ETD, Tinnitus, Labyrinthitis?

[Gena94]

Damn reading all these posts that people have been dealing with my same situation for all these years and no ones found a cure scares me even more, but numerous web searching I've came here to try to seek some peace of mind and tell you all my story in hopes someone can relate and help me... so it all started about a year ago, it came on with a cold like any of my normal colds I had ear popping for about a week but then it leaves with the cold.

This time it did not. Everytime I swallow I hear this ear popping or crackling in my ears. For a couple months I didn't think anything of it and thought it would just go away on its own and about 3 months it just got super annoying to me that I went in to see my doctor.

She prescribed me Flonase a nasal spray to use for 3 weeks and if that didn't work she'd refer me to an ENT. It didn't work. So now I'm seeing an ENT at kaiser, and she's done an allergy test on me. Said I would benefit from taking an allergy medication for 1 month and steroids for a week. I will be starting these all today.

Also something that I havent read here.. it all happened so sudden about 2 months ago I stared to not feel myself.. like my normal daily activities were fatiguing and I umcomfotable.. like I didn't want to do anything anymore but sleep.. and it was the middle of the day! When I've slept for like 10 hours already! I also found it hard for me to concentrate at work and when talking to people. I knew my body and I knew this wasn't a feeling I've ever felt before I didn't like this feeling at all. A

lso been feeling really dizzy when I lay down and I notice more at nkhjt and in the morning when I wake up.. I looked it up and it's this thing called labyrinthitis. Which is related to ears and it being infected.

So I emailed my doctor scared af! That I could die from this or go deaf seeing since my symptoms I've just described I'm at the chronic stage. So she put in to get a VNG test done and I'll be doing that in march.. has anyone ever had that test done before or known anyone that has had this??

It's so hard going day by day feeling like I'm not the same heathly 22 year old that I used to be.. I had to end relationships because this is so traumatizing for me I don't want to bring others down with me because it's all I think about, from the moment I wake up to the moment I go to sleep.. I am suffering everyday from this and just hope it's something bad so I can just die from it already.. it's so hard to keep faith and hope..

if any of you can please write to me and let me know your thoughts I just need a support group or something before I completely lose my mind and end up doing something harmful to myself. Please!
Thank you

 

[billie48]

Welcome to the forum. Sorry for your suffering. Your title seems to suggest that your symptoms are from ETD (the cracking, poping or fullness) so hopefully the ENT can deal with that. Also the dizziness and T seem to suggest Meniere's which many members here have. One notable member @glynis has much experience with this. Perhaps she can give you some advice. If your dizziness (vertigo) is not from Meniere's disease, then you may want to check out other reasons for vertigo, such as BPPV. If this is the reason for that, then this lady doctor's video can really help. I once had a bad BPPV episode and was so dizzy I vomitted all over. Then I did this exercise once or twice and the dizziness is over and never came back. So never hurt to try this when the world is spinning around you. Take good care. God bless

 

[tinnitube]

hey Gena94 , I had it , please feel free to ask me anything !!

 

[Gena94]

Thank you so much billie48 I will contact her thank you for taking the time to write back to me

 

[Gena94]

Also @billie48 and @tinnitube i don't have ear ringing or ear pressure or hearing loss.. just a vertigo feeling when I lay down and sit down.. and then the popping, crackling feeling when I swallow.. I'm having a imaging test done next month for my balance and hearing hopefully it will reveal if I have a disease right? It's called a vestibular test vng test.. have any of you had one or know anyone on here I contacted @glynis . I hope she gets back to me soon.. thank you

 

[glynis]

Welcome PM me or phone or text
Not sure what contact details a member has given you but will send you PM with them in...lots of love glynis x

 

[glynis]

Hi @Gena94 ,
Could be labyrinthitus or positional vertigo or the start of Menieres .
Menieres can take a while to diagnose as tests need to be done to rule out other problems and also to wait and see what symptoms develop.

Medications can help cope with Menieres but no cure for it and its a progressive disease.

Labyrinthitus has lots of Menieres symptoms but after an attack that can take 7-14 days usually after a cold virus and ear infection should go away with no more outbursts where as Menieres attacks can be daily,weekly etc and could go months or years apart and get hearing loss and loud tinnitus.
Menieres starts in one ear but for some people the other ear can develop it like I did.
Try not to worry about Menieres till everything else has been ruled out.
Try not google it as it will lead to being scared and you might not have it .

I can remember my first room spin, I cried and thought I had a brain tumour and went see my doctor in my dads car and my journey started from their 12 +years ago.
.....lots of love glynis

 

[tinnitube]

Gena , VNG is too look up into your eyes if they move while having vertigo , so if they move in an horizontal way its just a sign of the severity of the dizziness , if you spin youll get eye movement for shure . If you feel like in a boat its dizziness if you spin its vertigo . Sometimes a Virus can get inside the inner ear , if the virus sets at the equilibrium portion of the 8th nerve you get dizziness if it sets on the auditory portion you can get hearing loss tinnitus . Sometimes it sets on one nerve and then in another because they are put together as one nerve . Stereoids are always welcome in this type of conditions , to prevent meanwhile other things are ruled out , they wont hurt you but can prevent lots of things . At 22 yearls old , sometimes I see - viral neuronitis - at this ages , very young while going through a lot of stress also than can take down your inmune system . BPPV is easy to fix , sometimes lab or neuronitis can give BPPV because of the inflamation they produce . Menieres , in general at young age can present as true spinning and very very bad vertigo attack . Stay strong at young age you have all time at your side , if you need to rest or take a break just do it , because if being dizzy you have to give the body time to recover , I was dizzy 8 months , constantly !! so can understand you , just have patience youll be allright

 

[glynis]

I can remember the tests and vertigo and eye movements going into a spin...not nice but back to normal in minutes....
Had fluid put in my ears and eye goggles on and another test following a fed spot shooting across a wall...lots of love glynis

 

[Gena94]

Okay I can text you @glynis what's your number??

 

[glynis]

Sent you a private message with it as I don't think we can put our numbers on here ....lots of love glynis