My Tinnitus Went Away! It Does Go Away

[ASilverLight]

As awful as it is we all still have tinnitus, I think we can always celebrate the luck of others and take words with a grain of salt. OP likely didn't mean it always goes away, but it CAN go away - this doesn't need to be stated so obviously. Or maybe that's just the way I interpret posts here, based on what we know about tinnitus. They're not wrong anyway, if it goes away for some, then it obviously does go away (for some).

Anyway, I personally believe that this section is about SUCCESS STORIES and coming down hard with all the negativity isn't exactly helpful for people who come here to calm down and feel better.

 

[Capstan]

Thank you for sharing! I'm glad someone knows what I mean! It's terrible. Even when I can manage to avoid the hiss during the day, I still get the zap zap sensation every few seconds making it impossible to forget about

I'm in this with you too. Going through an electrical thunderstorm at this moment

 

[ThomasW]

How in the hell did not one single PCP do a simple, routine ear examination?

Unfortunately doctors and even ENTs have very little knowledge of tinnitus.

When I first went to a doctor and told him I got ringing in my ears from taking Amitriptyline just said "no". I explained how the ringing went way down once I stopped and then came back several hours after taking it once again a few days later. He just "no, not possible" and wrote on a referral form that I had hearing loss and noise damage...

 

[Tara Lyons]

So good that it went away for you!

But no - it does not go away. For most people here it's gonna stay forever. So your title "it does go away" is wrong.

For most people is doesn't matter what they eat, supplements etc... It just stays.

It just went away for you. Very lucky you!

Thanks for the optimism.

 

[Tara Lyons]

So good that it went away for you!

But no - it does not go away. For most people here it's gonna stay forever. So your title "it does go away" is wrong.

For most people is doesn't matter what they eat, supplements etc... It just stays.

It just went away for you. Very lucky you!

@Sironketchup way to keep the positivity alive.

 

[screechesilence]

I knew someone who had tinnitus for 2 years and every doctor blamed it on him playing in a live band and said he had hearing loss. He went to get his ears cleaned to find he had a huge buildup of wax. Once cleaned his hearing came back and his tinnitus went away completely. He kicked himself for not getting it done sooner but he was delighted to have silence again.

The clowns I went to see, both my local GP and then ENT hospital referral told me my ears are very clean, in fact maybe too clean if there was such a thing. I can't comprehend as I've heard this story too many times now, just how one of us poor souls can suffer from tinnitus or any ear issue for so long and see many doctors over a span of 2 years, yet not be told they have a buildup of wax?! Looking into your ears is the first and sometimes only thing they do so really, what the hell?! I don't know what to think about myself either reading stories like these, because with the pandemic around, it is not so easy going to see a doctor these days.

I have an extremely high pitched electric hissing like my brain is being fried. It is comparable to what a lot of you have described here. It is on both ears and all over my head. I am so fed up of it so typed it on the forum search box and this thread was the first thing that came up. I have had it much more frequently lately and tonight it is absolutely insane. It alternates after a good nights sleep with a fainter sound but always comes back. If I wake up with it, it lasts all day and doesn't tone done down until I sleep again if I'm lucky.

I am going absolutely insane and I am completely hopeless. I start a new, much more demanding than usual, job in September. When I first got tinnitus in February, I dreamed of a quieter more peaceful time come September. That has not been the case at all. I truly appreciate the advice and encouragement of @Bill Bauer but I sometimes wish I had no good days - that's right, I have hoped and wished for so long, every time things get a bit better, but it is always short lived and I can't seem to habituate to it either due to this. I also don't understand why once you get better you'd revert to being worse, if it is related to hearing loss or damage, it is what it is, so tinnitus should be more or less consistent too?

I will be amazed if I'm alive by the end of the year.

 

[tpj]

Daiso completely agree with your comment. Had this evil thing for 12 years and recently experienced another spike. Your negativity is based in reality and I believe the experience of most tinnitus sufferers.

 

[Ken219]

Daiso completely agree with your comment. Had this evil thing for 12 years and recently experienced another spike. Your negativity is based in reality and I believe the experience of most tinnitus sufferers.

@tpj I have had tinnitus for 30 years. I am sorry to hear you are going through a spike. I also had many spikes, currently in one. My only solace is that I have always habituated in time. Please do not envy someone who has recovered. I pray for better treatments and a cure. G-d bless.

 

[tpj]

Hi Ken, I don't think I felt envy when I wrote my comment but daiso's post just resonated with me. I'm glad you've habituated, hope I do too.

 

[twa]

If it has improved, there shouldn't be any reason for it to not continue to improve.The fact that it's a hiss is a good news (the switch from a tone to a hiss is half the battle).

@Bill Bauer I always appreciate your optimism and encouragement.

 

[Bill Bauer]

@Bill Bauer I always appreciate your optimism and encouragement.

I had actually been accused of spreading negativity and gloom. It had to do with my posts about the need to take the protection of one's ears from all of the noises that don't feel right seriously.

I would never want to give anyone False hope. When I know that, based on what I've been reading on this forum for the past 3.5 years, there is a good chance that a poster will get better, I share that with the sufferer.

 

[twa]

I had actually been accused of spreading negativity and gloom. It had to do with my posts about the need to take the protection of one's ears from all of the noises that don't feel right seriously.

I would never want to give anyone False hope. When I know that, based on what I've been reading on this forum for the past 3.5 years, there is a good chance that a poster will get better, I share that with the sufferer.

Are you saying from experience for the most part, people get better?

 

[Bill Bauer]

Are you saying from experience for the most part, people get better?

It would seem that most people experience fading after 3 months or so, and of those most eventually (after 1-3 years) get to the "can hear it only in quiet rooms stage".

 

[weab00]

@Sironketchup way to keep the positivity alive.

It's not pessimistic, it's the truth.

 

[twa]

It would seem that most people experience fading after 3 months or so, and of those most eventually (after 1-3 years) get to the "can hear it only in quiet rooms stage".

I would agree.

 

[Ginagg738]

Wow. Congrats! I'm really happy for you. God bless you.

 

[Tara Lyons]

I had actually been accused of spreading negativity and gloom. It had to do with my posts about the need to take the protection of one's ears from all of the noises that don't feel right seriously.

I would never want to give anyone False hope. When I know that, based on what I've been reading on this forum for the past 3.5 years, there is a good chance that a poster will get better, I share that with the sufferer.

@Bill Bauer according to an ENT at YALE, one of the best doctors in the country that I just saw, the condition is known to completely go away, but after one year it is less likely. The doctor said she has seen it go away 100% for people but pops back up due to stress/anxiety.

 

[Tara Lyons]

It's not pessimistic, it's the truth.

@n_li808,

People like @weab00 are the people you have to ignore.

 

[Tara Lyons]

@n_li808 I want my pre-tinnitus life back so bad it's unreal! I mourn my old life every day. I used to be so happy.

 

[BuzzyBee]

I remember thinking I couldn't last 5 months with it, and now here I am at 5 years. Congratulations to those who get better.

 

[Tony Phylactou]

When your ears get full of wax you get Temporary Tinnitus which goes away after you have them cleaned. Heard many stories like this one.

 

[twa]

I used to be very hopeful and believed in trying new things all the time. After almost 18 months with this fucking monster in my head, I've become very cynical and detached from reality. And I come to this forum a lot, so it probably affects the way I look at things. But I have to say I agree completely with Siron here. For most people, it seems that it doesn't just go away. It stays. Forever. Which is almost impossible for a human being to comprehend. We're supposed to take to heart that we have to live with this torture for the rest of our lives? A lot of people in this forum are in their 20's and 30's, they were supposed to have their life ahead of them. Now it's all ruined. There's no life quality to gain anymore. So excuse me that I get a little agitated when someone says that "hey, my Tinnitus is gone, I guess it goes away sometimes". You have no idea how much I would want to be that person. Especially since it happened to me once before. I feel like crying every day. I want to express my sadness over the life I have lost. The rotting person I've become. I'm unable to enjoy anything in life anymore. I simply cannot imagine myself as 50 or 60 years old, I don't want to get to that place anymore. I just want it to end, I want the tinnitus to end and if that's impossible I want my life to end. Not in 20 years. Right now. I can't believe that this one little misstep I made on the 31st of August in 2018 was going to rob me of all life quality, joy and pleasure. It's not fair. It's brutal and a cosmic joke.

There are many things in the pipeline, new drugs in trial, Dr. Susan Shore's device in trial, many possibilities.

 

[Michael Leigh]

@n_li808,

People like @weab00 are the people you have to ignore.

Well said @Tara Lyons

 

[Bill Bauer]

after one year it is less likely.

After one year it often fades to the "can hear a gentle hiss only in quiet rooms" stage.

The doctor said she has seen it go away 100% for people but pops back up due to stress/anxiety.

This is consistent with the idea that once one has had tinnitus, one's ears have been compromise and now it will take less to cause problems...

 

[n_li808]

@n_li808 I want my pre-tinnitus life back so bad it's unreal! I mourn my old life every day. I used to be so happy.

Same!! It's so sad...

 

[Tara Lyons]

Same!! It's so sad...

@n_li808 horrific that this exists.

 

[Tara Lyons]

Same!! It's so sad...

@n_li808 I don't recognize myself in those happy pictures. It's a different girl.

 

[n_li808]

@Tara Lyons for real... I had no idea this was possible... I wish I knew.

Yea I look at old pics and I'm like... hey I didn't have tinnitus then. Even looking at others doing things on social media... I envy how careless and free they are. I'm living so cautiously now

 

[Ken219]

@n_li808 I don't recognize myself in those happy pictures. It's a different girl.

30 years ago I would say I was on a path of self destruction. Tinnitus came into my life and I entered an alternate life. A life of severe tinnitus. I have had spikes and habituation. It takes 12-18 months. I would estimate out of the 30 years I spent 6 years of pure hell habituating. After I habituate life is okay. It allowed me to slow down and concentrate on my family and work. I am 72 years old, have a good family and at times a happy life. I do pray every night I complete a day. Yes I speak to a higher 'power', I'm a believer. I do all the talking but there may be a chance someone is listening? I know I'm asking a lot but what the heck! Please hang in and G-d bless.

 

[GBB]

I'm back in this thread after lasering, albeit gently, which gave me a spike, followed by being exposed to a fire alarm. The good news is I'm not the worst I've been, still better than a couple of months ago, but the bad news is I'm suffering through each day, doing the whole suicide calculus again.

Weirdly when my tinnitus got louder now, it didn't go back to the EEEEEE it originally started at, it just made my buzz saw / whirring atonal noises louder, which were what the EEEEE changed into after 2-3 months. So I guess in that sense it is progress.

I know some people have benefitted from lasers, but personally, I can't recommend them. Even without the additional loud noises, they seemed to sensitize my hyperacusis which had largely abated, and increase my reactivity, not to mention reawaken the tonal aspects of my tinnitus, which had become atonal. It was basically like a rewind machine to revisit earlier stages of my tinnitus.

I have Xanax now, though I loathe to use it, but at least it is an option.