- Jan 16, 2020
- 461
- Tinnitus Since
- 1992
- Cause of Tinnitus
- noise? infection? negative stress? other?
Now that the dust is beginning to settle, we have to ask ourselves: "What was that all about?"We believed in Frequency Therapeutics when, in reality, they were nothing but miserable scammers. What we are suffering now should have affected them instead.
The main scientist—I can't recall his name, but it's mentioned somewhere in the FX-322 thread—seemed to have strong belief in his remedy involving small molecules.
Molecules of what, I wonder?
What made him think they could regrow inner or outer hair cells? Did he test it on lab animals? Did it alleviate or cure their tinnitus? Improve their hearing? Help with hyperacusis? Was any testing done using discarded cochleas from cochlear implant surgeries?
At one point, they appeared to have trouble with delivery, if I recall correctly. Something about the drug not reaching the frequencies at 8,000 Hz and below. One thing that sticks in my mind is that no mention was made of the synapse or stereocilia.
I'll need to check all this again to see if I misunderstood something.
After all the hullabaloo, it would be nice to think we've learned something new from it all, however simple that might be.
As it stands, though, the only thing we seem to have learned is about stock option payments and the finance market.
I don't disagree with you—we do need to be more cautious.We need to let it go. Unfortunately, those who questioned the initial results and choice of outcome measures as "fishy" were shouted down. In the future, we need to ensure that people can freely challenge such claims and point out potential issues to those who may be overly trusting.
Any company that uses speech-in-noise tests or relies on mainstream media to hype their research is a big red flag.
Still, I can imagine that in a decade or so, a new wave of tinnitus sufferers might end up losing their money all over again. It's an ongoing question.
The principle itself—a private company collecting money from sufferers to fund research in hopes of finding a cure or alleviating tinnitus—isn't inherently bad or dishonest. After all, tinnitus and hearing damage seem to be the orphans of government research.
That said, it's crucial to keep a close eye on how much the company's staff are paid, whether they have clear and achievable goals, and what the research timeline looks like. However, funding might be better handled through straightforward cash grants rather than selling company shares.
There are some incredibly wealthy individuals who suffer from tinnitus. If they got organized, we might actually make significant progress.