MuteButton

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#511
@Barry Bacon thanks very much for posting this encouraging info. Welcome to TT and the best of luck with your treatment. I'm sure I'm not the only one who will be watching this thread closely for your future updates. :)
 
#512
dboy said:
I don't know a great deal about this stuff, but I would guess that scientists only have that incentive to drag their feet when funded by public money, eg at a university. But in my imperfect understanding, university research will most often tend to be funded by grants or awards of a fixed amount, so in that case there is less incentive to procrastinate.

Where we are talking about private sector research - drug companies, Mutebutton, etc, then I would imagine they are incentivised not to waste time, since they will have managers focussed on getting results. And unless the company in question is actually owned by a hearing aid company I don't understand how those companies could slow the research. They could try to fund alternative research discrediting promising ideas (see LLLT) but if, for example, Mutebutton has faith in their own product and proceeds methodically then they can get that product to the market, as indeed they are doing.

I'm not trying to dampen down any enthusiasm for some initiative to encourage progress since that sounds a good idea. I just think it is necessary to have a clear idea of what we are objecting to or aiming to influence. Research at this level is presumably complicated and takes time. And a lot of the barriers slowing down progress are there to prevent potentially dangerous treatments being inflicted on the public, the classic example from history being Thalidomide.

I think there is probably more to be lost than gained by taking an indignant/belligerent attitude toward the very people who are actually working on a treatment for this thing. My guess is that you don't get to that position without being a fairly dedicated professional who is focussed on building a successful career by working effectively and getting results. That is only my guess though, and if anyone has evidence to the contrary (as opposed to speculation) then they really should put it in the public domain.
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http://retractionwatch.com/
 
#514
markoana said:
Jeff, who wrote this, and where? That is exactly what I think also!
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What lots of people overlook is that these "academics" often double as clinicians and have detailed inside information into the industry they work in. An ENT is well aware of future drug/device trials for specific disorders and can organize his investment portfolio based on this information, not dissimilar to a solicitor who has access information/plans to build a commercial outlet in advance of the general public and decides to purchase land nearby, this story is as old as time. Companies like Siemens have invested large amounts of money into cochlear devices/hearing aids/r&d and work alongside otolaryngologists all over the world, I just don't see how that helps us long-term, if like I do you wish to see cellular repair attempted within the labyrinth. There are people who are serious about this and there are those that are not. Just to point out to those that might not be aware, the Hermitage medical centre is not a public hospital, the clinicians who work there are earning far more money than you may realise, indeed it would dwarf that of their peers in Harley Street, indeed one of them is directly involved with the trial of this device, directly "financially" involved that is.
 
#516
earsnothappy said:
They just got 2 Million Euros of new investment.

http://www.thesundaytimes.co.uk/sto...e1600132.ece?CMP=OTH-gnws-standard-2015_08_29

I hope that thing works. Otherwise what a waste of money that could have been used on other treatments that are showing positive results.
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Now you probably can't really judge this way, but those two dudes in the picture sure don't look like people I'd feel confident buying a used car from. Maybe a tinnitus treatment is different... :D
 
#519
dboy said:
@Barry Bacon thanks very much for posting this encouraging info. Welcome to TT and the best of luck with your treatment. I'm sure I'm not the only one who will be watching this thread closely for your future updates. :)
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As promised on my previous posting I would keep providing updates on the use of MuteButton. Well 3 weeks in and I would have to say that I am still getting bad days. However the number of good days seems to be improving. As per my previous post the quality of my sleep has been greatly improved by its use and that has continued.

The biggest question is whether the reduction in volume is apparent. I think this is to early to say but signs are promising. I will post again in a couple of weeks or if there is a significant change.
 
#520
Barry Bacon said:
As promised on my previous posting I would keep providing updates on the use of MuteButton. Well 3 weeks in and I would have to say that I am still getting bad days. However the number of good days seems to be improving. As per my previous post the quality of my sleep has been greatly improved by its use and that has continued.

The biggest question is whether the reduction in volume is apparent. I think this is to early to say but signs are promising. I will post again in a couple of weeks or if there is a significant change.
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Sounds good Barry after only three weeks. Really hope it continues to impact positively on you over the coming weeks and months.
 
#521
I have heard from another clinic that it seems to be 50 50 for sufferers (although i could not obtain details on whether louder or softer t was most affected) They are offering rebates of 66 percent on those not satisfied. Its a fair offer.
 
#524
Advancing the next generation of tinnitus treatment.
Building on positive clinical outcomes and patient experiences, in September 2015 we secured significant investment from the international life sciences venture capital fund Fountain Healthcare Partners. This investment will be used to further enhance the scientific and clinical understanding of bi-modal neuromodulation for treating chronic tinnitus, commence US clinical trials and to promote the adoption of mutebutton as a next generation treatment for chronic tinnitus. The ultimate goal is the international launch of the product in 2018.
https://www.mutebutton.ie/



They start talking about another generation, while the current has not proven its effectiveness.
 
#525
Barry Bacon said:
As promised on my previous posting I would keep providing updates on the use of MuteButton. Well 3 weeks in and I would have to say that I am still getting bad days. However the number of good days seems to be improving. As per my previous post the quality of my sleep has been greatly improved by its use and that has continued.

The biggest question is whether the reduction in volume is apparent. I think this is to early to say but signs are promising. I will post again in a couple of weeks or if there is a significant change.
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How are you doing Barry? Any further news on mute button?
 
#528
Obviously not. But check the company statement Mute Button on their website. Currently there is no longer sold. He has been suspended. This clear. It has failed. 5 people I know who have used it. A none has served. Mute Button, a device that was investigated for 10 years with the best professionals has not been effective. It is demoralizing. We must be objective.

Now they say it again in 2018 to sell more sophisticated. ..... Sure sure if ...

This only proves what we already many of us have been pointing out. Tinnitus is a very difficult condition to address clinically involves many networks and connections. It is almost impossible to attack effectively.

I use google translate. Sorry if I make mistakes.
 
#529
preslys said:
They start talking about another generation, while the current has not proven its effectiveness.
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Well it seems they were at least able to "sell" the potential promise of their device to some VC for a cool €5.5M.

Neuromod Announces €5.5 million in Financing to Advance Neuromodulation Based Medical Device to Treat Chronic Tinnitus

Remains to be seen what comes out of it (here I'm not too hopeful, it was very disheartening they never properly published the clinical trial results... but we'll see how it goes).

[thanks to @attheedgeofscience for pointing me out to the said PR news]
 
#531
I never believed in these neurostimulation sound devices. Soundcure, Neuromonics, Mutebutton etc - all worthless in my opinion. Retraining the brain with sound has never really been proven effective except by those device companies who fund the studies.

These types of devices have around for years, no real studies, no real results, too pricy. Most people I think that benefitted from them would have gotten same result from mp3 player with sounds over the same amount of time or by doing nothing and letting time pass. Most of us who have had T a while know and understand this.
 
#534
The mute button treatment has ceased for now. It obviously didn't work. Another failure to join the Autifony drug failure. One day, one day, some one will do it. Keep hoping.
 
#535
erik said:
I never believed in these neurostimulation sound devices. Soundcure, Neuromonics, Mutebutton etc - all worthless in my opinion. Retraining the brain with sound has never really been proven effective except by those device companies who fund the studies.

These types of devices have around for years, no real studies, no real results, too pricy. Most people I think that benefitted from them would have gotten same result from mp3 player with sounds over the same amount of time or by doing nothing and letting time pass. Most of us who have had T a while know and understand this.
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I dont think you can just wash away the brain training, they can repair the ear the brain will still need to rewire to the peripheral organ. I think its both that will form a cure, cellular repair and pathway restoration/rewiring in the auditory cortex.
 
#536
jeff W said:
I dont think you can just wash away the brain training, they can repair the ear the brain will still need to rewire to the peripheral organ. I think its both that will form a cure, cellular repair and pathway restoration/rewiring in the auditory cortex.
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I see your point @jeff W. The brain is complex. The best minds barely understand it. I believe that the brain can rewire itself, I just don't believe we can force it to with any type of sound device. The only real evidence that this even works (and there is plenty of studies that show 80% effectiveness) are studies funded by the companies that make and sell these devices.

I had terribly hyperacusis at the start of my T. I believe over time, my brain adjusted and rewired itself to lessen the effects. I listened to pink and white noise a little (the protocol for H) but I don't believe it helped to repair my brain. I know my brain did that regardless.

My father had bypass surgery for the 2nd time in his life a few years ago. He had a main artery in his heart almost 100% blocked. The surgeon told us that it had been that way for years and what save him from a massive heart attack was that his body was able to compensate for this by automatically creating new veins around the blocked artery to bypass it and allow blood to. This is amazing! I believe our body and brains can adapt and rewire.

I have yet to see real world evidence that these work. There are some people that say these devices helped, but many more who say save your hard earned money. These devices have been out for quite a number of years now and if they were that good, we would all be using them (or had used them) to rewire our brains.

I think we need to do anything necessary to get over the hump, especially at the onset of tinnitus. If one of these devices helps so be it. I used my phone with sounds, music and audiobooks for many weeks. It did help me.
 
#537
If this mute button doesnt work at all, Why will they say based on promising clinical outcome and paitent experiences in sep 2015?

And managing to sercure a huge sum of investment. Whether it truly work or not i guess it will still be good that money is being invested in and that companies have not given up on finding a treatment for tinnitus. So 2018 we shall see. Lol!

They may have taken down the product to improve it before selling them again?
 
#538
From Mutebutton:

Dear Brian,
Many thanks for contacting us, we appreciate your support. At the moment we are not taking on any new patients for mutebutton. If you wished to register your interest in participating in future clinical trials you may do so via our website http://www.mutebutton.ie/

We are pausing sales of mutebutton until further notice. The reason being that we are dedicating most of our resources into preparing the mutebutton technology for a global launch. Results from our study are soon to be published in a peer reviewed journal.

Kind Regards
Mutebutton Customer Service Team
 
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