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- Thread starter threefirefour
- Start date
Member
Kain
Member
- Aug 25, 2018
- 365
- 26
- Tinnitus Since
- March, 2018
- Cause of Tinnitus
- excessive loud music through earbuds
- May 24, 2017
- 1,622
- Tinnitus Since
- 05/2017 (H since 06/2017)
- Cause of Tinnitus
- long term noise exposure (headphones), maybe some stress.
According to this, we should be able to go to an ENT right now and have them call FrequencyTX and get some fx 322 for us without the FDA having jack shit to say about it.
https://arstechnica.com/science/2018/06/new-drug-access-law-intended-to-weaken-fda-according-to-lawmaker-behind-it
This looks like a drug access advocacy group:
http://righttotry.org/in-your-state/
"Because the laws require only that drugs have completed the first of three phases of clinical testing, there is no data on the efficacy of the drugs, especially in very sick people."
https://en.m.wikipedia.org/wiki/Right-to-try_law
Fx322 has passed phase 1. Can have now please?
https://arstechnica.com/science/2018/06/new-drug-access-law-intended-to-weaken-fda-according-to-lawmaker-behind-it
This looks like a drug access advocacy group:
http://righttotry.org/in-your-state/
"Because the laws require only that drugs have completed the first of three phases of clinical testing, there is no data on the efficacy of the drugs, especially in very sick people."
https://en.m.wikipedia.org/wiki/Right-to-try_law
Fx322 has passed phase 1. Can have now please?
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hardly anyone got tinnitus and noxacusis back then because they didn't have loud noise that could damage their hearing.
View attachment 22649
Answer: We haven't developed a resistance to tinnitus because common and continuous high decibel noise is a new environmental stimulus in our evolution.
Maybe an overhead lighting strike gave a Neanderthal caveman tinnitus (120 to 150 dB?). Talk about no one understanding your suffering, poor caveman!
View attachment 22650
How can this be? A young and healthy human body being defenseless against the simple causes of such a hideous condition as tinnitus?
Answer: We haven't developed a resistance to tinnitus because common and continuous high decibel noise is a new environmental stimulus in our evolution.
Maybe an overhead lighting strike gave a Neanderthal caveman tinnitus (120 to 150 dB?). Talk about no one understanding your suffering, poor caveman!
View attachment 22650
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WITH HEARING AND BALANCE DISORDERS ON THE RISE LETS FORM A CANCEROUS MONOPOLY THAT HOLDS BACK BIO SCIENCE FROM FINDING CURES!
The sharp otology/audiology dichotomy in practiced medicine is bulky, outdated, and harmful.
https://www.researchgate.net/public...ochlear_Nucleus_are_Redistributed_in_Tinnitus
OH noooooooooo, Professor Shore, and Professor Liberman and other brillant researchers put a dent in the central gain model. there are super complex determining mechanism's in the development of tinnitus that I don't understand at all.
I'm still trying to understand it, @Autumnly halp
OH noooooooooo, Professor Shore, and Professor Liberman and other brillant researchers put a dent in the central gain model. there are super complex determining mechanism's in the development of tinnitus that I don't understand at all.
I'm still trying to understand it, @Autumnly halp
the gateway mechanism's for tinnitus and phantom limb pain development are super complex and way over my head and probably have times of exceptions and I look like a retarded twerp trying to over simplify things.
Infact scientist aren't even certain about how phantom limb pain originates, lack/ damaged peripheral input plays a role but there are surely a lot more mechanisms and I look foolish jumping to conclusions.
I'm so confused, I do not understand audiotory/somatic or any neuro-science.
if the research is going way above my head that means they are making progress.
Infact scientist aren't even certain about how phantom limb pain originates, lack/ damaged peripheral input plays a role but there are surely a lot more mechanisms and I look foolish jumping to conclusions.
I'm so confused, I do not understand audiotory/somatic or any neuro-science.
if the research is going way above my head that means they are making progress.
Maybe youre confused because of the confusing literature available. Just keep trying. I know you think about this alot.
Look at the guy that invented the TV tube, he was a potatoe farmer. Have confidence bro.
https://en.m.wikipedia.org/wiki/Philo_Farnsworth
I'm completely discouraged, even though my hyperacusis is completely gone.
imagine the first week of college and the promise of a better life being ruined by hearing loss, tinnitus and painful hyperacusis that was much worse at the time and getting no sympathy and nothing but " i told you you would fail"
from a family that hates me.
I can never return to the previous biological and financial state of existence, no one cares if a mentally ill person commits suicide, it's not worth working hard when the odds are extremely biased against me, and mindfullness, mental perseverance were methods I tried long before I screwed up my hearing.
my life has gotten so much worse ever since last year all my friends and life scenarios that barely existed or would have completely left me. with a playing field this uneven I would rather sit home on the internet all day.
thinking about turning suffering into mental toughness makes my stomach turn inside out, I can't do it.
however I'm probably going to get a job, and contribute something to society so maybe I can afford a treatment, however with a documented mental illness that drastically worsened since I damaged my hearing I don't know how i'll fair. I'll just wait on clincial trials for SNHL and kill myself within 5-10 years if they fail.
in the past I enjoyed being employeed, late 2017 I was employeed, volunteering and starting the first week of classes, (by defintion I was still very shaky and anxiety ridden knowing 4.5 years behind most people my age. But I thought I was finally in a respectable position in life.
cochlear synaptopathy is a personal insult to me. No amount about mental conseuing can undo this damage.
it is so much more personal to do then a neurotyical who damages there hearing, habituates and accepts the hearing loss.
there is no chance in hell I'm going to permanently accept this deceit.
imagine the first week of college and the promise of a better life being ruined by hearing loss, tinnitus and painful hyperacusis that was much worse at the time and getting no sympathy and nothing but " i told you you would fail"
from a family that hates me.
I can never return to the previous biological and financial state of existence, no one cares if a mentally ill person commits suicide, it's not worth working hard when the odds are extremely biased against me, and mindfullness, mental perseverance were methods I tried long before I screwed up my hearing.
my life has gotten so much worse ever since last year all my friends and life scenarios that barely existed or would have completely left me. with a playing field this uneven I would rather sit home on the internet all day.
thinking about turning suffering into mental toughness makes my stomach turn inside out, I can't do it.
however I'm probably going to get a job, and contribute something to society so maybe I can afford a treatment, however with a documented mental illness that drastically worsened since I damaged my hearing I don't know how i'll fair. I'll just wait on clincial trials for SNHL and kill myself within 5-10 years if they fail.
in the past I enjoyed being employeed, late 2017 I was employeed, volunteering and starting the first week of classes, (by defintion I was still very shaky and anxiety ridden knowing 4.5 years behind most people my age. But I thought I was finally in a respectable position in life.
cochlear synaptopathy is a personal insult to me. No amount about mental conseuing can undo this damage.
it is so much more personal to do then a neurotyical who damages there hearing, habituates and accepts the hearing loss.
there is no chance in hell I'm going to permanently accept this deceit.
I hear you. I feel similar to this. If you'd like it I'm offering a hug. I can commiserate with your pain.
I want to share about this too. Some people can, as you say "damage their hearing, habituate and accept their hearing loss". And if they can do that, well good for them.
My soul is simply too tied up in music than to do that. That's for both innate and personal history reasons.
Not to mention that the high-pitched, disharmonious shrieking I hear 24/7 is enough to drive me crazy all by itself.
And I too, as it so happens was just starting out in a new and better life, with college, continuing personal development etc.
I know who I really am, but it's now hidden deep inside me. I won't go on this way.
Recycling with hyperacusis.
Do not be discouraged. I'm the CSO of the MPP research team. Sally forth soldier. Youre smart. You're not stupid, do not be discouraged.
Kain
Member
- Aug 25, 2018
- 365
- 26
- Tinnitus Since
- March, 2018
- Cause of Tinnitus
- excessive loud music through earbuds
actually i believe my hyperacusis comes back when I chew tough foods or have my yawning habits.
lmao guess what I have TMD but it's mild.
how do i get it to go away or should i just kill myself.
lmao guess what I have TMD but it's mild.
how do i get it to go away or should i just kill myself.
If you kill yourself, Jastreboff wins.
There's all the motivation you need to stay alive and solve life's ultimate mystery, tinnitus.
Kain
Member
- Aug 25, 2018
- 365
- 26
- Tinnitus Since
- March, 2018
- Cause of Tinnitus
- excessive loud music through earbuds
i mean like... the slow down of scientific advancement part of it... or am i dumb
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