I Will Not Live with My Tinnitus

#32
foliefortuna said:
I have been diagnosed TMJ disorder induced tinnitus. I am very sure this is what it is because my audiogram revealed no hearing loss and my jaw makes funny popping noises.

My TMJ issues started when I was 13 and the tinnitus began when I was 15. I have been dealing with it for about a year now.

I am going to a doctor to see what can be done about my TMJ disorder. If my tinnitus cannot be gone completely, I do not want to be alive.

I cannot stand it, I don't want to die but I refuse to live with this ringing.
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@foliefortuna please don't give up. I'm just a few months away from my T-anniversary (April 13th) and when I was a year or two in I was still on the fence about whether or not I could live with this. As someone else said, it does take time. It's normal and okay to feel like there's no end in sight, I think perhaps that just a stage of grieving for something that we have lost. However, death is a permanent solution to a problem that may not always bother you as much as it does, or indeed even always exist if it's from something like TMJ that can be (I believe) treated to some extent.

I can't promise that habituation is a reality for everyone, but I certainly got there. It both happened to me and I think it was aided by my pursuit of it. I took time to do yoga, to play video games (this helped me focus completely on something else) and to be in the physical company of supportive people.

Now I'm trying to give back in graduate school. But I remember very clearly being in a teensy town in Ohio crying my eyes out wondering how I would even make it to the next day. Just because you feel awful now does not mean you will forever. I am not just surviving, I'm living a good life and I'm glad I'm alive.

Hang in there and always feel free to PM me <3 We're all here for you.
 
#33
198b2ec741875eb486b95f7928a8940a.gif

threefirefour said:
No trust me there's an infestation right about now. we REALLY don't need anymore.
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Yeah, I seriously can't cope going the rest of my life without enjoying music, being able to relax or hearing noises high pitch in my head. I'm not a normie I suck at adapting and already have the short end of the stick all my life this is the ultimate low.

I mean look my life is shot, I rationally except it. The only thing I share in common with neurotypicals is music and I can't have that option anymore. Nor can I concentrate due to already having ADHD now with noises in my head as an extra bonus. I am probably gonna stay a live for a few more years to see if research advances but I can take a bet give years from now its gonna be the same marry go round of false hope and once Trump cuts the federal science budget and starts WW3 we sure as hell ain't gonna have a scientific breakthrough then.
 
#34
Contrast said:
View attachment 14504

Yeah, I seriously can't cope going the rest of my life without enjoying music, being able to relax or hearing noises high pitch in my head. I'm not a normie I suck at adapting and already have the short end of the stick all my life this is the ultimate low.

I mean look my life is shot, I rationally except it. The only thing I share in common with neurotically is music and I can't have that option anymore. Nor can I concentrate due to already having ADHD now with noises in my head as an extra bonus. I am probably gonna stay a live for a few more years to see if research advances but I can take a bet give years from now its gonna be the same marry go round of false hope and once Trump cuts the federal science budget and starts WW3 we sure as hell ain't gonna have a scientific breakthrough then.
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Holy Jesus this is a pretty supreme meme.
 
#35
foliefortuna said:
I don't ever want to get used to this lower quality of life. It is worse than the chronic ache in my legs or any disease/disorder I have had. I would rather be dead. I will not accept hearing a ringing in my ears for the next 60 years of my life.
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As someone who has suffered from T 2 times in my life, I can offer this:
My first time with T (noise induced) was horrible. Very loud, high pitched screaming T with pain, fullness, sensitivity to noise. I was super depressed and didn't know how I would live this way, but, it slowly faded, and after 2 years, it was completely gone. zero ringing.
I am now in my second noise induced T, and it has faded 80%+ so far in 16 months.
TMJ can be treated, and with treatment your T will fade, it will take time. IMO, you will not have to live with this forever. See someone who specialist in TMJ, tell them about your T. Give it time to sort itself out,
 
#37
threefirefour said:
No trust me there's an infestation right about now. we REALLY don't need anymore.
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No, what you need is professional help.
This forum is really a cesspool of negativity and truly lost souls.

I feel for the people that are suffering I really do but this forum just seems to perpetuate anxiety, pseudo scientific bullshit remedies, horror stories and complete despair. This girl is talking about suicide and you feel the need to again spew your aversion to habituation and any other notion other than some miracle cure that just is not coming.
It's become clear to me that you and a few other members here are hellbent on suffering together and anyone with any positive experience is attacked and questioned. This forum is poisonous, there are millions and millions of people in the world with tinnitus and yet almost none of them are on forums like this.

Habituation is not giving up or simply accepting tinnitus, in many cases it means you are not even consciously aware of your tinnitus 95% of the time. Now I don't know your personal situation or that of others filled with negativity nor do I know what the sound or volume of your t is, only thing I am certain of is that in the real world there are many people who have tinnitus and that have habituated to the extent as I mentioned above. From my personal experience I have spoken to almost a dozen people with this experience, real people and not desperate anecdotal posts online. Anyone can write something online and usually people with positive experiences do not.

All this nonsense about certain drugs causing tinnitus, TMJ causing tinnitus, ear infections, hearing loss and the list goes on and on and on. The main thing everyone here seems to have in common is extreme anxiety and in many cases history of depression, guess what this is all closely interlinked with tinnitus from recent research maybe, just maybe the tinnitus is a symptom of chronic stress and anxiety and the above is just the straw that broke the camels back. Maybe your negativity is not even your own free choice but the effect your tinnitus has on your limbic and autonomic nervous system and you are stuck in a loop blocking you from habituation ... Just a wild guess.

I really tried with this forum and I hoped to find some relief or sensible information but it seems like all there is here is negativity and the unwillingness to look at the problem in a different light. The few that actually try to help like Michael, Fishbone and Glynis being the exceptions. Just one look at the success stories shows the problem, every one sharing success through habituation gets questioned and shitted on. Any suggestion to medication which can help with the anxiety gets shot down due to being ototoxic (guess what pretty much everything is ototoxic).

Don't feel the need to reply to me, I am done with this forum and the negativity it perpetuates.
I wish everyone the best on their road to recovery, I truly hope everyone here can find the strength.
 
#39
Chris Holland said:
No, what you need is professional help.
This forum is really a cesspool of negativity and truly lost souls.

I feel for the people that are suffering I really do but this forum just seems to perpetuate anxiety, pseudo scientific bullshit remedies, horror stories and complete despair. This girl is talking about suicide and you feel the need to again spew your aversion to habituation and any other notion other than some miracle cure that just is not coming.
It's become clear to me that you and a few other members here are hellbent on suffering together and anyone with any positive experience is attacked and questioned. This forum is poisonous, there are millions and millions of people in the world with tinnitus and yet almost none of them are on forums like this.

Habituation is not giving up or simply accepting tinnitus, in many cases it means you are not even consciously aware of your tinnitus 95% of the time. Now I don't know your personal situation or that of others filled with negativity nor do I know what the sound or volume of your t is, only thing I am certain of is that in the real world there are many people who have tinnitus and that have habituated to the extent as I mentioned above. From my personal experience I have spoken to almost a dozen people with this experience, real people and not desperate anecdotal posts online. Anyone can write something online and usually people with positive experiences do not.

All this nonsense about certain drugs causing tinnitus, TMJ causing tinnitus, ear infections, hearing loss and the list goes on and on and on. The main thing everyone here seems to have in common is extreme anxiety and in many cases history of depression, guess what this is all closely interlinked with tinnitus from recent research maybe, just maybe the tinnitus is a symptom of chronic stress and anxiety and the above is just the straw that broke the camels back. Maybe your negativity is not even your own free choice but the effect your tinnitus has on your limbic and autonomic nervous system and you are stuck in a loop blocking you from habituation ... Just a wild guess.

I really tried with this forum and I hoped to find some relief or sensible information but it seems like all there is here is negativity and the unwillingness to look at the problem in a different light. The few that actually try to help like Michael, Fishbone and Glynis being the exceptions. Just one look at the success stories shows the problem, every one sharing success through habituation gets questioned and shitted on. Any suggestion to medication which can help with the anxiety gets shot down due to being ototoxic (guess what pretty much everything is ototoxic).

Don't feel the need to reply to me, I am done with this forum and the negativity it perpetuates.
I wish everyone the best on their road to recovery, I truly hope everyone here can find the strength.
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Sorry you feel that way. Good luck on another forum if you wish to leave.
 
#42
Equalizer said:
@Contrast
Within a few days starts the week of tinnitus that the moderators of the forum are organizing to create awareness I imagine about the catastrophe that this disease represents.

I hope that the pharmacists who divert their attention to tinnitus during those weeks do not see their meme that shows normal is to feel happy with tinnitus as if nothing happened, and much less go to see the stories of "success" of this site, because if so, the little interest they show will be dispelled.

What would call his attention to the research would be that they find chaos, pain, despair, death, suffering, madness, uncertainty, anxiety, daze, shock, fainting, anguish, crying, martyrdom, despair, scandal, ruined lives destroyed and collapsed, etc., in short, that they realized that this is worse than AIDS itself, so that, they invest and investigate seriously.
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I like the intent but let's be honest, it's not gonna go anywhere sadly. I would definitely spread major awareness if I thought it would.
 
#43
Chris Holland said:
All this nonsense about certain drugs causing tinnitus, TMJ causing tinnitus, ear infections, hearing loss and the list goes on and on and on. The main thing everyone here seems to have in common is extreme anxiety and in many cases history of depression, guess what this is all closely interlinked with tinnitus from recent research maybe, just maybe the tinnitus is a symptom of chronic stress and anxiety
Click to expand...
LOL
 
#45
Chris Holland said:
Just one look at the success stories shows the problem, every one sharing success through habituation gets questioned and shitted on.
Click to expand...
This is because their posts are polluting that forum, making it harder to find the Actual success stories that people are looking for when they go to that forum.

Habituation is an improvement, but it is not a Success. I doubt that people who had just been diagnosed with ALS will feel better about their disease if they find out that they might end up like Stephen Hawking.
 
#46
I was a in pretty bad shape before tinnitus but my life was just starting to pick up with some good things. Now everything's out the window.

What can I expect for my future with hearing loss and tinnitus?
 
#47
Equalizer said:
@Contrast
Within a few days starts the week of tinnitus that the moderators of the forum are organizing to create awareness I imagine about the catastrophe that this disease represents.

I hope that the pharmacists who divert their attention to tinnitus during those weeks do not see their meme that shows normal is to feel happy with tinnitus as if nothing happened, and much less go to see the stories of "success" of this site, because if so, the little interest they show will be dispelled.

What would call his attention to the research would be that they find chaos, pain, despair, death, suffering, madness, uncertainty, anxiety, daze, shock, fainting, anguish, crying, martyrdom, despair, scandal, ruined lives destroyed and collapsed, etc., in short, that they realized that this is worse than AIDS itself, so that, they invest and investigate seriously.
Click to expand...

You're right lets keep it negative. My life is ruined thanks to tinnitus, hearing loss and hyperacusis and I'm sure a lot of other peoples are so as well.

I'm sure my mental illness that preexisted before Tinnitus will definitely get there attention
 
#48
I believe in habituation and it really exists. My senior manager (66 years old) has been having tinnitus for more than ten years, and he is habituated to the point where he does not even know he has it.
 
#49
Bill Bauer said:
This is because their posts are polluting that forum, making it harder to find the Actual success stories that people are looking for when they go to that forum.
Click to expand...

You are one of the hellbent ones I mentioned in my post, all you post is either negative or some sort of pseudo scientific research, hate to break it to you but the ''actual'' success stories in your definition of the word are few and few between because in many cases tinnitus is chronic, wish it was not so but unfortunately for us and millions around the globe it is. This does not mean that it can't improve, go away on it's own or that you can't simply habituate to the point you are not even consciously aware of it (most of the time).

Yes I would like to find a cure, I would definitely want it and hopefully in the coming years they will find it but I can tell you with 100% absolute certainty that ''the cure'' will not be found on this website by you or the other members of ''team despair'' by Googling inconsistent research papers or by bashing people that habituated.

Again, good luck to all on this site on their road to recovery, thank you to the people that share their positive experiences and may everyone here (including team negativity) find the strength on their road to recovery.
 
#51
Just a reminder to register your thunder clap by the 9th of February.
#Tinnitusweek is Next week.....woohoo !!!!!
 
#54
Chris Holland said:
You are one of the hellbent ones I mentioned in my post, all you post is either negative or some sort of pseudo scientific research, hate to break it to you but the ''actual'' success stories in your definition of the word are few and few between because in many cases tinnitus is chronic, wish it was not so but unfortunately for us and millions around the globe it is. This does not mean that it can't improve, go away on it's own or that you can't simply habituate to the point you are not even consciously aware of it (most of the time).

Yes I would like to find a cure, I would definitely want it and hopefully in the coming years they will find it but I can tell you with 100% absolute certainty that ''the cure'' will not be found on this website by you or the other members of ''team despair'' by Googling inconsistent research papers or by bashing people that habituated.

Again, good luck to all on this site on their road to recovery, thank you to the people that share their positive experiences and may everyone here (including team negativity) find the strength on their road to recovery.
Click to expand...

You haven't been here long and already have made some brilliant posts :)
 
#57
So much for leaving the site then eh?
Chris Holland said:
Yes, it is, it's called a loop and is explained in the neurophysiological model of tinnitus.
Click to expand...
Well then we need to stop pretending that anxiety is "da reel enemie" like we do.
Chris Holland said:
You are one of the hellbent ones I mentioned in my post, all you post is either negative or some sort of pseudo scientific research, hate to break it to you but the ''actual'' success stories in your definition of the word are few and few between because in many cases tinnitus is chronic, wish it was not so but unfortunately for us and millions around the globe it is. This does not mean that it can't improve, go away on it's own or that you can't simply habituate to the point you are not even consciously aware of it (most of the time).

Yes I would like to find a cure, I would definitely want it and hopefully in the coming years they will find it but I can tell you with 100% absolute certainty that ''the cure'' will not be found on this website by you or the other members of ''team despair'' by Googling inconsistent research papers or by bashing people that habituated.

Again, good luck to all on this site on their road to recovery, thank you to the people that share their positive experiences and may everyone here (including team negativity) find the strength on their road to recovery.
Click to expand...
Ahh cute. When you see a scientific paper that contridicts your view, it must be fake. Absolutely. Although I don't fully agree there's still a degree of accuracy. A high amount DO recover. I haven't seen any papers on long term exposure or ototoxicity though.

And he doesn't go around "bashing" people. I'm not to pissed at you because I didn't really expect better, but I did from fishbone. Imagine encouraging throwing an innocent guy under the bus for your own agenda.
 
#58
threefirefour said:
Ahh cute. When you see a scientific paper that contridicts your view, it must be fake.
Click to expand...

When I see a scientific paper I merely look at at it's validity and not my expected or desired outcome.
That being said, I want a cure, but I have not been able to find it and neither has the medical field as of yet.

threefirefour said:
And he doesn't go around "bashing" people. I'm not to pissed at you because I didn't really expect better, but I did from fishbone
Click to expand...

I could not care less whether you were pissed or not. In fact I will not reply to you from here on out anymore.
 
#59
Chris Holland said:
When I see a scientific paper I merely look at at it's validity and not my expected or desired outcome.
That being said, I want a cure, but I have not been able to find it and neither has the medical field as of yet.



I could not care less whether you were pissed or not. In fact I will not reply to you from here on out anymore.
Click to expand...
Apparently you do because two users, one who hates me, called you out. And fine. I wasn't total king about you mostly in that statement anyways. See ya later I hated being pestered by you too.
 
#60
Chris Holland said:
pseudo scientific research
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??? Those studies were published in peer reviewed journals. My very first post in that Stats thread links to a dissertation that cites a bunch of those studies. Are you saying you are more qualified to judge scientific research than the academic advisor and the external reviewers of the author of that dissertation?

Chris Holland said:
'actual'' success stories in your definition of the word are few and few between because in many cases tinnitus is chronic
Click to expand...
We don't have to use words like "many" - we have actual statistics about this in the Stats thread. According to the most pessimistic study done with older adults, at least a quarter fully recover. The study about victims of a terrorist attack (many of whom had ruptured eardrums) and about young soldiers indicate that over 70% recover. So there is that.
 

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