My Posting Place

[Daniel Lion]

same with NT-3

Enlighten me please. NT-3, what is it? And can it be used after the acute stage?

 

[JohnAdams]

Stupid ENTs

Yeah, I don't think IGF-1 is FDA approved for human use and I cannot yet determine what's going on with dexamethasone.

So stupid system.

 

[JohnAdams]

We all need to make Twitter accounts and follow Contrast and Through Tinnitus and the Hough Ear Institute.

 

[threefirefour]

We all need to make Twitter accounts and follow Contrast and Through Tinnitus and the Hough Ear Institute.

*Hugh Ear Institute

 

[JohnAdams]

*Hugh Ear Institute

 

[threefirefour]

View attachment 27092

I'm sorry what was that?

 

[Jack Straw]

What visual snow treatment were you talking about? It's for free?

 

[Drone Draper]

Saw on the way to work today.

 

[threefirefour]

Saw on the way to work today.

View attachment 27110

Tinnitus community: We need to fund the ATA and BTA. This will help drive research
Also the tinnitus community: wtf why are there all these CBT studies where's our money going?

ATA and BTA are pretty much objectively compromised. ATA is worse but neither are good.

 

[ajc]

Personal donations are never going to get us anywhere, what needs to happen is for the GOVERNMENT OF THE UNITED STATES take charge of the number 1 vet disability. They send people to war, they should be responsible for the aftermath...

 

[Contrast]

im not actually a libertarian, i just posted these for meme status.

 

[Contrast]

Someone on /r/tinnitus who has a functioning brain

 

[ajc]

@Contrast when do you sleep? You are always posting

 

[Contrast]

@Contrast when do you sleep? You are always posting

the last two days i've literally been a shutin lmao, thank you for noticing

 

[Autumnly]

How in the hell could any device or software help visual snow? What's the working hypothesis? Or is this a secret that VSI isn't sharing? Sounds fishy, no?!?!

I am a little skeptical because this sounds just like a TRT or Levo for tinnitus. I will trust your judgement though. Please let me know when the paper is released I would love to read it.

The visual snow relief video @threefirefour posted works for me, though only for a few minutes. I have mild visual snow and if I watch that video it suppresses the symptoms by about 90%. While I don't know how exactly their device will work, I do believe that it could work because I've experienced short-term suppression.

 

[Deamon22]

I contacted them on Reddit. They said it actually reduced symptoms. Here's the entire chat I had with them if you're interested:

View attachment 27109

Very interesting. I do not really have visual snow as far as i can tell, maybe some very light static in near total darkness, no idea if that counts. However i follow them on Twitter and Reddit and really like their work and how they raise awareness.

 

[Jazzer]

Personal donations are never going to get us anywhere, what needs to happen is for the GOVERNMENT OF THE UNITED STATES take charge of the number 1 vet disability. They send people to war, they should be responsible for the aftermath...

Members of this site are frequently asked to "up their donations," to give to this incentive, or to give to another special fund," etc....

I strongly disapprove.
We are the sufferers, many of whom have lost all employment possibilities.
We should not be squeezed or even approached in this way.
And in any case the pittance that we could afford would go nowhere in this massive undertaking.

I remember an article on TT that sought to question our attitude to giving:
Whom to?
How much?
How frequently?
Don't we want a cure?
What is our attitude to giving?

Did it make me feel guilty?
No way.
It made me bloody furious!

I will not succumb to such a disgusting attempt at moral blackmail, to us poor suffering individuals.
Now - I've said my bit.

 

[Jazzer]

Members of this site are frequently asked to "up their donations," to give to this incentive, or to give to another special fund," etc....

I strongly disapprove.
We are the sufferers, many of whom have lost all employment possibilities.
We should not be squeezed or even approached in this way.
And in any case the pittance that we could afford would go nowhere in this massive undertaking.

I remember an article on TT that sought to question our attitude to giving:
Whom to?
How much?
How frequently?
Don't we want a cure?
What is our attitude to giving?

Did it make me feel guilty?
No way.
It made me bloody furious!

I will not succumb to such a disgusting attempt at moral blackmail, to us poor suffering individuals.
Now - I've said my bit.

Perhaps I should explain a little better.
Worthy causes must ask for support via donations.
Absolutely.
But one's motivation is a purely private matter, and will invariably depend on one's means.
When life long income comes to a premature end, there are still tax bills to pay from previous years of employment of course.

 

[IAmCalifornia]

 

[Agatha]

Members of this site are frequently asked to "up their donations," to give to this incentive, or to give to another special fund," etc....

I strongly disapprove.
We are the sufferers, many of whom have lost all employment possibilities.
We should not be squeezed or even approached in this way.
And in any case the pittance that we could afford would go nowhere in this massive undertaking.

I remember an article on TT that sought to question our attitude to giving:
Whom to?
How much?
How frequently?
Don't we want a cure?
What is our attitude to giving?

Did it make me feel guilty?
No way.
It made me bloody furious!

I will not succumb to such a disgusting attempt at moral blackmail, to us poor suffering individuals.
Now - I've said my bit.

I don't understand your vitriolic attitude. Tinnitus sufferers are no different from cancer patients or parkinson patients and they give much more money to their fundraisers. Are you saying nobody should donate to tinnitus causes? Are you mad? Surveying people's motivations for giving is normal and is done on a day to day basis by the largest cancer and other societies. I liked @GregCA's poll.
https://www.tinnitustalk.com/thread...nating-to-tinnitus-related-fundraisers.31208/
I agree with you giving to tinnitus causes is a private matter but if you don't want to share your inclinations to give or not give, you just don't respond to such polls. I have no trouble responding to such polls, so don't assume everyone is like you OK.

 

[Agatha]

View attachment 27133

That's funny!!

 

[JohnAdams]

Thank you for whistle blowing, if there is anything else you know about him that suggest he is dishonest let us know.

You actually believe this?

 

[Jazzer]

I don't understand your vitriolic attitude.

My attitude is not vitriolic.
It is factual and accurate,
and states that being quizzed about giving is intrusive.
But we all take a view of course.

Also, you did not read or understand my second post, so you slate me wrongly.
However, it is of no consequence to me.

 

[JohnAdams]

My attitude is not vitriolic.
It is factual and accurate,
and states that being quizzed about giving is intrusive.
But we all take a view of course.

Also, you did not read or understand my second post, so you slate me wrongly.
However, it is of no consequence to me.

Hey, some people think strong opinions that go against their worldview are cruel. It's called being thin skinned, which is a negative quality.

 

[Contrast]

You actually believe this?

i don't know, I'm gatheting the facts and data unbiasedly before I spend $9000

 

[gadsie]

i don't know, I'm gatheting the facts and data unbiasedly before I spend $9000

What are we talking about

 

[Contrast]

What are we talking about

John's trip to South Korea for treating his SNHL

 

[gadsie]

John's trip to South Korea for treating his SNHL

With what theory?

 

[Contrast]

Daniel Toh's autism levels are off the charts

 

[ajc]

@JohnAdams I hope your condition improves! When is the next test due?