You should feel proud of yourself. Job well done!So yeah, just about the most reckless and desperate thing that someone with pain hyperacusis can do: get an MRI. Well that's exactly what I did. It wasn't exactly what I had planned today. I had one scheduled for May 19th, but these past two days I've had these random stabbing pains that are so intense that my father kept trying to take me to the emergency room. I mean I've always had these pain episodes, but they just barely got really bad.
Finally my dad got a hold of my doctor and gave them quite an earful; he's really struggling watching how much my condition is impacting my life and just how many things I'm restricted on doing. I guess he finally snapped and he snapped on them because he got me an emergency MRI scheduled. I definitely needed it, my pain was so bad, I never knew when an episode was coming or how long it would last.
So, I told the nurse that I had hyperacusis when she was grabbing my scrubs out of a cabinet. She loudly said "what?" and slammed the cupboard door shut. Needless to say, no one there had a clue what that was.
To make matters worse, when I told them that I needed maximum hearing protection, they told me that I could only wear a set of foam earplugs because earmuffs wouldn't fit in the head scanner. I will admit, I was so scared and in so much pain from being in the middle of another episode that I just started crying right there in the hallway in front of all the nurses and secretaries. I'm way past embarrassment, I feel completely justified.
I stayed calm for most of the MRI, and I will say, it didn't hurt as much in the moment as I thought it would. BUT, I have learned that my hyperacusis is very unique (I think? That's what it sounds like) as most of the time noises do not hurt in the moment but will cause soreness and stabbing pains that can last moments, hours, days, or weeks after. A blender could be moments, a concert days, and this MRI, well... I guess we'll see.
So yeah I'm in a ton of pain right now, I've cried so much today my temples hurt, and I learned that crying without moving in an MRI machine is one of my talents. And good news, my MRI is clean, as far as we can tell my tinnitus, hyperacusis, stabbing pains, visual auras, dizzy spells, always feeling like crap, etc etc are due to migraines. I'm already being treated for migraines so yeah, we just need to find a treatment that works. Non of the many we've tried so far far have because obviously I'm getting worse and fast.
But all in all, I feel really proud of myself. If I have hyperacusis and tinnitus and face an MRI machine I guess that makes me really brave. And pretty hard core - I'll feel much cooler wearing my leather jackets after today.
Wow, AND hyperacusis? This is disgusting. I feel you, I got tinnitus too from an MRI.In 2017 I had an MRI for a neck injury. 2 days after the MRI I got tinnitus and hyperacusis.... now I am on this forum. Enough said...
For a knee or hip you don't need to be inside the tube, just the parts that need imaging will be inside. Even so, it would be better to find an open MRI and look for the quietest MRI machine. Do ask questions to the technicians that will operate the machine, regarding noise etc. Ask before booking your appointment.I'm going in for an MRI soon (for my knee and hip) and I've heard that they are very loud.
I've had tinnitus for about 3 months now and I'm just starting to get used to it and living my life normally again.
I'm going to be provided with ear plugs and ear muffs but even then I'm quite anxious, as I've read some people didn't have a pleasant experience with it.
I'm worried about causing a permanent spike, if that happens I don't know if I can do it again.
Has anyone had any experience getting an MRI? Please let me know.
Thank you,
Ella
Thank you for your reply. I will definitely go ahead and ask the questionsFor a knee or hip you don't need to be inside the tube, just the parts that need imaging will be inside. Even so, it would be better to find an open MRI and look for the quietest MRI machine. Do ask questions to the technicians that will operate the machine, regarding noise etc. Ask before booking your appointment.
Insist that you can use your own earplugs, and won't be rushed for insertion so they can be placed deep. Also, you want real ear muffs, and not the headphones that are more designed so you can hear music and instructions from the tech. Finally, be aware that even with all of these precautions, some users still have spikes in tinnitus after. A quiet MRI is the best choice, and an open MRI is an alternate if no quiet ones can be located.I'm going in for an MRI soon (for my knee and hip) and I've heard that they are very loud.
I've had tinnitus for about 3 months now and I'm just starting to get used to it and living my life normally again.
I'm going to be provided with ear plugs and ear muffs but even then I'm quite anxious, as I've read some people didn't have a pleasant experience with it.
I'm worried about causing a permanent spike, if that happens I don't know if I can do it again.
Has anyone had any experience getting an MRI? Please let me know.
Thank you,
Ella
May I ask you how the MRI went? And if it's not too nosy what was the indication for the knee MRI?I'm going in for an MRI soon (for my knee and hip) and I've heard that they are very loud.
I've had tinnitus for about 3 months now and I'm just starting to get used to it and living my life normally again.
I'm going to be provided with ear plugs and ear muffs but even then I'm quite anxious, as I've read some people didn't have a pleasant experience with it.
I'm worried about causing a permanent spike, if that happens I don't know if I can do it again.
Has anyone had any experience getting an MRI? Please let me know.
Thank you,
Ella
I've had one two weeks ago and I'll have an MRA and another MRI soon. It didn't make tinnitus worse than it was on day 1. I was also hyper alert of sounds at the time so that didn't make it easier. I put a lot of cotton in my ears and then the headset and it was loud. My tinnitus isn't noise-induced though. MRI and MRA are mandatory for tinnitus IMHO, if somatic. If tinnitus is from trauma, I wouldn't risk it. I'd just take cortisone and wait it out tbh with some ENT tests to rule a few things out.Has anyone with tinnitus on Tinnitus Talk had any benefit whatsoever from having an MRI/MRA scan and did it aggravate your tinnitus? I assume magnetic fields aren't ideal when we have a condition such as we do.
Is anyone on here glad they had it done, or felt it's a waste of time and money and made you even worse.
I don't see any mileage in having it but ENT surgeon who can't help me or explain anything, suggested I have it. I'd be interested to hear from any of you that have had it done. Thank you.
If tinnitus is your only symptom and you don't have things like balance issues, extreme migraines, blurry vision/double vision or any other types of major signs of a brain issue, an MRI is very unlikely to show anything that will help you with your tinnitus and you risk a spike/hyperacusis. Doctors will always send you for testing just to "rule stuff out" when they don't have any answers but that doesn't always mean that there is any benefit from the testing.Has anyone with tinnitus on Tinnitus Talk had any benefit whatsoever from having an MRI/MRA scan and did it aggravate your tinnitus? I assume magnetic fields aren't ideal when we have a condition such as we do.
Is anyone on here glad they had it done, or felt it's a waste of time and money and made you even worse.
I don't see any mileage in having it but ENT surgeon who can't help me or explain anything, suggested I have it. I'd be interested to hear from any of you that have had it done. Thank you.
Thanks, Mine was caused by ENT tests 12 months ago, and it's not improving whatsoever, so not strictly noise induced, but I have hyperacusis from it also. Cortisone does what exactly, for tinnitus? How long can anyone wait it out when you have highs and low noises in your head every day for over a year, realistically?I've had one two weeks ago and I'll have an MRA and another MRI soon. It didn't make tinnitus worse than it was on day 1. I was also hyper alert of sounds at the time so that didn't make it easier. I put a lot of cotton in my ears and then the headset and it was loud. My tinnitus isn't noise-induced though. MRI and MRA are mandatory for tinnitus IMHO, if somatic. If tinnitus is from trauma, I wouldn't risk it. I'd just take cortisone and wait it out tbh with some ENT tests to rule a few things out.
I've had occasional dizziness and balance problems since, but that may be from the stress that this condition has caused and a lot of lack of sleep because of it. I won't have any ENT tests done again as it's the cause of whatever I have now. But whoever you go and see for another opinion always want to do the tests that got me here in the first place and I won't ever have them again.If tinnitus is your only symptom and you don't have things like balance issues, extreme migraines, blurry vision/double vision or any other types of major signs of a brain issue, an MRI is very unlikely to show anything that will help you with your tinnitus and you risk a spike/hyperacusis. Doctors will always send you for testing just to "rule stuff out" when they don't have any answers but that doesn't always mean that there is any benefit from the testing.
I agree with @Orions Pain.Has anyone with tinnitus on Tinnitus Talk had any benefit whatsoever from having an MRI/MRA scan and did it aggravate your tinnitus? I assume magnetic fields aren't ideal when we have a condition such as we do.
Is anyone on here glad they had it done, or felt it's a waste of time and money and made you even worse.
I don't see any mileage in having it but ENT surgeon who can't help me or explain anything, suggested I have it. I'd be interested to hear from any of you that have had it done. Thank you.
Before the MRI, try to speak with the MRI technician/doctor about your concerns, or the ENT who has referred you to get the scan.Hello.
I started hearing a constant tone (like a hearing test tone) in my left ear around a year ago. So I went to audiology to get it checked out. After giving me a hearing test, the woman said she thought it was probably tinnitus and would refer me to ENT. A few months later I received a phone call from the hospital requesting that I go and have an MRI scan done on my ear. Well I have just received my letter for that MRI scan and it is due to take place next week!
Not going to lie, I am worried about it. One of my biggest worries is that it says in the info leaflet that sometimes it is necessary to inject a patient with contrast before doing an MRI scan. I am terrified of needles!! And when I say I don't like injections, I don't mean that I don't like injections like most people don't like injections. I mean I am terrified of them! Injections usually involve panic attacks and fainting for me. It is that bad.
So the thought of having to be injected with contrast is really heightening my worry level about going for this MRI.
Can anyone tell me how likely it is that I will need to have contrast injected? Is it likely that I will be able to have the MRI without having to go through that? Maybe some of you have been for an ear MRI before and can tell me whether you had to take contrast or not?
Thank you in advance for any replies.
You don't have to do the contrast if you don't want to. It depends on what you're getting scanned and why. I've been told contrast typically is only used when they're doing a scan to check if a tumor or a lesion has grown since the last scan. It's also banned in several European countries because it's still relatively controversial in regards to safety.Hello.
I started hearing a constant tone (like a hearing test tone) in my left ear around a year ago. So I went to audiology to get it checked out. After giving me a hearing test, the woman said she thought it was probably tinnitus and would refer me to ENT. A few months later I received a phone call from the hospital requesting that I go and have an MRI scan done on my ear. Well I have just received my letter for that MRI scan and it is due to take place next week!
Not going to lie, I am worried about it. One of my biggest worries is that it says in the info leaflet that sometimes it is necessary to inject a patient with contrast before doing an MRI scan. I am terrified of needles!! And when I say I don't like injections, I don't mean that I don't like injections like most people don't like injections. I mean I am terrified of them! Injections usually involve panic attacks and fainting for me. It is that bad.
So the thought of having to be injected with contrast is really heightening my worry level about going for this MRI.
Can anyone tell me how likely it is that I will need to have contrast injected? Is it likely that I will be able to have the MRI without having to go through that? Maybe some of you have been for an ear MRI before and can tell me whether you had to take contrast or not?
Thank you in advance for any replies.
I am getting an MRI IAM because I have tinnitus in my left ear. Although I am now noticing it in my right ear too from time to time.You don't have to do the contrast if you don't want to. It depends on what you're getting scanned and why. I've been told contrast typically is only used when they're doing a scan to check if a tumor or a lesion has grown since the last scan. It's also banned in several European countries because it's still relatively controversial in regards to safety.
If you're getting a standard auditory canal scan with the only reason for the scan being tinnitus, you probably don't need the contrast... or the MRI. This isn't medical advice, but the majority of the time MRI's for just tinnitus tend to come up normal.
From reading these forums, it seems most people deal ok with MRIs. In your case I would do it since you don't have pre-existing hyperacusis.tl;dr: ENT wants to do an MRI. I don't have hyperacusis, only mild recruitment. However my tinnitus can be reactive to sound on my bad days. For this reason, and for fear of developing hyperacusis, I'm scared to go. Not sure what to do.
I think I heard one of those about a month ago, mistakenly thinking I was visiting one of the open MRIs that make a loud noise. The one I heard you could hear a little FM radio over - it was very quiet. I was disappointed to find out THIS was NOT the type of MRI MY doctor wanted me to get!Dear members,
I have bad hyperacusis and mild tinnitus from an acoustic trauma and I need to have an MRI scan on my knee.
I would like to know your opinion about the quietness of low-field strength dedicated MRI scanners (also known as extremity MRI scanners), which use reduced magnetic field, usually around 0.3T instead of the traditional scanners with 1.5T or 3T. So far, I found only one scanner of this type - Esaote O-Scan, which operates at 0.31T and, apparently, can be installed directly on the office and doesn't require a separate shielding cage.
According with the attached graphic below, reduced low-field strength MRI scanners generate lower acoustic noise levels, which can be advantageous for people like us.
Alternatively, there is a traditional MRI scanner with a specific technology called "Pianissimo" that reduces the generated acoustic noise - Canon Vantage ELan 1.5T (former Toshiba) - but I have been told by a radiologist technician that the low-field extremity MRI scanners may be quieter.
View attachment 43719
Why didn't he want it?I was disappointed to find out THIS was NOT the type of MRI MY doctor wanted me to get!
He just said that a more powerful machine was needed. And it was not scanning an actual person when it was on, but I'm not sure if the tech had it doing anything like a scan at the time.Why didn't he want it?
Anyway please note that these machines may produce little noise by just being turned on. Was the machine actually performing a scanning procedure when you heard it?
I've seen some people arguing that, but also the opposite, stating that the images obtained by these low field MRI scanners for extremities are not worse than those obtained by the traditional ones with higher magnetic field:He just said that a more powerful machine was needed. And it was not scanning an actual person when it was on, but I'm not sure if the tech had it doing anything like a scan at the time.