Dude, do you actually read my comments and responses? Or do you just ignore them so you can grind me? I've explained my comment but you continue to insist I'm insulting this site.
I Have Un-Habituated
- Thread starter Gl0w0ut
- Start date
MemberHey @Gl0w0ut I understand and can fully relate. I've been in a nuthouse after my t. onset, had bad luck running into a highly unprofessional psych. Just like you describe. I could go on, easy.
Just take a look at this thread: University of Minnesota Tinnitus Research with Acoustic and Body Stimulation and read posts No.: 63 & 64. I hope that helps.
Just take a look at this thread: University of Minnesota Tinnitus Research with Acoustic and Body Stimulation and read posts No.: 63 & 64. I hope that helps.
This post only proves that life with tinnitus is NEVER a normal one!
NEVER EVER!
It's rather a continuous process of adaptation to more and more suffering because there will always be spikes, new tones, acoustic traumas....
NEVER EVER!
It's rather a continuous process of adaptation to more and more suffering because there will always be spikes, new tones, acoustic traumas....
- May 16, 2017
- 3,754
- Tinnitus Since
- 04/2011
- Cause of Tinnitus
- Syringing + Somatic tinnitus from dental work
https://treningogrehab.no/wp-content/uploads/2017/12/14296-004-75118A1C.gif
How this has influence as to why some get tinnitus from hearing loss with the head and neck out of position is a biology book by itself, but it's theory. The physical neck part is examined well in the home link above which I recently posted.
How this has influence as to why some get tinnitus from hearing loss with the head and neck out of position is a biology book by itself, but it's theory. The physical neck part is examined well in the home link above which I recently posted.
While I agree that some members are more negative than others and some posts are not a happy reading. I think we need these as this gives a different perspective. As we know T is extremely unpredictable, sudden spikes can certainly knock you back a few steps, and hopefully in time you may learn how to deal with these. Unfortunately not everybody is resilient as some on here and may take longer to reach "habituation" if they do at all. While I'm all for a postive mind set, it's impossible to have this state of mind constantly. It's ok to feel angry, sad, lost, like there is no hope but then you need to find a way not to let these take over (I'm aware clinical depression etc can be a totally different issue)
We all need to vent and express our feeling at that time, writing down those feeling can be extremely therapeutic, if anything to look back at them in 6 months/year and see if there is any progress.
I agree 100% with the lack of treatment available, it's shocking how we have not moved forward after all this time and the best we have at this time is TRT.... it's pathetic!!
We all need to vent and express our feeling at that time, writing down those feeling can be extremely therapeutic, if anything to look back at them in 6 months/year and see if there is any progress.
I agree 100% with the lack of treatment available, it's shocking how we have not moved forward after all this time and the best we have at this time is TRT.... it's pathetic!!
But the doctor told me I don't have hearing loss
Hell 2 ENTs and 2 audiologists told me that
In all fairness he never said F this site or the people on it. He said he is F'ing done with this site and doesn't want to spread his negativity around anymore.
I get his frustration. I don't go about it the same way but my doctors and psychiatrists have only made matters worse for me. Giving me benzo's , ssri's , anti-psychotics and they all seem to make my T worse and I have made clear to them that I never want to take anything that can make it worse. I am just a guinea pig to them, and if things take a turn for the worst, I am the one dealing with the grief and they dont blink.
I am currently going through benzo withdrawal because a piece of sh*t psych doc prescribed mega doses off lorazepam when I was in a crisis state. 7.5 mgs to be exact. Thats 75mgs of valium ffs. that is an astronomical high dose. Its just criminal. A whole year of tapering which is HELL then maybe after I need to heal and guess what now I have LOUDER T. + at least one possibly two years of pain and suffering.
I don't hate doctors personally but the medical system in itself for the most part I hate. Even the onset of tinnitus had a doctors fault factor in it.
I get his frustration. I don't go about it the same way but my doctors and psychiatrists have only made matters worse for me. Giving me benzo's , ssri's , anti-psychotics and they all seem to make my T worse and I have made clear to them that I never want to take anything that can make it worse. I am just a guinea pig to them, and if things take a turn for the worst, I am the one dealing with the grief and they dont blink.
I am currently going through benzo withdrawal because a piece of sh*t psych doc prescribed mega doses off lorazepam when I was in a crisis state. 7.5 mgs to be exact. Thats 75mgs of valium ffs. that is an astronomical high dose. Its just criminal. A whole year of tapering which is HELL then maybe after I need to heal and guess what now I have LOUDER T. + at least one possibly two years of pain and suffering.
I don't hate doctors personally but the medical system in itself for the most part I hate. Even the onset of tinnitus had a doctors fault factor in it.
- Feb 5, 2017
- 787
- Tinnitus Since
- 2016
- Cause of Tinnitus
- Fluconazole
- Feb 5, 2017
- 787
- Tinnitus Since
- 2016
- Cause of Tinnitus
- Fluconazole
Unfortunately that renders it well. At least this is what i experience.
I wish to die as soon as possible. I really wish that.
"Normality is a paved road, it's comfortable to walk, but no flowers grow on it"
Don't let somebody's passive aggressive comment get to you.
Pretty much. When you lose your peace of mind and your imagination because you really can't immerse or daydream anymore, you lose a huge part of life and a big part of you. I've been dead ever since I got this damn thing and I'm starting to think that maybe it's time for my physical body to go as well, because cure seems to be a pipe dream.
Thanks Jcb.
The comment doesn't actually get to me. I have no delusions of normality. 
But seriously, I wanted to make a point: The person who was calling another person's comments unacceptable made an unacceptable comment of his own.What does get to me is when a support community doesn't support people when they need it most. Feelings of anger and even hatred often accompany pain and fear. People need to feel free to express these feelings. They deserve for their feelings to be acknowledged and validated. Support isn't just about giving advice. It's also about listening, understanding, and empathizing.
Instead of criticizing the specific word choices or exaggerated statements people make when they are in the throes of an emotional crisis, we should regard those words and statements as indicators of how much those people are hurting.
Thanks Jcb.
What does get to me is when a support community doesn't support people when they need it most. Feelings of anger and even hatred often accompany pain and fear. People need to feel free to express these feelings. They deserve for their feelings to be acknowledged and validated. Support isn't just about giving advice. It's also about listening, understanding, and empathizing.
Instead of criticizing the specific word choices or exaggerated statements people make when they are in the throes of an emotional crisis, we should regard those words and statements as indicators of how much those people are hurting.
Yes normality is so overrated.... I totally get what you're saying and I think you've put it beautifully.
Since I've been on here I've noticed members have major inconsistencies in what they write, they can be extremely rude, dismissive and passive aggressive. The majority of these comments get over looked as they are "veterans" of Tinnitus. While they can be extremely helpful and knowledgeable, the hypocrisy is all too real.
While I'm well aware that nobody is perfect, it's funny how if you disagree you're rude, negative or just a nuisance, even though some do aggravate others on purpose to get a rise.
Everybody will deal with T in their own way, it can be such a soul destroying affliction. I'm aware some people revel in their misery, or have such a negative way of thinking (depression/anxiety taken out the picture as I would never judge anybody who suffers from this or try to judge anybody but it's hard sometimes) as I've said many many many times, I do think a postive mindset is essential in fighting T and life in general but it can be so damn hard sometimes and takes some peeps a bit longer to get to this point.
I think we need to listen to them, help and guide them the best we can. Not everybody is resilient or strong willed as some on here and even if you are, getting T tests your upper most limits (obviously always see a medical professional and take their advice over people of here) I know I'm still in my own whirlwind of emotions at the moment and taking each day as it comes.
Overall I do think this site helps so many and there are some genuinely kind hearted and helpful souls on here who have my many many thanks.
I'm sorry buddy, hopefully the H will go for you soon I've seen many posts where it has, but can take its time. If TRT works for somebody all power to them, that's great news. My problem is TRT doesn't work for everybody, isn't available for everybody and it's expensive. CBT even though I'm a big believer in this feeling for a number of issues just not T, this also doesn't work for everybody.
TRT is a scam and CBT isn't as effective for chronic disabilities as it is pretty much anything else. Objectively speaking, both suck for tinnitus.
CBT is crap. It didnt help me at all. I was told some fairtale things like oh you have to be positive, it can get better, it must get better, think of all the things you could still do, etc
USELESS. This is what we have with people who have T..seriously...like seriously.
Everybody has hearing loss past certain age (or past certain amount of sound exposure), it's impossible not to.
They just tested you up to 8kHz, while the human hearing range goes up to 20kHz.
Spikes new sounds, ups and downs in volume are normal at the beginning. Hang in there it will settle down eventually. Had it since 2013, sometimes I forget about it for weeks
Raphael7713
Member
People can habituate several times. If I'm not mistaken, Michael Leigh has habituated twice? And he is one of many. Trust me I know that feeling of total disapointment, when your T is mild and you start feeling happy again, or in some cases the T has completely vanished and then returns back. That feeling is one of the worst I've experienced in my life.
I have forced myself into seing this as a mental challange. How strong am I? Keep on fighting, things can turn for the better, it's not a myth we tell to eachother just to make others feel good, there are truth in it.
And as far as ENTs go, they are powerless. Not because they are bad, but unless the T is directed to earwax or something physicall, they cant do much at all. Then we need experts of the brain, not the ear, depending on what caused ones T.
I have forced myself into seing this as a mental challange. How strong am I? Keep on fighting, things can turn for the better, it's not a myth we tell to eachother just to make others feel good, there are truth in it.
And as far as ENTs go, they are powerless. Not because they are bad, but unless the T is directed to earwax or something physicall, they cant do much at all. Then we need experts of the brain, not the ear, depending on what caused ones T.
I want my T to be mild and not to have SEVERE H on my R ear. If that happens that I am out of here..success story..but sadly that wont happen
Did your T lessen in 1 year?
Raphael7713
Member
I want my T to be mild and not to have SEVERE H on my R ear. If that happens that I am out of here..success story..but sadly that wont happen
Did your T lessen in 1 year?
My T situation is the strangest one ever and everything seems...weird.
To try making the long story short:
T begun in january 2017 one day when I was going to sleep. I had a cold that very day and days before, but on this particular day I also drank alcohol and took painkillers
I had a mild T for exactly 2 weeks, then it disappeared for 1 month. And since then until now, my T has came , gone away for weeks and months, came back some days/weeks, went back for weeks again, came back and so on and so on.
January 21 2018 (1 year later) I got this high pitched eeeEEEeeeeEEEE from nowhere. That lasted for 2 weeks then went off, after that I had 4 months of silence (now) with some minor t here and there.
- May 29, 2018
- 1,161
- Tinnitus Since
- 10/2017
- Cause of Tinnitus
- Neck/stress
Nothing against Michael, and this isn't an attack on him personally, but he spends his life on tinnitus forums and thus one would accurately surmise that although he preaches this mythical habituation, he actually lives in constant fear of T. He obsesses every single day about T.
Let's put it like this......Is he happy? I mean really happy? Like a man who doesnt have a long history of huge trauma caused by the long shadow of an illness that caused weird shrieking in his head and a life of chaos and fear.
Because I suspect he's not happy. I think he might be angry and miserable and wishing he could just get this bull**** cured once and for all so he can blast his classical music and let his f***ing hair down like there's no tomorrow! And I don't blame him. I understand him. I am him. We're all him. We want to say **** off to T FOREVER! Not pussy foot around it for the rest of our lives worrying about our bloody ears and behaving like bloody lunatics.
Habituated Michael Leigh wishes like all of us that he wasn't metaphorically forced to live in a crappy rundown building on the edge of a steep cliff in total fear and grim resignation that one day it's all going to fall in the f***ing sea.
And if he says any different he's lying.
Raphael7713
Member
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