@linearb, when do you reckon you will get your hands on Auricle? I know you have experience in technology.
Who knows! Whenever they start selling them, or I get bored enough to try to make my own. I've changed jobs like three times since I did that trial, and now I work with a bunch of CS/EE nerds, many of whom have tinnitus, but we're all too busy doing other stuff so far for side projects mucking with Arduino. Everyone I've shown the basic paper to has agreed it would be pretty simple to replicate the process in hardware; different people have different views on the risk profile.
Are you still on your medication cocktail with no plan of tapering just yet?
I have dropped the Gabapentin entirely and cut my Klonopin dose by between 12% and 25% over the last six months. I think my tinnitus is different and subjectively louder, but so far, I'm not thinking about it much more.
I think you misunderstood
@dd314. I don't think there's been any new upgrade to correct any latency issues, but the CEO claims that the latency has been corrected for since day 1, and is a non-issue.
It's entirely possible to do this, but it's just dumb to me as a professional code monkey. A wire solves this problem with zero compensation. Using an overloaded and fundamentally not-that-great stack of protocols like (whatever version of) Bluetooth and coding a technical ouroboros around it to avoid latency that you wouldn't need to adjust for in the first place if you were using a wire seems like a peak "cool tech idiocy."
Did you go for Lenire? What results have you had, if any? I have it available near me, but the $4950 cost is a little much of a chance to take.
Very risky chance unless you don't mind throwing away $5000 for something that's highly unlikely to lower tinnitus and could make it worse.
I haven't seen any compelling evidence aside from anecdotes that any of these things can have a permanently negative effect, and my conversations with the UMich staff about both their tech and Lenire (specifically) make me think it's
likely to be safe for me. I have no comment on other people's situations, and yes, "likely" is doing some work there.
I have $5000 sitting in an HSA that I could throw at this tomorrow. The nearest place that provides this is a 4-hour round trip. It's a 2-visit deal at least, so it's been life getting in the way, not money -- very busy with work lately and trying to help do organization and jamming with the local clique of electronic musicians and guitarists I know. I'm behind on mowing and every other piece of property maintenance that I am not paying someone else to do for me. Both kids are shifting from their school year routines to summer.
So, it's been a mess around here lately. I just got back from interstate travel, and I'm about to start Ketamine therapy (not really at all with tinnitus in mind; I am dealing with substantial emotional turmoil around a situation with aging relatives and them having to move). I don't really like crossing the streams of doing a ton of stuff at once.
I think this will happen at some point in 2024. But I'm also very cynical as to the results, which means I'm not in a screaming hurry, but also, if I get any positive results, I'll be as surprised as anyone else
$5000 is a lot of money. That's like ten big grocery trips for our family of 4 (or 20 trips if you go back to 2019 prices
), but compared to the amount of money I spent on my tinnitus from 2010-2017, it's a drop in the bucket.
I bet I spent $10,000 doing that UMich study; I just wanted to pay to be a cutting-edge lab rat. (The trial was free. 10-15 trips from DC -> MI with multi-day stays attached to them were definitely
not free). I heard that in subsequent studies, they did not allow people from very far out of the area; I was the only one, and maybe the logistical hassles I encountered a couple of times made them rethink that wisdom. Or, perhaps they quickly could enroll a bunch of local people, I don't know.
I lost touch with the UMich lab in about 2020, and I don't presently have contact information for anyone there
besides Dr. Shore. I might reach out to her again at the end of the year.
Rather surly, cynical, and always complaining. 
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