-
This Saturday, November 16, you have the chance to ask Tinnitus Quest anything.
The entire Executive Board, including Dr. Dirk de Ridder and Dr. Hamid Djalilian are taking part.
The event takes place 7 AM Pacific, 9 AM Central, 10 AM Eastern, 3 PM UK (GMT).
➡️ Read More & Register!
My Posting Place
- Thread starter threefirefour
- Start date
Member
- Jan 17, 2019
- 112
- Tinnitus Since
- 2017
- Cause of Tinnitus
- Unknown (possibly withdrawal-induced)
Things used to be different...
https://www.congress.gov/congressio...e/s5382-1?q={"search":["tinnitus"]}&s=4&r=121
Whereas 50,000,000 individuals in the United States have
experienced tinnitus, the perception of noises or ringing in
the ears and head when no external sound source is present;
Whereas 12,000,000 individuals in the United States
experience tinnitus to an incessant and debilitating degree,
such that the sounds in their ears and heads never abate,
forcing them to seek assistance from a health care
professional;
experienced tinnitus, the perception of noises or ringing in
the ears and head when no external sound source is present;
Whereas 12,000,000 individuals in the United States
experience tinnitus to an incessant and debilitating degree,
such that the sounds in their ears and heads never abate,
forcing them to seek assistance from a health care
professional;
Jesus fucko.
And these statements are just from 2004? I can only imagine how much more that has increased, and how many more people were forced to get use to it and live with something that should be cured. Why is 2004 more understanding of that than now?
I really feel like if people weren't told to get use to it by their doctors and such and oh it won't go away and maybe if more did their own research, more people will see they're being played. It's mind boggling to me though that some people with mild T <--- which is dubbed to be the majority of people are a-okay to be living with this when it's basically a beep of a time bomb ready to explode over the next too big noise exposure. There really needs to be a demand of this rectified and resolved. 2004 made that known - we should be able to make that known too. Though, they are silencing people, especially the majority of VETS with free T therapy.
Like when I first read that I was astounded. If you know so many vets are suffering from this shit, your thought is to offer a free form of therapy, but not a treatment? Lmao ok.
People used to think that the biggest hurdle for a treatment was how hard tinnitus is to treat. That really isn't the case, it can be treated with bimodial stimulation, which is quite easy. The big problem is our researchers define it more as a cognitive problem than an actual brain problem, so they're attacking completely the wrong aspect of it.I really feel like if people weren't told to get use to it by their doctors and such and oh it won't go away and maybe if more did their own research, more people will see they're being played. It's mind boggling to me though that some people with mild T <--- which is dubbed to be the majority of people are a-okay to be living with this when it's basically a beep of a time bomb ready to explode over the next too big noise exposure. There really needs to be a demand of this rectified and resolved. 2004 made that known - we should be able to make that known too. Though, they are silencing people, especially the majority of VETS with free T therapy.
Like when I first read that I was astounded. If you know so many vets are suffering from this shit, your thought is to offer a free form of therapy, but not a treatment? Lmao ok.
Just like how many cases of pain from noise are peripheral neuropathy, but Jastreboff monopolized the field with his own dogma that it's strictly neurological. TRT literally held back hyperacusis research by decades.
https://www.mayoclinic.org/diseases-conditions/peripheral-neuropathy/symptoms-causes/syc-20352061
- Jan 17, 2019
- 112
- Tinnitus Since
- 2017
- Cause of Tinnitus
- Unknown (possibly withdrawal-induced)
TRT is good for many people. But it doesn't work for everyone. Upwards of 15% of cases. That's not even the problem, though. The problem is a predominant belief, up top, that TRT should work for everyone... and so, in cases where TRT does not work, it cannot be TRT's fault... rather, it is the patients who do not benefit from TRT who are somehow to blame. "Perhaps they are not doing it properly. Perhaps they are unwilling. Perhaps they are uncommitted." This is the "problem" with TRT, as far as the treatment ecosystem is concerned. Certain people made some lazy or arrogant or stubborn comments and unscientific remarks years ago about the tinnitus patient population and TRT - and some of these comments and this attitude continues to this day - and these people have helped spread the "habituate or gtfo" and "TRT is infallible" culture. Which obviously interferes with the progress (and conversation) toward a cure for the 15% (or whatever percentage) of patients who, it seems, are habituation-proof. These patients understandably feel brushed aside... while their frustration is seen as symptom of not TRTing hard enough, not being open and willing to TRT. It's a classic "don't question the establishment" or "don't question the State" type problem. The state can do no wrong. Anything that shows the state might be wrong is actually wrong. Burn the 15% at the stake (metaphorically), then everyone will be cured by TRT. In other words, TRT does not need to be undone, it just needs a healthy dose of HUMILITY and reality. Studies that prove it does not work for everyone, like the recent habituation-proof patient pop study, will help open up the gates wider for the 15%.
Phendran
Member
I was under the impression that TRT only "works" because the tinnitus treated with it would have faded on its own or the person afflicted would have habituated by themselves.
- Jan 17, 2019
- 112
- Tinnitus Since
- 2017
- Cause of Tinnitus
- Unknown (possibly withdrawal-induced)
Not the hill I'm dying on. Might be true, might be true in many cases, might be true in most cases. What I'm trying to emphasize is the importance of highlighting the existence of an habituation-proof 15% (or whatever percentage). That is where the research dollars and funding are waiting on. The stronger the case, the better. TRT, habituation, time, whatever. These are not the things that are slowing down and minimizing the importance of research toward the 15%. It's the people who deny the existence of the 15% that are the problem. TRT, whether it helps 1% of patients or 85%. Doesn't really represent the actual problem and barrier to research dollars... That is, until someone takes it too far and says, "FACT: TRT works for 100% of patients, but 15% of patients are non-compliant and they would be cured by it if only they were compliant." The same way tinnitus spontaneously resolving on its own isn't a problem... until someone high up says, "100% of tinnitus will spontaneously resolve on its own... but 15% of patients pretend they are still experiencing problems, or exaggerating, when in reality their tinnitus is getting better." Then, we've got ourselves a problem. TL;DR - it ain't the program(s), it's the people and the propaganda that stand in the way.
Can't get research dollars for a problem that people high up (effectively) claim does not exist!
Current Clinical Trials for tinnitus
Neuromod
https://www.neuromoddevices.com/
https://www.tinnitustalk.com/threads/q-a-tinnitus-hub-meets-neuromod-lenire.32369/
https://clinicaltrials.gov/ct2/show/NCT03530306
Stimulate the trigeminal nerve and modulate the auditory brain with specific frequencies to cancel out tinnitus temporarily
University of Michigan
https://medicine.umich.edu/dept/khri/susan-e-shore-phd
https://www.tinnitustalk.com/threads/new-university-of-michigan-tinnitus-discovery-—-signal-timing.2805/
https://clinicaltrials.gov/ct2/show/NCT03621735
Stimulate the vagus nerve and modulate the auditory brain with specific frequencies to cancel out tinnitus temporarily
Frequency Therapeutics
http://www.frequencytx.com/
https://www.tinnitustalk.com/threads/frequency-therapeutics-—-hearing-loss-regeneration.18889/
https://clinicaltrials.gov/ct2/show/NCT03616223
Hearing loss restoration via hair cell regeneration (curing hearing loss should cure some cases of tinnitus caused by it)
Neuromod
https://www.neuromoddevices.com/
https://www.tinnitustalk.com/threads/q-a-tinnitus-hub-meets-neuromod-lenire.32369/
https://clinicaltrials.gov/ct2/show/NCT03530306
Stimulate the trigeminal nerve and modulate the auditory brain with specific frequencies to cancel out tinnitus temporarily
University of Michigan
https://medicine.umich.edu/dept/khri/susan-e-shore-phd
https://www.tinnitustalk.com/threads/new-university-of-michigan-tinnitus-discovery-—-signal-timing.2805/
https://clinicaltrials.gov/ct2/show/NCT03621735
Stimulate the vagus nerve and modulate the auditory brain with specific frequencies to cancel out tinnitus temporarily
Frequency Therapeutics
http://www.frequencytx.com/
https://www.tinnitustalk.com/threads/frequency-therapeutics-—-hearing-loss-regeneration.18889/
https://clinicaltrials.gov/ct2/show/NCT03616223
Hearing loss restoration via hair cell regeneration (curing hearing loss should cure some cases of tinnitus caused by it)
Every day, I see a new member join, whether it be barely getting T, or having T for a long period of time. There's people who are connected to higher ups on here who should be able to see with their own two eyes that this is an epidemic that deserves rectification.
Log in or register to get the full forum benefits!
Similar threads
