HIFU (High-Intensity Focused Ultrasound) Surgery

[Louise]

Yes, if you fit there criteria ... which means T can not be psychosomatic ... has to be visible in auditory cortex ... longer than one year ... and tried other methods before going to this ...

nice to have you back btw

Thanks Nills

Looks like things have moved on a bit since I last knew about HIFU.

How successful is it for T - does anyone know? Do they have any stats?

I pass all that criteria. Would be awful to see it, as well as having to hear it.

I saw the Neuro-otologist professor that's heading up the Autifony study at Sheffield Hallamshire today. I'm not on that study btw - had it too long to qualify. But, he said that if it (AUT000063) works they'll market it in 2 years. Shouldn't have put that on this thread I know.

 

[nills]

Thanks Nills

Looks like things have moved on a bit since I last knew about HIFU.

How successful is it for T - does anyone know? Do they have any stats?

I pass all that criteria. Would be awful to see it, as well as having to hear it.

I saw the Neuro-otologist professor that's heading up the Autifony study at Sheffield Hallamshire today. I'm not on that study btw - had it too long to qualify. But, he said that if it (AUT000063) works they'll market it in 2 years. Shouldn't have put that on this thread I know.

Succes rate vary from 60%-80%and maybe even more but I think they protect themselves from saying this out loud ...also they give you estimate before procedure ... so I think they know what they are doing ... if it is too low they won`t continue.

add your Autifony info quickly to the Aut thread ... have been some pointless discussion going on that you can quiet down now

 

[Louise]

Succes rate vary from 60%-80%and maybe even more but I think they protect themselves from saying this out loud ...also they give you estimate before procedure ... so I think they know what they are doing ... if it is too low they won`t continue.

add your Autifony info quickly to the Aut thread ... have been some pointless discussion going on that you can quiet down now

Ha ha I will then. Which one is it, can you post the link, there were a few when I just searched.

HIFU success rate still seems a bit low, though good to know they are genuine about your chances and have integrity about deciding on whether to perform it or not. They must know a thing or two about T. We should all be able to get those scans on the NHS in the UK. Perhaps when they've finally cured everything else they'll look at us.

 

[lapidus]

Ha ha I will then. Which one is it, can you post the link, there were a few when I just searched.

This one:
https://www.tinnitustalk.com/thread...-treatment-of-hearing-loss-and-tinnitus.6516/

 

[shasta0863]

TRT is a joke. Who doesn't know that?

Can you explain?

 

[ruben ruiz]

Tinnitus Retraining Therapy TRT.
It can be a positive influence. The problem is insurance wont pay for it and it cost a bunch.
How is that good? Good if you can get it. Im interested in HIFU treatment for Tinnitus.
What is this?

 

[dan]

Succes rate vary from 60%-80%and maybe even more but I think they protect themselves from saying this out loud ...also they give you estimate before procedure ... so I think they know what they are doing ... if it is too low they won`t continue.

add your Autifony info quickly to the Aut thread ... have been some pointless discussion going on that you can quiet down now

Viking did HIFU and it didnt work.

Tinnitus Retraining Therapy TRT.
It can be a positive influence. The problem is insurance wont pay for it and it cost a bunch.
How is that good? Good if you can get it. Im interested in HIFU treatment for Tinnitus.
What is this?

Dont worry, you are not eligible....

 

[nills]

Viking did HIFU and it didnt work.

Dont worry, you are not eligible....

How do you mean... ? he went to Switserland with Sonimodul to do HIFU? ... As far as I know he had an operation and was treated in a different way. Please share what you know about all of this.

 

[Valentin]

Viking did HIFU and it didnt work.

Dont worry, you are not eligible....

he couldn't afford HIFU, he had a thalamotomy .

 

[amandine]

he couldn't afford HIFU, he had a thalamotomy .

This info page seems to be going all over the place. What is the difference between HIFU and the thalamotomy that Viking apparently had instead? thanks

 

[Valentin]

This info page seems to be going all over the place. What is the difference between HIFU and the thalamotomy that Viking apparently had instead? thanks

hifu is non invasive, thalamotomy requires to drill holes in your skull, insert probes and electricaly burn some areas in the thalamus.

 

[passerby]

also wanted to say this in a pm but your privacy setting don`t allow me ...

I don't think it is due to my privacy settings. never changed them. Instead it is due to restrictions on my profile for some reason. I was told by another user of tinnitustalk how to PM someone, but I don't have the features the person mentions - see this screen print (if in doubt):

We know about the procedure .. and the Kamikaze ... still we don`t know where he is ...

I know where he is...

 

[amandine]

I know where he is...

Can someone please give a categorical answer that they know for 100000 per cent sure where or what is with Viking. Mostly seems to me to be hypothetical murmurs but no one knows for sure. If someone knows for sure can they please just say without all these cloak and dagger comments. Please??!!
By the way drilling holes in the head sounds ghastly!!!

thank you all

 

[linearb]

I think it is telling that there are literally no happy stories about any of this. If HIFU really worked, or brain surgery, isn't it reasonable to assume you'd find some accounts of this from people who have been through it? Even for things that don't work for a lot of people, like benzos or TRT, it's not hard to find stories of people saying "hey, I did this thing, and it worked and my distress is a lot lower". Meanwhile, none of the invasive brain treatments, so far, appear to have any champions coming forward to say "yes I sliced out a wee bit of my brain and now the ringing is gone".

If anyone ever comes up with an actual cure or highly effective treatment, we won't be sitting around debating whether or not something might possibly work, because the people for whom it has worked will show up in droves to say I GOT BETTER AND SO CAN YOU. Until that happens, I think it's reasonable to assume that none of the experimental treatments out there are actually effective, let alone safe.

 

[Louise]

I think it is telling that there are literally no happy stories about any of this. If HIFU really worked, or brain surgery, isn't it reasonable to assume you'd find some accounts of this from people who have been through it? Even for things that don't work for a lot of people, like benzos or TRT, it's not hard to find stories of people saying "hey, I did this thing, and it worked and my distress is a lot lower". Meanwhile, none of the invasive brain treatments, so far, appear to have any champions coming forward to say "yes I sliced out a wee bit of my brain and now the ringing is gone".

If anyone ever comes up with an actual cure or highly effective treatment, we won't be sitting around debating whether or not something might possibly work, because the people for whom it has worked will show up in droves to say I GOT BETTER AND SO CAN YOU. Until that happens, I think it's reasonable to assume that none of the experimental treatments out there are actually effective, let alone safe.

Not sure that logic applies with this - the 'treatment' is so new and hardly anyone can afford it so that maybe accounts for the lack of anecdotals? Also, didn't it cure Michael J. Fox of this Parkinsons?

I admit I am confused as to whether there is a HIFU treatment in place for Tinnitus.

 

[amandine]

Also, didn't it cure Michael J. Fox of this Parkinsons?

No Michael J Fox still has Parkinsons sadly - what it did was delay the symptoms on set so he had better health for longer inspite of having Parkinsons - at least that is what i understand........

 

[dan]

I admit I am confused as to whether there is a HIFU treatment in place for Tinnitus.

There is. 100%.

 

[Louise]

There is. 100%.

That's good enough for me Dan, thanks for clearing it up.

 

[Nucleo]

I admit I am confused as to whether there is a HIFU treatment in place for Tinnitus.

There is but it's highly experimental at best.

 

[jeannie]

Did viking get cured of tinnitus after his surgery?

 

[Valentin]

Did viking get cured of tinnitus after his surgery?

if i remember correctly hifu or thalamotomy can treate only one side.

regarding vikings he said he got some changes, alternating frequencies etc and then he disappeared.

we can only extrapolate that he got severe complications and that's why he disappeared, i believe no members of tinnitus talk who genuinely got improvements with an experimental procedure would not say a word about it or write a progress journal.

 

[Christian78]

Did viking get cured of tinnitus after his surgery?

no 0%

 

[jimH]

@M.I.A. ...You misunderstood dan's post. He was merely answering Louise's question as to whether or not there is a HIFU treatment in place for Tinnitus. He was implying, by the 100%, that there definitely is one. There is no mention of the success rate.

 

[M.I.A.]

@M.I.A. ...You misunderstood dan's post. He was merely answering Louise's question as to whether or not there is a HIFU treatment in place for Tinnitus. There is no mention of the success rate. Go back and read it again.

Thank you. Could you help me to delete the message?

Thanks

 

[M.I.A.]

13.8.2. Stimulation
The use of deep brain stimulation (DBS) as a treatment in several disorders was recently reviewed (Kringelbach et al. 2007b). DBS has proven to be a successful treatment in some types of pain (Kumar et al. 1997;Nandi et al. 2003;Bittar et al. 2005a,2005b;Rasche et al. 2006;Yamamoto et al. 2006;Kringelbach et al. 2007a) and other instances of TCD, particularly in Parkinson's disease (Benabid et al. 2003). The effectiveness of this therapy is consistent with the mechanisms postulated above: High-frequency stimulation could raise the resting potential of RT or intralaminar neurons above the level of T-type Ca++channel deinactivation, and thalamic cells switch from bursting to tonic firing. The effectiveness of motor cortex stimulation in treating some cases of neuropathic pain (Carroll et al. 2000;Katayama et al. 2001a,2001b) may be understood as resulting from top-down thalamic depolarization. It should be noted that the qualified success of this approach speaks to the challenge of modifying the thalamocortical loop using a depolarizer effectively situated outside the system. Recent advances using transcranial magnetic stimulation may similarly derive their effectiveness from a temporary rise in thalamocortical resting potential.

Consistent with this view and with the correlation between low-frequency activity and subjective pain experience is the fact that clinical improvement has been correlated with a reduction of low-frequency cortical activity. For example, reduction of neuropathic pain sensation following transcranial magnetic stimulation is concomitant with a reduction of low-frequency activity; pre-existing TCD electrical abnormalities have been attenuated after spinal cord stimulation leading to pain relief (Schulman et al. 2005); and the alleviation of phantom limb pain with DBS is correlated with a reduction of theta- and beta-band activity (Ray et al. 2009). These results are similar to those found in tinnitus cases (Richter et al. 2006;De Ridder et al. 2007). Moreover, such sound masking resulting in the disappearance of the tinnitus is accompanied by the marked reduction, or total abolition, of the low-frequency signature at the auditory cortex (Tyler 2000;Llinas et al. 2005).

sò... sound masking (probably TRT) have the same criterion of Focused ultrasound treatment?

http://www.ncbi.nlm.nih.gov/books/NBK57255/

 

[NiNyu]

Hi all I was doing extremely well after being treated in London.

TRT really worked for me but my physical t symptoms have changed and worsened.

But TRT does NOT change one thing about your physical T symptoms it only changes your **reaction** to it.

BTW T is a physical disorder/ailment. Unless you have imaginary T which is a psychological problem and could be treated by any psychologist.

If HIFU really worked, or brain surgery, isn't it reasonable to assume you'd find some accounts of this from people who have been through it?

Probably, or the very few that had a chunk of their brain removed just carried on. And simply forgot that there are other sufferers out there suffering. But then again there's psychotherapy, which works for most T patients, right?

 

[dan]

But TRT does NOT change one thing about your physical T symptoms it only changes your **reaction** to it.

BTW T is a physical disorder/ailment. Unless you have imaginary T which is a psychological problem and could be treated by any psychologist.



Probably, or the very few that had a chunk of their brain removed just carried on. And simply forgot that there are other sufferers out there suffering. But then again there's psychotherapy, which works for most T patients, right?

Banana its not a chunk, u know that...its less than 1mm square area lol

 

[M.I.A.]

Thank you @NiNyu i'm tring to find an explanation for my double fus treatment without success. I have to wait until the legal action is completed to receive the third and final treatment without having to pay the full amount (considering the results and the approach totally arbitrary) Only now, searching on various website about the thalamocortical circuit, i'm understunding that this problem is much more ingrained compared to what I had been dreaming. The thalamus is showing to be much less involved in the developing and maintenace of tinnitus. It is an immense network. From the cortex to the hyppocampus.... from the conscious to the inconscious perception...passing between the self noise cancelling system of the brain.....and more more more others... my tinnitus are algorithms feel me drunky

http://journal.frontiersin.org/article/10.3389/fneur.2015.00124/full

http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0053180

http://www.ncbi.nlm.nih.gov/pubmed/25875099

http://www.ncbi.nlm.nih.gov/pubmed/26106362

 

[dan]

Thank you @NiNyu i'm tring to find an explanation for my double fus treatment without success. I have to wait until the legal action is completed to receive the third and final treatment without having to pay the full amount

What exactly do you mean by your double fus treatment - have you had the hifu procedure with Dr.Jeanmonod?

 

[M.I.A.]

What exactly do you mean by your double fus treatment - have you had the hifu procedure with Dr.Jeanmonod?

Yeh 2 times