Glad you feel a desire to live on. I personally get irritated by people who talk about how "I've lived with this condition for 20 years", as if two tinnitus sufferers are the same.
Does Anyone in the Medical Field Try to Help without a Paycheck as Their Motive?
- Thread starter Gl0w0ut
- Start date
MemberIs Glowout doing the right thing for himself though? Ever since he found that study linking tinnitus to cognitive decline, he seems to be even more depressed and hopeless than usual.
Don't give up man, I know this might be the last thing you want to hear but you will learn to live with it eventually.
I tried explaining to him because his tinnitus was induced by hearing loss that cochlear hair cell regeneration would restore input and possibly lessen his tinnitus if Frequency Theraputics is successful. Then I said if that didn't work atleast Susan Shores device might help.
It's not just the tinnitus. Its the hearing loss too. I'm already 10 to 20 years ahead of where I should be, which means in 10 to 20 years I may not be able to listen to the music or I love or do any activities I like anymore. My right ear appears to be where it should but my left ear isn't. It's broken, it broke my brain too and gave my tinnitus.
He told me that solving tinnitus is impossible which I think is being irrationally and pessimistic. I'm just being unbiased here. I am not going to know anything until Susan Shores device and Frequency-tx advance in clinical trials.
Stop talking about me like I'm not here. This is my goddamn thread. Are you some sort of salesman for Susan Shore's device? It sure sounds like it, just like those audiologists who take $300-500 for a worthless intake session at a tinnitus clinic
About the whole gray matter disappearing theory, check this Ted Talk:
The speaker has a hole the size of a baseball in his brain yet seems perfectly fine.
Also in other studies there was the hypothesis that smoking marijuana from a young age induced loss of grey matter. Research later found out that this was the case but the brain creates more connections which make up for the lost grey matter which makes up for any lost function, the brain is plastic beyond our understanding.
All this research in the end is just ''theory''. The reality is much more complex.
The speaker has a hole the size of a baseball in his brain yet seems perfectly fine.
Also in other studies there was the hypothesis that smoking marijuana from a young age induced loss of grey matter. Research later found out that this was the case but the brain creates more connections which make up for the lost grey matter which makes up for any lost function, the brain is plastic beyond our understanding.
All this research in the end is just ''theory''. The reality is much more complex.
Yes, just as the tinnitus brain makes new connections too. The Nucleus Accumbens is an area that has hyperactivity, theorized to be picking up the slack for the reduction of grey matter in the medial prefrontal cortex.
New connections as a comepnsatory measure is what created this mess to begin with, and in this context, they are not a good thing. New connections imply the death or decay of neurons elsewhere in the brain, otherwise new connections would not be needed.
Grey matter reduction isn't a theory, it is an observable and repeatable fact.
True, but there are many more factors at play here and it's not that we are completely powerless over this.
Mindfulness meditation for example is shown to aide neuroplasticity, this is also a reason why CBT works, our thoughts literally create neural pathways i.e. neurons that fire together wire together, think positive and you will create these pathways, think negatively and you create these. By creating a negative emphasis on tinnitus you are literally monitoring it more and sending more blood flow to this part of the brain, in this sense a positive attitude is not only better for your mental wellbeing it's also better for the eventual reduction (of perceived) tinnitus.
I don't even get what you try to say most of the time as I don't understand Google translate Spanglish, the only thing I do know is that absolutely everything you have to say is extremely negative and not even worth reading.
Thought doesn't lead to neurogenesis. Positive thought may make me less bothered by tinnitus but it doesn't create new pathways. If you insist on that argument then I demand to see imagine evidence.
Well it actually does and makes sense as well, this is also why clinical depression is very difficult to treat as it is literally ''hardwired'' in the brain. Dr. Rick Hanson has written a few interesting books on neuroscience and mindfulness, if you want I can send you a copy via PM.
Clinical depression is hard to treat because it results in the dysfunction and shrinkage of areas of your limbic system, such as your left hippocampus, which, surprise surprise, is also implicated in tinnitus sufferers. However, research directed at the limbic system is a red herring in my opinions. Many afflicted areas are also effected by depression, PTSD, anxiety, etc.
Also true, on the other hand the brain has the ability to ''train'' other parts to take over lost function.
So it's not as clear cut as you make it out to be (just keeping some optimism here).
If it does it as well as it does it to take over the loss of hearing, we're in for a real treat!
Ho doesn't seem to fully understand what he is talking about. What he just described can bee loosely applied to plasticity, the creation of new connections in the wake of neural death. Your brain doesn't "retrain: itself. Its as absurd as some asshole on Reddit who claims LSD trains your brain to resist depression.
Indeed, in the case of Tinnitus it is often referred to as maladaptive plasticity (for a reason).
There's an audiologist that works at the local University. He's set it up with the school that you can get free hearing tests, and even T stuff. He was blunt and up to date on current T research. Even offered to have me go to a CBT class to help. He had plenty of options and routes. Yes, the students get the training they need. But he monitors it all and you get his sage advise and full check up.
I was impressed and moved that such a program exists. I know it wasn't just him offering it alone it was all through the university.
I was impressed and moved that such a program exists. I know it wasn't just him offering it alone it was all through the university.
We know that already, though, don't we? Of course someone who acquired T in his 20's will still have it when he's 92 since there is no cure.
Glowout was worried about cognitive decline; Shera told a reassuring story highlighting the fact that, even after having T for decades, her grandfather is still sharp as a tack. That story is the complete opposite of "scaring the poor boy", it's quite reassuring actually.
And as Sven mentioned, if you acquired tinnitus 70 years ago, and there's still no cure, well of course you'd still have tinnitus. This should be readily apparent to anybody with a half a brain (pun intended)....
Gl0w0ut, you have to understand that you're depressed, stressed out, and fed up. Your thoughts are all over the place which is normal and totally understandable. I've gone through issues during my life starting in my early teens where I've been severely depressed, I mean beyond low, looking for ways to end my life. I acquired tinnitus around the age of 18/19, but it was more more of an underlying hissing sound. That depressed me for a while as well, but I got over it quite quickly. Due to my negligence, I made my condition worse 3 years ago.
Anyway, what I'm trying to tell you is that the road ahead is unclear. You have NO idea how you'll be feeling next year let alone in five or so years. You are being lead by your emotions which are currently all over the place. At my lowest points, I'd never foresee myself being in the position I'm in now which is happy and fairly content.
At 19 I remember lying in a hospital bed praying that I didn't wake up the following day; my spirit was gone. I was a shell of a person. If I could go back in time and talk to myself it would have been a revelation. And yet, I still think my cynical 19 year old self would disbelieve it, because that is how catastrophic our thoughts become when we are that low.
Try to condition yourself with positive reinforcement and stop the rumination type behaviour. It is incredibly hard, but it takes baby steps to make giant strides. I have no personal reason to be here anymore, but I try to help if I can.
- Jun 6, 2013
- 1,373
- Tinnitus Since
- January 2002
- Cause of Tinnitus
- Dental Surgery
Just curious about that part of your theory. Thoughts can increase blood flow to a particular part of the brain?
Thank you for sharing your experience. In one year you found what worked best. It sort of follows my own path back in 2002. But it took a couple of years to be able to even leave my house.
We are lucky to have reasons like the financial ability to get help. Having spouses even though yours is not quite as understanding? And your new born son (congratulations). Did you get back to your career as a broker?
So many do not have any support financially or significant other to be able to have hope. So many people I have worked with lost everything because of the inability to overcome the tinnitus barrier. And it seems like so many young people are so distraught.
This makes it very challenging to deal with this infliction for a majority of tinnitus sufferers.
TuneOut
Member
If only tinnitus could be 'proven' and measured with someone.
Than you could at least make a damage claim right after the event. Like 'I used these earplugs, they went to 150db for 2 seconds now I have T, here look at my T-o-meter'. At least then you would get some compensation for the event.
If they sell a car and the belt buckle brakes you could claim damages, but if your earplug does 150db for 2 seconds, the earplug can just stay on the market and you can do virtually no damage claim.
Perhaps there should be a political party for T sufferors, Like the T-party.... or ehm Tinnitus party. They could be pro elektric cars... because there more quiet for T sufferors
and such. Anyways, im just doing my own rant here.
There should be more financial compensation and acceptance on T I think.
I hear, basic insurance covers acupuncture over here in Holland, I think im gonna do that, its free
.
Than you could at least make a damage claim right after the event. Like 'I used these earplugs, they went to 150db for 2 seconds now I have T, here look at my T-o-meter'. At least then you would get some compensation for the event.
If they sell a car and the belt buckle brakes you could claim damages, but if your earplug does 150db for 2 seconds, the earplug can just stay on the market and you can do virtually no damage claim.
Perhaps there should be a political party for T sufferors, Like the T-party.... or ehm Tinnitus party. They could be pro elektric cars... because there more quiet for T sufferors
and such. Anyways, im just doing my own rant here.There should be more financial compensation and acceptance on T I think.
I hear, basic insurance covers acupuncture over here in Holland, I think im gonna do that, its free
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