My Hyperacusis Journal — Sound Therapy and CBT with Tracy Holcomb (Treble Health)

#151
Shizune said:
@SmallRonnie, are you using Dr. Perreau's program or her PowerPoint slides with your audiologist? I emailed her but since she's licensed out of state, I can't legally see her for CBT, and she never replied to my last email. She recommended my audiologist use the slides on the University of Iowa website to do CBT with me, but my audiologist won't do virtual visits with me.
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I don't think I was using her content. I don't know exactly who my therapist was trained by but I think it's all fairly similar anyway.
 
#156
CRGC said:
Not familiar with diabetes. Is there a possibility that getting that under control could help your tinnitus and hyperacusis?
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There is... but if I don't get it under control, there's a definite chance of worsening tinnitus and everything else.
 
#157
Wrfortiscue said:
I decided to log my experience doing sound therapy and CBT with Tracy Holcomb from Treble Health. I informed her that I will be logging my progress. She is confident I will see success. I will try to be as unbiased as I can. Treatment will be incremental sound exposure to tolerant sounds while protecting ears when I can.

It's been a year since my onset, caused by COVID-19 vaccine/noise/Viagra - one of those. I have slowly adapted but I keep worsening every 2-3 months. I react to white noise pretty bad and don't get much sleep some days. 2-4 hours maybe 3-4 days a week.

I have 4-6 tones. In both ears moderate ringing, in right ear fluttering ping, in left ear grinding pulsatile squeaks/zaps/whatever you want to call it. When I'm spiked I get a bird chirp too. All fans make my left ear start buzzing, rain and driving spike right ear with louder ringing. Each day my hyperacusis starts off ok but the tolerance starts reducing as the day goes on (most times). I get pain but I believe it's from using hearing protection too much when outside.

Hope this journal can provide hope or direction for some.
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I had a consult with Treble Health yesterday morning. Can you tell me what you think of them now that you've been working with them for a few months?

I'm not sure I'm going to use the maskers because I just don't think that some noise funneled into my ear is going to help. Particularly because my tinnitus is so high-pitched. I can't find anything to mask it or anything that doesn't cause it to react after a while. Right now I am considering the counseling.

TIA.
 
#159
Forever hopeful said:
I had a consult with Treble Health yesterday morning. Can you tell me what you think of them now that you've been working with them for a few months?

I'm not sure I'm going to use the maskers because I just don't think that some noise funneled into my ear is going to help. Particularly because my tinnitus is so high-pitched. I can't find anything to mask it or anything that doesn't cause it to react after a while. Right now I am considering the counseling.

TIA.
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I haven't worked with them for a couple of months now. I found the counseling aspect a little lacking. It was mainly sound therapy and using ear maskers. Digital sound kept making me worse and the ear maskers kept causing itching and irritation I believe to my nerves. Protocol wasn't working for me and so I didn't sign back up. Reactive tinnitus is a bitch to treat and I haven't seen a true moderate or severe reactive sufferer benefit from TRT. I would like to know so I can see what I'm doing wrong.

I've been stuck in limbo since, and then now finding I'm diabetic lol, probably why I'm worsening.
 
#160
Wrfortiscue said:
Finally tested my blood and yup, I'm diabetic. Crap.
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Hey you! Just read your thread. We are very similar in our tones and the ever worsening shit...

Diabetic... lots of sugar and caffeine??? CUT THAT SHIT OUT.

I'm pre-diabetic (been for years) and I used ACV to lower blood sugar. It absolutely works. Get some and try a diluted amount that works for you. Don't burn your throat with it.

Best wishes my friend!
 
#161
Wrfortiscue said:
Lose weight. Exercise, cut the carbs and sugar, eat as clean as I can.

Blood glucose 260 before a meal and 400 after lol.
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Try keto in the short term first (2-3 months) and then transition into a low carb diet with exercise.

Staying committed and disciplined is the hardest part when following a strict diet.

Good luck to you man.
 
#163
Wrfortiscue said:
I haven't worked with them for a couple of months now. I found the counseling aspect a little lacking. It was mainly sound therapy and using ear maskers. Digital sound kept making me worse and the ear maskers kept causing itching and irritation I believe to my nerves. Protocol wasn't working for me and so I didn't sign back up. Reactive tinnitus is a bitch to treat and I haven't seen a true moderate or severe reactive sufferer benefit from TRT. I would like to know so I can see what I'm doing wrong.

I've been stuck in limbo since, and then now finding I'm diabetic lol, probably why I'm worsening.
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If you have the funds, I know that Allen Rohe out of Tempe Arizona has a really good program. It's a combination of CBT and TRT but not necessarily with the maskers.
 
#164
Thank you guys. Yeah I kinda knew something was up. Constantly thirsty, can't hold my pee at all, skin was itching like crazy, wounds not healing, floater in my eye started to appear, extreme fatigue after eating carbs or terrible headaches.
 
#165
Wrfortiscue said:
Thank you guys. Yeah I kinda knew something was up. Constantly thirsty, can't hold my pee at all, skin was itching like crazy, wounds not healing, floater in my eye started to appear, extreme fatigue after eating carbs or terrible headaches.
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Sorry to hear. Diabetes is tough.
 
#166
Forever hopeful said:
Sorry to hear. Diabetes is tough.
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Just read it's permanent. I'm pretty depressed.
Forever hopeful said:
If you have the funds, I know that Allen Rohe out of Tempe Arizona has a really good program. It's a combination of CBT and TRT but not necessarily with the maskers.
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I'm intrigued. I'm gonna look it up. Just not optimistic lol.
 
#167
Wrfortiscue said:
Just read it's permanent. I'm pretty depressed.

I'm intrigued. I'm gonna look it up. Just not optimistic lol.
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Well the good news is diabetes can be managed with diet, exercise and medication. Unlike this %%€%}{ tinnitus we have.

Have a consult with Dr. Rohe. The consult is not that expensive. His program is costly. I am thinking of doing it. He is an audiologist who specializes in tinnitus treatment, and he has it himself. Very knowledgeable and super nice.
 
#168
Forever hopeful said:
Well the good news is diabetes can be managed with diet, exercise and medication. Unlike this %%€%}{ tinnitus we have.

Have a consult with Dr. Rohe. The consult is not that expensive. His program is costly. I am thinking of doing it. He is an audiologist who specializes in tinnitus treatment, and he has it himself. Very knowledgeable and super nice.
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I skimmed through it and it looked like your pretty standard TRT protocol. I haven't found a sound my ears don't get irritated from yet.
 
#169
Wrfortiscue said:
Just read it's permanent. I'm pretty depressed.

I'm intrigued. I'm gonna look it up. Just not optimistic lol.
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Try not to feel defeated. You can still maintain normal blood sugar levels naturally, but it's going to require some permanent lifestyle changes. There's hope.
 
#173
Not sure what to do. Just sitting and trying to avoid sounds while living my life isn't working. I am reactive to stuff more and more, while the reactive spike is just getting shriller. Piercing and buzzing my brain to the smallest sound of a fan lol. I can't avoid those sounds 100%. Also, my tolerance drops as the day goes. Not sure if I should just keep resting my ears as much as possible (tolerance drops), try TRT again (not a popular option) or what.
 
#174
Forever hopeful said:
Well the good news is diabetes can be managed with diet, exercise and medication. Unlike this %%€%}{ tinnitus we have.

Have a consult with Dr. Rohe. The consult is not that expensive. His program is costly. I am thinking of doing it. He is an audiologist who specializes in tinnitus treatment, and he has it himself. Very knowledgeable and super nice.
Click to expand...
Do you know whether Dr. Rohe will work remotely with someone outside of his geographic area?
 
#175
Wrfortiscue said:
Not sure what to do. Just sitting and trying to avoid sounds while living my life isn't working. I am reactive to stuff more and more, while the reactive spike is just getting shriller. Piercing and buzzing my brain to the smallest sound of a fan lol. I can't avoid those sounds 100%. Also, my tolerance drops as the day goes. Not sure if I should just keep resting my ears as much as possible (tolerance drops), try TRT again (not a popular option) or what.
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@Wrfortiscue, perhaps a careful mixture of sound exposure and silence?
 
#178
Athens said:
Has he helped you?

I was quoted a price for the program (usually six to eight sessions comprising ten hours of his time) that is five times higher than the price that I saw referenced in a post here (but it may have been an old post).
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I'm not doing his program because he referred me to somebody local. I will tell you that the person I'm currently working with is much cheaper. I am in Boston. It's a 12 week program about an hour a week. The rest of the work you do on your own, but I would have paid for Dr. Rohe. Try having a consult with him. Maybe you don't have to do his full program, maybe you can just pay him individually for sessions. He charged me $125 for a consultative session. He's really great. I felt my anxiety come down appreciably after one conversation with him.
 
#179
Forever hopeful said:
I'm not doing his program because he referred me to somebody local. I will tell you that the person I'm currently working with is much cheaper. I am in Boston. It's a 12 week program about an hour a week. The rest of the work you do on your own, but I would have paid for Dr. Rohe. Try having a consult with him. Maybe you don't have to do his full program, maybe you can just pay him individually for sessions. He charged me $125 for a consultative session. He's really great. I felt my anxiety come down appreciably after one conversation with him.
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@Forever hopeful, would you mind sharing the name of the current person you are seeing?
 

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