My Tinnitus Story (Success Story and How It Got Worse After Hearing Loss)

Maruashen

Member
Author
Dec 3, 2017
17
Tinnitus Since
11/2014 (increased 10/2017)
Cause of Tinnitus
Mild hearing loss
Hello everyone,

I felt like I wanted to share my tinnitus story, maybe I could help someone out or maybe someone helps me.
I am 25 years old by now.

My first encounter with tinnitus was actually februari 2012 after a concert, I did bring earplugs but later on when I was moving out from the venue I did remove them and later that evening I did experience tinnitus for the first time. However, this tinnitus was very mild by then so it faded away from time after.

Three years later during a Christmas party with my work I did wear my earplugs during (almost) the whole night. Somehow when we were a group of 10 people chatting I decided to remove the plugs because I couldn't hear the other ones talking and I though the music wasn't that loud.. and what a mistake..
Since that moment I have suffered from tinnitus in my booth ears and hyperacusis.
I went to two different ENT doctors and all they could say after I did a audiogram was that my hearing was normal, but they couldn't help me out with my tinnitus.
My tinnitus level by then was like this: I did notice it a lot if it was quiet in a room, so especially when I was about to sleep I heard it a lot, I don't really remember if it did bug me in outer situations but I do remember I was very able to listen to it in many situations. So I guess from a scale from 1-1o my tinnitus was 5 by then.
I remember having a hard time sleeping during that first period with my tinnitus, I tried to have music on in the background or an open window but I guess I didn't find that solution that great.
I did remember I had a lot of anxiety and was constantly trying try google a solution to everything, because I though by then that my tinnitus was so bad.
A lot of questions that came up inside my head was, how can you even live like this?
Time went by and somehow I managed to start live a life again, I don't remember how long it took but I would say it took about a month until i could calm down. I did protect my ears a lot during this period, tried to avoid loud situations as good as I could, and since then I've always had a set of earplugs with me.
After about 1,5 years i did not even think about it that much at all, it wasn't really bothering me at all actually.
I guess this part of the story is a success story because when I got my "real" tinnitus 11/2014 the first time was awful, I remember having a such a hard time with it and now 3 years after it doesn't really bug me at all.
I don't even remember the last time I was annoyed by it.

Now to the next chapter of my story..
This is actually a sad part.

5 weeks ago during a Friday evening at 20:30 (8.30 pm) I took the tram to one of my friend to play the guitar.
I stepped on the tram and took a seat. About 4 minutes into the trip I saw a man walking in the tram and a few feet away from me I saw him facing his head towards me, so I kindly though I just might ask me something, perhaps where he should get off, or if I dropped something.
However.. he did not, he instead punched me in the face with a "slap" that did hit right on my left ear.
I had never met this man before or seen him ever.
What I just was exposed to was an unprovoked assault.
The man that obviously had some huge issues then started to yell a few words and then went off the tram at the next stop. After the punch I decided to not do anything because I didn't want the situation to escalade.
The punch (slap) on my left ear instantly caused a extremely high tinnitus sound and my ear got all muffled, I felt like you had tons of wax in it, or the feeling you sometimes get when you fly with an airplane.

After a few calls I decided to go to the emergency room to check my ear.
I told the doctor that I had tinnitus since before but not this high, the loudness by now was like 3 times higher and I never had a muffled feeling before.
He checked my eardrum but it was not broken, so he basically just told me to get home and get some rest and it will probably be over within a few days. I guess I was in a chock at that moment.
The day after my ear was still ringing and the muffled feeling was still there, so I decided to call a ENT doctor to get more information what to do and they set an appointment for me 3 days after but all they could say over phone was that they though it would get better, so I guess I was happy with that answer..
The days went by but neither my tinnitus or my hearing loss got any better (muffled feeling).

On Tuesday 3,5 days after the assault I had my appointment with the ENT doctor, at first they sent me to do a audiogram test, and it turned exactly like I though.. it showed that I had an hearing loss in my damaged ear. The hearing loss was in the higher frequencies.
The ENT doctor did an inspecting of my ears and he said that indeed my eardrum was fine and what I had gotten was a noise induced hearing loss from the punch (slap). This slap was similar to a gunshot.
He also told me that this damage is permanent since the hair cells in cochlea usually dies after 48 hours, so after that it can't repair.
I went home and got panic and anxiety..
I started to ask myself, why did this happen to me?
I felt like I had already gotten enough ears damaged since my tinnitus in 2014.. and since then I had been super protective of my ears, always had earplugs at louder places and never listened to music loud in headphones either.
And of a sudden I get increased tinnitus and hearing loss because an idiot decided to punch an innocent person?! It just felt so unfair.
The days went by and the first week was horrible..
I had so much trouble sleeping at night, I usually woke up like 5 times per night and just couldn't get back to sleep. During the days I was crying a lot and was in general just so sad and mad at the same time.
I knew that even if the police found this guy they couldn't get my hearing back.
My left ear kept ringing like crazy and in combination with that muffled ear feeling (hearing loss) I couldn't hear like I used to ear, all the high pitch noises was gone..for example I could not hear birds singing.
Even tho I had managed to get through my tinnitus back in 2014 I couldn't see the light of the tunnel with this one..
The tinnitus was so loud that I heard it constantly, even if there were loud noises around, and during conversations my tinnitus definitely was higher the the voices.. I found out that the only time that I did not hear my tinnitus that much was during shower.
And to explain the one sided hearing loss.. I don't know where to start.. I guess I always though that a hearing loss was like normal hearing but just a bit lower, but it is not.
If you have a loss in the higher freq like me things gets removed from normal sounds, things just doesn't sound like they use to.
And the muffled feeling I have is horrible aswell, its like a constant pressure on my left ear, it feels so weird and is really annoying.

The weeks went by and I am on week 5 almost 6 when I'm writing this.
I guess I've gotten more used to the sound over the weeks, but I'm still not the same person..
I still feel that my life have shattered into small glass pieces..
At the moment the tinnitus is at the same high level and the hearing loss is the same.
But I do not have anxiety anymore I think. My sleep seems to be better now, its not great but its okey.

I am still so worried tho about how it would be to live a life like this with a one sided severe tinnitus and a hearing loss, so I guess I would appreciate any story if someone had a similar experience.
Iam a hobby musician that loves playing the guitar and recording at home, usually listening to a lot of music aswell.. I'm so afraid of how this would affect everything.

Well, I guess this was a long story, the first part is like a said a success story and the second part is horrible..

/Martin
 
Hello @Maruashen ,

I am sorry that the man attacked you and caused damage. I cannot offer much advice as, while I was a musician at one point in my life, I have always had tinnitus so I learned while coping with the ringing. But, my friend on this forum @Jazzer is an excellent musician (I have heard him play!), a great guy, and always very helpful. I mentioned him here because I know he will get an alert stating so and I hope that will entice him to view you post and offer his, always, sage advice.

I am fairly confident that there is hope, you will find a way to continue with your music.
 
Hello @Maruashen ,

I am sorry that the man attacked you and caused damage. I cannot offer much advice as, while I was a musician at one point in my life, I have always had tinnitus so I learned while coping with the ringing. But, my friend on this forum @Jazzer is an excellent musician (I have heard him play!), a great guy, and always very helpful. I mentioned him here because I know he will get an alert stating so and I hope that will entice him to view you post and offer his, always, sage advice.

I am fairly confident that there is hope, you will find a way to continue with your music.

@Kolisar - we'll thanks for your lovely words.
Hello @Maruashen.
Goodness me.....what a tough story for me to read. I am so so sorry my friend.
I do wish I could really do something for you, for all of us that suffer this awful predicament.
There is no question that we suffer so much.

I am a traditional jazz trombonist, from age 20, in 1962. I still play professionally, but I am trying diligently to be extremely careful with it, by using ear plugs to reduce the volume.
I have had Tinnitus for over 20 years at low level, but much stronger since June 20 2014.
A friend of mine played his banjo very loud in my ear as I stood close by.
The next day I went completely deaf for about 24 hours.
My hearing came back, albeit damaged, but my Tinnitus was now at a much stronger level.
It has stayed that way.
So this was caused by a 'friend!'
Very hard to take and digest, as you can imagine.
Now that's enough about me.

So what can we do?
Yes, I wake to this noise every day, but I have trained myself not to despair, as that only makes matters far worse.
I am a realist, and know that my noise is probably permenant. Each morning I practice a short meditation routine, in the bath, where I start by listening to my "T." I allow my diaphragm to take over my breathing for me, and I drift off feeling quite relaxed for about 10/15 minutes.
Then I get on with my day.
You will find a description of my meditation on one of my posts.

Realistically, I have to take "T" on board as a fact of life, but I have to tell you that I have a truly wonderful family, and bunch of friends.
I will live my life the very best way that I can.
They deserve a winner, not a loser.
I am much loved, as I am quite sure you are too.
I know this will take courage and determination, but I honestly believe that you will come to obsess less on your noise, and enjoy your life much much more. If I can do it, anybody can do it.
I just wish I could say or do more for you.
Much love
Jazzer
 
@Kolisar Thanks for your reply :)

Yeah, I'm crossing my fingers that I could come to that point someday where I could say "Tinnitus is still there but its okey and I can live a good life with it) and the same with the one sided hearing loss.
Have tinnitus always been an issue for you or did you cope with as a kid?

Thanks for adding your friend to this post, always great to share experiences with people with similar interests of course.
 
@Jazzer - Hello, Thanks for posting and telling your story.

I'm trying so hard to accept the situation that attacks and incidents can happen, but I guess and have learnt now that it is just a part of the life. Things happen and sometimes you cannot prevent them for happening either.

I couldn't agree with you more, tinnitus is just a horrible experience for every human.

I'm so sorry to hear about your indecent as well, with your friends banjo playing in your ear.
Did you also suffer a lot in the beginning after the noise induced T/hearing loss? I mean in the weeks following the indecent.
Im glad your hearing came back after your got deaf, that most have felt great after all.
How much damaged is your hearing if I may ask?

Your right about that, I guess the trick is to learn to stop listening to it.
I try to refer to a ticking clock.
If you don't listen to it you could almost not notice that its there in the background ticking.
But if you start listening to it the sound can become overwhelming almost, and suddenly that tick seems very loud.
Sometimes it feels similar with my tinnitus experience (I am not referring to my latest loss tho).

Do you still enjoy listening to music, or is it more of an issue since your increased tinnitus 2014 and possible hearing loss?

Yeah I have a great family supporting me, but sometimes it just feels great talking to people that suffer from similar encounters and have similar issues.
I guess its hard to "imagine" tinnitus and hearing loss if you haven't experienced it yourself.

Thanks a lot for the replies, it means a lot to me.

/Martin
 
@Jazzer - Hello, Thanks for posting and telling your story.

I'm trying so hard to accept the situation that attacks and incidents can happen, but I guess and have learnt now that it is just a part of the life. Things happen and sometimes you cannot prevent them for happening either.

I couldn't agree with you more, tinnitus is just a horrible experience for every human.

I'm so sorry to hear about your indecent as well, with your friends banjo playing in your ear.
Did you also suffer a lot in the beginning after the noise induced T/hearing loss? I mean in the weeks following the indecent.
Im glad your hearing came back after your got deaf, that most have felt great after all.
How much damaged is your hearing if I may ask?

Your right about that, I guess the trick is to learn to stop listening to it.
I try to refer to a ticking clock.
If you don't listen to it you could almost not notice that its there in the background ticking.
But if you start listening to it the sound can become overwhelming almost, and suddenly that tick seems very loud.
Sometimes it feels similar with my tinnitus experience (I am not referring to my latest loss tho).

Do you still enjoy listening to music, or is it more of an issue since your increased tinnitus 2014 and possible hearing loss?

Yeah I have a great family supporting me, but sometimes it just feels great talking to people that suffer from similar encounters and have similar issues.
I guess its hard to "imagine" tinnitus and hearing loss if you haven't experienced it yourself.

Thanks a lot for the replies, it means a lot to me.

/Martin

The audiologist did show me my hearing test measurements but not being a technical type, I didn't take particular notice except that I could see the obvious dip in the higher registers.
I think my general hearing is quite reasonable, as I don't normally struggle at speech levels.
I have hearing aids but don't use them, as sudden bursts of noise could hurt me.
After the incident my "T" ramped up and stayed there to this day.
I still listen to music, but never on phones, and always at low level.
I will try to find my audiology graphs and give you a better idea Martin.
Best wishes
Jazzer
 
After a few calls I decided to go to the emergency room to check my ear.
I told the doctor that I had tinnitus since before but not this high, the loudness by now was like 3 times higher and I never had a muffled feeling before.
He checked my eardrum but it was not broken, so he basically just told me to get home and get some rest and it will probably be over within a few days.
It is shocking that the doctor didn't prescribe prednisone...

Did this happen in Europe?

Amitriptyline has helped me sleep when I was in that acute stage. It is non-addictive and it didn't make me feel drowsy in the morning.

Check out
https://www.amazon.com/Sound-Oasis-S-5000-Deluxe-Therapy/dp/B018KUVEOM/
or
https://www.amazon.com/Cherry-Koala-Concentration-Relaxation-Sufferers/dp/B01FRW2WBA
or
http://mynoise.net/
to help you with sound enrichment to give you something else to listen to besides T.
 
It is shocking that the doctor didn't prescribe prednisone...

Did this happen in Europe?

Amitriptyline has helped me sleep when I was in that acute stage. It is non-addictive and it didn't make me feel drowsy in the morning.

Check out
https://www.amazon.com/Sound-Oasis-S-5000-Deluxe-Therapy/dp/B018KUVEOM/
or
https://www.amazon.com/Cherry-Koala-Concentration-Relaxation-Sufferers/dp/B01FRW2WBA
or
http://mynoise.net/
to help you with sound enrichment to give you something else to listen to besides T.

@Bill Bauer - After my deafening acoustic trauma occurred on a Saturday I could only get to a doctor on Monday, who prescribed nothing.
Perhaps if I'd gone to A & E it might have been different.
I'll never know......?
 
Saturday I could only get to a doctor on Monday, who prescribed nothing.
The ER doctor gave me only a 7 day supply of prednisone, as he knew that I would be seeing an ENT in 7 days. When the ENT asked me "how are you?" I burst into tears. As a result, the ENT Refused to give me the remained of a course of prednisone (the course was supposed to be 14 days + tapering). He said that I was under too much stress. I should have insisted on getting prednisone (or I could have gone to an ER at another hospital and gotten more prednisone there)...
 
The ER doctor gave me only a 7 day supply of prednisone, as he knew that I would be seeing an ENT in 7 days. When the ENT asked me "how are you?" I burst into tears. As a result, the ENT Refused to give me the remained of a course of prednisone (the course was supposed to be 14 days + tapering). He said that I was under too much stress. I should have insisted on getting prednisone (or I could have gone to an ER at another hospital and gotten more prednisone there)...

So, don't they know how crucial all this is ???
FFS !!!
 
Even though I was seeing that ENT over a week after my acoustic trauma, it was something like day 4 after the onset of my T. He could have done a steroid injection and other things. He told me that if I still have T after a year, it is permanent. And even that wasn't really true.
Back when I spent a lot of time learning about T, I saw multiple sources mentioning that "2 years" rule of thumb. I am having trouble finding those sources, but a quick search resulted in
https://www.ncrar.research.va.gov/Education/Documents/TinnitusDocuments/01_HenryPTM-HB_1-10.pdf
"A general guideline is that tinnitus of at least 12 months duration has a high likelihood of being a permanent condition (Dobie, 2004b). However, it also has been suggested that a person must have experienced tinnitus for at least two years before it should be considered permanent (Vernon, 1996)."
Link to Dobie 2004: https://books.google.ca/books?hl=en...AfBTNxz1AY#v=onepage&q=dobie tinnitus&f=false
 
The audiologist did show me my hearing test measurements but not being a technical type, I didn't take particular notice except that I could see the obvious dip in the higher registers.
I think my general hearing is quite reasonable, as I don't normally struggle at speech levels.
I have hearing aids but don't use them, as sudden bursts of noise could hurt me.
After the incident my "T" ramped up and stayed there to this day.
I still listen to music, but never on phones, and always at low level.
I will try to find my audiology graphs and give you a better idea Martin.
Best wishes
Jazzer

@Jazzer Okey, well same as me then, usually a noise induced hearing loss first damages the higher freq due to their placement in the cochlea.
Okey, well im glad you still enjoy music then. I guess thats one of the fears am having.

/Martin
 
It is shocking that the doctor didn't prescribe prednisone...

Did this happen in Europe?

Amitriptyline has helped me sleep when I was in that acute stage. It is non-addictive and it didn't make me feel drowsy in the morning.

Check out
https://www.amazon.com/Sound-Oasis-S-5000-Deluxe-Therapy/dp/B018KUVEOM/
or
https://www.amazon.com/Cherry-Koala-Concentration-Relaxation-Sufferers/dp/B01FRW2WBA
or
http://mynoise.net/
to help you with sound enrichment to give you something else to listen to besides T.
@Jazzer
@Bill Bauer I dont think its that simple.

Yes i live in Europe, in fact Sweden to be precise (Sahlgrenska university hospital).
I've been to a total of 4 ENT doctors and none have even mentioned to prescribe prednisone.

First of i dont think there is much evidence that that prednisone actually works.
And if it does it mainly for helping the body if something is swollen.
In most of the noise induced hearing loss cases the haircells in the cochlea gets damaged and prednisone does not help them recover.
However if the eardrum would be swollen or red, i guess prednisone could help thing up abit.
But that wasnt my case since i got a noise induced hearing loss.
I know its common to give prednisone to sudden hearing loss when you dont know the cause, but i think thats just the reason why, you dont know the cause so you add prednisone just incase something is swollen.

The first ENT doctor did however mention that NAC could be taken right after the damage, but he also said that their is no real evidence that that actually would work. However i got an appointment to them after 80 hours and he said IF nac would even have any effect it should be taken within 48 hours since the hair cells usually dies within 48 hours.
After that i got kind of frustrated since they didnt get Nac when i went to the emergency doctor 3 days earlier..
So i went home and did some researches and it turns out that in most medical studies about NAC they usually turn out the same that it doesnt help. I guess one of the studies was from hospital in Sweden and the other one was from a shooting exercise with soliders.
 
@Jazzer
@Bill Bauer I dont think its that simple.

Yes i live in Europe, in fact Sweden to be precise (Sahlgrenska university hospital).
I've been to a total of 4 ENT doctors and none have even mentioned to prescribe prednisone.

First of i dont think there is much evidence that that prednisone actually works.
And if it does it mainly for helping the body if something is swollen.
In most of the noise induced hearing loss cases the haircells in the cochlea gets damaged and prednisone does not help them recover.
However if the eardrum would be swollen or red, i guess prednisone could help thing up abit.
But that wasnt my case since i got a noise induced hearing loss.
I know its common to give prednisone to sudden hearing loss when you dont know the cause, but i think thats just the reason why, you dont know the cause so you add prednisone just incase something is swollen.

The first ENT doctor did however mention that NAC could be taken right after the damage, but he also said that their is no real evidence that that actually would work. However i got an appointment to them after 80 hours and he said IF nac would even have any effect it should be taken within 48 hours since the hair cells usually dies within 48 hours.
After that i got kind of frustrated since they didnt get Nac when i went to the emergency doctor 3 days earlier..
So i went home and did some researches and it turns out that in most medical studies about NAC they usually turn out the same that it doesnt help. I guess one of the studies was from hospital in Sweden and the other one was from a shooting exercise with soliders.

Thanks @Bill Bauer - all this info adds to our understanding even though it doesn't come close to solving the problem of noise.
 
First of i dont think there is much evidence that that prednisone actually works.
I looked into it about six months ago, and back then I concluded that the evidence is mixed. Search this site for threads about it, and you can also search scholar.google.com.
 
Hi @Maruashen

I'm so sorry to read about what happened to you, it's awful to be affected by such a cruel condition especially in the way this happened to you.

I can't really offer any advice but I just wanted to say I understand how you feel, to have this inflicted on you, an innocent person.

I have severe tinnitus and hyperacusis with high frequency hearing loss. Mine was caused by an ENT doctor, he removed ear wax in both of my ears with microsuction which was very loud. It caused an acoustic trauma. Of course he won't admit or accept it was caused by his procedure, but it was. I am so sad and angry about this.

I hope that in the months/years to come we will experience peace again. I wish you well.
 
I hope they will find a cure for us all. I read in AARP that in next 5-10 years they will be able to regenerate hearing with gene therapy which regrows the hair cells and also using nerve growth factors to reconnect inner ear cells to the synapse. But for now, we suffer. I had sudden hearing loss with T and extreme Vertigo 8 months ago. My life has changed so much. I am now resigned that all hearing is gone in my right ear. However, the dizziness and T can drive me crazy. For T, I have found that Gabapentin is helpful (75 mg lowest effective dose). T is low when I wake up and builds as day goes on because coffee maker, water spray, etc. all increase it. I found the Raddit maneuver (YouTube) and it helped at bad times and morphed into using $10 Conair Touch n Tone massager directly on right ear. For a few seconds I have no T! I am still searching for a cure but I hope this info helps you. God Bless You and May We All Overcome our Challenges...
 

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