My Posting Place

#5,941
Guys,
MPP is a bunch of different things wrapped together. There's memes, general sh*tposting, sounding off (I do a lot of that), experimentation, and peer support.
But most importantly, MPP works on raising awareness across this site and across the web. Awareness of hidden hearing loss, of potential regenerative cures and of the waste and futility of focusing research and funding on TRT and the like. This is in the hopes of expediting a real cure for our problems.

Sometimes I think that the sh*tposting and sounding off could be somewhat distracting for MPP visitors and it may compromise the awareness mission.
If there would be a thread dedicated exclusively to awareness it might help.
Perhaps there should be an MPP sister thread dedicated solely to more serious discussions on raising awareness of cochlear synaptopathy, 8-20 khz hearing loss, regenerative medicine, futility of TRT funding and the like. Or MPP could be that thread and have a sister thread for memes. Whatever.
To be clear I have no problem at all with sh*tposting and the like. I do it myself all the time. I think it might help our mission to have a separate thread.

What do you guys think? Good idea? Bad idea?
 
#5,942
Manny said:
Guys,
MPP is a bunch of different things wrapped together. There's memes, general sh*tposting, sounding off (I do a lot of that), experimentation, and peer support.
But most importantly, MPP works on raising awareness across this site and across the web. Awareness of hidden hearing loss, of potential regenerative cures and of the waste and futility of focusing research and funding on TRT and the like. This is in the hopes of expediting a real cure for our problems.

Sometimes I think that the sh*tposting and sounding off could be somewhat distracting for MPP visitors and it may compromise the awareness mission.
If there would be a thread dedicated exclusively to awareness it might help.
Perhaps there should be an MPP sister thread dedicated solely to more serious discussions on raising awareness of cochlear synaptopathy, 8-20 khz hearing loss, regenerative medicine, futility of TRT funding and the like. Or MPP could be that thread and have a sister thread for memes. Whatever.
To be clear I have no problem at all with sh*tposting and the like. I do it myself all the time. I think it might help our mission to have a separate thread.

What do you guys think? Good idea? Bad idea?
Click to expand...
It's an interesting idea, but I wonder if it would work.

MPP is a huge anomaly. If you think about it, at one point, some guy decided that a tinnitus forum was a good place to start a meme page, and it actually worked. Not only did it work but it's probably the most successful thread here because it's the only thread where users link regular use of this thread as part of their identity (MPPers).

The formula is great, and I think memes are part of it. People usually come for the memes and stay for the activism or vice versa, but the two are very joined. It's hard to see us succeed if we don't have half of the formula. Memework makes the dream work.
 
#5,943
threefirefour said:
It's an interesting idea, but I wonder if it would work.

MPP is a huge anomaly. If you think about it, at one point, some guy decided that a tinnitus forum was a good place to start a meme page, and it actually worked. Not only did it work but it's probably the most successful thread here because it's the only thread where users link regular use of this thread as part of their identity (MPPers).

The formula is great, and I think memes are part of it. People usually come for the memes and stay for the activism or vice versa, but the two are very joined. It's hard to see us succeed if we don't have half of the formula. Memework makes the dream work.
Click to expand...
Memes are the greatest invention made by human
 
#5,944
Spiral said:
Print screened on a 1440p monitor, looked pretty big until you switch it over to literally any other screen.
Click to expand...
open the program in paint, gimp or photos app and crop out the post it takes me seconds.
 
#5,945
Manny said:
Guys,
MPP is a bunch of different things wrapped together. There's memes, general sh*tposting, sounding off (I do a lot of that), experimentation, and peer support.
But most importantly, MPP works on raising awareness across this site and across the web. Awareness of hidden hearing loss, of potential regenerative cures and of the waste and futility of focusing research and funding on TRT and the like. This is in the hopes of expediting a real cure for our problems.

Sometimes I think that the sh*tposting and sounding off could be somewhat distracting for MPP visitors and it may compromise the awareness mission.
If there would be a thread dedicated exclusively to awareness it might help.
Perhaps there should be an MPP sister thread dedicated solely to more serious discussions on raising awareness of cochlear synaptopathy, 8-20 khz hearing loss, regenerative medicine, futility of TRT funding and the like. Or MPP could be that thread and have a sister thread for memes. Whatever.
To be clear I have no problem at all with sh*tposting and the like. I do it myself all the time. I think it might help our mission to have a separate thread.

What do you guys think? Good idea? Bad idea?
Click to expand...

I understand what your saying, but I feel like a lot of new comers don't start here. They will at one point check it out, but it's not their first stop.

I think a good solution to this is to have @threefirefour ask one of the moderators if there can be a sticky post put at the beginning of this thread giving a mission statement of what this thread is. It will be a lot less confusing and people get a sense of what goes on here as well.

Just my two cents.
 
#5,946
@Bam got the cat ears! They are great! keep my ears nice and warm and block out the wind noise!
 
#5,948
#5,951
So when is the MPP meet up happening?!
 
#5,952
My usage of this site and research threads is too often my mind just procrastinating and trying to avoid the hopelessness of my situation.
 
#5,954
Manny said:
My usage of this site and research threads is too often my mind just procrastinating and trying to avoid the hopelessness of my situation.
Click to expand...

Same. I divert myself from the knowledge that I have the worst disease on the planet and I'm totally fucked, by researching the worst disease on the planet and compounding the fact I'm totally fucked.
 
#5,955
Bam said:
Same. I divert myself from the knowledge that I have the worst disease on the planet and I'm totally fucked, by researching the worst disease on the planet and compounding the fact I'm totally fucked.
Click to expand...
For me it's partially so. I mean, I think there's a good chance bimodal devices could help most of us. FX322 seems more of a wildcard to me.
But for me it's complicated. Whatever.
 
#5,956
Manny said:
For me it's partially so. I mean, I think there's a good chance bimodal devices will help most of us. FX322 seems more of a wildcard to me.
But for me it's complicated. Whatever.
Click to expand...

These devices still feel like they're lightyears away. I need something like yesterday and I need it to put some kind of serious dent in this shit.
 
#5,957
Bam said:
These devices still feel like they're lightyears away. I need something like yesterday and I need it to put some kind of serious dent in this shit.
Click to expand...
That's technically true. Lightyears are the distance light travels in a year, and they're a couple of years away ^_^

But really especially with Susan Shore, it should not be taking this long. At least neuromod is releasing in a year but I'm skeptical on how well it would work (But still optimistic) and it should not have taken up to 2019.
 
#5,958
threefirefour said:
That's technically true. Lightyears are the distance light travels in a year, and they're a couple of years away ^_^

But really especially with Susan Shore, it should not be taking this long. At least neuromod is releasing in a year but I'm skeptical on how well it would work (But still optimistic) and it should not have taken up to 2019.
Click to expand...

I am nervous that Neuromod will just have the ability to release the device in European markets by then. They haven't mentioned whether they will actually have the manufacturing to do it just yet. They will also need to educate ENTs and Audiologists on how to use the device as well. I think 2019 might be too optimistic for when Europeans might get the device, let alone us americans who still need FDA approval. This is just speculation because I don't know anymore than you guys do.

I'm hoping when the device goes for FDA approval that the ATA will push really hard to get it through ASAP since it will be THE ONLY (fuck TRT) tinnitus treatment available on the market.
 
#5,959
Jack Straw said:
I am nervous that Neuromod will just have the ability to release the device in European markets by then. They haven't mentioned whether they will actually have the manufacturing to do it just yet. They will also need to educate ENTs and Audiologists on how to use the device as well. I think 2019 might be too optimistic for when Europeans might get the device, let alone us americans who still need FDA approval. This is just speculation because I don't know anymore than you guys do.

I'm hoping when the device goes for FDA approval that the ATA will push really hard to get it through ASAP since it will be THE ONLY (fuck TRT) tinnitus treatment available on the market.
Click to expand...
idk if the ATA can do that, but they need to offer this device their FULL backing. Help get the word out to other sufferers, and really throw their weight behind Neuromod.

And you're right it will take another year to release on american markets because the FDA is redtape central. I would go to Ireland and get it there. A vacation and treatment all in one.
 
#5,960
threefirefour said:
That's technically true. Lightyears are the distance light travels in a year, and they're a couple of years away ^_^
Click to expand...
I think people are using the distance as a reference to an extraordinarily large quantities, which is then applied to time. Similar to the metaphoric "leaps and bounds".
PEDANTIC YE SRY
 
#5,962
threefirefour said:
idk if the ATA can do that, but they need to offer this device their FULL backing. Help get the word out to other sufferers, and really throw their weight behind Neuromod.

And you're right it will take another year to release on american markets because the FDA is redtape central. I would go to Ireland and get it there. A vacation and treatment all in one.
Click to expand...

I have said this before jokingly, but I am seriously going to Ireland and getting the device once the research is published and I can hear testimonials from people who have used it. I wonder if I can get it set up there with an audiologist and bring it back or if it is something that has to constantly be maintained. Maybe they can do the changes online through the internet I hope. I assume they can because they just have the calibrate the device.

Regardless, I would be happy to travel with anyone else from TT if they wanted to come with. At this point I don't give a shit how much it costs.
 
#5,963
Manny said:
Bro hop on a plane if you can?
Click to expand...
Still the same planet, imagine in the year 5000 when they might have medical breakthroughs in a different galaxy, what a pain.
I'm joking they'll probably have solved everything by then. Or humans will be extinct.
 
#5,964
Jack Straw said:
I understand what your saying, but I feel like a lot of new comers don't start here. They will at one point check it out, but it's not their first stop.

I think a good solution to this is to have @threefirefour ask one of the moderators if there can be a sticky post put at the beginning of this thread giving a mission statement of what this thread is. It will be a lot less confusing and people get a sense of what goes on here as well.

Just my two cents.
Click to expand...
@threefirefour what do you say?
 
#5,968
Manny said:
@threefirefour what do you say?
Click to expand...
Well tbh I don't know. It's not really like this anymore but at one point, MPP kind of existed "outside the law". Some of the mods were tolerant of us but others really wanted us gone. Now we just kind of exist as part of the site, and everyone can choose to ignore MPP or go on it.

Everyone on the site knows that we're all about research. We're the biggest research enthusiasts on the site, and thats why ATEOS said that MPP is the place where the best minds on TT gather.

Basically, idk about adding that sticky. We lose an important part of our past if we do, and it just tells everyone on the site what they already know. Thoughts?
 
#5,969
I think the only people who support regenerative bio-therapies for the inner ear are like people with mental problems.
 
#5,970
threefirefour said:
Well tbh I don't know. It's not really like this anymore but at one point, MPP kind of existed "outside the law". Some of the mods were tolerant of us but others really wanted us gone. Now we just kind of exist as part of the site, and everyone can choose to ignore MPP or go on it.

Everyone on the site knows that we're all about research. We're the biggest research enthusiasts on the site, and thats why ATEOS said that MPP is the place where the best minds on TT gather.

Basically, idk about adding that sticky. We lose an important part of our past if we do, and it just tells everyone on the site what they already know. Thoughts?
Click to expand...

I see both sides to it. Ill agree with whatever you want to do. MPP is your child after all!
 

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