Prof. Thanos Tzounopoulos admitted that he has tinnitus in one interview. But I have no knowledge of whether Dr. Shore has tinnitus.
Dr. Shore has tinnitus. She told me that in an email. Her tinnitus is in the head.
Maybe she has (?)
It works for non-somatic tinnitus too, on the order of 3-5 dB reduction, which is the difference between standing 10-feet from a noise source and 20-feet from a noise source, so not a trivial reduction.
Well that has cheered me up a little as I kept reading again and again on here that it doesn't work for non-somatic tinnitus. If it does something for it, it's a start.
I agree, I think the assumption is that it will work for non-somatic as well. No one checked with the guinea pigs whether they could modulate their tinnitus by moving their jaw and they saw improvement.
All we know is the success was based on the 119 people in the clinical trials. Yes, we are desperate to understand if those outside the trial parameters would benefit but we really don't know.
I think people involved in development of medical devices or drugs are excluded from participation in clinical trials to avoid bias. This could be a reason why she might have refrained from testing it on herself.
Nothing weird about tinnitus being in the head. I perceive my own tinnitus as such.
Maybe she's used it and it has improved her tinnitus (I understand that the device rarely eliminates tinnitus).
It's called being curt.
I think you might be reading into her writing a bit too much. Looks like typical boomer email to me.
The way she asked people not to contact her gave off the vibe that it's really pissing her off but she was very polite about it.
Please guys, just leave her alone now! She has communicated with people here on a regular basis for years. You are taking up unnecessary time.
I believe the same level of obsessive compulsivity that makes tinnitus so difficult for many to deal with is the same underlying factor driving individuals to email researchers regularly. I know it's tough, I've been there and I'm there, but we really have to resist the urge to email researchers. If you have to channel that obsession, email and write your representatives and lobbyists and demand action.
@CarlosEstan, I do think it will help non-somatic cases, perhaps less, perhaps not. The treatment still gains access to the DCN via the dorsal column nerve and trigeminal nerve, but it just hasn't been tested on non-somatic cases.
No offense to anyone who thinks differently, but I find it interesting that anyone still thinks that if this works for people who know how to make their tinnitus worse (sans noise exposure), there's a possibility it won't work for people who don't know how to make their tinnitus worse (sans noise exposure).
I have tried every conceivable way I can think of to worsen my tinnitus with every 360 degree direction head and neck turn, as well as gurning with every jaw movement.
You aren't the only one; immediately I can think of @Hazel whose tinnitus simply cannot be modulated. No matter what kind of facial, neck, jaw or other movements she has attempted, zero change.
Jesus... 54% of 8000 correspondents?
I was going to suggest yoga.
It was definitely a surprise to us because previous figures I'd seen from various sources and studies often indicated 70-80% could modulate their tinnitus by physical movements. While our sample size was large, I can imagine there could be ways to modulate tinnitus that you wouldn't normally necessarily think of (maybe by applying even more force or targeting very specific parts), and our respondents were just relaying their own experience without very specific guidance.
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