Cure for Hyperacusis??

[VRZ78]

For me habituation is when you hear your T only when you think about it, and when you think about T only once in a while. It's like you forget you have it.

 

[Michael Leigh]

For me habituation is when you hear your T only when you think about it, and when you think about T only once in a while. It's like you forget you have it.

You have described habituation quite well @VRZ78 . Some people are looking for a complete cure from their tinnitus and hyperacusis. With this kind of mindset they will find it very difficult to accept tinnitus or hyperacusis and therefore never habituate. A person can hear their tinnitus when it is mild or moderate, as I do and can go about their day doing everything that they want to without it being a problem. When tinnitus is intrusive devices like white noise generators and sound therapy can be helpful.

 

[Taylorslay]

Can we get this post back on a cure about H?

 

[Taylorslay]

From what I've been reading most of the researched treatment seems to be from private institutes. Sometimes it's hogwash and others eh there's something substantial. But what seems to be the case in most of them is they aren't getting to the root of the problem. They are just masking it for example the Round and Oval Reinforcement. It just seems like a glorified earplug.

 

[Michael Leigh]

From what I've been reading most of the researched treatment seems to be from private institutes.

Hyperacusis can be cured but this will not be the case for everyone that has it. The best treatment for it is using sound therapy, wearing white noise generators for up to 10hrs a day and using a sound machine at night, to desensitise the auditory system. Regular counselling with a Hearing Therapist/ Audiologist is advised. Hyperacusis can improve on its own without treatment. Whether a person has treatment or not, it can take many months up to 2 years to cure or reduce to a level where it is not too problematic. If hyperacusis is left untreated or doesn't improve by itself over time, it can cause tinnitus to spike, due to the auditory system being hypersensitive to sound.

Michael

 

[lapidus]

But what seems to be the case in most of them is they aren't getting to the root of the problem.

No, since the root isn't even known.

 

[Taylorslay]

No, since the root isn't even known.

You're right :/

Part of me thinks there's something wrong within the brain or the nerves. Oh that brain that we barely know anything about.

 

[DebInAustralia]

my h is dramatically improved with adipose derived stem cells

 

[lapidus]

You're right :/

Part of me thinks there's something wrong within the brain or the nerves. Oh that brain that we barely know anything about.

Well, there's a lot of stuff happening in the research world at the moment that gives me hope.

 

[Taylorslay]

Well, there's a lot of stuff happening in the research world at the moment that gives me hope.

In a way same but man if I have to take some kinda drug for this gosh I will. Something, anything. Not something that'll fix part of it, all of it.

 

[SilverSpiral]

This is the last time I will be responding to your post. I am here to help people and so far I haven't had any complaints. I also help people that email me and do counselling on the telephone.

All the best
Michael

Woah there... no complaints? That doesn't sound true. I've got a big complaint about your conduct towards me and my condition which I feel is bullying.

As do several others regarding your attitude towards hearing conditions. For Example:

I recognize the need to state that I am not quite comfortable with @Michael Leigh talking about "explaining my condition".:/ It simply doesn't feel right to diagnose people without the qualification and data to do so. Even professional specialists wouldn't diagnose anyone without tests and thorough examination of the case. That being said, it is very much okay and even welcome to say one's opinion and present a theory. We are all trying to make sense of T and the types of it, while even the experts are presenting dissenting theories. Therefore while doing theorizing and stating opinions here in the forums, it must be alright for people to disagree and say it doesn't really apply to them and their condition. We should be equals in discussion.

@SilverSpiral Thanks for sharing your thoughts and helping to stand up to @Michael Leigh . Interesting that you used the word bully when responding to him... I was just thinking about how he argues relentlessly about how reactive tinnitus doesn't exist, etc and the word bully came to mind as well. If a group of people want to discuss reactive tinnitus in a thread they should be able to! If you look at any of the threads here relating to reactive tinnitus, there will be endless posts by ML debating and arguing about all he disagrees with and pushing his own agenda based on his experiences only. Essentially the threads are being endlessly hijacked and people are not able to productively discuss what they want to.

Obviously you'll read this, ML, because I tagged you. You obviously don't suffer from the symptoms people describe as reactive tinnitus. Therefore, these threads don't apply to you. Stop dismissing the experiences many people here have (which is pretty horrible btw having to deal with constant endless spikes) and let them discuss things as they wish. Feel freed of your duties as the There is No Such Thing as Reactive Tinnitus police. Everyone already knows how thoroughly you disbelieve in the phenomenon and their individual experiences with it. So consider your job well done; however, you've got quite a lot of people who disagree with you!!!

^expand that quote, it is great insight into a thread where his help received many complaints.


and further

lol, BIG BIG mistake made on my post to @Michael Leigh... (ML, don't go thinking that my typo is some kind of sign, now.... mm'kay there, big guy) Here's the corrected version:

You need to understand that you are not the authority on everything tinnitus. The term Grand Poobah comes to mind when thinking of you - not in the reverential sense, but the opposite. One that comes from a place of extreme self-importance - haughty and pompous.

Anyone that disagrees with with Michael Leigh gets called rude.

And Tom commenting on Michael's stance on marginalizing people with a hearing condition that differs from his..

I don't know why one person in particular spends so much time trying to say reactive tinnitus doesn't exist.

If the phenomenon is just a symptom of hyperacusis - it's still a discernible symptom from the pain response from sound that is not accompanied by hearing distortion in the form of ringing. Furthermore it can exist separate from a pain response.

What on earth is the issue with further categorizing symptoms? Yeah - it's something that came from conversation on forums. Tinnitus is a subjective disorder. Literally ALL of the symptoms come from trends determined from anecdotal patient reports.

I had it. Certain notes would make me hear feedback, like a mic was turned toward a speaker. It lasted a few months. Shit by any other name would smell as terrible. Stop arguing semantics and just talk to people about what they're struggling with.

You can say you try to help, because that is probably what you genuinely believe, but don't say you've never had a complaint.

Your words have made aggravated depressed and suicidal ideation at the worst of times for me. I don't want to see it happen to others.

@Telis @Lex and several others have some complaints too i believe. Not just in this thread but several others.

 

[Contrast]

Paul Fuchs, Ph.D.[/B]
John E. Bordley Professor and Vice-chair for Research in Otolaryngology
Johns Hopkins University School of Medicine

Showed us that damaged Type II neurons do not require an extremely loud sound stimulus to transmit "this hurts!" information to the central nervous system. Because these neurons are strongly activated when the outer hair cells are damaged, they may serve as the cochlea's nociceptors.
.

I'm really hoping this is the case so hair cell regeneration will solve hyperacusis/reactive tinnitus and give me my higher frequencies and better quality hearing back.

 

[Tony Phylactou]

I got to thinking today, that these days there is a whole lot of research on tinnitus and finding a cure or better treatment, but I don't see any research on hyperacusis being done? No effort to find a cure there?

Am I wrong? or is it because what could potentially treat tinnitus would also eliminate hyperacusis?? I must admit that I see Hyperacusis and Tinnitus as two very different conditions, and I don't see why a treatment that works on T necessarily would remove H.

I'm glad that research on tinnitus is growing but I'm sad and a bit scared that there is no spotlight on hyperacusis which is almost just as awful as tinnitus (maybe even more in some severe cases)

Loud noises make me feel very uncomfortable and scary without any pain . Is that Hyperacusis or phonophobia@ Does anybody know?
Even people talking loud in cafeterias make me uncomfortablle .

 

[Hania]

There is 0,000001 percent chance they are going to find a effective cure for tinnitus , for hyperacusis those chances are wayyyyyyy slimmer ... Im hopefull about Susan shore her device for tinnitus for im afraid that it will induce one's hyperacusis in the long term.. So sad the medical field is letting us down

 

[TheDanishGirl]

Loud noises make me feel very uncomfortable and scary without any pain . Is that Hyperacusis or phonophobia@ Does anybody know?
Even people talking loud in cafeterias make me uncomfortablle .

Me too, I have developed some form of Phonophobia.

I think if one is an anxiety prone person with T, like I am, then it is 100% impossible not to develop at least slight Phonophobia.

 

[Tony Phylactou]

Me too, I have developed some form of Phonophobia.

I think if one is an anxiety prone person with T, like I am, then it is 100% impossible not to develop at least slight Phonophobia.

Thank you for your reply I agree with you.The question is should we protect our ears from noise or just ignore it?
What do you do?

 

[TheDanishGirl]

Thank you for your reply I agree with you.The question is should we protect our ears from noise or just ignore it?
What do you do?

A bit of both....I try to go with my gut feeling or instinct and make sure I do not overprotect....at least too much....but if I am in fairly noisy enviroment for a longer time then I do plug my ears.

 

[dingaling]

Wow, just been reading through this thread and we don't need all of this mud-slinging....

I am really interested in hyperacusis and one day, hopefully one day, there'll be positive moves towards a definitive cure. But of course, there are varying degrees of hyperacusis and whilst some individuals can be successfully treated with TRT, sadly, others aren't as lucky

Even more sad, is that there is no cure for those with facial nerve paralysis proximal to the branching of the stapedius muscle (such as through the shingles virus) or for those with global hypersensitivies such as those on the autistic spectrum (including Aspergers).

Many people with H will need psychotherapy, CBT and practice relaxation techniques to bring down their state of hypervigilance

Can we stop all of this playground nonsense and talk about possible cures for H ?

 

[Michael Leigh]

I am really interested in hyperacusis and one day, hopefully one day, there'll be positive moves towards a definitive cure. But of course, there are varying degrees of hyperacusis and whilst some individuals can be successfully treated with TRT, sadly, others aren't as lucky

Hyperacusis can be cured or at least suppressed to a very low level. For many people the auditory system will desensitize over time. The danger is the overuse of hearing protection as this can lower the loudness threshold of the auditory system and make it more sensitive to sound. My post: Hyperacusis, As I see it, in the link below explains how hyperacusis can be treated with self help. I once had very severe hyperacusis. It has been completely cured for 20 years.

Michael


https://www.tinnitustalk.com/threads/hyperacusis-as-i-see-it.19174/

 

[dingaling]

Indeed Michael and as much I like your posts, for some people (with the example conditions I posted), TRT simply doesn't work for them and treatment becomes more challenging

Re your link, for those with vestibular-induced hyperacusis, this is common in people with superior semicircular canal dehiscence (SSCD) where there is a "fault" or excess thinning of the bone that requires surgical "patching up"

 

[Contrast]

@Michael Leigh as much as I disagree with you on TRT, you offer very good advice about hyperacusis.

 

[Michael Leigh]

Indeed Michael and as much I like your posts, for some people (with the example conditions I posted), TRT simply doesn't work for them and treatment becomes more challenging

Re your link, for those with vestibular-induced hyperacusis, this is common in people with superior semicircular canal dehiscence (SSCD) where there is a "fault" or excess thinning of the bone that requires surgical "patching up"

@dingaling

All my posts including those on my "Started Threads" are advice and treatment for tinnitus and hyperacusis caused by "Noise Trauma" to the auditory system. Typically, this is caused by using headphones at high volume levels, or going to places where loud music is played or other environments where one is exposed to overly loud sounds, resulting in tinnitus with or without hyperacusis.

Tinnitus is complex and can be caused by many things. Since my tinnitus was originally caused by noise trauma, I mostly advise about this as it's what I'm familiar with.

In many cases a person doesn't need TRT or CBT treatment. I would advise someone new to tinnitus not to start these treatments no sooner than 6 months in and perhaps longer. Many people habituate to tinnitus within the first 6 to 18months with or without specialist treatment.

Michael

 

[Lane]

Youtube Video - 54-Min. - Describes a new and relatively-noninvasive surgery for H. The video is a little drawn out, but the surgery sounded promising to me (sounded almost less invasive than a dental visit). There's a discussion with about 4-5 people who've had it done, and has greatly improved their hyperacusis and quality of life.

A New Treatment For Hyperacusis 2016 2nd Seminar Master

 

[dpdx]

CBT is useless. TRT to me sounds so archaic, this isn't 1960 but 2018. We need to have seriously a drug or some sort of T reducing treatment.

 

[IvanRus]

How is hyperaucosis treated? Is there any advice?
Did someone have hyperacusis from taking prednisolone?

 

[John_foster26]

CBT is useless. TRT to me sounds so archaic, this isn't 1960 but 2018. We need to have seriously a drug or some sort of T reducing treatment.

Many people wish there were a drug or treatment available that would reduce tinnitus to complete silence, or to a very low level but there isn't at the moment and we have to accept it. If possible try and get whatever treatment you can.

 

[Marko Nakovski]

@DebInAustralia Hello
Can you please tell me more about adipose derived stem cells ? I suffer from severe hyperacusis, any advice about this cells would be great to hear. Thanks