Ideas and Suggestions for Future Episodes

[OptimusPrimed]

Charles Liberman, Ed Rubel, Albert Edge, Stefan Heller, Ronna Hertzano, Anthony Ricci, Matthew Fitzgerald, ... I have other suggestions.

Great work with the podcast. Looking forward to future episodes.

I will contribute more when financially able.

 

[AfroSnowman]

I don't know if this is a good idea or not but how about the heads of ATA or BTA? You can ask them about their perspective on how to further the cause of tinnitus sufferers and why their direction seems so irrelevant to many of us here.

 

[Watasha]

I don't know if this is a good idea or not but how about the heads of ATA or BTA? You can ask them about their perspective on how to further the cause of tinnitus sufferers and why their direction seems so irrelevant to many of us here.

The ATA is a lost cause unless another way can be found to motivate them. I have spoken with them and they even censored me on their social media when I provided information to how much of their contributions have historically gone to research. It was as factual and non-emotional as possible and without warning I was banished.

 

[VeryUnfortunate]

I don't know if this is a good idea or not but how about the heads of ATA or BTA? You can ask them about their perspective on how to further the cause of tinnitus sufferers and why their direction seems so irrelevant to many of us here.

I think this is a great idea. These organizations are supposed to represent us, but we aren't seeing much from them at all. There seems to be a great disconnect between Tinnitus Talk and these organizations. Perhaps if we can connect with them, it will be beneficial for tinnitus sufferers. (I know how controversial these organizations are before you say anything).

EDIT: I just saw that David Stockdale (Chief Executive of the BTA) was on the previous episode of the Tinnitus Talk Podcast. Perhaps it is time for some of the ATA executives to come on board for an episode. After all, the USA has a much larger population.

 

[InNeedOfHelp]

Sound Pharmaceuticals have just agreed to join us on the Tinnitus Talk Podcast.

We're now going to be quite busy in the near future with all of these new episodes, but definitely looking forward to more great content!

Thanks for the suggestions, guys!

Hi @Markku, any update on the Sound Pharmaceuticals podcast?

 

[Aaron91]

Would like to suggest Arnaud Norena or one of his colleagues. His recent work is gaining a lot of traction in the hyperacusis community and think it could be a really coup to have him on.

 

[Nick47]

Possibly Gerald Brooke of Harley Street London, where he sees the state of play with treatment and research.

 

[Hazel]

Hi @Markku, any update on the Sound Pharmaceuticals podcast?

Unfortunately, there's been radio silence from their end after they initially agreed

Would like to suggest Arnaud Norena or one of his colleagues. His recent work is gaining a lot of traction in the hyperacusis community and think it could be a really coup to have him on.

Good idea. I met him a few times and think/hope he will agree.

 

[Tasty]

Interview with Prof. Cheung about tinnitus and Deep Brain Stimulation (DBS) would be an amazing opportunity since he is the main investigator of the mind blowing treatment.

https://www.ucsfhealth.org/providers/dr-steven-w-cheung

 

[Gb3]

Interview with Prof. Cheung about tinnitus and Deep Brain Stimulation (DBS) would be an amazing opportunity since he is the main investigator of the mind blowing treatment.

https://www.ucsfhealth.org/providers/dr-steven-w-cheung

This!

 

[Hazel]

Interview with Prof. Cheung about tinnitus and Deep Brain Stimulation (DBS) would be an amazing opportunity since he is the main investigator of the mind blowing treatment.

https://www.ucsfhealth.org/providers/dr-steven-w-cheung

This!

Great idea! We already reached out to him back in 2019, but sadly he never responded to our request. If anyone is in touch with him, let us know!

 

[UKBloke]

I wonder if it would be possible to have Victoria Didenko on from Australia?

She appeared on the Tinnitus Minus chat recently to talk about their app and other tinnitus stuff.

I'm not really that bothered about the app but Victoria is a very compelling tinnitus advocate I think. Aside from her collaborative links with Tinnitus Australia, she also mentions being the subject of what I can only describe as a form of gaslighting when a prominent ENT surgeon commented to her that perhaps there was some other reason why she's unable to just forget her tinnitus. So she's clearly battle-hardened, but the main point of interest for me, however, is Victoria's involvement as a test-subject with the Bionics Institute and their attempts to finally build an objective test measurement for tinnitus (OTMT).

I believe the root of the problem severe chronic sufferers face is that we're conflated with people whose tinnitus is mild. And this lack of stratification and understanding is killing our ability to move forward. We need the stratification OTMT will provide.

Victoria clearly has a lot of gusto. And I admire her point of view that she simply does not accept the notion that we should just have to deal with tinnitus.

So what does she think about the reality of getting OTMT in place as a clinical endpoint in our lifetimes? Is she still in touch with the Bionics Institute? What were the results of her test there?

I think Victoria would make a very compelling guest, and maybe we could forge some useful links and help nudge this critically important research space forward, even if just a little.

 

[InNeedOfHelp]

Hi @Hazel, as you may have seen, Dr. Susan Shore is presenting results on her Phase 2 trial December 3rd. That specific date possibly is the most important date in the history of tinnitus research.

Any chance we can have her on the Tinnitus Talk Podcast around that period too? I'm sure we all have a ton of questions for her.

Thanks for answering.

 

[Nick47]

Is there anything in the pipeline for upcoming Tinnitus Talk Podcast episodes?

 

[AfroSnowman]

@Hazel, if you are looking for content, maybe interview/challenge/allow to explain practitioners/proponents of various tinnitus treatments. It might be interesting in having a TRT, hearing aid, masking, acupuncturist, CBT, VA doctor, etc. Lots of relevant content.

Only problem is if you think by giving them a platform would give them credibility.

 

[CW Dragon]

I would LOVE to hear Dr. Charles Liberman on Tinnitus Talk Podcast about synaptopathy induced tinnitus, and he recently was awarded a Grand Prize by the French La Fondation Pour l'Audition, one of the highest honors given in hearing science. He gave a great speech recently there too last month about hidden hearing loss; he didn't focus on tinnitus though.

 

[Nick47]

Sound Pharmaceuticals have just agreed to join us on the Tinnitus Talk Podcast.

Are Sound Pharmaceuticals still in the pipeline, @Markku?

 

[Markku]

Are Sound Pharmaceuticals still in the pipeline, @Markku?

No unfortunately. They initially agreed to take part, but then went radio silent. They have not responded to our emails anymore, and we've sent multiple reminders.

 

[Markku]

I would LOVE to hear Dr. Charles Liberman on Tinnitus Talk Podcast about synaptopathy induced tinnitus, and he recently was awarded a Grand Prize by the French La Fondation Pour l'Audition, one of the highest honors given in hearing science. He gave a great speech recently there too last month about hidden hearing loss; he didn't focus on tinnitus though.

As would we. We've tried to get him on the podcast multiple times, unfortunately unsuccessfully.

 

[LostinTX]

@Markku, what about the doctors behind this study showing significant results and prototype in development?

Assessment of Subjective Tinnitus Treatment Results Using a Prototype Device for Electrical and Magnetic Stimulation of the Ear-Preliminary Study. - Abstract - Europe PMC

 

[Nick47]

Deanne Thomas - incoming CEO BTA?

 

[Artemis2K]

Frequency Therapeutics has done so well lately. I'd love an update podcast episode that focused on their recent progress and FX-345. I'm curious as to why it can't go to lower frequencies.

 

[Nick47]

Deanne Thomas - incoming CEO BTA?

Forget this, she has left.

 

[haha ear go eeee]

Oh definitely interviews with Paul Fuchs, Megan Beers Wood, David Martinelli, Catherine Weisz, Charles Liberman, Arnaud Noreña, and Philippe Fournier!

And maybe an episode featuring people that specialize in TRT and CBT and that recommend those treatments for noxacusis? It'd be really cool to see if you could change their view points on recommending these things and maybe even educate them on why that stuff usually doesn't work.

 

[Nick47]

I've put some thought into this...

A narrowed down list would include:

• Sven Venneste
• Kelly Assouly - studying cochlear implants and optimal stimulation parameters for tinnitus
• Peter McNaughton or Alan Parmer - HCN2 blockers and the peripheral origin, he is very accommodating and would jump at the chance to talk to us
• Matthew Carlson - tinnitus implants
• Berthold Langguth
• Prof. Dr. Heidi Olze - Intakt

 

[Nick47]

Currently, my favorite podcast interview would be with Professor Peter McNaughton to find out where he is currently with the new compounds they have found. He has a public website. He would jump at the chance.