My Hyperacusis Journal — Sound Therapy and CBT with Tracy Holcomb (Treble Health)
- Thread starter Wrfortiscue
- Start date
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You perceive the noise coming from your head, not your ears.
I have always had a gas leak in my head, but it has become a lot more bothersome since October last year.
I also have hissing from my ears/side of head, which bothers me a lot too.
The head noise can't be modulated. The ear noise can with noise and somatically.
Hmm, can you describe it? My tinnitus, when it is static like, can sound like it's all around my head. But it usually feels like it's coming from the ears. But if I work out, my head has this rushing noise.
- Apr 28, 2021
- 1,881
- Tinnitus Since
- 1999
- Cause of Tinnitus
- Trauma
Some pink noise and crickets today with on and off sessions for about 2 hours. Kind of aggravated it but then calmed it for a good while.
Wife dropped a loud pan 15 feet away in the sink and it startled me. Then later my son dropped a rock on a plastic dish 7 feet away, it was loud. My tinnitus is still behaving but my left ear is slightly hot and I have a slight headache. Minor on and off left sided pain.
Very hard to make progress when my own family does me in. Now I have to hope within the next week I don't get worse
Wife dropped a loud pan 15 feet away in the sink and it startled me. Then later my son dropped a rock on a plastic dish 7 feet away, it was loud. My tinnitus is still behaving but my left ear is slightly hot and I have a slight headache. Minor on and off left sided pain.
Very hard to make progress when my own family does me in. Now I have to hope within the next week I don't get worse
- Jul 8, 2019
- 1,160
- Tinnitus Since
- 1991
- Cause of Tinnitus
- Loud Music / family history
We just have to keep putting these little positives in our pocket and try move forward.
The other day Mrs. UKB clattered a metal spoon around a metal saucepan less than 1ft away from me in the kitchen. The resultant boiled rice on my dinner plate was delicious but it didn't come without a few 'daggers' lol.
Mostly hiss that seems to come from the center of my head but also can be all over.
At times I can actually feel the tinnitus.
- Apr 28, 2021
- 1,881
- Tinnitus Since
- 1999
- Cause of Tinnitus
- Trauma
I spoke to Suzanne May from Treble Health. I'm thinking about proceeding with one of their plans.
- Apr 28, 2021
- 1,881
- Tinnitus Since
- 1999
- Cause of Tinnitus
- Trauma
Cool, it doesn't hurt to try. I am going to try the in-ear sound generators ($2500) but my audiologist said they are not needed, just recommended and easier to use since they are with you. There is a 75-day trial period.
Hopefully Suzanne May can help you. She was supposed to be my original audiologist but then I got assigned with Tracy Holcomb. BTW I do have head noise when mine gets spiked which is daily at times. Feels like my brain is being shocked with my pulse.
What has worked best for me is keeping busy, exercising, not thinking bad thoughts, not sleeping with neck elevated so much. I went out yesterday on a trail and almost fainted from exertion. I listened to the nature sounds in the woods and my tinnitus thanked me last night. Today is so so.
I believe it's all a huge process that feeds off each other. My tinnitus is so damn variable, it's nuts. I can have quiet tinnitus, then 30 minutes later 4 tones, super loud and shocking, and 3 hours later quiet or moderate. Some days it's terrible all day.
- Apr 28, 2021
- 1,881
- Tinnitus Since
- 1999
- Cause of Tinnitus
- Trauma
My brain is fighting the worsening that I had suffered before starting the therapy. Having a hard time accepting it and realizing this may get even worse before better. Stabilizing would be great but I have not in over a year. Got to keep pushing forward.
- Apr 28, 2021
- 1,881
- Tinnitus Since
- 1999
- Cause of Tinnitus
- Trauma
Definitely struggling mentally. Baseline is all squealy now when I used to have good moments of silence. Seems it's even more sensitive and causes louder aggressive higher frequency buzz. I admit I'm a little worried now as my spikes and baseline are no longer forgiving like before.
Keep fighting buddy! I've been currently watching TV on mute for a month after the wife's hearing aid malfunctioning.
- Apr 28, 2021
- 1,881
- Tinnitus Since
- 1999
- Cause of Tinnitus
- Trauma
It's not the therapy. I was kinda already worsening. I just have been using a mental barrier of hope that kept my spirits strong. I'm just not handling this tinnitus change very well. I was ok with the previous 3-4 baseline and behavior shifts. It's just so piercing and sensitive now.
- Apr 28, 2021
- 1,881
- Tinnitus Since
- 1999
- Cause of Tinnitus
- Trauma
Mine is the same now, so variable. It wasn't like this before. I wonder what that means, but it can't be good...
Can you please tell me more about this?
I also have head noise (hissing, a glass effect) that can't be modulated no matter how I try.
And there is this noise in my right ear, like an electric buzz, as if i have an electric wire connected to my ear drum.
I can feel this one in my ear, not in my head (as if I would have fluid/hydrops/some kind of muscle issue).
When I'm walking, the sound changes and fluctuates in the rhythm of my foot steps. It's like a boing, boing, boing when I'm walking
It comes and goes every few hours. Sometimes is extremely loud, as if I would stay next to high voltage electric wires.
I wonder what this is.
@Wrfortiscue, do you have something similar?
- Oct 31, 2020
- 1,254
- Tinnitus Since
- 9-17-2020
- Cause of Tinnitus
- turning everything up to 11
I'm progressing the same as you. I used to be able to ignore it as long as I wasn't wearing earplugs and had some ambient noise going. Now it's just impossible to ignore and is very piercing.
I've been taking 100 mg of Gabapentin at night and it has helped mellow out my anxiety, but it also makes it more difficult to keep my train of thought. That's why I am only taking the bare minimum dose. I may try taking it every other night since, while having a relatively short half-life, still takes a couple days to be completely removed from the body.
I struggle some days too. Today is an example. I think it's important to remember that things fluctuate a lot at the beginning of treatment (you are doing WNGs right?). I like to read @Coffeebean's posts for morale and inspiration. He had an increase in symptoms when starting out AND it took longer for his reactive tinnitus to dissipate. His hyperacusis was first to improve. Since I started sound therapy 7 weeks ago, my sound tolerance has gone up but my reactive tinnitus has remained pretty much the same. It fluctuates daily and throughout the day. I have hope that it will get better as I gain more tolerance.
Keep the faith! You can do it!
- Apr 28, 2021
- 1,881
- Tinnitus Since
- 1999
- Cause of Tinnitus
- Trauma
Yes something similar. In silence I can tolerate my sounds but when exposed to any noises, it blows this shit up lol, buzzing hissing screeching distortions. Severity slowly worsening. I just need stability.Can you please tell me more about this?
I also have head noise (hissing, a glass effect) that can't be modulated no matter how I try.
And there is this noise in my right ear, like an electric buzz, as if i have an electric wire connected to my ear drum.
I can feel this one in my ear, not in my head (as if I would have fluid/hydrops/some kind of muscle issue).
When I'm walking, the sound changes and fluctuates in the rhythm of my foot steps. It's like a boing, boing, boing when I'm walking
It comes and goes every few hours. Sometimes is extremely loud, as if I would stay next to high voltage electric wires.
I wonder what this is.
@Wrfortiscue, do you have something similar?
- Oct 31, 2020
- 1,254
- Tinnitus Since
- 9-17-2020
- Cause of Tinnitus
- turning everything up to 11
Mine does this too! Sounds like I'm dribbling a ball every step I take.When I'm walking, the sound changes and fluctuates in the rhythm of my foot steps. It's like a boing, boing, boing when I'm walking
Hi Aura,Can you please tell me more about this?
I also have head noise (hissing, a glass effect) that can't be modulated no matter how I try.
And there is this noise in my right ear, like an electric buzz, as if i have an electric wire connected to my ear drum.
I can feel this one in my ear, not in my head (as if I would have fluid/hydrops/some kind of muscle issue).
When I'm walking, the sound changes and fluctuates in the rhythm of my foot steps. It's like a boing, boing, boing when I'm walking
It comes and goes every few hours. Sometimes is extremely loud, as if I would stay next to high voltage electric wires.
I wonder what this is.
@Wrfortiscue, do you have something similar?
I have never been able to figure it out exactly.
I suspect what I hear in my brain is the hearing loss (which can't be modulated) or neuroinflammation?
The peripheral noise in both ears is probably the somatosensory element, which can be modulated to a degree with noise and somatic movements.
At this point, I am at a loss.
Godspeed Shore.
- Apr 28, 2021
- 1,881
- Tinnitus Since
- 1999
- Cause of Tinnitus
- Trauma
- Apr 28, 2021
- 1,881
- Tinnitus Since
- 1999
- Cause of Tinnitus
- Trauma
Yes, hopefully you're on the right track. I'm still waiting for my in-ear generators to come in and also trying to find something that doesn't irritate my tinnitus sounds. I'm unsuccessful so far.
- Oct 31, 2020
- 1,254
- Tinnitus Since
- 9-17-2020
- Cause of Tinnitus
- turning everything up to 11
No I've been struggling with this tone since I had COVID-19 back at Christmas/New Years.
Actually, I had a tone that was at least similar back in November. I can't really remember if it was the same as what I am experiencing now, but I coincidentally got that one after drinking alcohol a little too often. I got that to go away around mid-December, then caught COVID-19 and the high-pitch sounds started again.
Then they fluctuated off for couple weeks, then on for a couple weeks... up until I got hit by 4 different ambulance sirens while at the hospital with my daughter.
After it faded that time, I brought it back by vacuuming (even using double protection).
Then again it came back after dropping my phone on the floor.
Finally it came back 2 weeks ago after taking a drive on a Sunday afternoon. It hasn't settled down this time.
- Apr 28, 2021
- 1,881
- Tinnitus Since
- 1999
- Cause of Tinnitus
- Trauma
Damn, that's terrible. I really hope it settles down or you eventually habituate. Like you said, you and I are fairly similar, sucks man. We got to keep hope, that's what got me through the first year. Lots of setbacks are disheartening.
- Apr 28, 2021
- 1,881
- Tinnitus Since
- 1999
- Cause of Tinnitus
- Trauma
- Apr 28, 2021
- 1,881
- Tinnitus Since
- 1999
- Cause of Tinnitus
- Trauma
I was told tinnitus behavior or pitch changes (even if subjectively worse) is normal and doesn't mean I'm worsening objectively.
It seems every shift is subjectively worse though lol.
Blah - Carry on suckas.
It seems every shift is subjectively worse though lol.
Blah - Carry on suckas.
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