My main message was that we shouldn't put all our hopes into this and see it as our last resort.
My clubbing days are over lol but I haven't avoided bars or anything. Yes it's harder to hear and yes it's extremely frustrating at times but I don't want to be isolated. I will try and avoid louder bars because of the tinnitus, and I ask friends if we can find a quiet corner. It does absolutely spike the tinnitus because I have to work harder to hear. The tinnitus has ramped up because of my hearing loss in my opinion :-/
Bars with ear plugs right? I'm 4 months in and used to really enjoy socializing at bars. If bars are spiking your tinnitus that's not a good sign and maybe cut back a bit to see if the loudness decreases?
That kind of happened to me. Late 2018 I was off the forums for months and when I came back I found out about Neuromod and their impending release. It was an awesome moment, because previously I thought we'd have to wait for Dr. Shore, who's probably years away from commercialization. Neuromod might be a bit slow lately but they at least they're actively working on a release in the immediate future.
My hearing is damaged because of prolonged earbud / loud music use, so I never took care of my lugs anyway. I will always have spikes when I try harder to listen. Especially when out or in crowded rooms.
Try not to deprive yourself of a social life, I know it's easier said than done but if you tell people you have these issues then hopefully your friends will understand. xx
True we have done it at work quite a few times. Yet we still have to send cease and desist letters out when we see copies of our products sold online.
Did they ever state publically that they were planning to release it in early 2019? I only remember them telling David from the BTA that they were planning to release it in January and in an email to Markku they said they were trying to release it as early as possible in 2019.
I've been caught up in thinking like this too. By the time it's here I hope I don't need it. I've actually said that out loud to other people. Pretty sure my tinnitus is going to outlast the wait.
Good questions. I would make the argument that starting distribution on at least a small scale through a local Irish partner would be great advertisement to drum up patients and audiologist sales partners.
They're pretty committed to releasing it I would think now, regardless of whatever the peer review comes out with. They know what's being reviewed, so must be pretty confident the results stand up to scrutiny, otherwise they wouldn't have submitted it for review.
I think the fact Hubert Lim recently did a number of high profile presentations; the advert in the ATA, the expression of interest website means you can be pretty confident that it'll be released regardless of what the peer review says which will probably reflect pretty much what we already know - it's not a cure; its not being touted as a cure and it will help some but not all.
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