monacco
Member
@SteveToHeal ,For epileptics this therapy costs 20000$ ,I think it's the same procedur with tinnitus suffers and now the question is : is it covered by the insurance ?
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- Thread starter erik
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SteveToHeal
Member
Thanks @monacco. So expensive. Would have to take out a bond to cover that!!!!! An absolute win if it is covered by insurance for t sufferers in the US.
Very low chance of insurance covering it in the US unless you have very, VERY severe T. Then again, tinnitus is more about how it effects you, and not just what you're hearing/how loud it is. It's possible that if you kept going back to the doctor over and over, now that there is a real treatment that can work, they can't just simply say "too bad, get used to it." and they would eventually try and get your insurance to cover it.
It's also important to remember there is still going to be at least one more clinical trial in the US before this is released in the states.
Member- Jan 3, 2015
- 635
- Tinnitus Since
- 04/21/2014
- Cause of Tinnitus
- Sensorineural hearing loss right ear.
monacco
Member
monacco
Member
Christian78
Member
- Dec 17, 2013
- 965
- Tinnitus Since
- (Sep 2013)
- Cause of Tinnitus
- progressive tinnitus, time of expiring in next 3-6 months
monacco
Member
Yeah...a silly thing for him to say. We already know it works. And we know it doesn't work for some people. But we don't have all the information about why it works for some and not for others.
Christian78
Member
- Dec 17, 2013
- 965
- Tinnitus Since
- (Sep 2013)
- Cause of Tinnitus
- progressive tinnitus, time of expiring in next 3-6 months
dear god. i spoke with resercher that fights tinnitus and that operation is costly but it does not garantee cure.
they done it to people and it did not work.
resercher from tinnitus reserch initiave, thay had meeting in UK 1 month ago. They now categorise tinnitus.
some thing does not help all. my tinnitus is in stress part of brain and it sends impulses to hearing. it is not at all connected to audio cortex.
monacco
Member
The fact that I will aacept to do a risky invansinve suregery and butchered in my shist it means that it's enough to prove that I suffer realy.
monacco
Member
You mean that we should locate our tinnitus and if it's not in audio cortex this therapy is useless .I hope mine is in audion cortex
You're my kinda guy. You see in science people usually go "well... a hundred people cured isn't enough to prove it works."
Then we will have to find a way to make money for all of us. If tinnitus isn't enough to drive one to entrepreneurship few things will.
I recently contacted a childhood friend of mine, now a neuroscientist and sufferer of mild tinnitus. He pointed me into the direction of this therapy and says that while initial test were good in animals, replication has been difficult in humans.
Ever since I started needing glasses and saw that people with multiple personality syndrome have differing vision characteristics per personality, I've been thinking about ways to manipulate the signal processing in the brain. Both to improve vision and now my tinnitus.... A completely different way in which nerve stimulation may be useful.
I do believe the therapy has great merit since it initializes neuromodulation through plasticity and that further down the line we may learn how to properly target the tympanic nerve instead to treat cochlear tinnitus in a different way.
We would have to stimulate nerve number 2, and only 2, the entire picture represents about 1 cm so if anyone has a novel way of targeted electrostimulation let me know. Perhaps from the top down or bottom up. Likely using a current and a magnetic field to guide it around the other nerves and then calibrating the targeting with a sound check.
ACRN therapy uses sound to activate that nerve and counteract the sound generated in our synapses because of damage in the cochlea or syncrony in the auditory cortex. Nobody seems to have mentioned this before but logically if you have cochlear tinnitus and ACRN therapy reprograms the syncrony you may also cause cortical syncrony over time with regular tinnitus.
If we could effectively target the tympanic nerve there may be ways to program an off switch for the tinnitus. But it would likely mean that during the off time one would not be able to hear much in those frequency ranges.
Ever since I started needing glasses and saw that people with multiple personality syndrome have differing vision characteristics per personality, I've been thinking about ways to manipulate the signal processing in the brain. Both to improve vision and now my tinnitus.... A completely different way in which nerve stimulation may be useful.
I do believe the therapy has great merit since it initializes neuromodulation through plasticity and that further down the line we may learn how to properly target the tympanic nerve instead to treat cochlear tinnitus in a different way.
We would have to stimulate nerve number 2, and only 2, the entire picture represents about 1 cm so if anyone has a novel way of targeted electrostimulation let me know. Perhaps from the top down or bottom up. Likely using a current and a magnetic field to guide it around the other nerves and then calibrating the targeting with a sound check.
ACRN therapy uses sound to activate that nerve and counteract the sound generated in our synapses because of damage in the cochlea or syncrony in the auditory cortex. Nobody seems to have mentioned this before but logically if you have cochlear tinnitus and ACRN therapy reprograms the syncrony you may also cause cortical syncrony over time with regular tinnitus.
If we could effectively target the tympanic nerve there may be ways to program an off switch for the tinnitus. But it would likely mean that during the off time one would not be able to hear much in those frequency ranges.
Well yeah, the initial tests they did were on mice where they induced tinnitus through noise damage, so of course it probably only works on people who have it from damage to the cochlea.
But really, you need to stop making it sound like it doesn't work for anyone. It works for some, it doesn't work for all. It's not a cure, it has to be managed.
Actually, I just remembered that one of the participants who had good results in the first trial got tinnitus from a problem with his neck/spine.
Christian78
Member
- Dec 17, 2013
- 965
- Tinnitus Since
- (Sep 2013)
- Cause of Tinnitus
- progressive tinnitus, time of expiring in next 3-6 months
i got demage in cohlea, have hearin loss.... so?
ONE of participants... poit is one small part it work. so you will pay 25 000 dollars? to test?
You mean that we should locate our tinnitus and if it's not in audio cortex this therapy is useless .I hope mine is in audion cortex
My is partly in audio, becouse stress limbic is connected and after times it moved to limbic system, so audio is not so overactive as stres
Please don't try to twist my words. My point was that it doesn't only work for people with hearing loss/noise damage, which is what it sounded like you were trying to say.
Also, how do you know yours is caused by stress? Did you have some kind of brain test done?
Christian78
Member
- Dec 17, 2013
- 965
- Tinnitus Since
- (Sep 2013)
- Cause of Tinnitus
- progressive tinnitus, time of expiring in next 3-6 months
sorry i did not ment to twist, there is no general rule that is whT I WANTED TO SAY
YES i done brain scans in switcerland and belgium
Been awhile since I have been on here but i'm the one who took part in the VNS study. Had the implants in Jan. 2015. Did the whole study and in my case I noticed no improvement. Have not kept up with the overall results were from the other people who also did the study.
monacco
Member
Sad to hear this may be you are not the lukcy one,they claim that it works for 50% .the question now is who will do the surgery for 20000 or 25000 $ with the chance to get an improvement is 1/2 ?
Was there any issue with your tinnitus assessment? Another participant on here said that he had so many different noises and tones that made it difficult to figure out which one was the main tone.
Also, do you know what the cause of your tinnitus is?
monacco
Member
My tinnitus just started out as a low hiss one day in 1999 and got worse as time went by. My therapy ended last Sept. Was given no reason it just didn't take that's why it would be interesting to find out the results from the others. You would think the results should be known by now.
http://dev-microt.pantheonsite.io/en-gb/tinnitus/physicians/clinical-experiences
If you check that link, there is some information about the results. I also contacted Dr. Kilgard a couple days ago, and he said they were currently writing up the paper for the results.
Stefan K
Member
- May 19, 2016
- 13
- Tinnitus Since
- May 2016
- Cause of Tinnitus
- Possibly Music/Power Tools
Wow! Thanks for sharing this Jason, this really does give me some hope that these studies are a step in the right direction. Do you have any idea when the results on paper will be released? I watched the video testimony on the website and it bought a tear to my eye
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