Lenire — Bimodal Stimulation Treatment by Neuromod

#7,081
Ruse said:
Ireland is exempt I believe.

It's only the 26 countries in the Schengen border-free travel area at this stage.
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I'm not sure that the formal regulations have been released yet but I thought I read something suggesting that it applied to foreign nationals only, not us citizens trying to return. That being said the whole situation is a bit dicey at the moment.
 
#7,082
Ruse said:
Ireland is exempt I believe.

It's only the 26 countries in the Schengen border-free travel area at this stage.
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You are correct. I still wonder if it is worth the bother. I am sure there is going to be a lot of extra scrutiny coming and going. I am still thinking I may move my appointment. Aer Lingus isn't charging change fees on flights. I will see what the next few days bring I guess.
 
#7,085
Sironketchup said:
Just got an appointment from Hannover for March 26th... Well obviously I'm going to decline but for those waiting, the time has come!
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Same here. Got a call, but rejected for now. They offered that I can call later to get another appointment.

Costs will be approx. 1900€ for the device and additional 850€ for 3 sessions. Altogether 2750€.
Good to know it is available in Germany now.
 
#7,089
Just wanted to give a little teaser. It's too early for a review, since it's only been 2 weeks, but if things continue in this trend, it's looking like my review is going to be extremely positive.
 
#7,090
Hi Folks,

I am new to the Lenire thread (and tinnitus in general). Would someone be kind enough to let me know:

1. When will Lenire be available in the United States?
2. Is the general consensus that it is a godsend treatment?

If Americans must go to Ireland for treatment why not go as a group with a bunch of us? Rent a house, share cooking, etc. Save money. If I go alone to Ireland I can't fathom the trip being less than $10,000 USD.
 
#7,091
BrianW. said:
Hi Folks,

I am new to the Lenire thread (and tinnitus in general). Would someone be kind enough to let me know:

1. When will Lenire be available in the United States?
2. Is the general consensus that it is a godsend treatment?

If Americans must go to Ireland for treatment why not go as a group with a bunch of us? Rent a house, share cooking, etc. Save money. If I go alone to Ireland I can't fathom the trip being less than $10,000 USD.
Click to expand...
1. Date unknown. They are waiting on FDA approval so it will take as long as it takes but likely not real soon.

2. Overall a soft positive with an equal amount of indifferent to mild positive responders. There are a couple folks that had had pretty substantial improvement and a couple describing worsening from it. Mostly it seems to work better for those with mild tinnitus as a little difference make a big difference while with severe tinnitus a little improvement still leaves you with a head full of sound.
 
#7,092
Martin69 said:
Same here. Got a call, but rejected for now. They offered that I can call later to get another appointment.

Costs will be approx. 1900€ for the device and additional 850€ for 3 sessions. Altogether 2750€.
Good to know it is available in Germany now.
Click to expand...
Got my appointment as well. But I don't think I will go this time. I still wonder how the payment will be? €850 in advance and then, "sorry, you aren't eligible for the device"?
 
#7,093
I ended up moving my first follow up appointment from next week. I realize I can still get to Ireland from the US, but everything is changing so quickly I put it off for a month. I am not sure with the way things are going I am going to be able to go to my newly scheduled appointment in April.

If the media gave a fraction of the percentage of coverage of COVID-19 to tinnitus we would probably have a cure!
 
#7,096
I was watching "The brain that changes itself" on YouTube to better understand neuroplasticity and how this Lenire device might work. But I am pretty confused.

In the video, people get input via their tongue and the brain processes it using the tactile channel rather than the usual route. It seems you should also be able to learn to hear with your tongue the same way, say, with a tongue tip device that "plays" simple songs you are already familiar with while you get visual clues to the tune, a bouncing ball, scrolling lyrics, images of instruments being played, etc.

Why simultaneously pump in sound to the ears? Won't that make it much much more difficult to learn to hear with your tongue?

And, is there not also some annoying timing delay between the ears sounds and the tongue stimulation?

I really don't get it why they do this bi-modal neurostimulation.
 
#7,098
Candy said:
@Lurius what was your MML?
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Before I can answer that, I need to know what MML is :) But if you're thinking about that tinnitus distress level thing I had to fill out in Neuromod's office it was 38. I also have to say that every single time I see your name, I think about that song "Candy" by Iggy Pop, lol :p
 
#7,099
MML = they measure your Minimum Masking Level i.e how loud your tinnitus is... you may not want to know it which is understandable...
 
#7,100
Sugarwagon said:
I was watching "The brain that changes itself" on YouTube to better understand neuroplasticity and how this Lenire device might work. But I am pretty confused.

In the video, people get input via their tongue and the brain processes it using the tactile channel rather than the usual route. It seems you should also be able to learn to hear with your tongue the same way, say, with a tongue tip device that "plays" simple songs you are already familiar with while you get visual clues to the tune, a bouncing ball, scrolling lyrics, images of instruments being played, etc.

Why simultaneously pump in sound to the ears? Won't that make it much much more difficult to learn to hear with your tongue?

And, is there not also some annoying timing delay between the ears sounds and the tongue stimulation?

I really don't get it why they do this bi-modal neurostimulation.
Click to expand...
I don't understand your point. The aim of bimodal neuromodulation is not to 'learn to hear with your tongue' but to reduce the volume of one's tinnitus.
 
#7,101
Candy said:
MML = they measure your Minimum Masking Level i.e how loud your tinnitus is... you may not want to know it which is understandable...
Click to expand...
I don't know what it is, sorry. Not sure how to find out.
 
#7,103
Lurius said:
I don't know what it is, sorry. Not sure how to find out.
Click to expand...
The MML, minimum masking level, is a number describing how much sound it takes to mask your tinnitus. It should be noted on the assessment paper that you got from your first appointment at Neuromod. Since you don't know what the acronym refers to, I guess the number is mid single digits. Count yourself among the lucky, you have a very mild tinnitus.
 
#7,105
Ruse said:
I don't understand your point. The aim of bimodal neuromodulation is not to 'learn to hear with your tongue' but to reduce the volume of one's tinnitus.
Click to expand...
Lenire tries to lower your tinnitus by getting your brain to use a tactile channel to process sound rather than your, presumably damaged or defective, normal auditory channel.

That is, in some sense, it is trying to get you to hear with your tongue instead of your ear in order to bypass the noise.

I am trying Lenire right now. But it seems like the small size of the tongue-tip makes it sort of hard to distinguish the different sounds with my tongue.
 
#7,106
Sugarwagon said:
I am trying Lenire right now. But it seems like the small size of the tongue-tip makes it sort of hard to distinguish the different sounds with my tongue.
Click to expand...
I'm not sure what you were hoping for from Lenire, but being able to consciously process sound with your tongue will not be an outcome from this treatment.
 
#7,107
Sugarwagon said:
Lenire tries to lower your tinnitus by getting your brain to use a tactile channel to process sound rather than your, presumably damaged or defective, normal auditory channel.
Click to expand...
That is not how Lenire (or other bi-modal stimulation treatments such as Susan Shore's) works at all. You can google good content that explains it well. I'm pretty sure you can find such videos on this site too (I wouldn't be surprised if I posted them).
 
#7,109
Agrajag364 said:
Yes. Most commonly in the first year. Sometimes within the first two. I have come across the occasional person for whom it's gone in up to four years. I think fading a lot within the first five months is an excellent sign. There is truth in what Paul says. There is major fading in the first months if it's going to go.
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Do you know of any names of people in your personal life that this has happened to? Sorry if I'm sounding pushy or edgy, I just really want a success story right now.
 

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