Does anyone have another means of contacting him? Social media, email, messenger pigeon?
Frequency Therapeutics — Hearing Loss Regeneration
- Thread starter RB2014
- Start date
MemberI'm still confused how someone can get into a trial if the cause of their tinnitus was head trauma?
Has anyone else tried to get in? (I don't qualify)
Some people on this forum would qualify with flying colors but don't pay attention to research.
Has anyone else tried to get in? (I don't qualify)
Some people on this forum would qualify with flying colors but don't pay attention to research.
For this phase 1, there were only about 30 volunteers involved (9 with profound hearing loss for phase 1/1, and 20 or 24 for phase 1/2). This is just enough data to confirm a phase for a clinical trial.
In the next phase, there should be much more data involved with different profiles from very mild hearing loss to medium hearing loss, it will be focused on efficacy and dosing, in different clinics across the USA. So much more people of this forum could be involved as well.
As for Michael Bowers, it is totally possible that he got the placebo.
In the next phase, there should be much more data involved with different profiles from very mild hearing loss to medium hearing loss, it will be focused on efficacy and dosing, in different clinics across the USA. So much more people of this forum could be involved as well.
As for Michael Bowers, it is totally possible that he got the placebo.
- Nov 8, 2016
- 45
- Tinnitus Since
- 2011
- Cause of Tinnitus
- don't know, hearing loss related?
Do you mean he did not participate in the trial? Or that he received the placebo?
All of this still might be for the better. I'd like valid results instead of inconsistent ones just because they decided to choose too large of a group of people.
At the rate they're moving, I'm thinking FX may have a treatment on the market by 2025.
I know Frequency Therapeutics staff lurks this thread.
We need at least someone from Tinnitus Talk please...
We need to know what this medicine does for tinnitus and hyperacusis as well.
We need at least someone from Tinnitus Talk please...
We need to know what this medicine does for tinnitus and hyperacusis as well.
PolishSoldier87
Member
- Jan 16, 2018
- 209
- Tinnitus Since
- 12/2017
- Cause of Tinnitus
- acustic trauma, neuro-lyme/rx co-op toxins
I feel like a kid walking into a board room meeting. Lost and feeling stupid.
I have mainly been following the device sector for tinnitus treatment (Neuromod, Susan Shore, Michigan).
Can someone give me a TLDR of this treatment? How far along are they? What does it do? Expected release? When will results be published?
I have mainly been following the device sector for tinnitus treatment (Neuromod, Susan Shore, Michigan).
Can someone give me a TLDR of this treatment? How far along are they? What does it do? Expected release? When will results be published?
Chestnut94
Member
As far as I know: They are currently in phase 2, there will probably be a phase 2a and then there will at least be a phase 3 before it may come to the market. It's a drug that is injected in the (middle?) ear canal which activates the progenitor cells, so that the hearing cells can regenerate. This will repair hearing damage and may also fix tinnitus. There is no expected release date yet, but I think that this treatment will be our best shot.
Edit: I'm not 100% sure about anything I've just said. This is just a quick summary about what I think it is.
Is this targeted toward hearing loss or tinnitus? Or directly hearing loss and indirectly tinnitus?
Oh, I wonder if they are doing any trials with people with tinnitus. Could give us an idea if it can help.
p.s. sorry for ignorance on this topic since I assume this has already been answered.
I'm somewhat sure some of the candidates with SNHL also have tinnitus. I'm also suspecting that at this point they know whether or not is has an effect and if not now, they will soon.
This is very very important in the world of tinnitus research because as of right now, publicly, we can only suspect that fixing hearing loss also fixes tinnitus.
This is also why the government should be involved in developing this technology, our flesh is not propriety, nor should any knowledge concerning it be because we are all flesh for if some own knowledge on healing our flesh, then likewise they own our flesh and we are their slaves.
PolishSoldier87
Member
- Jan 16, 2018
- 209
- Tinnitus Since
- 12/2017
- Cause of Tinnitus
- acustic trauma, neuro-lyme/rx co-op toxins
Anyone knows if newly formed hair cells would have characteristic layout and inner hair cells wouldn't be V-shaped?
Another day, another signalling pathway...
https://www.futurity.org/hearing-loss-cochlear-regeneration-1888982/
One of the authors is Albert Edge, co-founder of Audion Therapeutics, co-researcher with some of the Frequency Therapeutics team in the days before Frequency Therapeutics. The trouble with reading this stuff is that there is no-one to bring it together and make sense of it in a global context. Each lab reports its work in isolation. They all talk about how their work holds hope for future hearing loss treatments but they don't mention that there are treatments in clinical trial right now.
How many signalling pathways have a role in hair cell regeneration? Do they have to be co-ordinated? How much do we really know? It seems that there should be some sort of global co-ordinator out there who identifies which pieces of the puzzle are missing and directs specific labs to try to find those missing pieces. Instead, they all meander along, following their own inclinations... I'm pretty sure they'll get there in the end though- hopefully while I'm still alive.
https://www.futurity.org/hearing-loss-cochlear-regeneration-1888982/
One of the authors is Albert Edge, co-founder of Audion Therapeutics, co-researcher with some of the Frequency Therapeutics team in the days before Frequency Therapeutics. The trouble with reading this stuff is that there is no-one to bring it together and make sense of it in a global context. Each lab reports its work in isolation. They all talk about how their work holds hope for future hearing loss treatments but they don't mention that there are treatments in clinical trial right now.
How many signalling pathways have a role in hair cell regeneration? Do they have to be co-ordinated? How much do we really know? It seems that there should be some sort of global co-ordinator out there who identifies which pieces of the puzzle are missing and directs specific labs to try to find those missing pieces. Instead, they all meander along, following their own inclinations... I'm pretty sure they'll get there in the end though- hopefully while I'm still alive.
Your government pays for the research through direct funding and tax breaks to philanthropists who put money into various labs. Why the researcher are allowed to walk away with complete rights to the intellectual property, I'm not quite sure.
- Nov 8, 2016
- 45
- Tinnitus Since
- 2011
- Cause of Tinnitus
- don't know, hearing loss related?
- Mar 22, 2018
- 90
- Tinnitus Since
- 08/2017
- Cause of Tinnitus
- Hearing loss (stress + virus activation)
Could be possible if the documents you have to sign are only based on US law to avoid any problems if something goes wrong. Different countries, different rules.
I don't know if there are any paragraphs to bypass the country of origin but could be an immense overload in the early stage.
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