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My Posting Place

I'm standing by my prediction that all forms tinnitus will be cured in the 2020s.

Whether it be by Bimodal Stimulation, Regenerative medicine, Artificial General Intelligence or Brain Computer Interfaces.
Does a bullet in the head count as a cure?
Hope you're right dude.....2020s here we come... just hope the cure comes before the world implodes... hard to say which will come first...

Sorry for the negativity... argghhhhhhhhh... one of those days.
 
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Wow Lenire is panning out to be a real winner..........one size fits all headphones and tongue tickler.........I bet that will work wonders for all the subgroups of tinnitus sufferers.
 
This is an email I received from Dr. Shore on August 30, 2019.

I sent her an email asking when she was expecting her device to be out in the market. I also told her about Lenire and how it was looking promising. This is what she replied to me.

View attachment 32006
Reading between the lines, it sounds like she's not enthusiastic about the evidence for Neuromod. In fact, they did not have a placebo group...
 
Reading between the lines, it sounds like she's not enthusiastic about the evidence for Neuromod. In fact, they did not have a placebo group...
She was being diplomatic, she's a scientist and a respected professor. She has to be careful with her words, rightfully so. There's a lot to learn from this woman, and she's a freaking saint for writing back to people. She has tinnitus and is trying her best.
I have my doubts about Neuromod, much of it do to the fact that a patient needs a knowledgeable audiologist to sequence the timings correctly....this is something I find highly doubtful outside of their main office in Ireland.

Also, I was unaware there was no placebo group as Manny mentioned, that's very strange to say the least.

Post note... she didn't doubt the device, but insisted proper scientific studies should be undertaken... you could infer doubt if one wanted... and may be right on the money.

Wonder how much Lim was paid to fly over and salvage their operation. Would be nice if somebody could write to the esteemed professor Dr. Lim and get some feedback from him.
 
Also, I was unaware there was no placebo group as Manny mentioned, that's very strange to say the least.
Just driving back from Neuromod now, with Lenire in the boot. I had a good chat with Caroline about the temporary increase in tinnitus or at the least the perception of it and mentioned that a few Tinnitus Talk users reported worsening, that seemed to at least have returned to baseline after a few days. Really interesting conversation, she is very knowledgeable about tinnitus and scientific trials in particular.

One really interesting thing she said regarding the lack of placebo in the trial, was that the follow up out to 12 months was in fact a placebo trial in itself. The fact that people were seeing the benefits out to 12 months (9 months after treatment stopped) showed that they could no longer be experiencing a placebo affect.
 
how does that make any sense?
Exactly,,,it's late hear, iam tired and just read that.
What the hay....
A placebo is a placebo...a drug or a device is not a placebo...
Isn't that how it works.?

Turns out my hearing is to bad to qualify for the electric zaps,,,don't give a shit.
Iam busy learning to cope, will hopefully get some new hair cells or hearing aids if that doesn't pan out,.
Iam feeling strong and am not worried. Getting my mojo back.
That latter quote was just plane bizarre......such is life
 
i'm sorry for asking this randomly here but...is there any correlation between the severity of tinnitus and the extent of hearing loss ?
I'm trying to figure out what does impact the severity of tinnitus.
 
Where tf is everyone in MPP.

Rise.

Anyway, how is Leniere holding up so far with the individuals who are proceeding with their curriculum. Has anyone's tinnitus improved that is a long-term sufferer?
 
Where tf is everyone in MPP.

Rise.

Anyway, how is Leniere holding up so far with the individuals who are proceeding with their curriculum. Has anyone's tinnitus improved that is a long-term sufferer?
I assume most people gave up on any kind of cure for the next 5 years following le no audiogram improvement debacle

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i'm sorry for asking this randomly here but...is there any correlation between the severity of tinnitus and the extent of hearing loss ?
I'm trying to figure out what does impact the severity of tinnitus.

Speaking for myself, there definitely is. The greater the progression of my hearing loss the louder and more intrusive the tinnitus became.

There's a cruel logic in it for me. The less sound coming in through my ears, the greater the hyperactivity in the brain and the greater the percepeption of volume.

I still want to believe that habituation is possible at some point, though I don't know how long that can take, if ever. Time will tell, I guess.
 
The reason that I am so opposed to the BTA is not because they are inherently evil, but inherently stupid. They are acting as self appointed authorities on the issue, and through their ineptitude, are undoubtedly holding back progress as opposed to advancing it.

From their website:

https://www.tinnitus.org.uk/is-tinnitus-a-psychological-condition

"However, the inner ear that is damaged in tinnitus rather than sensory nerves, and it is a sound that is perceived rather than a pain (though tinnitus can include pain in some cases)."

It should say:
"However, [it is] the inner ear that is damaged in tinnitus rather than sensory nerves, and it is a sound that is perceived rather than a pain (though tinnitus can include pain in some cases)."

Also, that is not even factually true. Hair cells are in fact considered to be sensory neurons, and neurons are nerves.

I don't think these people even have a basic understanding of human anatomy. They are even unwilling to post a legible version of their "roadmap to a cure" on their website, even when pressed. WHY? The original roadmap included friggen thai chi as a possible cure.

I sincerely believe that these people are in fact stupid.
 

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