Lenire — Bimodal Stimulation Treatment by Neuromod

[El BUZZ]

How such simple sounds can impress the tinnitus sensation? I wonder what's the difference to nature masking sounds which doesn't help much.
I can't imagine that simple sounds like the ones mentioned change the tinnitus pattern in the brain. Is it really so easy, just combine a bit electrical stimulation and that's it?

Well, that's a very simplistic resume of the approach but yes, it wouldn't surprise me. Perhaps this is one of those many complicate issue/simple solution cases.

 

[Allan1967]

There's something going on with the timing alignment of the chirps and the tongue tip pulses.

They are in synch I believe and rippling across the tongue piece I think.

 

[Mentos]

Past 3 days have been bad. Previous 3 days good. No real change in my pattern really.

Still early days. Not even 2 weeks yet.

@Allan1967 and @Cojackb it seems your tinnitus fluctuates a lot recently, was it always like that or do you attribute this to influence of Lenire?

 

[FGG]

I don't want to derail the thread but that's weird... Visual snow and floaters are generally more bothersome during day time. Open spaces, blue skies are their favourite menu.

Per the specialist I saw about it, my case is typical of visual snow due to an underlying migraine disorder, in my case he thinks my "Meniere's" is really vestibular migraines and the clue is my type of visual snow--hard to see stars even.

I also have mild floaters but only see those in the day. Feel free to message me if you want to hear more about it.

 

[Cojackb]

@Allan1967 and @Cojackb it seems your tinnitus fluctuates a lot recently, was it always like that or do you attribute this to influence of Lenire?

Personally, it's certainly been more active since starting the treatment. More frequent fleeting spikes and much more activity in regards to daily variation in volume.

Prior to that my tinnitus had settled to a constant and was rarely bothered by loud noises, mostly just lack of sleep.

 

[ChrisBoyMonkey]

Just started my first EVER treatment. I am finally back home in the US and starting treatment today. I was in a bit of a hurry when doing the fitment as I had a return flight to catch. Am I right in that the tongue tip sits on the TOP of the tongue and not bottom? I'm fairly sure that's the way they showed me, but with a thousand and one things going on, I am double guessing myself.

OK good luck to myself and all the others trying out this treatment. I'm US based so am pretty invested and really hoping this works. It's not uncomfortable at all. Even would say that you're saying to yourself this is so mild that is it even doing anything? But then you just remind yourself the years and years of research behind bi-modal stimulation. The sound is also fairly soothing. Definitely masks out the tinnitus. I am having a little drooling going, but was told that would be normal.

OK. Some tips for anyone heading out to the Neuromod offices. Its €2.50 per hour to park. You also have to factor in the eflow.ie M50 toll. You have to pay this the same day from a computer. It's license plate recognition. So just make sure you make a copy of your license plate and pay later. From the airport it's not all that far. But i just rented a car for convenience. Cab would probably have been less expensive. You could also get away with not paying the Hermatige medical center car park rates if you don't mind a 5 min walk. I chose to just pay.

As for what I'll do for my hour a day during treatment? I'll just edit pics on Lightroom / Photoshop. That in itself is therapeutic and time flies.

Good luck to all starting treatment. I'll give an update in a couple of weeks.

Mind letting us know how you brought the device back? Or PM me if you don't want to broadcast it?

I am also in the US and hope to do the same so I wouldn't mind some advice from someone who has already walked the path.

 

[TinMan2019]

Mind letting us know how you brought the device back? Or PM me if you don't want to broadcast it?

I am also in the US and hope to do the same so I wouldn't mind some advice from someone who has already walked the path.

I just put it in my carry on and threw away the main packaging. Besides they're only checking your carry on, on the way out. I don't believe I've ever been checked on my return into the country.

 

[ChrisBoyMonkey]

I just put it in my carry on and threw away the main packaging. Besides they're only checking your carry on, on the way out. I don't believe I've ever been checked on my return into the country.

If they're checking the carry ons on the way out, wouldn't they check for when you go to the follow up appointments?

 

[AfroSnowman]

If they're checking the carry ons on the way out, wouldn't they check for when you go to the follow up appointments?

TSA is the only government agency that checks on your way out. When you put your bag to go through the x-ray at the security check it is to make sure you are aren't bringing a bomb, a water bottle or nail clippers on a plane. They could give a hoot less about another electronic doodad in your bag. They might not even have a legal mandate to screen for unapproved medical devices.

Long and short I wouldn't give it two thoughts.

 

[ChrisBoyMonkey]

TSA is the only government agency that checks on your way out. When you put your bag to go through the x-ray at the security check it is to make sure you are aren't bringing a bomb, a water bottle or nail clippers on a plane. They could give a hoot less about another electronic doodad in your bag. They might not even have a legal mandate to screen for unapproved medical devices.

Long and short I wouldn't give it two thoughts.

I feel like the regular requirements I had looked over make it very much possible to import normally. Although if this is easier and more guaranteed... then maybe I'll go with the Apple sticker.

Remake The Mule with Lenire.

 

[GlennS]

I wouldn't give it two thoughts.

We'll see if @linearb jumps down everyone's throat over that approach or I'm just special.

 

[linearb]

My guess is, the most important thing is that the mind picks up on all of the sounds. I know people that can get so caught up in a book or video game that all of the world disappears around them and they won't hear you if you yell their name.

I think such activity should be avoided, because Neuromod doesn't want to take the risk you're not paying attention and it negatively impacts your results. And because they can't judge what kind of a reader you are, or how invested you can get in video games, they stay on the safe side and tell everybody to zone off on it.

I'm sure leafing through a magazine is fine, just make sure you also remain aware of what the headphones are giving you so it consciously reaches your mind and brain.

My understanding was that UMich didn't think attention mattered one whit, the machine just does what it does. That sounds like something that will need follow up work to understand.

 

[Redknight]

TSA is the only government agency that checks on your way out. When you put your bag to go through the x-ray at the security check it is to make sure you are aren't bringing a bomb, a water bottle or nail clippers on a plane. They could give a hoot less about another electronic doodad in your bag. They might not even have a legal mandate to screen for unapproved medical devices.

Long and short I wouldn't give it two thoughts.

There's US customs officers in Dublin airport, you can expect the same rigor when flying Dublin-USA.

https://www.dublinairport.com/flight-information/travelling-to-usa/usa-preclearance

 

[Sytex75]

Perhaps a tent to camp out on the front yard of the Neuromod's office, that way any questions or concerns one may have you can ring the belly and ask away... And perhaps buy a Shepherd's pie for the folks inside to get on their good side.

So if any of you see a yank with a Florida tan camped out, stop by...

 

[Lilah]

There's US customs officers in Dublin airport, you can expect the same rigor when flying Dublin-USA.

I went to London and had to fly through Dublin to the U.S. I remembered being asked unnecessary borderline inappropriate questions by CBP at Dublin airport.

 

[Simon Czt]

You should also look into Lenire and the Michigan device. These things are targetting tinnitus itself. I really don't mind any hearing loss I may have, as like yours it's barely noticeable if any. I just want the noise to be gone.

I plan to try Lenire maybe next year! I have heard that they will probably arrive in Germany and Belgium in 2020, and I am lucky that these two countries are right next to me

I'll keep you informed!

 

[AfroSnowman]

Well after some prompting I finally got my response today. It took Neuromod about 16 days to respond...

"Neuromod Medical has received your completed online booking assessment. We are aware that it has been some time since you submitted your completed assessment. At this time, we have allocated all available first assessment appointments until the end of 2019. We are working to confirm allocated appointments, which may allow us to offer you an appointment in 2019. If not, we will offer you the earliest possible appointment in 2020. We will aim to get back in touch with you with suggested appointment times as soon as possible.

We thank you for your continued patience as we respond to the significant demand for assessments at Neuromod Medical.

With best wishes
The Neuromod Medical Team"

 

[Sytex75]

The Neuromod Medical Team must be catching up on assessments, I received email confirming... I can't imagine what their email inbox must look like considering they are receiving them from all around the globe...

Neuromod Medical has received your completed online booking assessment. We are aware that it has been some time since you submitted your completed assessment. At this time, we have allocated all available first assessment appointments until the end of 2019. We are working to confirm allocated appointments, which may allow us to offer you an appointment in 2019. If not, we will offer you the earliest possible appointment in 2020. We will aim to get back in touch with you with suggested appointment times as soon as possible.

We thank you for your continued patience as we respond to the significant demand for assessments at Neuromod Medical.

With best wishes
The Neuromod Medical Team"

 

[JohnAdams]

@Allan1967
Any updates sir?

 

[El BUZZ]

To all those members booking appointmens knowing in advance that they're not going to attend it:

You are SCREWING all the rest of us who are craving for having the appointment ASAP. Think twice before you keep FUC**NG with your fellow tinnitus sufferers' time, health and lives.

Then there's that outrageous CUSTOMS loop. Stop that mantra, please. Act like if it were an MP3 player. I bet it isn't the first time you pretend something like that. Remember porno + mum.

We deserve more dynamic posts in here, please.

 

[acute]

Well after some prompting I finally got my response today. It took Neuromod about 16 days to respond...

"Neuromod Medical has received your completed online booking assessment. We are aware that it has been some time since you submitted your completed assessment. At this time, we have allocated all available first assessment appointments until the end of 2019. We are working to confirm allocated appointments, which may allow us to offer you an appointment in 2019. If not, we will offer you the earliest possible appointment in 2020. We will aim to get back in touch with you with suggested appointment times as soon as possible.

We thank you for your continued patience as we respond to the significant demand for assessments at Neuromod Medical.

With best wishes
The Neuromod Medical Team"

That is the message we are all getting. I don't even want to imagine how Neuromod's inbox looks.

It makes me worried whether or not they are going to keep some sort of order to make the appointments for 2020 or if they will do it again randomly. Which would seem unfair to me.

 

[GlennS]

To all those members booking appointmens knowing in advance that they're not going to attend it

And who might those people be?

Fact is if someone drops out someone else will move up in the queue and get their chance. Only last minute dropouts are wasting people's time.

 

[ruud1boy]

I picked up my device yesterday and have done my first few sessions. No reaction either way to report as yet.

There isn't much to add that hasn't previously been covered in the comprehensive reports posted previously, but if anyone has any specific questions about the device / appointments / process that haven't been answered already, feel free to ask - PM or on the thread.

 

[KotaDomowa]

@ruud1boy,

Can you describe how to get to the right office once you enter through the main entrance?

 

[ruud1boy]

@ruud1boy,

Can you describe how to get to the right office once you enter through the main entrance?

Go upstairs to the 2nd floor and then make your way to Suite 38. Everything's well signed, so it's easy to find.

 

[Ruse]

Out of curiosity, is anyone who currently has the device using it for more than the recommended two half-hour daily sessions?

Just as an FYI for everyone I have attempted to contact several UK clinics - all have no timeframe and are still in talks with Neuromod. Looks like a UK release is still some time away.

 

[Redknight]

Out of curiosity, is anyone who currently has the device using it for more than the recommended two half-hour daily sessions?

Just as an FYI for everyone I have attempted to contact several UK clinics - all have no timeframe and are still in talks with Neuromod. Looks like a UK release is still some time away.

I'm just using it for two sessions a day, one at 12:00 and one at 21:00. I asked Caroline about using it for more and she said there would be no benefit. They are more focused on making sure you use it every day and don't forget or get lazy and that you do it around the same time each day.

The trial showed that those who did it at the same time each day got the best results. There was no evidence that 2x 30 minutes was better or worse than 1x60 minutes but I think they feel that 60 minutes is a long time to sit and do nothing, and people might start to dislike doing it after a few weeks.

 

[AliceW]

Neuromod contacted me.

My first appointment was the 1st of November but now a date is available sooner because of a cancellation.

My appointment is now the 18th of October at 14:30pm... Can't wait!

 

[GlennS]

Neuromod contacted me.
My first appointment was the 1st of November but now a date is available sooner because of a cancellation.
My appointment is now the 18th of October at 14:30pm... Can't wait!

Exhibit A for why people cancelling aren't so bad. It will all work itself out in the end.

 

[acute]

Neuromod contacted me.

My first appointment was the 1st of November but now a date is available sooner because of a cancellation.

My appointment is now the 18th of October at 14:30pm... Can't wait!

They contacted you via email?