Feeling Worse After 2 Months

[jjflyman]

Where do you come from?

I'm in Michigan, USA
A lot of posters here from America also complain about their ENT Doctors for their lack of knowledge about Tinnitus.
Hang in there (I know it''s hard) and I'm confident you will see a lot of improvement over time.

 

[fedup]

@Tinizzy At first I was so horribly stressed and in a constant panic that I was prescribed,and took Beta Blockers and an anti depressant . This went on for about four months .They both actually made the noise worse . In the end I stopped taking them and tried to accept the situation I was in . I knew that stress was making things far ,far worse for me.
Once I accepted things and stopped convincing myself that I would go deaf etc things seemed to slowly improve. I try to relax as much as possible now .Also if I keep very busy I often suddenly realise that I have not heard my T all day .
I find that if I can get some good sleep then my T often goes away completely for days.
I am certain that a lot of my T is down to jaw grinding in sleep and if I could only stop this I would be cured. I just know it.
Oh, and during the worst of my T I discovered that I had extremely ,dangerously high blood pressure ! Once treated for that I found things improved again.
As I say ,I do still get very super loud days sometimes .So loud that when a Euro Fighter jet screams over my garden really low ,I can still easily hear the T ! Now ,I just think ,ok this will pass ....and it does ( The T and the jet ! )
Try to chill .I know that is easy to say and every person has T for many reasons but stressing WILL make it worse.
You honestly never know if you might get better soon. I hope you will . If not cured then I feel sure you will habituate to a degree that life will be good again. Hang in there and keep going .
There are lots of nice ,experienced people on her far clever than I so there is plenty of advice and friendship here.
All the best . Try not to worry .

 

[jjflyman]

Mine starts the day as a gentle hiss, but turns into a screaming high pitched(not that loud) tone by the evening. I wonder if thats a good sign.

Yea, mine is the best in the early morning too, but gets louder by evening. My theory is the stimulation during the day causes the ringing to increase and the night time rest allows them to heal. I think it;s a good sign.

 

[Bill Bauer]

However ,now , about 50% of the time my T HAS GONE !

How long was the time between the onset and the first time it was gone? Is it the case that you still can't hear it when you wear ear plugs, when it is gone?

 

[fedup]

@Bill Bauer Hello Bill ,after a bit less than a year I think I started to have the odd period of a few hours where my T was gone . Then , over the last three or four months I am having anything up to a week or so where my T is gone .

When I say gone ,
I mean GONE . Silence ! It is wonderful . Even with ear plugs in , in a totally silent room my T is gone
Such a difference from the early days of hell where I had ear infections caused by wearing headphones all night as I slept and then grinding my teeth in stress.
I honestly feel I am going to fully recover.

 

[Bill Bauer]

@Bill Bauer Hello Bill ,after a bit less than a year I think I started to have the odd period of a few hours where my T was gone . Then , over the last three or four months I am having anything up to a week or so where my T is gone .

When I say gone ,
I mean GONE . Silence ! It is wonderful . Even with ear plugs in , in a totally silent room my T is gone
Such a difference from the early days of hell where I had ear infections caused by wearing headphones all night as I slept and then grinding my teeth in stress.
I honestly feel I am going to fully recover.

Thank you for sharing your story! It ought to give hope to all of us.

 

[Melike]

@Bill Bauer Hello Bill ,after a bit less than a year I think I started to have the odd period of a few hours where my T was gone . Then , over the last three or four months I am having anything up to a week or so where my T is gone .

When I say gone ,
I mean GONE . Silence ! It is wonderful . Even with ear plugs in , in a totally silent room my T is gone
Such a difference from the early days of hell where I had ear infections caused by wearing headphones all night as I slept and then grinding my teeth in stress.
I honestly feel I am going to fully recover.

Did you have fluctuations when you were in the early stages like 3rd,6th,9th month?

 

[Bill Bauer]

Did you have fluctuations when you were in the early stages like 3rd,6th,9th month?

@fedup Yes, had it been slowly improving during the first year, until eventually you couldn't hear it anymore?

 

[fedup]

@Melike Hi ,yes indeed ,lots of fluctuations. One day the T would be insanely loud then it would drop to next to nothing. Other times it would be very loud for days and weeks on end in the early months . I was suicidal .I lost two stone in weight at least.
Then at around the year mark I found it started to improve . I would wake in the night and my T was gone or almost gone and I would stay awake to enjoy it .
Other days I would wake up with very loud T but it would vanish once I got up.
Soon I found I am having a full week or two of peace and recently the T has actualky been vanishing TOTALLY . Oh the peace !

It now feels very weird when the T is gone . Silence feels weird.
I do still have the odd day or few hours where the T is very loud but it no longer bothers me.
Just for info I had screeching ,metal grinding noises ,buzzing ,pounding,whooshing , morse code ,rattling and the T would get louder if I turned the tv up
My ears were infected in the beginning,felt full ,hot and painful .
I often found that if I crumpled a plastic packet near my ear the T would drop massively ...weird. Or it would drop if I stirred a cup of tea !
As I write this my T is very quiet so i expect a good period of it vanishing soon .
I think sugar makes it worse.
My T was at it's worst when I had extremely high blood pressure.
Don't give up . Stress makes T much worse as does fear .
It may be that my T never totally goes away for good but i am happy with these long periods of peace.
I just live my life as I used to now and T is not going to stop me .
Good luck and keep going . I am proof it can get much better .

 

[Melike]

@Melike Hi ,yes indeed ,lots of fluctuations. One day the T would be insanely loud then it would drop to next to nothing. Other times it would be very loud for days and weeks on end in the early months . I was suicidal .I lost two stone in weight at least.
Then at around the year mark I found it started to improve . I would wake in the night and my T was gone or almost gone and I would stay awake to enjoy it .
Other days I would wake up with very loud T but it would vanish once I got up.
Soon I found I am having a full week or two of peace and recently the T has actualky been vanishing TOTALLY . Oh the peace !

It now feels very weird when the T is gone . Silence feels weird.
I do still have the odd day or few hours where the T is very loud but it no longer bothers me.
Just for info I had screeching ,metal grinding noises ,buzzing ,pounding,whooshing , morse code ,rattling and the T would get louder if I turned the tv up
My ears were infected in the beginning,felt full ,hot and painful .
I often found that if I crumpled a plastic packet near my ear the T would drop massively ...weird. Or it would drop if I stirred a cup of tea !
As I write this my T is very quiet so i expect a good period of it vanishing soon .
I think sugar makes it worse.
My T was at it's worst when I had extremely high blood pressure.
Don't give up . Stress makes T much worse as does fear .
It may be that my T never totally goes away for good but i am happy with these long periods of peace.
I just live my life as I used to now and T is not going to stop me .
Good luck and keep going . I am proof it can get much better .

That gives me hope. Thanks a lot. Really.

 

[Shera]

@Melike Hi ,yes indeed ,lots of fluctuations. One day the T would be insanely loud then it would drop to next to nothing. Other times it would be very loud for days and weeks on end in the early months . I was suicidal .I lost two stone in weight at least.
Then at around the year mark I found it started to improve . I would wake in the night and my T was gone or almost gone and I would stay awake to enjoy it .
Other days I would wake up with very loud T but it would vanish once I got up.
Soon I found I am having a full week or two of peace and recently the T has actualky been vanishing TOTALLY . Oh the peace !

It now feels very weird when the T is gone . Silence feels weird.
I do still have the odd day or few hours where the T is very loud but it no longer bothers me.
Just for info I had screeching ,metal grinding noises ,buzzing ,pounding,whooshing , morse code ,rattling and the T would get louder if I turned the tv up
My ears were infected in the beginning,felt full ,hot and painful .
I often found that if I crumpled a plastic packet near my ear the T would drop massively ...weird. Or it would drop if I stirred a cup of tea !
As I write this my T is very quiet so i expect a good period of it vanishing soon .
I think sugar makes it worse.
My T was at it's worst when I had extremely high blood pressure.
Don't give up . Stress makes T much worse as does fear .
It may be that my T never totally goes away for good but i am happy with these long periods of peace.
I just live my life as I used to now and T is not going to stop me .
Good luck and keep going . I am proof it can get much better .

This is nice too hear. Mine has such fluctuations in volume that I'm worried it's a bad sign. But really you never know with T. I've started to get moments when I'm sleeping so good that it goes away and sometimes in the morning I can't hear it when I first wake up.

 

[fedup]

@Shera,
Hi.

That sounds like a good sign to me anyway.

That is exactly how my recovery began. I still can have huge variations. Last night for example my tinnitus was very loud again for about two hours, then, this morning it has gone away again!

Perhaps you are going to have some great improvement too. It certainly is possible. Main thing is try not to stress, it is very tough but you can do it if I can because I'm a very stressed person in general. Worrying definitely makes tinnitus louder. Keeping as busy as possible helps.

Honestly you wouldn't believe how loud my tinnitus was 24/7 for months in the beginning. I was actually suicidal.

Here I am now though on the mend so you might too! I'm happy to chat to anybody via PM or e-mail if I can lend some support. Best wishes!

 

[Shera]

@Shera,
Hi.

That sounds like a good sign to me anyway.

That is exactly how my recovery began. I still can have huge variations. Last night for example my tinnitus was very loud again for about two hours, then, this morning it has gone away again!

Perhaps you are going to have some great improvement too. It certainly is possible. Main thing is try not to stress, it is very tough but you can do it if I can because I'm a very stressed person in general. Worrying definitely makes tinnitus louder. Keeping as busy as possible helps.

Honestly you wouldn't believe how loud my tinnitus was 24/7 for months in the beginning. I was actually suicidal.

Here I am now though on the mend so you might too! I'm happy to chat to anybody via PM or e-mail if I can lend some support. Best wishes!

24/7 and recovering that's great. That's what I need to hear because I've been worried that mine has been 24/7 since the beginning. It almost went away before it went haywire. I know mine has been calming down, because it was so loud that I did get to a point where I was having suicidal thoughts. (First time I ever experienced those! Scared me.)

I've noticed that mine has been a bit calmer lately (knock on wood) I'm getting moments where it's 5 to 6 out of 10 for longer periods. And last night I slept so good that it was gone, even my static noise! It took it a bit before it "woke up" with me.

I think it's because my neck muscles are easing up more and more. I started doing more advanced yoga. I'm also focusing on taking things that naturally take out inflammation in the body. When I get muscle crawls across the back of my neck I can feel it "clogging" and my ears temporarily spike to a 10. Then it's gone, the 10 anyway.

 

[fedup]

@Shera It sounds like you are doing all the right things to me Shera. You must have a good chance of a decent recovery . Believe it .
You are not alone .
I have had a good day . The T has been gone for half the day or more . I am extremely happy about that At the moment I can hear it in the distance because I am tired but I don't care .
I also had facial numbness by the way on the side with T . Caused by my serious tooth grinding. One day I will figure out how to stop that and I just know I will be completely cured. I have to believe that .
Hang in there and keep doing all you are doing . Never feel alone with this.

 

[Shera]

@fedup

That's so wonderful for you!

Try using lavender oils for sleep. I've found myself grinding my teeth off and on throughout the years. (Mainly when I was trying to learn to sleep with my mouth shut!) The oil and telling myself not to grind my teeth before bed helped. Though people use mouth guards or something more scientific.

Hang in there and keep doing all you are doing . Never feel alone with this.

Thank you! I shall! I don't plan to stop now. I want to get better, or more manageable. One way or another. I never feel alone with awesome peeps like you, and so many others, on here. It's been such a huge help.

Oh, on the facial numbness. When I put my jaw back in the first time after my accident I had that too, but it when away. When it popped out again the numbness would not go away even after my jaw got put in. Find a good massage therapist who can do neck and TMJ this has been the magic for me.