Does Papilledema Relate to Pulsatile Tinnitus?

[Taneisha]

I was diagnosed with papilledema in my eye, they say pulsatile tinnitus, headaches and papilledema relate to each other. They gave me Acetazolamide pills 500mg and they say it's suppose to help get fix it all, my headaches are gone but my pulsatile tinnitus is very much the same. I'm hoping it helps.

 

[tiniturtle]

I was diagnosed with papilledema in my eye, they say pulsatile tinnitus, headaches and papilledema relate to each other. They gave me Acetazolamide pills 500mg and they say it's suppose to help get fix it all, my headaches are gone but my pulsatile tinnitus is very much the same. I'm hoping it helps.

If you have a cerebrovascular issue that is causing intracranial pressure, or pressure behind your eyes, yes. What part of the US do you live in?

 

[Taneisha]

@tiniturtle I live in Maryland.

 

[tiniturtle]

@tiniturtle I live in Maryland.

I go to NYU Langone. The doctors there are outstanding. I would highly recommend you go there. Johns Hopkins is good too, but I've heard some not so good things.

 

[tiniturtle]

I was diagnosed with papilledema in my eye, they say pulsatile tinnitus, headaches and papilledema relate to each other. They gave me Acetazolamide pills 500mg and they say it's suppose to help get fix it all, my headaches are gone but my pulsatile tinnitus is very much the same. I'm hoping it helps.

That isn't going to solve the problem, that's just temporary to help the symptoms. You need a new doctor. You could risk losing your vision, among other things.

 

[Secole]

@Taneisha,
I have the very same issue. It all started off with pulsatile tinnitus, headaches, and other symptoms. No doctor could help me. The pulsatile tinnitus was the worst symptom. After numerous efforts, I finally found a good doctor who diagnosed me with IIH. Symptoms are headaches, visual problems as well as pulsatile tinnitus. I too was given the same medication as you but it did not help. I was switched to another medication and it has been helping. It drains extra cerebral fluids which results in my symptoms lessening, especially the pulsatile tinnitus, it completely stops. It only starts up again when my cerebral fluid levels pick up again. The main goal of treatment is to prevent vision loss. If the intracranial pressure reaches too high levels, it can press on the optic nerves causing vision loss. I haven't had my procedures done to fix this condition because of COVID-19.

If you have more questions, please ask me.