My Posting Place

[85dB T]

There's a movie in this........A bunch of strangers from all over the globe who met on a health forum come together and plot to rob a research lab to steal the miracle cure than will finally stop the ringing in their ears that has destroyed their lives.

Sorry, I misspelled "Heros" on the last one. Can't let that go uncorrected!

(ref. Kelly's Heroes, they get the gold)

 

[JohnAdams]

What's a right to try law?!! Surely the makers of the T juice have to agree to let us try it. Can we just demand it?? Info John you derd.

Right to try laws mean that you can try a drug, if you're dying and if the company that makes it agrees to sell it to you. I'd say tinntitus is a special case because it is almost worse than death.

 

[Bam]

I'd say tinntitus is a special case because it is almost worse than death.

Fully agreed. It's like being buried alive....but no way are frequency going to sell it. There's just no upside on their part.

The only way to get it is to steal it, find a lab in China to replicate it and then get some backstreet doctor to inject it in your lugholz.

 

[JohnAdams]

Fully agreed. It's like being buried alive....but no way are frequency going to sell it. There's just no upside on their part.

The only way to get it is to steal it, find a lab in China to replicate it and then get some backstreet doctor to inject it in your lugholz.

We will just have to wait and see.

 

[Bam]

We will just have to wait and see.

Have you approached them about this?

 

[JohnAdams]

Have you approached them about this?

They just shoot out a boiler plate email saying they cant say anything and yada yada.

 

[Contrast]

Where did he get the information on regrown hair cells?
@attheedgeofscience

would gene therapies and progenitor cell activation both have the same results?

 

[Jack Straw]

 

[Jack Straw]

 

[Bam]

They just shoot out a boiler plate email saying they cant say anything and yada yada.

Sounds about right. We got this shit 10 years too soon my friends. Fuck we got unlucky. This isn't even gonna be an issue in the future. Couple of injections or a pill once a day and no tinnitus.

 

[JohnAdams]

Sounds about right. We got this shit 10 years too soon my friends. Fuck we got unlucky. This isn't even gonna be an issue in the future. Couple of injections or a pill once a day and no tinnitus.

Not 10 years. If this stuff works, they will know by December if they dont already know. If it does work then, and if we all spoke with one voice, then we could probably push to get this stuff by next year. But we would have to get this whole site and the ata and bta behind us.

 

[Bam]

Not 10 years. If this stuff works, they will know by December if they dont already know. If it does work then, and if we all spoke with one voice, then we could probably push to get this stuff by next year. But we would have to get this whole site and the ata and bta behind us.

Hopefully?!? But who knows what's driving this shit.....

 

[JohnAdams]

Hopefully?!? But who knows what's driving this shit.....

View attachment 23590

Well, I'm basically the only one pushing for this. I guess I'm the only one here that really wants to fix this shit.

 

[JohnAdams]

We have to all speak with one voice and relentlessly beg the ATA to lobby for us to get special access to fx322.

 

[Bam]

We have to all speak with one voice and relentlessly beg the ATA to lobby for us to get special access to fx322.

Their response at the moment will be, 'we don't even know if it helps tinnitus.'

Do we know what's in FX322. Surely some dodgy Chinese lab is all over replicating it?

 

[JohnAdams]

Their response at the moment will be, 'we don't even know if it helps tinnitus.'

Do we know what's in FX322. Surely some dodgy Chinese lab is all over replicating it?

Doubt it. And yes,they will know if it improves hearing and tinnitus in a couple months, if it does in fact work. They may already know. Why not at least try and not take no for an answer. Dont you want to be healed?

 

[IAmCalifornia]

I have been spamming BTA/ATA with Frequency TX posts non stop and not even one generic reply. Nothing. And I know they are seeing it on Twitter because they reply to other horror stories with "contact us we can help".

This is so f*cked.

 

[IAmCalifornia]

What is it going to take??

 

[JohnAdams]

I have been spamming BTA/ATA with Frequency TX posts non stop and not even one generic reply. Nothing. And I know they are seeing it on Twitter because they reply to other horror stories with "contact us we can help".

This is so f*cked.

They have zero mention on their site of the one thing that may actually cure some of us. Fx322. That's so insane to me. I don't understand this. Why the silence?

 

[Bam]

Doubt it. And yes,they will know if it improves hearing and tinnitus in a couple months, if it does in fact work. They may already know. Why not at least try and not take no for an answer. Dont you want to be healed?

Of course I do. I want this shit gone.

But this 'right to try' law is a bit like the 'right to die'. Nobody thinks tinnitus is deadly enough to warrant either.

As we know it's often worse than a terminal illness but nobody else sees that. And suicides are rarely chalked up to tinnitus unless it makes a good headline about Bose headphones or psychotic wife murdering.

 

[JohnAdams]

Of course I do. I want this shit gone.

But this 'right to try' law is a bit like the 'right to die'. Nobody thinks tinnitus is deadly enough to warrant either.

As we know it's often worse than a terminal illness but nobody else sees that. And suicides are rarely chalked up to tinnitus unless it makes a good headline about Bose headphones or psychotic wife murdering.

Weve got to reach out to wounded warrior project

 

[Jack Straw]

So who has reached out to who regarding regenerative medicine?

 

[IAmCalifornia]

So who has reached out to who regarding regenerative medicine?

For me, BTA sand ATA. Emails and twitter. Multiple over the span of weeks with emails, numerous tweets since Susanna Reid's tweet.

 

[IAmCalifornia]

It's generally agreed upon that Jastreboff is an enemy of the tinnitus cure.

I think my new meme Target will be ATA and BTA. Start slow, defacing their logos in creative ways. And then photoshop their employees into photos that will live on the internet forever. Maybe then they'll actually ACKNOWLEDGE OUR DESIRE FOR AN ACTUAL CURE.

 

[Jack Straw]

It's generally agreed upon that Jastreboff is an enemy of the tinnitus cure.

I think my new meme Target will be ATA and BTA. Start slow, defacing their logos in creative ways. And then photoshop their employees into photos that will live on the internet forever. Maybe then they'll actually ACKNOWLEDGE OUR DESIRE FOR AN ACTUAL CURE.

Has ATA or BTA made any mention of bimodal stimulation devices? If not, then it is clear they are not touching anything that is beneficial for tinnitus in the near future. I'm not sure why though. It may be because they don't want to get people's hopes up, or are waiting for money from organizations before they promote products, or someone is paying them to maintain the current status quo.

 

[Contrast]

I have been spamming BTA/ATA with Frequency TX posts non stop and not even one generic reply. Nothing. And I know they are seeing it on Twitter because they reply to other horror stories with "contact us we can help".

This is so f*cked.

please don't spam them that's rude
and they'll think it's me because i'm the most relevant nutjob on the forum.

 

[JohnAdams]

Haha! People are stupid. Almost like they're under a spell. I now see why the ATA and BTA dont advocate awareness of regenerative medicine. The same type of hard headed ignorance is also present the the world of Christianity, and I'm a Christian. There is a sickness of mind in which people trust authority waaaaayyyyyy too much and are incapable of thinking for themselves. These tinnitus associations fully trust the system to work well even though the same system has approved ototoxic drugs in the first place! An analogy in the world of Christianity is the widespread belief in the so called Rapture, something no one believed in until the early 1900's, also the belief in what's called "speaking in tongues", in which people babbel ridiculous utterances and believe it to be the Holy Spirit speaking through them, yet again something new from 100 years ago that nobody seems brave enough to question because they are BRAIN WASHED. Welcome to the world. People are not very smart and it is all because they trust the system, they dont ask questions. They certainly don't think for themselves. Period. The NPC meme is perfect because it truly embodies the truth. It's not even just Democrats that are NPCs, Republicans are too. its everybody. nobody gives a crap about anything important. Most Republicans are Christians yet are also pro war which doesnt make any sense at all. seriously, look at Catholic priest rapists, where are the fathers? if a priest raped my child I would beat the fuk out of that dirtbag but looks like they are all NPCs that just roll over and the so called priests get away with it. I think 90% of adults have an IQ between 95-105 and unless you have a white doctors coat, or a badge, or a fancy title, they wont listen to a word you have to say, and cannot recognize genius when they encounter it.

 

[JohnAdams]

For me, BTA sand ATA. Emails and twitter. Multiple over the span of weeks with emails, numerous tweets since Susanna Reid's tweet.

Just call them. They will talk to you. Just be nice though. They need to know about this. They will blab about trials working and let everything just take its course. We need to calmly admonish that attitude and tell them theres a better way. We can do this.

 

[IAmCalifornia]

I was hoping MPP would be in favour of more radical activism

I suppose the status quo will do

I won't call anyone. I never use phones due to my ears.

Just call them. They will talk to you. Just be nice though. They need to know about this. They will blab about trials working and let everything just take its course. We need to calmly admonish that attitude and tell them theres a better way. We can do this.

 

[IAmCalifornia]

please don't spam them that's rude
and they'll think it's me because i'm the most relevant nutjob on the forum.

Ugh fine