- Aug 14, 2020
- 280
- Tinnitus Since
- 06/2020
- Cause of Tinnitus
- SSNHL (probably previous noise exposure, too)
In the sake of trying to identify commonalities between pain hyperacusis sufferers, I thought I'd share a finding from a recent autoimmune lab that I had done. It turns out that I have "myelin antibodies" which are most often associated with MS. Thankfully, I don't have any other MS symptoms, but it's still disheartening news none the less. The antibodies could also be associated with other inflammatory demyelinating diseases of the central nervous system which I suppose hyperacusis could be all on its own.
I'm already working with a nutritionist and already eating a very strict anti inflammatory/AIP diet without any improvement. For some reason that is still unknown, supplements like B vitamins, fish oil and Curcumin only make me worse so I'm in kind of a hard spot.
I'm tempted to pass these findings on to my medical doctor (the test was run by the nutritionist), but I've lost so much faith in medical doctors recently that I don't know what good it would do.
Has anyone else had tests like this done? It would be interesting to know if anyone else with pain hyperacusis had these myelin antibodies, too. Maybe it could help explain why some of us are more sustainable to this hell than other people...
I'm already working with a nutritionist and already eating a very strict anti inflammatory/AIP diet without any improvement. For some reason that is still unknown, supplements like B vitamins, fish oil and Curcumin only make me worse so I'm in kind of a hard spot.
I'm tempted to pass these findings on to my medical doctor (the test was run by the nutritionist), but I've lost so much faith in medical doctors recently that I don't know what good it would do.
Has anyone else had tests like this done? It would be interesting to know if anyone else with pain hyperacusis had these myelin antibodies, too. Maybe it could help explain why some of us are more sustainable to this hell than other people...