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So how does everyone measure the loudness of their tinnitus....because Heavy thinks mild sufferers can hear it over the shower....or a jet engine...which is silly
Well, I wouldn't stand next to a jet engine. That would be stupid. But the thing is, I consider myself fluctuating between having mild and moderate tinnitus. When my tinnitus is at the lowest I can still hear it over the shower because it rises the volume over everything I hear.
 
Hey look, another CBT study. This one is for internet based CBT.
 

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@ajc, I realize now you probably meant free for the participants of the study. Okay but a) it cost NIH money (a lot if it) and b) I can guarantee any service that comes out of this will not be free.
 
@ajc, I realize now you probably meant free for the participants of the study. Okay but a) it cost NIH money (a lot if it) and b) I can guarantee any service that comes out of this will not be free.
300k is nothing for NIH. If it helps even 100 people who couldn't have afforded in-person CBT counseling out of tinnitus distress that would have otherwise disabled them from keeping a job, it easily pays for itself.

You gotta realize majority of people can benefit from stupid shit like this, only intelligent people who can't stand their tinnitus unless it gets literally reduced aren't helped by this. You are one of those people, intelligent and I doubt you will ever habituate or accept the tinnitus.
 
300k is nothing for NIH. If it helps even 100 people who couldn't have afforded in-person CBT counseling out of tinnitus distress that would have otherwise disabled them from keeping a job, it easily pays for itself.

You gotta realize majority of people can benefit from stupid shit like this, only intelligent people who can't stand their tinnitus unless it gets literally reduced aren't helped by this. You are one of those people, intelligent and I doubt you will ever habituate or accept the tinnitus.
300k is nothing for the NHS, but it's serious money for actual tinnitus researchers. Just saying.
 
300k is nothing for NIH. If it helps even 100 people who couldn't have afforded in-person CBT counseling out of tinnitus distress that would have otherwise disabled them from keeping a job, it easily pays for itself.

You gotta realize majority of people can benefit from stupid shit like this, only intelligent people who can't stand their tinnitus unless it gets literally reduced aren't helped by this. You are one of those people, intelligent and I doubt you will ever habituate or accept the tinnitus.
I want everyone to be helped from this hell. If CBT helps some people then I would never stop them. I suspect, with rare exception, these are people with less severe symptoms but greater OCD and anxiety at baseline. I have seen CBT help a friend with (non medically related) PTSD.

A counter example though: I was denied intratympanic steroids but was offered referral for counseling and anxiety meds. I truly believe my outcome might have been different otherwise.

Hell, knowing what I know now, I would have written a script myself for high dose oral steroids for a pet--even if it cost me my license.

I was literally told by the ENT I saw on emergency that my extreme anxiety was making all my hearing symptoms and tinnitus worse. This was before my extended audiogram so they didn't even believe I had any actual hearing difficulties. My doctor had never heard that macrolides can be ototoxic so assumed my distress was causing a big cause of the problem, not the other way around. It took an extended audiogram to change that.

Anyway, I did end up going to a psychiatrist and then eventually, much later, following up with CBT. It didn't help me. I think intelligence has nothing to do with this btw, I have a very intelligent friend (also a vet) who told me that mudras would cure me because they can fix her health problems too. Some people have minds that are maybe more adaptable in this way, or they have vast emotional support to help them through hell or their symptoms just aren't as bad. Or, in my case, I was never that visually focused and hearing/music was everything to me. Etc. Etc.

Whatever it is about me, no I can't accept this. But I believe that aspect will help me look into clinical trials and keep researching and find actual relief one day.
 
I want everyone to be helped from this hell. If CBT helps some people then I would never stop them. I suspect, with rare exception, these are people with less severe symptoms but greater OCD and anxiety at baseline. I have seen CBT help a friend with (non medically related) PTSD.

A counter example though: I was denied intratympanic steroids but was offered referral for counseling and anxiety meds. I truly believe my outcome might have been different otherwise.

Hell, knowing what I know now, I would have written a script myself for high dose oral steroids for a pet--even if it cost me my license.

I was literally told by the ENT I saw on emergency that my extreme anxiety was making all my hearing symptoms and tinnitus worse. This was before my extended audiogram so they didn't even believe I had any actual hearing difficulties. My doctor had never heard that macrolides can be ototoxic so assumed my distress was causing a big cause of the problem, not the other way around. It took an extended audiogram to change that.

Anyway, I did end up going to a psychiatrist and then eventually, much later, following up with CBT. It didn't help me. I think intelligence has nothing to do with this btw, I have a very intelligent friend (also a vet) who told me that mudras would cure me because they can fix her health problems too. Some people have minds that are maybe more adaptable in this way, or they have vast emotional support to help them through hell or their symptoms just aren't as bad. Or, in my case, I was never that visually focused and hearing/music was everything to me. Etc. Etc.

Whatever it is about me, no I can't accept this. But I believe that aspect will help me look into clinical trials and keep researching and find actual relief one day.
At this point it is painfully clear that we aren't trying to ban CBT. What we are against is the science behind it and its description as a treatment for tinnitus. From now on when we get attacked by people that have to constantly remind us that it helps people we need to not ever let them put us on the defensive. We have facts and reality on our side.
 

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