New University of Michigan Tinnitus Discovery — Signal Timing

[Lilah]

Do you people think that it would be possible to hear silence again when using the Michigan device longterm?

https://gizmodo.com/this-small-device-could-silence-the-maddening-symptoms-1821739320

"Wonderful as an noninvasive and practically risk-free device (unless you can't stand mild shocks) to treat tinnitus could be, it might not come without its limitations. The subjects' tinnitus largely returned a week after they stopped using the device, even for the two people who reported losing it completely. The researchers also only used volunteers with a particular form of tinnitus. These sufferers are able to soften their episodes by applying pressure to their head or clenching their jaw—a rudimentary version of keeping their fusiform cells in check, it's thought. That could mean the device won't work for the 20 percent to 40 percent of tinnitus sufferers without that particular quirk."

If I'm understanding correctly, does the device only work on people who are able to soften/decrease their tinnitus through jaw/neck/head movements?

 

[Adaś]

This podcast is from July 2018 y'all.

OMG, thanks @Bambam0. This is what happens if you have a website which shows no data whatsoever next to posted articles/news. I think I am going to send an email to ATA asking them to fix their website as this is really misleading.
But good thing is that we are 2 years fast-forward to what was there in the podcast

The subjects' tinnitus largely returned a week after they stopped using the device, even for the two people who reported losing it completely.

Now I wonder how many days of stimulation translates to how many days of silence?

If I'm understanding correctly, does the device only work on people who are able to soften/decrease their tinnitus through jaw/neck/head movements?

Does it only apply to these who can soften their tinnitus, because I can only amplify it via clenching my teeth?

 

[DebInAustralia]

Lilah,

My understanding is that the device will help anyone who can modulate their tinnitus with their face, neck, jaw.

I emailed Susan Shore about this a while ago, explaining my ability to modulate my tinnitus, and her response was that, I'd be a good candidate for her device.

If you can do this too, whether it be louder or softer, I think you should get some benefit from her device too too.

 

[Ethernet]

University of Michigan is doing a webinar on hearing health. October 5th 2020. Hopefully we get some news!

"Join us as we discuss the groundbreaking research that is paving the way for increased function and quality of life for people with hearing and balance-related disorders"

https://medicine.umich.edu/dept/kre...010/kresge-hearing-research-institute-webinar

 

[UKBloke]

University of Michigan is doing a webinar on hearing health. October 5th 2020. Hopefully we get some news!

"Join us as we discuss the groundbreaking research that is paving the way for increased function and quality of life for people with hearing and balance-related disorders"

https://medicine.umich.edu/dept/kre...010/kresge-hearing-research-institute-webinar

Interesting find, thanks.

Do we know if it's possible to record the webinar?

 

[DebInAustralia]

University of Michigan is doing a webinar on hearing health. October 5th 2020. Hopefully we get some news!

"Join us as we discuss the groundbreaking research that is paving the way for increased function and quality of life for people with hearing and balance-related disorders"

https://medicine.umich.edu/dept/kre...010/kresge-hearing-research-institute-webinar

I wrote to Dina Kutinsky regarding this webinar...

Asked her if there would be an announcement regarding Shore's device...

She noted that Shore is making 'great progress', but no announcement yet.

They will forward me more information regarding the webinar as we get closer to the date.

 

[DebInAustralia]

Do you people think that it would be possible to hear silence again when using the Michigan device longterm? I thought I read somewhere that Susan Shore wants to test the idea in the next trial that long term use of her device might incrementally decrease the hyperactivity of the fusiform cells over time, which in turn could decrease tinnitus. I am living on a prayer here.

I think I read that 2 people did just that (tinnitus silenced) with her device, so I think it is possible Christiaan.

Addendum: I wrote to one of Shore's former colleague, who worked with her in 2014. She stated that she had heard 'talk of spinning off a company after her most recent trial, which is usually a good sign...'

I asked this contact again, and her words were:

Yes! They are looking at starting a company to bring it to market. I'm afraid I don't know much more than that though.

 

[lucy_snow]

@DebInAustralia,

Do you think it will/might work for non-somatic tinnitus caused by hearing loss?

Also, has Susan ever mentioned what hearing threshold level must the person have to qualify for this treatment?

 

[DebInAustralia]

@DebInAustralia,

Do you think it will/might work for non-somatic tinnitus caused by hearing loss?

Also, has Susan ever mentioned what hearing threshold level must the person have to qualify for this treatment?

Hi Lucy,

Good questions.

Speculating here.

Possibly will help.

I emailed Susan Shore about my own history of hearing loss (with somatic modulation and ability to use residual inhibition) recently.

She felt that her device would help me.

We didn't discuss my audiogram, but she didn't rule out using the device in the case of a hearing loss.

Others might have more definitive responses. Sorry.

 

[Michael01]

If you don't mind, may I ask how you contacted Susan Shore? I'd like to contact her myself, but I can't seem to find any contact method.

 

[Lilah]

residual inhibition

What is residual inhibition?

 

[DebInAustralia]

What is residual inhibition?

When I listen to white noise around my tinnitus frequency, I can suppress the sound for a short time.

 

[Lilah]

When I listen to white noise around my tinnitus frequency, I can suppress the sound for a short time.

Thanks for the explanation. I think I can do this too. When I listen to violet noise, even at at lower volume, I can't really hear my tinnitus.

 

[DebInAustralia]

Thanks for the explanation. I think I can do this too. When I listen to violet noise, even at at lower volume, I can't really hear my tinnitus.

Yes! Residual inhibition.

I have posted about this before, but I spoke to a doctor who has submitted a proposal to the NIH to further his positive findings of pharmaceutical residual inhibition (in animal studies) to include human trials.

If I hear more, I will post.

 

[Rb86]

Yes! Residual inhibition.

I have posted about this before, but I spoke to a doctor who has submitted a proposal to the NIH to further his positive findings of pharmaceutical residual inhibition (in animal studies) to include human trials.

If I hear more, I will post.

What's violet noise?

 

[weab00]

When I listen to white noise around my tinnitus frequency, I can suppress the sound for a short time.

Wish I could do this but then the dysacusis kicks in.

 

[Michael01]

On that note I've just gotten an e-mail from Susan Shore to say that we are still in the midst of the clinical trial - slated to end late 2021. I don't know if that's of help to anyone.

 

[ThomasRobert]

On that note I've just gotten an e-mail from Susan Shore to say that we are still in the midst of the clinical trial - slated to end late 2021. I don't know if that's of help to anyone.

 

[DaveFromChicago]

To Michael01:

Could you please confirm that this is actually 2021 and not 2020?
So I guess realistically this might actually be available in 2022?

I am 66, and I wonder if such dilatory procrastination might go on even after I am dead.

I still believe that the answer lies in drug development.

Someone on here mentioned that on October 5 she was going to give another interview on the state of her trial completion. Let's then hear the full story.

 

[KotaDomowa]

I don't believe that Dr. Shore's device will be available before... 2025?

It keeps getting delayed! STILL!

 

[DebInAustralia]

On that note I've just gotten an e-mail from Susan Shore to say that we are still in the midst of the clinical trial - slated to end late 2021. I don't know if that's of help to anyone.

Odd...

A former colleague of Shore told me she'd heard she was busy looking for a company to commercialise her device...

 

[Michael01]

I can confirm that she did indeed say late 2021 in her e-mail.

 

[Ethernet]

On that note I've just gotten an e-mail from Susan Shore to say that we are still in the midst of the clinical trial - slated to end late 2021. I don't know if that's of help to anyone.

Are you sure she said 2021?

In addition: I'm assuming I read somewhere on this forum that it is possible for Dr. Shore to possibly commercialize her device even before she'd ended clinical trials. It's a non-invasive treatment after all. Can someone confirm this?

 

[Michael01]

Are you sure she said 2021?

All I can say is that the e-mail reads in full:

Hello,

We are still in clinical trial - slated to end late 2021.

I've attached a full screenshot of the email, in full, as I left my initial question and some other stuff off my first post, as I felt it was a bit private, but if it helps...

 

[DebInAustralia]

 

[F-u-T]

View attachment 40644

View attachment 40645

That brochure is from August 2018. Sure does seem to be moving along slowly if the current trial isn't scheduled to end until late 2021.

 

[DebInAustralia]

That brochure is from August 2018. Sure does seem to be moving along slowly if the current trial isn't scheduled to end until late 2021.

I did wonder when that brochure was originally published.

 

[F-u-T]

I did wonder when that brochure was originally published.

The brochure was a good find! I had seen it in my obsessive research on Dr Shore's device. It is date stamped on the bottom right corner.

 

[Lilah]

Can you use Dr. Shore's device (or Lenire) if you have trigeminal neuralgia or other ear/face/neck pain issues? I am concerned pain issues may be activated or worsened by this type of treatment.

 

[Kam75]

Can you use Dr. Shore's device (or Lenire) if you have trigeminal neuralgia or other ear/face/neck pain issues? I am concerned pain issues may be activated or worsened by this type of treatment.

A Tinnitus Talk member developped trigeminal neuralgia 6 days after using Lenire. So even though I'm not a specialist, I would say there might be a risk.