MemberOnce again, there is very very little chance that any of the drug injected into your middle ear made it to your brain in any significant quantities whatsoever. Ask @Dr. Nagler.
My Posting Place
- Thread starter threefirefour
- Start date
ajc
Member
- Feb 6, 2018
- 1,170
- Tinnitus Since
- 11/2002; spike 2009; worse 2017-18
- Cause of Tinnitus
- Loud music - noise damage
I can guarantee you hearing regeneration won't bring silence to the majority of T sufferers.
- Jan 25, 2013
- 3,576
- Tinnitus Since
- 2008
- Cause of Tinnitus
- TMJ disorder, airplane barotrauma, noise exposure.
This guy describes exactly what I experienced.
this i still have this jaw pain from noise problem. but my new health issue is so much worse that's irrelevant. FML
Elmer B Fuddled
Member
- Feb 11, 2019
- 1,325
- Tinnitus Since
- 2017
- Cause of Tinnitus
- plugged nasal eustachian tube
That makes perfectly good sense. May I give an example. I've never had anything to do with doctors, ENTs or any type of medication, other than antibiotics for ear infection. Now having hearing aids.
When you say that the nerves in the ear and the brain are signaling which one surely does, I have gone 6 days of silence with no ringing and that's the whole truth. But with the hearing aids sending new sounds to ear then the brain to decipher that sound, that in turn sets the tinnitus into the background, same as a white noise distracting. Now 6 days of silence when most days the ringing was 6/10 what do you explain the quiet?
Two days back I woke up to a mild ringing which lasted for 2 more days. Using a masking white noise through the hearing aids this morning it's the ringing is not there.
The depressing thing of it 6 days of quiet then BANG there's the ringing. Any one have an explanation for this scenario?
When I first received the aids I went longer with silence, but I was not in the same environment, we were on holiday in Slovakia. Maybe the brain was accepting a new situation being out of a so called normal environment.
Nobody can give an explanation to this.
- Jan 25, 2013
- 3,576
- Tinnitus Since
- 2008
- Cause of Tinnitus
- TMJ disorder, airplane barotrauma, noise exposure.
You're really good at that! That sort of looks like Hazel too. ThreeFireFour seems to be world renowned.
Tinnitus Talk should raid Area 51 to get the cure for tinnitus... I know the aliens in there got it. 
Lol
Lol
Well that definitely says a lot about the current preeminent content of this site.
ajc
Member
- Feb 6, 2018
- 1,170
- Tinnitus Since
- 11/2002; spike 2009; worse 2017-18
- Cause of Tinnitus
- Loud music - noise damage
- May 17, 2017
- 909
- Tinnitus Since
- 07/2016
- Cause of Tinnitus
- Ototoxic earwax drops, worsened by MDs (Muppet Doctors)
Apparently if you are pro real treatment/cure (ie not a CBT apologist), then you're in the same boat as flat earthers. Seriously wonky logic going on. CBT is the anti vaxx of tinnitus treatments then.
This is the most damning claim I have against Sparkheakthmedia she was unexpected charged after purchasing Martin Reilly's memory repair protocol.
I'm 100% pro cure. I have put in a lot of hard time and energy trying to help the cause by giving a lot of money directly towards curative research, by spending money on adverts to promote awareness, and by helping to draft a research call document. I'm not sure how that makes me a CBT apologist but I'll respect what you think of me. I wish I had the time to continue this on a more serious level but I just don't anymore.
I made the CBT thread because I was just curious as to why it's hated so much on here. It wasn't intended to be inflammatory, as you put it. I just wanted to understand people's reasonings as to why it's so disliked, and a lot of it seemed to come down to how research money is being spent, which I said in the thread itself, is another matter entirely.
I honestly didn't expect everyone's reaction to blow up the way it did.
- May 17, 2017
- 909
- Tinnitus Since
- 07/2016
- Cause of Tinnitus
- Ototoxic earwax drops, worsened by MDs (Muppet Doctors)
OK maybe not an apologist then. But seriously, come on, you likened people who are anti CBT as a treatment for tinnitus as akin to flat earthers. That is going to get a response.
But it's pretty clear. Money is being taken away from curative research by CBT research. It's being touted as an effective treatment by some. If it gets more funding and becomes entrenched as the go-to treatment, then we're all kind of screwed. CBT is a therapy for coping, it is not a curative treatment.
It is proven to be effective at helping some people deal with the distress. That's the only point I was making as there is quite literally nothing else right now that can help barring maybe Lenire (if it proves to be efficacious). Until a proven treatment actually arrives that can objectively reduce the volume, dealing with the stress it causes is all we have.
The flat Earthers thing was kind of a tongue-in-cheek way of demonstrating how scientific evidence can be wilfully ignored when it doesn't fit someone's belief.
I'm not particularly a huge fan of CBT, per se, but I can see how it may help certain people cope with problems like chronic pain and tinnitus. I simply don't understand the logic of constantly slating something that may actually help certain people, especially on a support forum. I get the frustration, but surely that energy would be better spent by channelling it towards effecting the changes you all wish to see?
I think the frustration against CBT on Tinnitus Talk is often something to do with… You're young, you get a shitty disorder, and then you see that the research is just constantly about how to deal with the disease and the concern is that this is to the detriment of original biological research getting to the root cause of the disease.
This is not unique to tinnitus but can be seen in many conditions. I remember feeling very very passionately about this when I first got ill with another condition age 20. The narrative around the condition seem to be – the whole problem was a person's reaction to it, when in fact there was so little biological research into the root cause. That type of research almost didn't exist. I didn't shut up about my frustration with that for years.
As an older person I can see the value of psychological more easily-so many medical conditions are very intractable and all we are left with is how we deal with them and this is actually very very important. We only get one life. Most of these conditions will not go away. How we deal with them is important.
But the remaining concern with CBT type research for so many chronic health conditions is it diverts the focus from original biological research. This is a truly valid concern. The researchers are clearly going for the easy, low hanging fruit and producing papers on the psychological effects. The research system is set up such that researchers are awarded for the number of papers they do. Doing original research on potential biological mechanisms behind many disorders is much, much, much harder.
So from that point of view I do understand the anger and frustration of the younger and not so young people here against CBT and psychological focus in tinnitus.
I think people here are right to pressure the BTA et cetera to stop their excessive focus on psychological and CBT type approaches. That political pressure, that patient frustration and passion, is needed with many disorders – the ME/CFS people have campaigned successfully to get increased biological research into their disorder.
This is not unique to tinnitus but can be seen in many conditions. I remember feeling very very passionately about this when I first got ill with another condition age 20. The narrative around the condition seem to be – the whole problem was a person's reaction to it, when in fact there was so little biological research into the root cause. That type of research almost didn't exist. I didn't shut up about my frustration with that for years.
As an older person I can see the value of psychological more easily-so many medical conditions are very intractable and all we are left with is how we deal with them and this is actually very very important. We only get one life. Most of these conditions will not go away. How we deal with them is important.
But the remaining concern with CBT type research for so many chronic health conditions is it diverts the focus from original biological research. This is a truly valid concern. The researchers are clearly going for the easy, low hanging fruit and producing papers on the psychological effects. The research system is set up such that researchers are awarded for the number of papers they do. Doing original research on potential biological mechanisms behind many disorders is much, much, much harder.
So from that point of view I do understand the anger and frustration of the younger and not so young people here against CBT and psychological focus in tinnitus.
I think people here are right to pressure the BTA et cetera to stop their excessive focus on psychological and CBT type approaches. That political pressure, that patient frustration and passion, is needed with many disorders – the ME/CFS people have campaigned successfully to get increased biological research into their disorder.
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