Lenire — Bimodal Stimulation Treatment by Neuromod

[Emma33]

In Neuromod's media release from about a month ago, they said they were getting ready to roll-out in Ireland and Germany.

Does anyone have any idea when Germany might happen and where the clinic would be located?

I'm Australian and have been thinking about going to Ireland, but Germany would be a little bit closer and a bit cheaper - the Airbnb prices for accommodation in Dublin are SO high!!

 

[JohnAdams]

I think regenerative medicine will be ready for NIHL or Age-Related hearing loss by the 2020s.

I don't think we will have that concern.

Maybe. There also may be nerves that need some BDNF or NT-3 to regenerate as well. I think the technology is here but my concern is that it will take a very long time to not only get these things approved but for them to be used in conjunction to regenerate all affected areas.

 

[punkaddict]

Anyone else concerned about using this before regenerative treatments in the future, if that might mess things up or 'lock in' the tinnitus so to speak?

 

[Jack Straw]

I thought that the age related hearing loss type doesn't cause tinnitus.

Is this true? I didn't know that.

 

[Ear Drummer]

@Don Tinny

According to Clearance it was pretty severe.

I know, I have made the same mistakes many times myself, but I think part of ignoring protecting one's ears is because one already has a problem and perhaps doesn't necessarily see a cure or just stops caring all the time. If I was able to hear much less tinnitus or even silence I feel I would be much more careful with my ears. But at the same time, because we know we can fix it again maybe we would never care again? I'm honestly not trying to get down on Clearance as I make the same mistakes, again, just something about the sudden appearance and story seemed odd.

I'm new here, this is my third stint of tinnitus! And by that I mean I have had it three times... First got it in 2009 and it took 8 months of my life away, couldn't cope with it at all, I practically spent months at home not being able to function, finally got myself together after taking Zispin (Mirtazapine) for a few months, got back to normal but still with a bit of noise bothering me.

I got into the first MuteButton trial and all I can say is that there was no more tinnitus after that.

Then in January 2012 I attended a loud event and it came back, messing me up again for about 4 months. I got back to functioning again after taking Zispin, but there was still some very bothersome noise, so I took part in the 2nd trial for MuteButton in July 2012.

All I can say is that the tinnitus went away again.

It can go away, and when people say it's permanent, that is not always true.

Unfortunately it came back with a bang in February this year (after being in a loud pub with a band).

I have got an appointment with Neuromod in June!

Fingers crossed that this will help me again as it did before.

 

[Ear Drummer]

@Jack Straw

I believe I read somewhere within the last year that age related hearing loss isn't actually true. Modern life is just so noisy that most elderly people end up with hearing loss. I just did a quick google search and couldn't find anything though so perhaps I am wrong. It's not such a far out idea though...

To add: Sorry this wasn't really what you were asking about... but to answer what I believe you were asking about, it seems to me that any hearing loss must be due to the cilia dying, no? In which case there would be accompanying tinnitus?

 

[Ear Drummer]

For all the reasons they give for why one has hearing loss in old age this suggestion seems to admit right there that it's mostly noise exposure that gives you hearing loss in old age.

https://www.hopkinsmedicine.org/health/conditions-and-diseases/presbycusis

What can I do to prevent age-related hearing loss?
The most important way to prevent age-related hearing loss is to protect your hearing.

• Avoid loud noises and reduce noise exposure
  
• Wear ear plugs or special fluid-filled ear muffs (to prevent further damage to hearing)

 

[Martin69]

In Neuromod's media release from about a month ago, they said they were getting ready to roll-out in Ireland and Germany.

Does anyone have any idea when Germany might happen and where the clinic would be located?

I'm Australian and have been thinking about going to Ireland, but Germany would be a little bit closer and a bit cheaper - the Airbnb prices for accommodation in Dublin are SO high!!

Nothing known yet for Germany.

 

[Oceanick]

Hey all, I'm trying to somewhat accurately test the loudness of my tinnitus for the Lenire questionnaire. Does anyone know of some tone generator either online or as an app where you control the decibel level to match it?

I imagine it would have to be used with headphones as computer/phone speakers would vary.

Hoping to fly out from Vancouver to Dublin in late summer to start treatment.

Also a reminder to everyone to be very careful what antibiotics you take as they can cause or worsen tinnitus.

 

[Don Tinny]

On the web they have a contact form for professionals. I wonder if they will be looking for clinics in different countries or if they will simply wait to be contacted. If it's the second option I'm totally fried. I guess most professionals will consider it "an unproven treatment".

 

[Striveon]

@Clearance

Thank you for sharing your experiences with us.

I don't know why this story doesn't seem believable. I too start blocking out the memories of the bad nights after a good week or two.

When my original tinnitus went away I started pushing the bounds bit by bit as I felt I could enjoy things again and it was a short time before I was long past caring about it, until it came back of course.

It's really normal and easy to block it out once it's not bothering you anymore.

How long did it take for your tinnitus to go away and how bad was It? What was the cause of your tinnitus??

 

[Jack Straw]

Anyone have any guesses as to how loud the audio from the headphones will be?

 

[Clint Azzopardi]

@Oceanick

Have a look at this:
https://www.tinnitustalk.com/threads/tinnitus-pitch-and-loudness-matching.242/

May I ask you what antibiotic started your tinnitus? Mine was gentamicin.

 

[JohnAdams]

Is this true? I didn't know that.

I don't know. That's what I've assumed, perhaps wrongly.

 

[JohnAdams]

Anyone else concerned about using this before regenerative treatments in the future, if that might mess things up or 'lock in' the tinnitus so to speak?

I'd think no. I'm not so sure tinnitus gets "locked in".

 

[Candy]

Anyone got an appointment yet? C'mon Neuromod sort it out...

How come the DailyMail hasn't picked the story up...

Every single miracle cure or gadget is on there normally...

 

[GamesB2]

How long did it take for your tinnitus to go away and how bad was It? What was the cause of your tinnitus??

Probably about 1-2 years bad and 3 years mild? It's been so long I barely remember.

No idea, woke up with it one day.

 

[MarkLud]

Anyone have any guesses as to how loud the audio from the headphones will be?

As someone who has both hyperacusis and reactive tinnitus, I'm dying to know this. (I'll power through either way but I'm hoping it's not too irritating to listen to for us hyperacusis folks).

 

[kelpiemsp]

Anyone have any guesses as to how loud the audio from the headphones will be?

Not quiet. This is the main reason for the hyperacusis exclusion I believe. It was louder then I would normally use headphones. I would be fully confident that it's not going to be loud enough to actually cause damage of course.

 

[kelpiemsp]

Is this true? I didn't know that.

It's less likely to cause tinnitus because your brain has time to adapt. Slow hearing loss over an extended period of time does not usually cause the brain to wake up one day and panic.

 

[GregCA]

I thought that the age related hearing loss type doesn't cause tinnitus.

Many older people develop tinnitus as result of presbycusis. What we don't know is why some do and some don't.

 

[GregCA]

Is this true? I didn't know that.

No it is not true.

 

[Don Tinny]

I don't know. That's what I've assumed, perhaps wrongly.

Supposedly the brain adapts better to a gradual loss over the years. The sudden damage, I read, increases the chances of having tinnitus.

 

[Heinrich_S7]

Anyone have any guesses as to how loud the audio from the headphones will be?

I believe it's 70dB.

 

[acute]

I was lurking on Facebook, and sadly I saw this... They are talking about Lenire.

I'm a little bit sad now...

P.S. I censored the names.

 

[Jack Straw]

I believe it's 70dB.

That's... loud. Lol

 

[Don Tinny]

I was lurking on Facebook, and sadly I saw this... They are talking about Lenire.

I'm a little bit sad now...

View attachment 30238
View attachment 30239

P.S. I censored the names.

Surely those who were successful are reading and talking about happier things.

However, it is unfortunate to read about worsenings.

 

[KotaDomowa]

If I understand correctly, a month had passed from the end of the treatment to the tinnitus worsening. It could be for reasons other than the treatment.

 

[Ruse]

I was lurking on Facebook, and sadly I saw this... They are talking about Lenire.

I'm a little bit sad now...

View attachment 30238
View attachment 30239

P.S. I censored the names.

Seems a bit suspicious to me the person who claims that they were on the trial but thought it was 6 months long?

Regardless, the data did show a minority of people who had very little to no change in their THI score.

It's also important to note that the programming of the device has been improved since the original release.

 

[Heinrich_S7]

Surely those who were successful are reading and talking about happier things.

However, it is unfortunate to read about worsenings.

We have far more successful stories than bad ones. The overwhelming majority had nothing but good experiences.

This person may also have a form of tinnitus that this device doesn't treat well.

Same thing when you have surgery, there's a slight chance of complications. But the majority of people have their problem fixed. But yes, you never want to be that 1% that had a complication.

To me though, it's worth it. I had the same fear when I had surgery, but I was a success story.