If Your Tinnitus Vanished, How Would Your Life Change?

[MattK]

It's not even a cure. Danny Boy is quite frankly, abusing the word. A cure would mean he could stop keppra and his H won't return.

But since he has to keep taking keppra to suppress his H, what he is actually describing is a treatment not a cure.

 

[snow86]

Sure, he is abusing the word.

But whats wrong with the use of keppra if it really helps like he says? When it really works for him and the side-effects are manageable? Whats the alternative? staying home all day with H and being partially disabled?
(I mean in his case, im not saying it works in general. Im gonna try soon for myself)

 

[Cheza]

My energy would return to its normal level. I could make future plans with friends without worrying if that's the day the T will decide to imitate a swarm of angry cicadas, with an overarching high-pitched diffuse tone that spans from temple to temple inside my head.

I could walk down the street without worrying about some yapping dog suddenly rushing up to the edge of its yard and barking its head off, or a little kid unexpectedly shrieking at the top of its lungs in the coffee shop just because it feels like it. I could enjoy watching a Netflix program without the T intruding. I could take the money I spend on supplements and actually do something nice for myself.

All sorts of things would change for the better. Right now it feels like my life is caught in a net of tinnitus, and I really want to escape. Really really really want to escape.

 

[linearb]

Sure, he is abusing the word.

But whats wrong with the use of keppra if it really helps like he says?

The problem is that based on a single anecdote with no control, there is literally no way to know whether or not it's even helping.

 

[snow86]

The problem is that based on a single anecdote with no control, there is literally no way to know whether or not it's even helping.

You're right, but since also Viking, who had severe H ,stated that it helped subside his H there seems to be something about it worth checking it out (if you really need it). And since there's not gonna be any official trial and theres nothing for H, you will have to find it out for yourself because theres no other way.

 

[linearb]

You're right, but since also Viking, who had severe H ,stated that it helped subside his H there seems to be something about it worth checking it out (if you really need it). And since there's not gonna be any official trial and theres nothing for H, you will have to find it out for yourself because theres no other way.

Oh yeah, I absolutely agree, I think people should experiment with these drugs if they want to, and I don't have a problem with people sharing their anecdotal experience even if it's nothing like data.

What I have a problem with is anyone claiming that these things are anything like a cure, that there's any way to predict what someone else's experience will be based on their own, or implying that there isn't a significant risk of unpleasant side effects. I haven't said anything about Viking, because he hasn't been prancing around for months derailing every thread with "Keppra is a cure!"

 

[linearb]

There's such a huge variability in what "tinnitus" means, too... drug reactions just aren't reliable. For instance, in my case, Clonazepam utterly obliterates my T. It doesn't (only) make me less anxious, it reduces the volume by a staggering amount, to the point where I really have to struggle to hear the sound against relatively quiet background noise. But, for many people, it seems that this just isn't the case -- and it may be telling that I only developed tinnitus initially after relatively short-term benzo use and discontinuation (though there did not seem to be a direct temporal connection at the time it happened).

 

[MattK]

Sure, he is abusing the word.

But whats wrong with the use of keppra if it really helps like he says?

I never said he should stop. My point was simply that he's misusing the word cure.

And btw, the alternative to trobalt and keppra is not misery. Plenty of people have habituated who've never taken drugs.

 

[ady]

The problem is that based on a single anecdote with no control, there is literally no way to know whether or not it's even helping.

More people should try it?

 

[Mad maggot]

Every single drug is a poison by its very definition. It's only the dose that decides whether it's lethal or not. So any drug at all has the potential to kill or cause any number of side effects. Any doctor will tell you a drug is a poison. The question people need to make their mind up on is whether the risks of the poison outweigh potential benefits.
Every person has to come to their own conclusion on what the risk and benefit is for them because we are all different so react differently in every way.

 

[Poyraz]

I'd be most positive person one could ever see in the life! I'd live my life to the fulliest and build a family. God I want that life!

 

[Shafii sigera]

With or without T, am starting a biggest awareness campaign in this country,.

 

[Shafii sigera]

By the way today was almost like no T at all,. Am hoping 2morrow will be the same,.

 

[Starlord]

I would honestly cry with joy that the exhaustion is over. Get back to my life. T has put me in such a rut. I would lay in bed looking at the popcorn stuff on the ceiling and just think about anything about everything, except now T wouldn't be on my mind. I am a very introspective person and I relished in my quiet before T.

I am also a big fan of movies...which recently I became disinterested in because of T. I would watch Lord of the Rings over and over again, and then read the books in silence

Move to NYC, a place that I have come to adore since I visited last year. And not fear how loud it might be.

 

[Mario martz]

it would change a lot.
I would move to los Angeles! and live my dream
i would be so greatful and ill try to help out everyone that comes my way
i would celebrate everyday
<3 i hope cure is on the way, we deserve it.

 

[Hil]

I would feel blessed relief...I would sit in silence...I would not worry anymore about all the things around me that might increase the tinnitus...

 

[Sebastians]

I would roll out my old Marshall stack, plug in my guitar, play the meanest solo ever since Van Halen's eruption...
But at a sensible volume and not being in front of the amp

 

[cjb2811]

Mine did go away. I had severe tinnitus from November 2013 until December 2014, due to taking the drug Lamictal. I was tinnitus free from December 2014 until June 2015 and I LIVED LIFE TO THE FULLEST.

Then in June 2015 I made the mistake of taking another medication, Tegretol, as I had become depressed due to some circumstances in my life. The depression didn't bring back my tinnitus but just two doses of Tegretol did. I am now worse than ever, 10 months of screaming in my head and do not know what to do.

Of course if it got better once it could possibly get better again, but right now I do not see that happening.

 

[Fangen]

I'd stop getting anxious as soon as some sudden noises would go off (traffic, gym, work bla bla). Or being afraid of loud noises in general. Being able to lay down my head on my pillow and hear nothing. Be able to lay in my bed in the dark and listen to some soft music and feel like I can be at peace.
Rest of my life wouldn't change that much. Never a fan of concerts (hate when people bump into me) and never fan of any loud places in general. But at least I'd stop feeling so anxious as soon as I am out in a bar, or fumbling after ear plugs as soon as I get somewhere. I'd feel less worrisome basically.

 

[Owen]

I'd stop getting anxious as soon as some sudden noises would go off (traffic, gym, work bla bla). Or being afraid of loud noises in general. Being able to lay down my head on my pillow and hear nothing. Be able to lay in my bed in the dark and listen to some soft music and feel like I can be at peace.
Rest of my life wouldn't change that much. Never a fan of concerts (hate when people bump into me) and never fan of any loud places in general. But at least I'd stop feeling so anxious as soon as I am out in a bar, or fumbling after ear plugs as soon as I get somewhere. I'd feel less worrisome basically.

I think I would be much the same as this. The fact that mine was prescription drug induced annoys me all the more. I would always wear ear defenders when using power tools and avoided noisy places before I had tinnitus.

I loved reading in a really quiet room, so I think I would just read all the books I never got around to reading before this started. Also, I've suffered bouts of insomnia all my life, but instead of being annoyed that I couldn't sleep, I think I would just enjoy the silence!

 

[hoper]

i would dance with derpina @derpytia

 

[Sarah Russett]

Enjoy the silence.

 

[Off-Kilter]

I'd cry a lot. I'd probably be manic for a few months.

But in the end, I'd still have the anxiety that causes me to focus on my tinnitus. Tinnitus interacts badly with the personality type I already had.

 

[Mentos]

I would probabely be doing exaclty the same things I do know, just with less anxiety and distraction. Perhaps I would spend more time sitting at home doing nothing and letting my thoughts meander freely around many different things. Now in order no to focus on my T I have to be on the move all the time.