My Posting Place

[Elmer B Fuddled]

Now that we may have possibly brought the harassing argument to an end I believe that Mr. JohnAdam's, if he was the man he claims to be, should apologise to @Markku and @Hazel and the rest of the folks who have given their time to help others that come here for community help and support.

For me I have a very special way to deal with my tinnitus but I come here for comfort and concern for others.

 

[Lane]

I hope this thread can continue to turn away from, for example, a Hate John Adams forum, not least because John is a fellow-sufferer along with the rest of us, as unsupportable as I think his reaction to Hazel and Markku has been.

@Chriscom -- I don't think this thread (or forum) has turned into a hate JA forum. I for one am happy to see this coming to a head. This past week, I felt things had gotten so bad, I contemplated getting in touch with @Markku and @Hazel to see whether something could be done about the forum's #1 bad apple (I think it's a fitting description, but not hateful). I think given the extent of abuse JA has participated in, the honest appraisals of most of the people on this thread have actually been fairly restrained--even generous.

I think it's clear that most people who've voiced criticism would like to have him continue to participate. But to just do so in ways that aren't so personal, and much more in fitting with the purpose and tenor of this forum. People coming here need many things, including support, empathy, kindness, compassion, etc. And I think just as important, calm. Perhaps the very thing people need the most when learning how to better cope with the conundrum(s) we face. For many on the forum, the challenges they face often precipitate a spiritual crisis like they've never known before, something we should probably all keep in mind at all times.

 

[OnceUponaTime]

I have much respect for the work that @Markku and @Hazel have done and continue doing on Tinnitus Talk. Their work here is invaluable to the Tinnitus Community and it is all done voluntarily, with much love and even with their own money. I believe they are more than capable of running this site as they have demonstrated over the years.

Markku has always been so impartial and patient every time something like this happends around here and he always handles these "issues" very politely and respectfully. Hazel is nothing but an amazing, selfless woman who has dedicated so much time and energy to this cause, that I applaud her. If I could hug them, I would.

I just want to say, please be kind and considerate to one another. Do express your feelings, thoughts and opinions but with respect. Watch what you say as words can make or break a person in an instant. We are all hurting with this condition. If I don't have something constructive, uplifting, or funny for that matter, to say, I simply move on.
It is ok to agree to disagree.

Tinnitus Talk has been a safe heaven for many, a life-line, a wealth of information. Let's keep it that way. I do believe that certain comments need to be moderated as it is not fair for the entire community to suffer under such excessive lack of politeness and manners.

Again, I thank the entire staff for all their hard work and your commitment to this community.

You are doing an amazing job.

Once

 

[Contrast]

http://grantome.com/grant/NIH/R01-NR017096-01A1

 

[threefirefour]

View attachment 34475

Fair enough.

Part of it is there's a ton of people invading from the main forum because of the sticky and I kinda don't want to encourage them to stay, you know?

 

[Chriscom]

...I have a long history of addressing "unconventional" health issues (CFS & more), and I can say with certainty, that where conventional medicine usually had absolutely NOTHING to offer me, various so called "alternative" approaches--those vociferously criticized by Contrast--were literally life saving for me...

This shows how it's so hard to draw lines--I think a calm respectful approach is most of the solution though.

I've solved other medical problems by going off the beaten path, and been darn near tortured by credentialed physicians taking me down other non-beaten paths.

Years ago I was developing a chronic sore-throat issue that the two doctors in my practice enthusastically wanted to treat with homeopathy. Without getting into that argument, it didn't work and I was sinking fast. These were two MD's who had treated me successfully for other things for years. They kind of gave up and sent me to an ENT who took one look at that treatment, scoffed, put me on a strong dose of tetracycline and I was back on my feet in days, after which I left that practice.

More recently I developed a sudden, severe rotator cuff issue that made it unsafe to bike, and I couldn't raise that arm more than 45 degrees laterally. I was eventually recommended for physical therapy that would have consumed one hour a day, three days a week, for months. I know this painful type of therapy has worked for some folks but I just couldn't fit it into my schedule. I ended up ordering a super-duper heat pad (blood-flow therapy mind you) and I was tons better soon and basically cured in three months.

I have other such stories. I like that this place errs on the side of discussing more options, not fewer, and given the state of the science and the fact that different things work on different people, I too hope we can have all these discussions calmly and in support.

 

[IAmCalifornia]

So here's an interesting video. This gentleman had stress induced tinnitus. He sounded very genuine, and for the first 15 minutes of the video, describes how he beat his tinnitus through a combination of chiropractic work and massage therapy, finding out it was his tense neck muscles.

Afterwards, he recommends putting urine in your ear? Because apparently urine has stem cells in it and rejuvenates the ear hairs?

 

[Artemis2K]

Afterwards, he recommends putting urine in your ear? Because apparently urine has stem cells in it and rejuvenates the ear hairs?

...I'm sorry what?

 

[IAmCalifornia]

...I'm sorry what?

My exact words when I watched the video.

He talks about normal stuff he did to beat the tinnitus for like fifteen minutes.

And then says try urine in the ear.

 

[FGG]

So here's an interesting video. This gentleman had stress induced tinnitus. He sounded very genuine, and for the first 15 minutes of the video, describes how he beat his tinnitus through a combination of chiropractic work and massage therapy, finding out it was his tense neck muscles.

Afterwards, he recommends putting urine in your ear? Because apparently urine has stem cells in it and rejuvenates the ear hairs?

Please no one put urine in your ears.

For one thing, urea is a toxic metabolite the body is trying to get rid of and another is as long as you have an intact ear drum, it won't reach the inner ear, where the cochlea is, anyway.

It's a gimmicky and terrible idea.

 

[ChrisBoyMonkey]

So here's an interesting video. This gentleman had stress induced tinnitus. He sounded very genuine, and for the first 15 minutes of the video, describes how he beat his tinnitus through a combination of chiropractic work and massage therapy, finding out it was his tense neck muscles.

Afterwards, he recommends putting urine in your ear? Because apparently urine has stem cells in it and rejuvenates the ear hairs?

Not sure if to rate informative or informative.

 

[GlennS]

Please no one put urine in your ears.
For one thing, urea is a toxic metabolite the body is trying to get rid of and another is as long as you have an intact ear drum, it won't reach the inner ear, where the cochlea is, anyway.
It's a gimmicky and terrible idea.

It does illustrate how when people lose faith in the medical establishment they will latch onto things like this.

I mean, it's one thing if it's just a harmless supplement or dietary change, but some of this sort of thing can be dangerous.

I think Tinnitus Mix is dangerous, for instance. At least one person reported it made their tinnitus spike (permanently, I don't know). And people saying they want to build their own DIY neuromodulation device and just start zapping their brains indiscriminately?

 

[IAmCalifornia]

It does illustrate how when people lose faith in the medical establishment they will latch onto things like this.

I mean, it's one thing if it's just a harmless supplement or dietary change, but some of this sort of thing can be dangerous.

I think Tinnitus Mix is dangerous, for instance. At least one person reported it made their tinnitus spike (permanently, I don't know). And people saying they want to build their own DIY neuromodulation device and just start zapping their brains indiscriminately?

This is a guy on YouTube who is doing the DIY device:

 

[MrCrybaby]

It does illustrate how when people lose faith in the medical establishment they will latch onto things like this.

I mean, it's one thing if it's just a harmless supplement or dietary change, but some of this sort of thing can be dangerous.

I think Tinnitus Mix is dangerous, for instance. At least one person reported it made their tinnitus spike (permanently, I don't know). And people saying they want to build their own DIY neuromodulation device and just start zapping their brains indiscriminately?

Before I had my nasty acoustic trauma back in October I was super into examining this sort of pseudoscience. Wild to see it applied to tinnitus.

The world of alternative medicine is really messed up, and it preys in people who have diseases with no standard cure. Generally "holistic practitioners" will give you an in depth and seemingly personalized assessment which is refreshing compared to doctors who "don't care" and have short appointment slots.

Then you end up in the Wild West of taking unregulated supplements (of which 80% do not contain what the label lists) that are not proven to treat your problem and may actually do harm if you take too much. (I used to eat a lot of turmeric and it made me turn orange lol)

I think the paranoid world of avoiding antibiotic ear drops, not taking pain killers for acute ear pain, and claiming ENTs are heartless monsters only hurt us.

The reality is that it is not curcumin, CBD oil, Ginkgo, Tinnitus Mix etc that are the most promising cures, it's the awesome research being done by dedicated scientists (i.e. the "medical establishment") that brings me the optimism that tinnitus sufferers everywhere may find silence again some day.

 

[Fifth Business]

I visited Dr. Jimbo Shim's experimental clinic at great personal cost and risk. And you know what? I think yours truly is the man to spearhead this forum. I've the mental acumen and creative will that the current leadership simply lack.

 

[Fifth Business]

Can't shim-sam the shim man.

The good doctor himself folks.

 

[Fifth Business]

How about Dr. Mambo Shim.

 

[Artemis2K]

How about Dr. Mambo Shim.

View attachment 34495

Are you going to start randomly saying the n-word in the next few minutes? Your insults are more racist than they are criticizing the individual.

 

[ajc]

This is a guy on YouTube who is doing the DIY device:

I WOULD NOT ZAP MYSELF WITH A DIY DEVICE.

 

[Fifth Business]

Are you going to start randomly saying the n-word in the next few minutes? Your insults are more racist than they are criticizing the individual.

No I'm saying what if instead of Minbo Shim it was Mambo Shim (like the Lou Bega song, Mambo no 5).

 

[GlennS]

No I'm saying what if instead of Minbo Shim it was Mambo Shim (like the Lou Bega song, Mambo no 5).

And this, folks, is where the feuds begin. Someone drops something in a thread intended to lighten the mood and someone else gets triggered.

 

[Mymlan]

Before I had my nasty acoustic trauma back in October I was super into examining this sort of pseudoscience. Wild to see it applied to tinnitus.

The world of alternative medicine is really messed up, and it preys in people who have diseases with no standard cure. Generally "holistic practitioners" will give you an in depth and seemingly personalized assessment which is refreshing compared to doctors who "don't care" and have short appointment slots.

Then you end up in the Wild West of taking unregulated supplements (of which 80% do not contain what the label lists) that are not proven to treat your problem and may actually do harm if you take too much. (I used to eat a lot of turmeric and it made me turn orange lol)

I think the paranoid world of avoiding antibiotic ear drops, not taking pain killers for acute ear pain, and claiming ENTs are heartless monsters only hurt us.

The reality is that it is not curcumin, CBD oil, Ginkgo, Tinnitus Mix etc that are the most promising cures, it's the awesome research being done by dedicated scientists (i.e. the "medical establishment") that brings me the optimism that tinnitus sufferers everywhere may find silence again some day.

But until then people may try other things right? And when ENTs go like, "uhm that's weird, I'm clueless", then I lose faith in that they will help me. Because no doctor or ENT ever helped me so far.

 

[Artemis2K]

No I'm saying what if instead of Minbo Shim it was Mambo Shim (like the Lou Bega song, Mambo no 5).

Oookay. ¯\_(ツ)_/¯

Sorry if I jumped to conclusions.

 

[Fifth Business]

Oookay. ¯\_(ツ)_/¯

Sorry if I jumped to conclusions.

 

[Lane]

The world of alternative medicine is really messed up

@MrCrybaby -- In some ways yes, in some ways no. It all depends on the practitioner and what their ethics and priorities are. Same goes for conventional medicine, which I think is even more messed up than alternative medicine. All you have to do is look at how many people die each year from taking prescription drugs as directed (I think it's about 100,000+ in the U.S.).

And how they push unnecessary tests, invent all kinds of super expensive procedures when much simpler solutions are far more appropriate. Prescribing drugs to patients they would never give to their family members, and much more. Everything is centered around making money, not delivering the best service for the best price. And you could write a book on some of their extreme arrogance and shameful bedside manner(s).

 

[jimH]

. I used to eat a lot of turmeric and it made me turn orange lol).

Maybe that's what happened to Trump....

 

[Artemis2K]

Maybe that's what happened to Trump....

View attachment 34498

That's actually possible. Wealthy people are obsessed with prolonging their life and having younger skin.

 

[FGG]

That's actually possible. Wealthy people are obsessed with prolonging their life and having younger skin.

Nah, look at his eyes. He's a tanning bed causality.

 

[JulianBrumbelow]

 

[Gman]

Before I had my nasty acoustic trauma back in October I was super into examining this sort of pseudoscience. Wild to see it applied to tinnitus.

The world of alternative medicine is really messed up, and it preys in people who have diseases with no standard cure. Generally "holistic practitioners" will give you an in depth and seemingly personalized assessment which is refreshing compared to doctors who "don't care" and have short appointment slots.

Then you end up in the Wild West of taking unregulated supplements (of which 80% do not contain what the label lists) that are not proven to treat your problem and may actually do harm if you take too much. (I used to eat a lot of turmeric and it made me turn orange lol)

I think the paranoid world of avoiding antibiotic ear drops, not taking pain killers for acute ear pain, and claiming ENTs are heartless monsters only hurt us.

Yeah ok. A very good chiropractor was the only one to help me. Not by improving tinnitus but by putting some stuff back in place and also he found the chiari malformation on my mri that all the other doctors missed. He took the time to look at my situation, which was grim. He researched things in his own time and provided a number of answers in terms of pain and how to treat it effectively and without medication. That's after physios and others misdiagnosed it for years.

Also I don't think anyone has said ENTs are monsters per se. They often are inept, incompetent, dismissive and cause a lot of damage to some - like me. I personally don't think they're out to hurt people on purpose but a lot do and don't acknowledge it, let alone care.

Everyone should be well informed before committing to any procedure or taking medications, because doctors generally do not consider the risks and don't understand how they can affect people with tinnitus and other issues. It's up to us to drill them for info about ototoxicity and other adverse effects and if they don't provide it, to research for ourselves.

I wasn't informed before medical professionals inflicted injuries on me. Then I woke up. It's been a long struggle to recover. You can blindly trust them, but sorry I won't be. It's not about being paranoid at all - it's about survival.