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Are you kidding me, John? This is your response to what I've asked?

Those quotes don't even have any context and I'm surprised they're so nice considering what I've had to put up with. Most of your comments towards me have been deleted because they were too distasteful, but there's still a huge array of abusive posts from you that one can browse through. I suggest you take a long hard look in the mirror if this is what you see as an appropriate response to me simply trying to raise awareness and attempt something that's tangible. I don't come here to be horrible to people, ever, but I'm not exactly just going to sit and be nice when I'm bombarded with hate-filled messages. There's always a line and some people go so far beyond it I'm surprised they are still allowed to post here so freely.

I know I'm not perfect, but I've never claimed to be. I'm anything but, like most of us. However, all I've ever tried to do on this site is to support others and to raise awareness, but somewhere along the way you took exception and became obsessed with me. It's just non-stop now and I honestly have no idea what your problem is, but I'm guessing it's because I retain my own opinions and don't follow a cult-like mentality.

After the week I've had, I could do without this, to be honest. I guess that's a "fuck you" to me from MPP which I'll take on the chin. I guess I can only try.
 
Are you kidding me, John? This is your response to what I've asked?

Those quotes don't even have any context and I'm surprised they're so nice considering what I've had to put up with. Most of your comments towards me have been deleted because they were too distasteful, but there's still a huge array of abusive posts from you that one can browse through. I suggest you take a long hard look in the mirror if this is what you see as an appropriate response to me simply trying to raise awareness and attempt something that's tangible. I don't come here to be horrible to people, ever, but I'm not exactly just going to sit and be nice when I'm bombarded with hate-filled messages. There's always a line and some people go so far beyond it I'm surprised they are still allowed to post here so freely.

I know I'm not perfect, but I've never claimed to be. I'm anything but, like most of us. However, all I've ever tried to do on this site is to support others and to raise awareness, but somewhere along the way you took exception and became obsessed with me. It's just non-stop now and I honestly have no idea what your problem is, but I'm guessing it's because I retain my own opinions and don't follow a cult-like mentality.

After the week I've had, I could do without this, to be honest. I guess that's a "fuck you" to me from MPP which I'll take on the chin. I guess I can only try.
Cool story bro.
 
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So friends I decided to use drugs again. I thought I had most of my demons beaten. Even habituated. Well the noise got to me again and now I relapsed. I'm very depressed as hell. Family has long ago given up on me. I don't know why I'm complaining about my tinnitus at the hospital for the 50th time
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Who would like to contribute towards a sponsored ad campaign via social media? We could collectively write and agree upon a message that's intended to instigate a discussion on the matter - to attract comments and shares in other words. If we can get a pool of money together - it would only take a small amount from each of us - we could put this plan into action and promote some awareness.

We can ask @Markku or @Hazel about the timing of such a project, if we get enough interest, so as not to conflict with any other campaigns. I would happily put a Facebook page together as a place to run the sponsored content from.

Would this interest any of you?

Or it could even be driven from Tinnitus Hub's main page providing there's enough interest to fund some sponsored and engaging content.
Count me in!
 
I understand what is going on here and why we are treated the way we are and accused of it being our fault if tinnitus bothers us. The same kind of teaching is what is taking over Christianity.

We are sheep and there are Gnostic wolves holding us over a tub of sheep dip. The wolves are here folks.

Don't you know? You're god of your own universe and if you have any problems or sickness then it's your fault. Your thinking is the problem. If tinnitus bothers you, it is your fault because you're attracting the negativity through incorrect thinking.

Call me crazy. I'm right about this.
 
So friends I decided to use drugs again. I thought I had most of my demons beaten. Even habituated. Well the noise got to me again and now I relapsed. I'm very depressed as hell. Family has long ago given up on me. I don't know why I'm complaining about my tinnitus at the hospital for the 50th time View attachment 34448

What drugs did you use? Also I don't understand your post. You relapsed into drug use or thinking about tinnitus?
 
I, knowing the full risks, put my health on the line and spent a shitload of my own money to go and find out if PRP and MSC injections would help tinnitus. I never exaggerated any of my experience nor did I even promote this therapy as an absolute effective treatment. I have consistently stated that I think this should just be studied further. I took the physical pain of many IT injections. ED209, a proven liar, took it upon himself to try and incessantly dominate my thread about my experience and denigrate mine and Minbo Shim's character. I did this selflessly in search for a remedy to this hell on earth that we all are sharing, at GREAT personal risk.

I get very little credit for this, which is fine I don't need any. BUT, I also am fiercely against the establishment and the status quo and when I attack the players involved, I get scolded, even by @Markku and @Hazel.

Have I ever said that people that are suffering from tinnitus have only themselves and their misinterpretations to blame like the frauds Derek Hoare and Rilana Cima? No I have not. So when @Hazel sat down with these two evil frauds why didn't she scold them? Why are they scolding me? This paradox is very telling about the character of @Hazel and @Markku.

I think they are not intellectually equipped to be running a forum like this. I have done a lot more than most members of this community in search of a cure, I have laid down my own flesh and blood. I have done far more than @Ed209, @Markku and @Hazel to try and find a cure and despite my failure to do so they have just continually disrespected me.
They act like @Ed209 is so special for the Danny Boy fund but he worked with the BTA, an organization that is woefully misguided and that is proved out by their "roadmap to a cure" that included tai chi as a potential cure, and Danny Boy was publicly opposed to them in the first place.

@Markku and @Hazel, this reveals a lot about your characters. Don't scold me. Scold Derek Hoare, scold Rilana Cima. Scold Berthold Langguth.

I'm not the one telling tinnitus patients to not avoid additional exposures. I'm not the one blaming patients for their own distress.

Do not delete this.
 
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The two people on the left claim that tinnitus distress is the fault of the sufferer. The person on the right made no effort to dispute these lies. Yet I get scolded.
 
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ooooOOOOOO


That is not true. I said Derek Hoare and Rilana Cima are making these claims and that Hazel failed to call them out about that.

C'mon I never made this claim.

Don't lie please.
 
View attachment 34462
ooooOOOOOO


That is not true. I said Derek Hoare and Rilana Cima are making these claims and that Hazel failed to call them out about that.

C'mon I never made this claim.

Don't lie please.
Can you please forgive me? I'm very sorry about this oversight. It was my genuine understanding that you thought we were riding the wave of CBT proponents and singing that mantra. I'm happy to see you don't think at least that! My day is saved. :)

I have now amended the message.
 
This is a support forum, so as I see it, nobody has any right to bring others down and yet I see this happening a lot on here regardless of what the subject matter is. People should be free to explore all available avenues in order to find some kind of relief/refuge as we are all unique and what works for one will not work for all. There are well over 4000 religions which may help people in their daily lives, which is perfectly fine, but one also has to note that religion is very geographically, historically, and socioeconomically oriented. Most people are born into a religion based on the point in time they arrive(d) into the world and the country/area they live(d) in. We also know that as districts gain wealth, faith often diminishes, meaning that the most religious places are usually the poorest ones, and religion tends to increase when times get hard. Many have stated that this is a direct correlation to people wanting and needing a coping mechanism during tough times, and having a spiritual belief is a good way of achieving this. Whatever god one chooses is up to the individual, but in most instances, the choice is already made for them because nearly everyone follows their native and historically relevant religion.

You say atheists are stupid due to blindness and I disagree. It was once said on the Joe Rogan podcast that everyone who practices a religion is an atheist. They are just an atheist in regards to Zeus, or Apollo, or the many other hundreds of gods.

I don't like to enter religious debates as I know there's no point as we are all entitled to our beliefs, but in this instance, I wanted to reply.

I'm in no way the president of the CBT fan club, but I also don't see the value in saying it won't work for anyone. Remember, all one needs is a book and a lot of discipline to try it out. This is a support forum, after all, so taking things off the table completely that may help someone - even just a little bit - seems counterintuitive. I could say the same about religion. If religion helps people get through hard times then no one should criticise that either. We are all equal.

If we want to see progress regarding tinnitus awareness and curative research then you all need to be more vocal and active away from this forum. Start some local fundraisers or get involved on the political spectrum.

You could all collectively write to MPs/Senators, institutions that give out grants, universities, newspapers, etc. Spending all day on here is such a wasted opportunity for an organised group. I've spent many hours doing everything I've mentioned above to try and raise the profile of tinnitus as that's the only way it will happen. When I asked for help and assistance from people here because of the major press activity that was surrounding The Wildhearts, nobody stepped up, and it's in these instances that I am utterly dumbfounded. It was a huge opportunity to make a statement but it seems people would rather post memes here instead and then moan about the lack of awareness. We have to take every opportunity that comes our way to raise the profile of tinnitus in the real world. MPP could have stormed Facebook and left so many messages that I'm certain a story would have been made about it in the mainstream press. The anonymity it seems is more important, but you can't have it both ways (although nobody would know who was leaving the messages as we don't know who most of you are).

You all need to decide what is more important, curing tinnitus or hiding your identity because prioritising anonymity limits what you can all achieve as a group. If you want to do some proper advocacy work then I suggest you organise yourselves into an effective group with a plan of action and then do some real-world campaigns.
I agree with a lot of points you made early on in this post. But you also need to understand some people are doing their best to try and survive. I know I've had to sacrifice A LOT to do so and my main priority is my family. I have no more bandwidth than that. I wouldn't diminish what you have gone through with your tinnitus, as you've said it is pretty bad, but I think you also said that you have never experienced hyperacusis or any of the other issues. So I don't think you can preach to others without knowing what they go through. PS: not trying to make a "mine's bigger than yours" argument.
 
Can you please forgive me? I'm very sorry about this oversight. It was my genuine understanding that you thought we were riding the wave of CBT proponents and singing that mantra. I'm happy to see you don't think at least that! My day is saved. :)

I have now amended the message.
Of course I forgive you. I love you man. I'm just trying to fight for justice for us. My enemy is tinnitus.
 
@Markku, I don't consider you an enemy. I have my own vision of how this community should handle our plight which is at odds with many of your views. This forum is good overall. It really is. When I point out what I perceive as inconsistencies, I do so in love and truth. Sorry I do it publicly but it is what it is. Truth is truth. People are suffering. People are dying. Not just dying, but being compelled to kill themselves which is horrible. You know I am in this fight with you. I am passionate about it.
 
@Markku and @Hazel

Our goal is destroying tinnitus.

The Hough Ear pill is the low hanging fruit. We just need cash or bureaucratic ease to get this tested and approved.

I am just a lowly SAP programmer. I have no connections or influence.
 
This site is here to support people that have tinnitus. I come here to support people that have tinnitus. Not everyone will always see eye to eye. We do have one goal though. That is, to one day live tinnitus free!
 

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