My Posting Place

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I just posted a big blazing nugget in the Minbo Shim thread.

apparently there's been 2 human clinical trials showing intra-tympanic injections of IGF-1 in a gel restore lost hearing thresholds up to 30dB across all the frequencies they measured. And there were no adverse effects. They also speculate that it may be because of hair cell regeneration.

Wake up sheep, this is more than we expected from fx-322 and they still haven't published jack shit.

Merry Christmas.
 
I just found another paper touting human clinical trials that says IGF-1 is safer than steroid injections, and leaves no eardrum perforations, and doesn't cause tinnitus. There's a lot to this, so just read.

Very importantly it states,
  • "at 12 and 16 weeks after treatment, there was a trend in the IGF-1 group showing a larger number of patients with complete and marked recovery when compared to the Dex group"
  • "On the other hand, no patient in the IGF-1 group showed residual perforation in the tympanic membrane."
  • "in the 5-year follow-up, no tumor formation was identified in those patients."

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4236431/

I feel like a kid on Christmas day!
 
please stay a live we need you to fight the good fight!

I gave up, as I'm tired of living, this noise, the lack of empathy from family, the burden of failure in my life due to tinnitus, the fact that people out there have no problem scanning us sufferers...

I did a bunch of drugs and it hit me that this crap will probably never be cured. I haven't seen anything to tell me otherwise.

I'm less below zero on the depression scale currently. It saddens me that a Jastreboff has a nicer life than I do.

I was apprehended by police due to suicide attempt and had to stay In psych unit at the hospital
 
I gave up, as I'm tired of living, this noise, the lack of empathy from family, the burden of failure in my life due to tinnitus, the fact that people out there have no problem scanning us sufferers...

I did a bunch of drugs and it hit me that this crap will probably never be cured. I haven't seen anything to tell me otherwise.

I'm less below zero on the depression scale currently. It saddens me that a Jastreboff has a nicer life than I do.

I was apprehended by police due to suicide attempt and had to stay In psych unit at the hospital
IAmCalifornia So sorry you're suffering so freaking bad, I just want to say in solidarity I know what this sh!t is like, and I hope Neuromod will help us.
It's corny but we here at MPP are your genuine friends as we are all going through this hell, together. Peace.
 
Guys I found this treatment called Tinnitus Retraining Therapy, it has an 80% success rate and it's based off of the nurofiziolojikel model, all we need to do is walk around with WNGs like demented cyborgs and we'll be perfectly happy with shrieking in our heads, tell Markku we're all good now and he can close TTalk
 
I gave up, as I'm tired of living, this noise, the lack of empathy from family, the burden of failure in my life due to tinnitus, the fact that people out there have no problem scanning us sufferers...

I did a bunch of drugs and it hit me that this crap will probably never be cured. I haven't seen anything to tell me otherwise.

I'm less below zero on the depression scale currently. It saddens me that a Jastreboff has a nicer life than I do.

I was apprehended by police due to suicide attempt and had to stay In psych unit at the hospital

Mate this happens to so many of us. It's the same story over and over and yet why is nobody but us talking about curing this fucking evil piece of shit condition?!? Why are our families not fucking outraged that the people they 'love' are just left to suffer in such an insanely awful state. They're all fucking running marathons for breast cancer and worrying about hungry people but they don't even think twice about the fact their kids, brothers, sisters are being fucking TORTURED IN TO KILLING OURSELVES. It's like the world has gone fucking mad and we're the only sane ones, despite being the mad ones, if that even makes any fucking sense. It's like we've gone beyond the fucking twilight zone.....we've been swallowed by some Stephen Hawking black hole of misery type shit that people can't even comprehend on this earth plain.
 
Mate this happens to so many of us. It's the same story over and over and yet why is nobody but us talking about curing this fucking evil piece of shit condition?!? Why are our families not fucking outraged that the people they 'love' are just left to suffer in such an insanely awful state. They're all fucking running marathons for breast cancer and worrying about hungry people but they don't even think twice about the fact their kids, brothers, sisters are being fucking TORTURED IN TO KILLING OURSELVES. It's like the world has gone fucking mad and we're the only sane ones, despite being the mad ones, if that even makes any fucking sense. It's like we've gone beyond the fucking twilight zone.....we've been swallowed by some Stephen Hawking black hole of misery type shit that people can't even comprehend on this earth plain.
The holiday season got to me. And the impending new year.

I'm recovering kind of. I'm lucky my tinnitus didn't get worse surprisingly. I just have zero motivation to do anything except to end it all properly next time.

It's just, because it's an invisible illness (and not a symptom like all the morons keep telling me it is), because it's not corporeal, everyone thinks I'm just crazy and lazy.

I think you hit the nail on the head @Bam
 
The holiday season got to me. And the impending new year.

I'm recovering kind of. I'm lucky my tinnitus didn't get worse surprisingly. I just have zero motivation to do anything except to end it all properly next time.

It's just, because it's an invisible illness (and not a symptom like all the morons keep telling me it is), because it's not corporeal, everyone thinks I'm just crazy and lazy.

I think you hit the nail on the head @Bam
We face constant brainwashing that our condition is trivial. Some types of tinnitus are trivial but there is tinnitus that cripples. Because it's invisible, it doesn't exist.
 
The holiday season got to me. And the impending new year.

I'm recovering kind of. I'm lucky my tinnitus didn't get worse surprisingly. I just have zero motivation to do anything except to end it all properly next time.

It's just, because it's an invisible illness (and not a symptom like all the morons keep telling me it is), because it's not corporeal, everyone thinks I'm just crazy and lazy.

I think you hit the nail on the head @Bam

Dude I'm so sorry. I really get you. This was me a few months ago. I wish I had gone through with it. Like you my desire to go on has flatlined. There's nothing to look forward to anymore. It's just day after day of hell with no escape.

Like you I feel disconnected and alienated from my family and friends because all I get off them is this 'you're not trying hard enough to get better' vibe.

How?!? How?!! I want to shout. How do I get better when I'm being fucked in the ears by screaming noise day and night and my whole life has fallen apart you ****?!?
 
The holiday season got to me. And the impending new year.

I'm recovering kind of. I'm lucky my tinnitus didn't get worse surprisingly. I just have zero motivation to do anything except to end it all properly next time.

It's just, because it's an invisible illness (and not a symptom like all the morons keep telling me it is), because it's not corporeal, everyone thinks I'm just crazy and lazy.

I think you hit the nail on the head @Bam
Iamcalifornia you're not alone. I did the same as you, they detained me 12 days. None of my "old friends" know. If I told them they would laugh their asses off.
 
Iamcalifornia you're not alone. I did the same as you, they detained me 12 days. None of my "old friends" know. If I told them they would laugh their asses off.

Have you seen this woman posting on Mutebutton who has been 100% cured in the trial?! She seems kind of blasé about the whole thing. Fucking insane.
 
Have you seen this woman posting on Mutebutton who has been 100% cured in the trial?! She seems kind of blasé about the whole thing. Fucking insane.

I had tinnitus long before it became severe. I remember coming into my house after doing yard work one Saturday. It was quite in the house, I paused and listened. I thought, man, this tinnitus is loud, this is pushing the limit. I had the ability to ignore it. I said to myself, well listen 30 more seconds and then block it out for another long period of time.

But now, tinnitus dominates my life hour by hour, no escape. After 5 years severe, I can go an hour habituated to it. Mostly when I swim. I'll swim 30 minutes, sometimes the full hour without paying it attention.

If I were 100% cured I would dedicate my life to helping everyone who suffers from tinnitus find access to the cure.

I don't believe anyone has ever been cured from severe noise induced tinnitus. People who claim otherwise are either lying to themselves or never had it severe.

Maybe I'm wrong. I sure as heck hope so. If it is truly possible to be cured the world will rapidly become informed of this.
 
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I don't believe anyone has ever been cured from severe noise induced tinnitus.
I fear this too; I feel like T due to HL by noise damage (like mine) would be much more difficult to successfully treat.
Then again, per the video with Steve the entire premise of MuteButton is central gain theory, so hopefully I'm wrong!!
 
@85dB T are you planning on purchasing MuteButton?
I won't spend a dollar on it until I believe it works. I believe in God but not fancy scientific gimmicks.

Hopefully I am shamefully wrong. If so I'll be the first to admit it and gladly so.

The only person that's going to help me is myself. That's the way it's been the last five years and that's the way I'm prepared for it to be the rest of my life. (with God's help which I won't elaborate other than: without him I couldn't make it. That is make it until the end, dying a natural death)
 
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