Levetiracetam (Keppra) Worked for My Hyperacusis

[quietatnight]

@Danny Boy

I'm just wondering, can you describe your hyperacusis sympthoms that you had before you started to take Keppra ? And then tell me how many of these problems did Keppra stop. I would really like to know. like did you have ear pain ? or headache's ? how bad was your sound tollerance ? It would be interesting to understand how bad was your hyperacusis and tinnitus was before you took Keppra. There is quiet a range of serverity in people with hyperacusis and tinnitus.


Let me know


Thank You


Louie
Quietatnight

 

[Danny Boy]

@Danny Boy

I'm just wondering, can you describe your hyperacusis sympthoms that you had before you started to take Keppra ? And then tell me how many of these problems did Keppra stop. I would really like to know. like did you have ear pain ? or headache's ? how bad was your sound tollerance ? It would be interesting to understand how bad was your hyperacusis and tinnitus was before you took Keppra. There is quiet a range of serverity in people with hyperacusis and tinnitus.


Let me know


Thank You


Louie
Quietatnight

Ok. I had hyperacusis as soon as tinnitus started. I had over amplification where sounds were far too loud and hurt badly. My tinnitus was reactive, to the point where kettles and anything high frequency would compete with the reactiveness. All that was gone after a few weeks after keppra, but it's gradual.

 

[Danny Boy]

People need to chill @dan and @Danny Boy have some mercy, geezus.. .
Seriously...and @Danny Boy you won't even take advil?! wth you gonna do if you get sick, I mean really sick? Turmeric ain't gonna cut it! I take all sorts of drugs that are " ototoxic"..thats probably why I am worse...or could be this..or that...

.anyways on that note..ya know, the one the fat lady ends with..I'm going to ask my Neurologist for Keppra after he gets his results back concerning whether or not I have SCDS..will keep you @Geo updated..and anyone else who cares.

Turmeric was more for headaches.

 

[Danny Boy]

@Danny Boy
What is the dosage you used? Gradually? 1x500 then 2x then 3x?
How soon was it since you had relief with keppra?

A few weeks after and yes.

 

[Street Spirit]

Turmeric was more for headaches.

It works well for inflammation..some say nerve pain. I took it faithfully for over a year, and perhaps that could be why I was better last year than this one..I stopped when my gallbladder was removed in September.

 

[Danny Boy]

It works well for inflammation..some say nerve pain. I took it faithfully for over a year, and perhaps that could be why I was better last year than this one..I stopped when my gallbladder was removed in September.

Gallbladder removed? Does that affect anything?

 

[quietatnight]

@Street Spirit

How are you doing today ?

Are You saying that Tumeric helped with your headaches and ear pain, for a year ?


Louie
Quietatnight

 

[Street Spirit]

Gallbladder removed? Does that affect anything?

Yea. But nothing that has anything to do with this forum.

 

[Danny Boy]

Yea. But nothing that has anything to do with this forum.

Ah, fair enough. Just sounds important that is all. What is SCDS?

 

[Street Spirit]

@Street Spirit

How are you doing today ?

Are You saying that Tumeric helped with your headaches and ear pain, for a year ?


Louie
Quietatnight

I don't know Louie..Maybe? Guess I could attempt adding it back and see how it goes..but I have to be careful as it aids in bile production and for me, that could be a problem.

How am I doing? Not well, but thanks for asking! Hope you're ok.

 

[Street Spirit]

Ah, fair enough. Just sounds important that is all. What is SCDS?

Your gallbladder IS very important! Don't get it out unless a doc proves to you that it's actually, really and truly diseased. I've met GI Residents that say " eh, it wasn't your gallbaldder but don't worry, you don't need it"

Bloody fools.

 

[Danny Boy]

Your gallbladder IS very important! Don't get it out unless a doc proves to you that it's actually, really and truly diseased. I've met GI Residents that say " eh, it wasn't your gallbaldder but don't worry, you don't need it"

Bloody fools.

Well, in England getting anything done on the NHS is impossible.

 

[Street Spirit]

Ah, fair enough. Just sounds important that is all. What is SCDS?

http://www.asha.org/PRPSpecificTopic.aspx?folderid=8589934662&section=Signs_and_Symptoms

 

[Danny Boy]

http://www.asha.org/PRPSpecificTopic.aspx?folderid=8589934662&section=Signs_and_Symptoms

That's quite interesting, so you're gonna rule that out and if it's not that....Keppra time?

 

[Street Spirit]

Well, in England getting anything done on the NHS is impossible.

Here in Canada, GB removal is extremely common..a booming business you might say..anyways it was nice my ER Nurse told me.my Surgeon (it was " emergency surgery" but actually it wasn't depending who you talk too) anyways. he said . my Surgeon wasn't just a " slice and dice guy" and that he " only takes it out if necessary" that made me feel better ..I was like..ok then...wtf?!

 

[Danny Boy]

Here in Canada, GB removal is extremely common..a booming business you might say..anyways it was nice my ER Nurse told me.my Surgeon (it was " emergency surgery" but actually it wasn't depending who you talk too) anyways. he said . my Surgeon wasn't just a " slice and dice guy" and that he " only takes it out if necessary" that made me feel better ..I was like..ok then...wtf?!

Hm, well, is the health system like America over there?

 

[Street Spirit]

That's quite interesting, so you're gonna rule that out and if it's not that....Keppra time?

Oh screw that..I'm asking for Keppra when I see him.next!..My CT scan is Mon so should be soon after..hopefully.

I have no fear of trying it ( I take and try all kinds of meds for relief!) and I feel like jumping off a cliff..so what do I have to lose?

Just hope he gives it to me..I will tell him about this thread..haha

 

[Street Spirit]

Hm, well, is the health system like America over there?

Well surgeons are surgeons..they get paid to cut...but we don't pay (financially) thankfully
..not having my gb has messed me up! but my.body is slowly adapting..slowly..I am stuck on ppis though!

 

[Danny Boy]

Well surgeons are surgeons..they get paid to cut...but we don't pay (financially) thankfully
..not having my gb has messed me up! but my.body is slowly adapting..slowly..I am stuck on ppis though!

So is it insurance based or like the NHS? Where it's free at the point of delivery?

 

[Street Spirit]

Ok. I had hyperacusis as soon as tinnitus started. I had over amplification where sounds were far too loud and hurt badly. My tinnitus was reactive, to the point where kettles and anything high frequency would compete with the reactiveness. All that was gone after a few weeks after keppra, but it's gradually.

Sounds freaking fantastic to me! I'm in.

@quietatnight I am just as bad..I will be sure to report. (if I get it-Im determined to get it!)

 

[Danny Boy]

Sounds freaking fantastic to me! I'm in.

@quietatnight I am just as bad..I will be sure to report. (if I get it-Im determined to get it!)

Hopefully you are in! Seriously, hyperacusis and reactive tinnitus can kill or destroy you.

 

[Street Spirit]

So is it insurance based or like the NHS? Where it's free at the point of delivery?

Free. Walked out without a bill. Like NHS.

Well it isnt "free" our taxes are high.

 

[Danny Boy]

Free. Walked out without a bill. Like NHS.

Well it isnt "free" our taxes are high.

That's not bad...Well, at least it isn't like America...I'd rather have higher taxes than pay for cancer treatment if I ever get it.

 

[Street Spirit]

Hopefully you are in! Seriously, hyperacusis and reactive tinnitus can kill or destroy you.

I mean what I say and I mean when I say, I'm in. Why the hell not? It IS destroying me..and my reactive T is worse! everything is..I don't know why though. .bloody hell. .like honestly I want this crap gone! 2 years in August.

 

[Danny Boy]

I mean what I say and I mean when I say, I'm in. Why the hell not? It IS destroying me..and my reactive T is worse! everything is..I don't know why though. .bloody hell. .like honestly I want this crap gone! 2 years in August.

I couldn't handle it for a few months, let alone a few years. You're a strong person.

 

[Street Spirit]

That's not bad...Well, at least it isn't like America...I'd rather have higher taxes than pay for cancer treatment if I ever get it.

I'd be a million dollars in debt I'm sure, if I lived in the States..I've seen lots of docs over the years.

I'm getting a 2nd head CT scan..It's possible a brain tumor is in my future..how many xrays does that equal? lol

 

[Street Spirit]

I couldn't handle it for a few months, let alone a few years. You're a strong person.

I have two kids. I have to be.

 

[Street Spirit]

It's been ups and downs..last spring I got so much better it was almost gone. Then I vacuumed, my ears got full and I've never recovered.

Hoovering is dangerous business. lol

but seriously. .that happened.

 

[Danny Boy]

I'd be a million dollars in debt I'm sure, if I lived in the States..I've seen lots of docs over the years.

I'm getting a 2nd head CT scan..It's possible a brain tumor is in my future..how many xrays does that equal? lol

It's silly how a treatment for tinnitus and hyperacusis is actually quite straight forward and has been around for a long time.

 

[Danny Boy]

It's been ups and downs..last spring I got so much better it was almost gone. Then I vacuumed, my ears got full and I've never recovered.

Hoovering is dangerous business. lol

but seriously. .that happened.

Ouch, really!?