Hey,
@DebInAustralia, thanks for asking. I have better days and bad days. No day is a cup of tea, though. All days are pretty rough as of late. I have an electrical, pulsating hiss that sounds like a live wire and has "sparks" in it, too. What drives me crazy, though, is that it's not just a sound—it's a feeling, too. It literally feels like electricity and causes sensations of pain.
The hissing often has a feeling of a current running through my ears and the sparks feel like zaps. Just imagining it, it's like being hooked-up to an electroshock device.
The static I have is like an idling jet engine and isn't bad. If these were just sounds, I think I'd be in a much, much better place right now. Perhaps I'd be at peace with them even. But what kills me is the painful sensations.
On better days, habituation seems plausible because I find that I can go periods of time where I can block it out if I'm immersed into something. But most days, it's too aggressive and the painful aspects are overwhelming.
Not sure what the solution is to this type of tinnitus. I know you're thinking about LDN. I'm also supposed to trial hearing aids soon.
I've also thought about trying to get Flupirtine for a short course since I'm in the acute window kind of. I'm 3 months in. Not sure if you've looked at Flupirtine before. It's not the most ideal drug because you have to be careful of the side effects. Monitoring the liver regularly is important. But it might be worth the risk because for us severe sufferers, the quality of our lives is literally hanging in the balance. Desperate actions may be necessary. I think Flupirtine is overall safe if you get bloodwork done regularly to monitor everything.
My hissing is not maskable. It seems like it's very high frequency and perhaps that's why it hurts, too... because it's got a piercing quality to it.
How are you doing?