Levetiracetam (Keppra) Worked for My Hyperacusis
- Thread starter Danny Boy
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BTW, T today is 0.5/10I'm normally around a 4 to 5/10.
Interesting. You're the only one who have reported lower T from Keppra. And you have had T since 2012 which makes it chronic too.
Not exactly true. At the beginning of my keppra trial, I had similar days with lowered T. But it did not last, bad days always came back with vengeance, so, the final result remains inconclusive.
Agreed, I've experienced some lower T, but it doesn't last very long. It's as though the Keppra "wears off" after a few hours between pills. I don't think Keppra is in anyway a cure for T, but I do know it has an affect. It sure makes me tired though. If given the chance, I bet I could sleep 14 hours straight on this stuff.
My T is definitely chronic. It first got to the point where it bothered me in 2012, but I've had some ringing in my ears for decades. According to my audiologist, pretty much everyone has some slight ringing, they just don't notice it. Being able to hear complete silence is supposedly a rarity. I had an interesting conversation with him as well, regarding acute versus chronic. Many people have chronic T, it's just imperceptible unless in a sound isolation room. He demonstrated it to me by having my wife enter the isolation chamber, in which she noticed a slight ringing. In normal life, she has no clue she has T. I first noticed mine years ago while cutting down a Christmas tree in a quiet field setting. Long story short, he felt Autifony has the right idea of treating it in the brain. My father is an ENT / Maxillofacial surgeon, and he also agrees. I guess we'll all know for sure soon.
I'll keep posting my progress on Keppra. I woke up with a pretty loud ring in my left ear, but now an hour after taking a pill, it's quieting down.
My T is definitely chronic. It first got to the point where it bothered me in 2012, but I've had some ringing in my ears for decades. According to my audiologist, pretty much everyone has some slight ringing, they just don't notice it. Being able to hear complete silence is supposedly a rarity. I had an interesting conversation with him as well, regarding acute versus chronic. Many people have chronic T, it's just imperceptible unless in a sound isolation room. He demonstrated it to me by having my wife enter the isolation chamber, in which she noticed a slight ringing. In normal life, she has no clue she has T. I first noticed mine years ago while cutting down a Christmas tree in a quiet field setting. Long story short, he felt Autifony has the right idea of treating it in the brain. My father is an ENT / Maxillofacial surgeon, and he also agrees. I guess we'll all know for sure soon.
I'll keep posting my progress on Keppra. I woke up with a pretty loud ring in my left ear, but now an hour after taking a pill, it's quieting down.
I'll explain. Basically, keppra cured Viking of hyperacusis totally. For me, trobalt got rid of the amplification, but did nothing for the noise sensitivity or reactiveness. Keppra then got rid of the noise sensitivity and reactiveness. So basically, Keppra inhibits KV7.3 or KCNQ3. Trobalt opens, doesn't inhibit, but opens the KCNQ2, KCNQ3, KCNQ4 and KCNQ5 channels. So really, an actual cure would take ages to formulate, but we have the tools right here to cure it already.
Nope, improvements in both, but more so in the H. I can now tolerate my 15mo old daughter's loud crying
Did you have reactive tinnitus that got helped by keppra?
What are your results so far?
Yes, it was very reactive to certain sounds (in my left ear), such as certain car engines or my baby daughter crying. Keppra has really helped, if not completely solved that.
A path to follow now exists, question is will anyone with the capacity to turn it into something more take it up? With shitty American companies lately buying up some drug patents and jacking up prices 000's percent, will the Americans among us be ransomed with access to these drugs at some point in the near future?
how long do you used keppra when it began to work ? and in what doses . p.s. as i see it was 250X2 ? thanks !
i tried keppra and it gave me a permanent spike twice already and i have very severe reactive tinnitus..sucks
I've read where some people have had T spikes from Keppra. I had a nasty spike one morning last week, but since, my T has been abnormally quiet. I'm surprised, as I assumed help with the reactive T, but not so much my normal T. Today is my last day on Keppra, so we'll see if my positive results last. I'm guessing they won't.
I have started a trial with keppra. I started today with 500mg for two weeks and then I'm going to increase the dose. I'll keep the updates and results here.
I have reactive T and H. The H is the worst for me because i can't do my normal life with it.
Thank you.
I have reactive T and H. The H is the worst for me because i can't do my normal life with it.
Thank you.
First three days in. I am a 26 years old athletic and weight 80kg and i think this drug is very serious.
Side effects: sleepness, dizziness, nausea and feeling that I was moving very slow. Some blurred vision for some periods.
Now I think my body as adapted to it and dont have the symptoms I had on the first days.
For T it seems after i take it the sound changes a bit, from a scream to more of a hosh. But this returns to the base line after sleeping.
For H no diference at all for now.
Thank you
Side effects: sleepness, dizziness, nausea and feeling that I was moving very slow. Some blurred vision for some periods.
Now I think my body as adapted to it and dont have the symptoms I had on the first days.
For T it seems after i take it the sound changes a bit, from a scream to more of a hosh. But this returns to the base line after sleeping.
For H no diference at all for now.
Thank you
Please can you let us know how you are getting along since you stopped taking the drug? thanks
Thank you for informing us. May I say that I did not experience these symptoms at my start but keep watching your libido. And good luck.
undecided
Member
I've done a short keppra trial (1 week at 500, 1 week at 1500, 1 week at 3000) taking two daily divided doses.
Zero side effects and zero effect on tinnitus. Like I was taking nothing.
Pretty useless in my experience.
Zero side effects and zero effect on tinnitus. Like I was taking nothing.
Pretty useless in my experience.
undecided
Member
According to what it is made for, it is used for epilepsy. But theoretically it could work for tinnitus. Noone can tell until we try.
The hypothesis however that it only works for hyperacusis and not for tinnitus is totally unjustified. The logical thing to assume is it will either work for all tinnitus symptoms or none.
After one week of 500mg I have raise the dosage to 1000mg twice a day. Hyperacusis the same. Side effects continue. Tired, some strange headaches.
Hope it gets better now that you increased dosage!
Can't resist but ask if that's you in your avatar picture?
If it is then I think we can safely assume the cause of his ear problems. What is it they say? Getting there is half the fun?
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