Dysacusis (Hearing Distortion) etc.

[Contrast]

I really don't know to be honest. I just want it to end. I really have no idea what happened to me.

Do you have a history of noise exposure, loud mp3 players, cars, motorcycles, concerts. anything with loud noise?

 

[Hariz Nonis]

Do you have a history of noise exposure, loud mp3 players, cars, motorcycles, concerts. anything with loud noise?

Yeah, prior to getting dysacusis, I was using Bluetooth/wired earphones for the past few months. Volume was no more than 60%, in fact mostly just over 50%. I also didn't use them everyday. I'm currently having an internship, and my work desk is very close to air conditioning units. I was using the earphones to cover up the sounds of those things while at work.

My old T had basically subsided before this.

What are your thoughts?

 

[Michael B]

@Hariz Nonis It was mild for me. And yes, it did go away.

 

[Contrast]

Yeah, prior to getting dysacusis, I was using Bluetooth/wired earphones for the past few months. Volume was no more than 60%, in fact mostly just over 50%. I also didn't use them everyday. I'm currently having an internship, and my work desk is very close to air conditioning units. I was using the earphones to cover up the sounds of those things while at work.

My old T had basically subsided before this.

What are your thoughts?

what caused your old tinnitus?

is the internship work loud?

 

[Hariz Nonis]

@Hariz Nonis It was mild for me. And yes, it did go away.

That's great. Hopefully things will only get better, for all of us

 

[Hariz Nonis]

what caused your old tinnitus?

I don't know, I had ETD, and still do. I also watched a movie the day before it started. It had one of those ringing sounds in a scene as the characters were almost struck by lightning.
It went away after a few months. I only started using headphones/earphones months after it went away too. In the beginning, I didn't wear them a lot.

is the internship work loud?

Well, the air conditioning units are not quiet, that's for sure. I also made a few loud noises with my friends, sometimes in the lift, a few times before getting in my current situation. We sometimes screamed at each other, etc., just for fun. I don't know if this is significant, but during my internship period(only for three days though), I ate lunch in the office while wearing earphones.

 

[Contrast]

I only started using headphones/earphones months after it went away too. In the beginning, I didn't wear them a lot.

i only use headphones seldomly now. I use to use them almost always and never on high volumes.

Tinnitus is the brain compensating for a loss of hearing, hearing does not naturally regenerate. The tinnitus will fade due to unknown mechanisms in the brain but the hearing damage is still present and since the inner ear is damaged, the second time it gets damaged the tinnitus can come back and or get worse.

 

[Hariz Nonis]

i only use headphones seldomly now. I use to use them almost always and never on high volumes.

Tinnitus is the brain compensating for a loss of hearing, hearing does not naturally regenerate. The tinnitus will fade due to unknown mechanisms in the brain but the hearing damage is still present and since the inner ear is damaged, the second time it gets damaged the tinnitus can come back and or get worse.

Do you think things can get better for me now?

 

[Contrast]

Do you think things can get better for me now?

did you get tested for hearing loss?

 

[Hariz Nonis]

did you get tested for hearing loss?

Well, the doctor I visited recently did a Weber and Rinne test on me. For the Weber test, my right side(the affected side) picked up more of the sound, which might indicate conductive hearing loss. ETD might play a part in it. I'll link my most recent thread. You can read through all the mesaages and tell me what you think, including if things can/will get better. Hopefully it will, soon.

https://www.tinnitustalk.com/threads/is-my-respiratory-system-causing-the-ringing-i-hear.32703/

 

[Contrast]

Well, the doctor I visited recently did a Weber and Rinne test on me. For the Weber test, my right side(the affected side) picked up more of the sound, which might indicate conductive hearing loss. ETD might play a part in it. I'll link my most recent thread. You can read through all the mesaages and tell me what you think, including if things can/will get better. Hopefully it will, soon.

https://www.tinnitustalk.com/threads/is-my-respiratory-system-causing-the-ringing-i-hear.32703/

if you were around very loud noise for an extended period of time that will result in Sensori-neural. Conductive hearing loss can also generate tinnitus.

Can the conductive hearing loss be fixed?

 

[Hariz Nonis]

if you were around very loud noise for an extended period of time that will result in Sensori-neural.

I don't know if my usage of the earphones were for an extended period, though... I don't think it was. Except for last week, I've used them at no more than 65% volume for no more than 120 mins in a single day, if I can remember. Even last week, I didn't use them non-stop.

Can the conductive hearing loss be fixed?

Well I'm going see an ENT on the 27th. Hopefully they'll say it can be fixed if it is conductive, and the cause is something minor.

 

[kiel]

@SilverSpiral I made a thread here that details everything I'm going through: https://www.tinnitustalk.com/thread...something-else-please-help.32972/#post-400951

It sounds like I have what you have. It's a sort of whistling/beeping/rattling noise that kind of "combines" with other noises I hear, leading to distortion of them. I had something similar in the past, but nowhere this bad. It just kind of went away, but this time it doesn't seem to be, at least not yet. I'm doing my best to not panic and to figure out the best way to deal with it. I'd appreciate any insight you or others could give me, having dealt with it for so long.

 

[kiel]

My ''H'' is by definition also ''T'' as it's easy to ascertain that if both my high and low pitched Ts increase during sound, it's also easy to assume that it's also this T, especially my low frequency T, that's the one that's vibrating strongly/thumping at the start of each new external sound. My ''dysacusis'' then is not the same as many of yours because while my ''T/H/TTTS/dysacusis accompanies the slightest of sounds to create discomfort, it never becomes the sole sound to rule them all from above like in other more precise etiologies, where they stop hearing external sounds and only hear a microphone. ''Dysacusis'' has to be classified in detail but we're in the middle ages, where some of the main ''clinicians'' on TTTS are clueless shrinks like Myriam Westcott, others are gaslighting little turds like Jastreboff, and basic keywords like chat-hyperacusis forums hyperacusis

This or these conditions are in a no-mans land in otology, whose gold standard is to only treat when there's hearing loss. I doubt it has anything to do with hearing loss too. I don't generally believe hair loss theory as it wouldn't make sense in people that improve in this and there are some. A cancer patient once said to me he had my type of H during radiotherapy, but not after. Also, Silverstein patients also were bothered with sudden sounds, but we don't know if they actually felt thuds and vibrations, or whether they're more like other H patients, that feel nothing in their ears and pains elsewhere. I myself have been diagnosed with possible meniere's, possible PET, possible everything, depending on which specialist I visited. But I haven't done further tests on meniere's anyways as I don't wanna be a guinea pig for anything and I heard menieres tests can make it worse. The TTTS facebook group has been pretty interesting in this regard, finding my symptom cured in a patient in Holland, and a couple

PET as in patulous eustachian tubes? Have you found a connection between Dysacusis, TTTS and PET? If so, could you possibly link it to me?

I have TTTS (pressure and a vibrating sensation in my ear from loud, high-pitched noises) and PET (being able to hear my voice in my ear). Both tend to come and go, as has this distortion or "Dysacusis" or whatever you want to call it. Perhaps there is a link between all these conditions?

 

[Vicki14]

Sometimes it feels like everybody improves except me.

@vermillion

You're truly not alone here, trust me. I feel absolutely no progress either, only constant assaults on my ears which make this progressively difficult to cope with. It feels like some sick game where we are being tested to see how much we can endure... very very cruel. Big hugs to you, I understand your pain, truly do xx

 

[Mellow7]

I have TTTS (pressure and a vibrating sensation in my ear from loud, high-pitched noises) and PET (being able to hear my voice in my ear). Both tend to come and go, as has this distortion or "Dysacusis" or whatever you want to call it. Perhaps there is a link between all these conditions?

That's what I was wondering back then as well. I'm not able to give a definite conclusion though. I still have random bouts of PET (but very mildly - usually limited to hearing my own breath and amplified nasal tones) and have TTTS. I also still have the dysacusis but it fluctuates. There is no day the same as the one before on that front. In the beginning I found this one of the most difficult aspects of my tinnitus, but after a while I thought it was less bothersome because it seems as if it is coming from an external source. Somehow, psychologically, that helped me care less about it (even though I know it is generated purely in the brain).

 

[Vukis]

@vermillion

You're truly not alone here, trust me. I feel absolutely no progress either, only constant assaults on my ears which make this progressively difficult to cope with. It feels like some sick game where we are being tested to see how much we can endure... very very cruel. Big hugs to you, I understand your pain, truly do xx

Hi Vicki, did yours dysacusis gone away after one year?

 

[Vicki14]

Hi Vicki, did yours dysacusis gone away after one year?

Do you mean hyperacusis?

 

[Vukis]

Do you mean hyperacusis?

No I mean that feeling when the ears are reacting to cars, fan, kettle sounds whit additional whistling sound. This is dysacusis

 

[Vicki14]

No I mean that feeling when the ears are reacting to cars, fan, kettle sounds whit additional whistling sound. This is dysacusis

Ah ok! Haven't heard of that one! I've recently had a noise trauma to my left ear and it's VERY reactive to noise plus I have pain. Is this something you have?

 

[Vukis]

Ah ok! Haven't heard of that one! I've recently had a noise trauma to my left ear and it's VERY reactive to noise plus I have pain. Is this something you have?

No, my issue, is a bit different, good luck

 

[vermillion]

No, my issue, is a bit different, good luck

So you also have dysacusis?

 

[Vukis]

So you also have dysacusis?

yes, started one week ago, I dont know or from stress or from meds, tried in July one week gabapentin, I hope that it will subside, how i see for most people it has gone. How is your? Still loud? How long?

 

[vermillion]

yes, started one week ago, I dont know or from stress or from meds, tried one week gabapentin, I hope that it will subside, how i see for most people it has gone. How is your? Still loud? How long?

Mine never subsided. The contrary I can say. It's true that many people's subsided and yes, meds can be a factor. I have it for a more than two years.

 

[Vukis]

Mine never subsided. The contrary I can say. It's true that many people's subsided and yes, meds can be a factor. I have it for a more than two years.

what caused dysacusis to you? what about habituation?

 

[lauracolle]

No I mean that feeling when the ears are reacting to cars, fan, kettle sounds whit additional whistling sound. This is dysacusis

I'm experiencing exactly the same since about a month. How's yours now?

 

[Mila9828]

It has gone away for some, @Tom Cnyc had the resonances that I experience during his acute phase, and it apparently (if I recall) completely subsided. His regular tinnitus improved during the acute phase as well.

It is hard to hold on to hope as the days stack on well past the acute phase, and in the face of severe worsening, but on the other hand this condition is so horrible that hope can not be completely left out.

There are several others who have had this or similar symptom. I can think of 2 that had it from noise induced that had it get better, tom is one and @3ri0w said his fluctuated or went away?

I don't understand why this dysacusis is so rarely discussed (yes so rare in fact that I misspelled it in the title of the thread). I think it is worse to manage, and more difficult to habituate to, deal with, or not utterly be destroyed by it than hyperacusis, or constant tinnitus tones. I wonder why it seems less common. If it is related to synaptopathy one could speculate that it could develop more often or preceding constant tinnitus tones. I wonder what causes this or what causes it along with constant tinnitus tones.

For anybody who hears whistling, resonance, ringing, or if their hearing is otherwise distorted (muffled etc).
Especially if you can not enjoy music because the hearing distortion is so bad, let me know if you have similar symptoms and if anything improved it. Here is more detailed description of what I hear. https://www.tinnitustalk.com/threads/hearing-distortion-recruitment-reactive-tinnitus.19449/

It is unfortunately, as you say vermillion as bad if not worse than ever. And I am left posting on this forum hoping for some improvement. After all the supplements, all the diagnostics, all the specialists, i am still hoping.

How are you doing now? I also can't listen to music because of distortion, it's like things are not felt when listening. Everything is flat or dull.

 

[HootOwl]

@SilverSpiral

Did things every improve for you? We have extremely similar symptoms but it looks like you haven't been on for quite some time.

 

[Gordon Steinberg]

Hi all. Did any of you have improvement? I am going through the same thing 17 days after Ana ccpauric trauma where all white noise also has another pitch or tone built in, so for example my shower, a/c unit etc seem to have this extra tone on top of their original noise.

 

[GBB]

I'm experiencing exactly the same since about a month. How's yours now?

Hi Laura, @HootOwl, how are you guys doing now? I am 7 weeks into this fresh hell. Distortion seems to come and go. It definitely is not always present, but present more often than not. I'm interested in understanding the physiology of this condition a bit better, so I can contextualize it within the therapies currently in pipeline. It's always easier to cope if at some point you have some chance at resolution.