control your reactions to tinnitus and related problems by following his method, the core of which he first developed for his own use to deal with his tinnitus. Forget about a "cure" that may never materialize - when you don't care about tinnitus, you don't need a cure. CBT for tinnitus does not work for everybody, but most who try it achieve very satisfactory results.
 
CBT is currently the best option available for managing tinnitus, but in absolute terms, its effectiveness is quite limited.

Practitioners who claim otherwise are being dishonest and, I suspect, are attempting to protect their business models. For example, Hubbard asserts that CBT's effectiveness essentially makes it a "cure" for tinnitus. This claim is scientifically unsound, invalidates the real suffering of individuals, and misleads people into believing there is no urgency in finding an actual cure for this condition.

A 2020 review found that, compared to untreated groups, CBT may result in a reduction of approximately 10 points on the Tinnitus Handicap Inventory (THI). However, for someone severely struggling with tinnitus, this reduction is unlikely to provide substantial relief. For example, a THI score of 70 is classified as "severe." After CBT, this score might be reduced to 60, which is still within the "severe" category.

It's also important to note that a reduction of fewer than 7 points on the THI is considered "not clinically significant." While CBT does slightly better than this threshold, the improvement remains modest. Furthermore, when compared to other interventions, such as support from online forums, CBT performs only about 5 points better on the THI. Since the clinical significance cut-off is 7 points, this difference is not statistically distinguishable from other interventions.

Additionally, the long-term benefits of CBT have been scarcely studied. While CBT may facilitate some recovery during the duration of studies, it's possible that individuals would achieve similar progress over time without undergoing CBT.

Note: The numbers mentioned here are based on the following paper, and the interpretation is my own:
Fuller, T., Cima, R., Langguth, B., Mazurek, B., Vlaeyen, J. W., & Hoare, D. J. (2020). Cognitive behavioural therapy for tinnitus. The Cochrane Database of Systematic Reviews, 2020(1).
 

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