Honestly, I think you have a chance. It seems that people with no hearing loss and hyperacusis respond better to the treatment. Thus far it hasn't done anything for me, but I have mild hearing loss and no hyperacusis. The only way you are going to really know if you try it since everyone responds differently. That decision is yours and how you feel about spending the money if you don't get any results. There is also a chance of worsening too so be sure you take that into account in your decision making.
In terms of symptoms that would indicate a better outcome, I believe no hearing loss and hyperacusis is a promising profile.
Yes I can. According to the studies undertaken at the Universities of Minnesota and Michigan, signal timing was the key element to bimodal stimulation.
I'm really sorry to hear that.
Thanks. Good on you not using the device. I unfortunately got lasting adverse effect from using Lenire.
I wonder whatever happened to @JayBowson with his experience of Lenire...
Some people have though. The issue isn't really 'does it work for some', because as promised, it does. It's whether or not it has the potential to make tinnitus permanently worse for others.
That's still very much an issue for me in my book, especially when improvement is still very much overlapped into placebo territory. Even the best user reports of Lenire have been less than overwhelming, IMHO.
48% of the Tinnitus Talk survey participants experienced clinically significant improvement. It hasn't removed the tinnitus, but it has improved it in almost half of the cases. I trust the sufferers to be able to tell whether their tinnitus has improved or not.
"Clinically significant" is just a binary label. It's either clinically significant or NOT clinically significant. Improvement doesn't work that way. It's a continuum, anything between placebo to being fully cured. So when you apply a label on results which are all relegated to minor improvements then where you draw the line on where placebo ends and real improvement begins is going to differ from person to person. That's just how it is and how a thread like this can keep running in circles.
Even though the majority of people have cochlear causes of tinnitus, regenerative medicine won't fix the non-cochlear causes.
What happened to your Lenire device? Were you able to return it for some credit?
How are you doing with your Lenire @RaZaH? Are you overall happy with your results? Haven't heard from you in a long time? Your tinnitus seemed similar to mine.Picked up the device, first session today.
No spike after the first try at least, but the music is horribly monotonous and boring
I see what you're saying in the first paragraph, however clinically significant = improvement, so almost half had an improvement of some kind. If by placebo you mean 'very small improvement' (an improvement of any size could be due to placebo, couldn't it?), then yes, the improvement may be very underwhelming, whether due to placebo or not, but it would still be an improvement nonetheless. And we don't actually know what the TFI scores were to be able to tell this, as far as I know...?
Yep.
Yes, and there be dragons, as far as opening up tinnitus sufferers to snake oil.
It may be working for a specific subgroup. I think that this is also what they said, right? If I remember correctly, the claim is that people with hyperacusis benefit more than others.
Maybe, maybe not. It's clear that they are the ones who have to prove efficacy. It's just that it does not make any sense to me that the device doesn't work and that they prepare global commercialization at the same time.
That's true. I'm not sure the headphone part of the bimodal device is a good idea. I remember trialing SoundCure. Time will tell I suppose. If it comes to the US they must think it's working for at least a subset of tinnitus sufferers.
What exactly are you expecting to see in the "coming months"? Your link is from over a year ago--and long before COVID-19.
It's not about the virus, it's just that things take time sometimes. I don't see any benefit in being hyperskeptical.
That's the mindset scammers in the tinnitus space are banking on.
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