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Thanks for offering! Maybe the best place to start is: what are your skills and areas of interest?

Good question. I received extensive training in logic in my community's schooling system, but I have not attended college (yet) so I can't claim any "official" skills.

I think I could be good at researching and critiquing evidence for treatments, as well as general editing of any essays etc. for spelling, grammar and logical flow. I'm very interested in philosophy and epistemology and I have personal (not professional) experience in those areas.
If you need help in other areas I'd be interested to hear about that as well.
 
I just came inside after playing with this friggen stupid quad copter and it seems like my high pitch tinnitus is lower. I also took a 5 hour energy.
5 hour energy + quadcopter = cure?
 
I just came inside after playing with this friggen stupid quad copter and it seems like my high pitch tinnitus is lower. I also took a 5 hour energy.
5 hour energy + quadcopter = cure?
Let's have the FAA fast track it.
 
Good question. I received extensive training in logic in my community's schooling system, but I have not attended college (yet) so I can't claim any "official" skills.

I think I could be good at researching and critiquing evidence for treatments, as well as general editing of any essays etc. for spelling, grammar and logical flow. I'm very interested in philosophy and epistemology and I have personal (not professional) experience in these areas.

I'll pick up this discussion further via PM!
 
The day I am out and about is the day that MPP blows up with discussion! lol
 
On Fοχ network (USΛ) Sεαn Hαnnιty is interviewing Rυsh Lιmbαugh right now.

Rυsh said he is totally deaf in both ears, all "35,000 hair cells completely wiped out", and "totally dependent on eight electrodes" replacing these hair cells (I think this is one implant in right ear only).

Hαnnιty mentioned the headsets and ear pieces they wear in radio can cause hearing damage from the volume of noise piped in over years of broadcasting.

Further reading:
https://www.rushlimbaugh.com/daily/...chlear_implant_activation_magic_happened/amp/
 
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On Fοχ network (USΛ) Sεαn Hαnnιty is interviewing Rυsh Lιmbαugh right now.

Rυsh said he is totally deaf in both ears, all "35,000 hair cells completely wiped out", and "totally dependent on eight electrodes" replacing these hair cells (I think this is one implant in right ear only).

Hαnnιty mentioned the headsets and ear pieces they wear in radio can cause hearing damage from the volume of noise piped in over years of broadcasting.

Further reading:
https://www.rushlimbaugh.com/daily/...chlear_implant_activation_magic_happened/amp/
no wonder he was hooked on oxycontin.
 
im starting to think that certain forums and the various tinnitus associations are only here to catch all the sufferers and stop us from organizing and advocating for faster access to technology that might cure us.

the reason being that any new technology needs to be choked back so it doesn't cause disruptions in other markets like hearing aids etc which would spell financial ruin for certain classes of people. everything needs to go nice and slow so rich folks have time to reinvest and the stock market can adjust smoothly.

if we could come together as one voice and demand rapid development of technology we could be cured faster. stuff like that would be disruptive to existing markets.

tell me if im wrong. don't ban me or censor me please.
 
On Fοχ network (USΛ) Sεαn Hαnnιty is interviewing Rυsh Lιmbαugh right now.

Rυsh said he is totally deaf in both ears, all "35,000 hair cells completely wiped out", and "totally dependent on eight electrodes" replacing these hair cells (I think this is one implant in right ear only).

Hαnnιty mentioned the headsets and ear pieces they wear in radio can cause hearing damage from the volume of noise piped in over years of broadcasting.

Further reading:
https://www.rushlimbaugh.com/daily/...chlear_implant_activation_magic_happened/amp/
Why do you write the names with quirky accented letters?
 
besides all tinnitus is only 20dB anyway and our emotions can make it go away remember.

People need to realise that there are various decibel scales. It makes no sense to compare one's tinnitus to an outside source using the A weighted scale, which is what most of you appear to be doing. The closest we can get is to pitch match and then measure the sensation level (dB SL) against that frequency. This involves (roughly) volume matching one's tinnitus to a certain pitch (usually the sound of one's tinnitus, if it's tonal), and then subtracting that person's hearing loss at the same frequency. If I remember correctly, the average person's tinnitus is around 7dB SL, and it's rare it goes above 10dB SL. 20dB SL would be very catastrophic.
 
20 db tinnitus caused by cochlear synapse damage/muffled hearing + 20 db of regular soft noise hearing loss would give off the perception of 40db tinnitus.

Thoughts on this hypothesis?

it's still 40db perception.
 
20 db tinnitus caused by cochlear synapse damage/muffled hearing + 20 db of regular soft noise hearing loss would give off the perception of 40db tinnitus.

Thoughts on this hypothesis?

it's still 40db perception.

There's no way of accurately measuring a perception using the A weighted or C weighted decibel scale. One of the problems is our fluid adaption to sound interpretation. For example, when tired, or in a state of stress, environmental sounds can alter in our perception quite dramatically. After all, sound is merely a conversion of sound waves into chemical and electrical signals; how the brain presents this to our higher processing centres entirely depends on the context of the noise.

The most common method is what I mentioned above, and that is to measure (as best as we can) the sensation level of a sound at a fixed frequency. Imagine there's a guy called John and he wants to know how loud his tinnitus is. John would go to the audiologist and they would tone match his tinnitus (if it is tonal), and let's say his tinnitus closely matches 6khz. Now, the audiologist would turn up the volume until John thinks both his tinnitus and the external noise are roughly the same. Let's say this turns out to be 40dB. To find out John's sensation level we would now need to find out what level of hearing loss John has at 6khz, so let's say this turns out to be 30db. That would mean John has a tinnitus sensation level of 10dB SL.

This isn't an exact science, but it's possibly the best method we have to measure tinnitus volume. Let me just state that we haven't really got a way of measuring a perception. If I measured mine against external noises I could claim it to be anywhere from 40dBa to 90dBa. I can hear mine next to a loud motorway, so does this mean I have 90dBa tinnitus? Of course it doesn't, because that would make no scientific sense at all.
 
At the peril of it seeming like we're ganging up on you (sorry!), I do want to respond once more. Your initiative is truly admirable, and as I and @Markku have said before, we will support your project in any way we can. But we're also asking you to learn from our experience.

@Markku has been running this site for 7 years, and @Ed209 has been around for 3 years or so and is the only member I can think of (outside of core TT staff) who has successfully carried out big projects. What they're trying to tell you is that it's not the structure of the forum that is the obstacle here, but getting people to dedicate themselves to projects for the long haul. Even in the six months that I've been volunteering, I have seen many members come up with great project ideas and none of them follow through.

I will be the first to acknowledge that we need to do a better job of communicating the various volunteering options! But I also know from experience that making people aware of project ideas and how they can contribute is not the hard part (we have Awareness & Fundraising, the Advocates section, the newsletter, special alerts, etc.). It's when push comes to shove and people realise how much work is actually involved that they back out. Every time, predictable like clock work. If I sound cynical, it's probably because I am a bit, LOL.
I have made some great suggestions here that I have used for non tinnitus fund funding and awareness before I developed severe tinnitus and physical conditions.

There's not much that I don't know about healthcare systems, fund raising, awareness and investments. I had involvement with this at a high level for most of my life before tinnitus, where I was a team member. We were able to raise considerable funds.

I have decided to now completely work with my wife and friends for fundraising - at my pace for various reasons including health.
 
There's no way of accurately measuring a perception using the A weighted or C weighted decibel scale. One of the problems is our fluid adaption to sound interpretation. For example, when tired, or in a state of stress, environmental sounds can alter in our perception quite dramatically. After all, sound is merely a conversion of sound waves into chemical and electrical signals; how the brain presents this to our higher processing centres entirely depends on the context of the noise.

The most common method is what I mentioned above, and that is to measure (as best as we can) the sensation level of a sound at a fixed frequency. Imagine there's a guy called John and he wants to know how loud his tinnitus is. John would go to the audiologist and they would tone match his tinnitus (if it is tonal), and let's say his tinnitus closely matches 6khz. Now, the audiologist would turn up the volume until John thinks both his tinnitus and the external noise are roughly the same. Let's say this turns out to be 40dB. To find out John's sensation level we would now need to find out what level of hearing loss John has at 6khz, so let's say this turns out to be 30db. That would mean John has a tinnitus sensation level of 10dB SL.

This isn't an exact science, but it's possibly the best method we have to measure tinnitus volume. Let me just state that we haven't really got a way of measuring a perception. If I measured mine against external noises I could claim it to be anywhere from 40dBa to 90dBa. I can hear mine next to a loud motorway, so does this mean I have 90dBa tinnitus? Of course it doesn't, because that would make no scientific sense at all.
Would it theoretically be possible to find a way to measure tinnitus loudness accurately and objectively?
 
Would it theoretically be possible to find a way to measure tinnitus loudness accurately and objectively?

That would be the holy grail (other than curing it of course!). If this were possible, it would effectively make tinnitus more visible and we could objectively assess how bad somebody has it. I'm sure this would also make access to legitimate benefit claims a lot easier.
 
There is a concept called disruptive technology. Nikola Tesla's wireless power transmission was (and still is) a prime example of this. If they most tested and approved hearing loss drugs as fast as they actually could, the hearing aid, hearing loss industry would not have enough time to downsize and their top shareholders would not have enough time to reinvest and they would lose their elite status in the 1%. :cry: By delaying the release of disruptive technology, it gives the current players time to smoothly get out and reinvest and keep their fortunes.

I think this is part of the role the FDA plays in the process, to basically protect rich bankers and investors from losing too much. This explains the ridiculous amount of time it takes the "peer review" process to play out.

There is also the threat of grass roots movements coming together to force the hand of agencies like the FDA. If the public at large knew there was regulatory red tape that could be cut to help dying and suffering people live and be healthy, they could really help speed it up, because most people arent elite 1%ers and could care less if they lose their yachts. This to me explains the unwillingness of certain tinnitus groups to help organize to push the rapid development of this emerging technology. Like when the leaders of these groups get on TV and completely fail to draw attention to potential cures. Basically I'm postulating that big bankers have us by the balls and they will limit their liabilities before they allow us to get the help we need.
 
no one cares about an highly expensive bio-medical treatment for a person living with a mental illness, if there was a way to cure my condition it would cost a huge ransom of $500,000 of several bio-medical procedures.

I'd probably still get no where in life, it's too late for me. I am suppose to commit suicide. It's better then being cucked by cochlear synaptopathy, reactive tinnitus and a mild version of noxacusis (which I'm suppose to habituate/manage too), because non mentally ill people have the ability to "accept and move on" that is the reason special needs adults people like me can't get help.


neurotypicals thrive with chronic conditions very well. I'm a fucking snowflake for acting like I deserve a treatment for my muffled hearing. most likely all these clinical trials will fail and investors will not bother with hearing loss bio-tech.

All it takes is one unexpected obstacle to make the 100 million dollar bio-race for the inner ear go down the shitter.

therapist, ENT's and family all want me to commit suicide in a passive aggressive way by discouraging any real help.


i want to die

i want to die

i want to die

i want to die

i want to die

i want to die
 
i'm so pathetic i literally mock and insult people that can manage/habituate/tolerate these conditions.
 

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