The good thing about Lenire/Neuromod is at least we've actually seen data and research backing up their claims whereas other companies just slap some bullshit number on their website with no evidence.
That's why I still follow their work and bimodal stimulation as a whole. We never had this amount of money, people and actual science involved. Right now we have even 3 different teams working on it, Neuromod will be the first to hit the market but the competition is real.
because even if it doesn't work for anyone but for some, something that reduces tinnitus and really change its behaviour will shake the market and the community (patient and medical) and that's what we desperately need.They're actually only claiming 2/3 clinically significant improvement which I think gives them some added credibility. The proof will be in the pudding, so let's keep pushing for research and see what happens with this.
But the question is how many of those have actually done clinical studies to support their success rate?
There haven't been robust clinical trials for most of these. I've done TRT and the evidence is mostly anecdotal. They say 80% of people habituate to their tinnitus with TRT within 2 years of when you start it. That's the same rate as natural habituation. These results with Neuromod are within 6 weeks. That's massively significant.
I can understand why you would be doubtful of the testimonials. I'm sure they're selecting only their satisfied customers, but to me they seemed rather sincere. I'm 44 and I've had tinnitus for about 13 months. It cycles between mild, moderate, and severe days. The severe days are 2 or 3 days out of the week, and it's like I'm a completely different person. I don't even feel human. I feel for ya man at 21 years old. I feel like tinnitus is robbing me of my last few young years as I'm still in good shape, but tinnitus is slowly sapping me because I struggle with sleep, and anxiety now. Never had issues before.That's why I still follow their work and bimodal stimulation as a whole. We never had this amount of money, people and actual science involved. Right now we have even 3 different teams working on it, Neuromod will be the first to hit the market but the competition is real.
It's gonna be either the biggest disappointment in the history of tinnitus sufferers or the first big thing that actually works and IF it works then I think that it could start some kind of the "new era" where there is a lot more money and people involved in tinnitus research because the investors will see the results already on the market and they will start to believe that the investment will earn them some money. Of course patients' results will vary, Neuromod / Lenire is like a version 1.0, it will not work for every case but nothing in medicine works for every case. We will probably see better protocols and different approaches when it comes to bimodal stimulation, but nothing before this worked in terms of the actual reducing tinnitus volume and changing its behaviour. We only had CBT, habituation and shady alternative medicine scam, no real science aimed at tinnitus so it didn't attract the investors and the medical community.
Maybe it's the start, maybe it's another dead end. We'll see when they hit the market and I'm sure that a lot of people here will report on a daily basis how they feel and how their tinnitus behaves.
I'm trying not to hype myself, I have had this for 8 years now and i saw (and unfortunately experienced) A LOT of fails. Only fails, 8 years of fails fails fails. Fails, frustration and disappointment. It's hard for me to believe that it can change, but bimodal stimulation seems to be our best bet for now and I really hope to be proven wrong because I'm 21 and I'd like to experience life as a young adult. If it will at least reduce the volume by x % then it's going to be big, big because I will experience reduction for the first time in my tinnitus life (so for a guy whose tinnitus is getting worse as the time passes on it's going to be a miracle) and it can start the development of better protocols, better timings, different approaches and even more new research and treatments. It's my only chance to experience normal life. It should be the best time in life when you're healthy and full of energy. We need something that will shake the market and the medical community, then our situation as patients have a chance to change rapidly. I hope that's it, I don't believe that's it. It's strange and hard to describe.
It's really strange feeling when you realistically don't believe based on your previous experience but have hope at the same time that it's finally some turning point that will change our situation
And well, I don't really believe in testimonials. I need to see reports from people I know are genuine (and they already stated that they will get the device).
It's already been stated in this thread that Lenire is only as effective as CBT but gives you the result of improvement quicker.
They have also got a 10 dB reduction in volume that is clinically significant. I don't think hearing regeneration is the one-stop-fix-it-all. My dad is deaf as a post, he can't hear a thing without hearing aids. He doesn't have a hint of tinnitus. I have mild hearing loss and my tinnitus is raging. Hearing loss doesn't explain it all.
They also measured MML (Minimum Masking Level). Ross O'Neill said about MML in the interview: "And then MML (Minimum Masking Level). But a lot of people report difficulties with measuring MML; it's difficult if you've got two types of tinnitus which they then try and mask, the laterality of it. It's difficult if one form starts to come down [and the other doesn't] then what do you measure? It's challenging."
CBT didn't reduce the volume at all, habituation doesn't happen in 6 weeks neither so I don't think that we have CBT-like effects here. I think that THI is just a bad measurement that doesn't reflect the loudness reduction on the paper but was chosen because it's widely accepted in medical community and it's probably easier to get peer review on the clinical trials results write-up than using measurements that are not accepted in the medical community as a standard.
They did use THI, TFI and MML too though. The TFI results would be really interesting to see
And they are also widely accepted I think.
I could see some possible truth in this. There was a time my perceived loudness decreased drastically, but my THI scores did not go down nearly as much as you would think. I think there is still the emotional component at play that says I experienced this, it's still there and I don't feel great about it. Even if perceived loudness went down to zero, I think I would score something on the THI in fear of it coming back, fear of noisy places, etc.
Plus the THI is a completely subjective questionnaire. Your score could change day to day based on how you feel that day.
Regeneration is possible the same way fusion power is possible... theoretically. Until it comes of age people will pursue the best possible options out there, however imperfect.
The most important is reduction of MML which Neuromod reports. I don't think sufferers care that much about THI/TFI scores.
I think it depends on the sufferer too, but yes in general we're all more interested in MML or TLM.
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