I Developed SSHL and Severe Tinnitus on 4/3/2016

[Dominic1955]

T is back ! Had 3 good days but today loud and intrusive, no reason !

 

[jross7]

So sorry to hear that!

 

[barbb]

Hate the way it changes for no reason! I'm starting on Zoloft today........

 

[Christian78]

T is back ! Had 3 good days but today loud and intrusive, no reason !

Are you seute no reason, did you sleep well, did you wake up in the night or in the morning, were you under stress or suden wheather change, did you eat anything that has monosodium glucomate E621 taste enhancer (all restorants use it specily asian, all thouse buljong soup spice with taste of fish, chicken etc, susages) or maybe you are a bit too much salt day before

 

[Dominic1955]

@Christian78, yes I did not eat anything differently ? Very depressing 6 months still suffering !

 

[Christian78]

@Christian78, yes I did not eat anything differently ? Very depressing 6 months still suffering !

i have 3 years, in 28 occations it incresed, it is so bad and severe... but what can i do, i live for one more day knowning any moment it can become so bad and that there is no cure

 

[Dominic1955]

@Christian78 do you have hearing loss?

 

[Christian78]

@Christian78 do you have hearing loss?

Yes i do

 

[Dominic1955]

Me too

 

[Sam Bridge]

Yes i do

Does tbat mean you hear t at 22 devibels sensory level?

 

[Christian78]

60-75 db, sometime higher, depends, look picture it say T

 

[Dominic1955]

Over 6 months! Last two days symptoms are worsening, Hearing loss more severe, mild hypercusis back and dizziness! T is loud?
Can't figure out why? I should be improving.

 

[Christian78]

Over 6 months! Last two days symptoms are worsening, Hearing loss more severe, mild hypercusis back and dizziness! T is loud?
Can't figure out why? I should be improving.

I have same effect, constant lost of hearing on left ear... and now i dont hear at all high freq that i heard 1,5y ago. MY T went up 28 times in last 3 years, first time was 5 months after initial start of t

 

[Userhx35543]

Been having mild T for tears. Have gotten used to that. Been 3 weeks since episode with SSHL and loud T. High pitch. I manage to ignore most of the time. Maybe because I've dealt with a mild version for so long.

For me the constant noise helps me sleep at night. It's just annoying when listening to music or trying to get in on a conversation.

Keep your mind busy and do your best to ignore it. Sometime I don't even hear it even though I know it's there. Hard to do, but just be patient. You can survive this. Find strength in knowing we all have it to some degree and feel your pain.

 

[Dominic1955]

Weird, it's been 6 months I expected to get better and I was slowly improving (I think) then suddenly my hearing became more muffled and my Tinnitus increased and I noted again hypercusis ( it was gone for 3 months) last 3 days feel like my first 6 weeks!
Can't figure why?

 

[Dominic1955]

I think I have Ménière's disease, although my hearing loss is more in the high frequencies, I have intermittent episodes of aural fullness, decreases in already poor hearing and dizziness accompanied by loud T. I was assuming these were T spikes but I am not sure. The dizziness is mild not vertigo
Today I feel slightly better, but had 4 bad days!

 

[Dominic1955]

Monday and Tuesday were great days!
This morning T is loud and hearing is down
Can't figure out why?!
Got at at 5 am my earbuds maskers on!
Thank God I don't have the aural fullness or hypercusis!
Very frustrating!

 

[glynis]

Hope your day gets better for you Dom....lots of love glynis

 

[slipware]

@Dominic1955 you sound very similar to me. I cope with the tinnitus being loud and intrusive a lot of the time, but the aural fullness gets me. Luckily I only feel off balance, not dizzy. I don't have mèniers. Mine was SSHL by a TIA.

 

[GregCA]

Monday and Tuesday were great days!
This morning T is loud and hearing is down
Can't figure out why?!
Got at at 5 am my earbuds maskers on!
Thank God I don't have the aural fullness or hypercusis!
Very frustrating!

Be thankful you do have good days...
...but I do agree it's frustrating to not have this condition "under control", or at least have enough of understanding of it to not seem surprised by its seemingly random behaviors.

 

[Dominic1955]

@GregCA, yes it's frustrating! I have 2 patients that had SSHL in my practice, they have severe hearing loss but have habituated over 12 months, I now call them for support!
Monday and Tuesday great today bad

 

[Dominic1955]

@slipware, unbelievable that u have suffered since 2012, I am sorry
I have 2 patients with SSHL they also had severe vertigo and T their vertigo lasted 3 weeks then in dizziness was on and off for one year! But both habituated to the tinnitus, it does not seem to bother them.
I have moderate to severe hearing loss, I did not get severe vertigo but I have dizziness and when my T increases my hearing gets worse and aural fullness appears ....... on and off since April 2/16

 

[slipware]

@Dominic1955 it's all sent to try us. Hope you're on the mend, I accept mine is for life. Over here (England) we have a saying about dogs. "A dog is for life, not just for Christmas". That's me with my tinnitus.

 

[Dominic1955]

@slipware i am not any better !
I am working but struggling!

 

[Dominic1955]

I noted for last few days that my hypercusis is back, it was gone for months ? I also noted decrease hearing and louder t, no vertigo or dizziness.
Using sound machine with rain crickets frogs and whale songs
Worked all day and feel tired .......

 

[MikeP505]

Stay strong Don. Get plenty if rest. Hang in there with us and fight thru this.

 

[slipware]

@slipware i am not any better !
I am working but struggling!

Stick with it, we are not alone, and life goes on.

 

[dan]

Julianne Moore explains it best...

 

[Dominic1955]

@Lorac it seems to me and I checked with SoundCheck that my hearing is worse again!
Did it change for you at the bigining or did you have complete hearing loss ? And initially did you also have vertigo ?
Dom

 

[Dominic1955]

Stay strong Don. Get plenty if rest. Hang in there with us and fight thru this.

Thanks Mike, how do you manage with bilateral hearing loss and T?