Neurofeedback Success Story

[IntotheBlue03]

Hi lovely,

You are having such a rough time. I am sorry that you're suffering. You do know we all care about you?

Thank you for reporting on your experiences with LDN. I am such a chicken when it comes to meds, but I am still thinking I'll try it and see what happens... It seems your tinnitus has really backed off...

Your new diagnosis sounds challenging, but I know you are very resilient and tenacious, not to mention how resourceful and focused you are on getting to the root cause of your issues. I know you are going to find a way past this. What does your treatment plan look like? Prognosis?

I'm thinking of you and saying prayers for your recovery.

Hugs,
Deb xxx

Thank you so much @DebInAustralia. You have all been such amazing support and I wouldn't have made it this for if it wasn't for the community of all of you. Tinnitus Talk really is such an amazing place and unfortunately I'm not finding any similar support group or organization for vestibular ocular reflex dysfunction.

I would definitely recommend the LDN, I'm glad I started taking it when I did as I'm suspecting autoimmune more and more and hope it has helped to head off worse relapse or attack at this point. Yes, my tinnitus has remained low and possibly replaced at this point by the vision issue. I do wonder if that is because my brain is preoccupied with compensating for my vestibular/visual deficits as I've read that's what's causing my brain fog/difficulty with simple tasks since most of my mental energy is now being used to support this deficit. I will keep you all posted of course.

Thank you so much for the encouragement and prayers. Treatment looks abysmal but I am seriously considering stem cells after all of this. In the meantime they offer vestibular and vision therapy which I have just started and which can take weeks to months. I did however have success with prism glasses and am awaiting their arrival as I had a 50% reduction in symptoms with them (called Neurolens). Here's to hoping it is not MS or something equally scary as the cause.

Wishing a speedy recovery and peace for us all!