New University of Michigan Tinnitus Discovery — Signal Timing

[DebInAustralia]

Send an email to the CEO.

I believe someone in this thread already has?

 

[Harder Calm]

Yeah I believe it's likely hearing damage that can be altered like you stated.

I think for the animal experiments, the guinea pigs were exposed to loud noise, and their symptoms could be measured by their behavior and brains scans. Appearently bimodal stimulation worked their as well, even though that seems more like noise induced instead of somatic. So maybe there's hope indeed also for people beyond somatic tinnitus, however their exact percentage is.

 

[GlennS]

Somatic tinnitus just means that you can temporarily change your tinnitus loudness or pitch by making some neck and/or jaw movements. I've read from multiple sources that 60-80% of all who experience tinnitus can do that and so they have somatic tinnitus.

But that naturally leads one to ask... why the heck should that matter in this device's efficacy??? It seems like an arbitrary requirement of test subjects.

 

[Tomas80]

The new COVID-19 variant will be the reason for the delay in the sale of the device for another 10 years.

 

[AfroSnowman]

But that naturally leads one to ask... why the heck should that matter in this device's efficacy??? It seems like an arbitrary requirement of test subjects.

Limiting the clinical trials to those who can already impact their tinnitus through moving the same nerves they are targeting for stimulation seems pretty reasonable. I don't know that they think that it is more effective on the somatic subtype, just a surer bet that stimulating those same nerves would impact the tinnitus of those that can already change their tinnitus through those nerves.

The cleanest, most unambiguous results is what we want from this study so that it can go to market quickly. Adding an unknown as to whether this will work on non-somatic wouldn't seem to add anything on that top line goal.

 

[twa]

Clonazepam 2 mg + Gabapentin 600 mg.

I have a history with benzos, I wouldn't expect this to work for anyone else per se and it's relatively dangerous, YMMV.

@linearb, I agree with you on the dangerous part. I have taken both of these and they were very difficult to taper off of. It was during the taper, my initial very mild tinnitus began.

 

[Mathew Gould]

Limiting the clinical trials to those who can already impact their tinnitus through moving the same nerves they are targeting for stimulation seems pretty reasonable. I don't know that they think that it is more effective on the somatic subtype, just a surer bet that stimulating those same nerves would impact the tinnitus of those that can already change their tinnitus through those nerves.

The cleanest, most unambiguous results is what we want from this study so that it can go to market quickly. Adding an unknown as to whether this will work on non-somatic wouldn't seem to add anything on that top line goal.

My jaw, ears and teeth had moderate pain for about 5 days and in those 5 days my tinnitus was very low which is uncommon... Makes no sense.

 

[DebInAustralia]

My jaw, ears and teeth had moderate pain for about 5 days and in those 5 days my tinnitus was very low which is uncommon... Makes no sense.

Results not available till April 2022.

Shore is commercialising her device via Auricle.

I've emailed her about FDA approval and fast tracking. Waiting for reply.

And I've just sent an email to David Martel, who is the post doctorate working in bioengineering with Susan Shore.

If anyone has Jon Pearson's email (CEO of Auricle), I am happy to send him an email? I can't find it.

 

[Gb3]

If anyone has Jon Pearson's email (CEO of Auricle), I am happy to send him an email? I can't find it.

jon.pearson@auricleinc.com

 

[Paul1980]

I don't know what is going to slow them down more - COVID-19, or Tinnitus Talk members sending emails to everyone but Santa Claus asking ad nauseam questions about when it will be ready.

 

[Gb3]

I don't know what is going to slow them down more - COVID-19, or Tinnitus Talk members sending emails to everyone but Santa Claus asking ad nauseam questions about when it will be ready.

I wrote the CEO. He responded in like 10 minutes. I'm sure it isn't hindering anything.

 

[Tom Soria]

Hey all, I'm really curious to know if Dr. Shore's treatment might help with other tinnitus related problems like pulsatile tinnitus, TTTS, hyperacusis, diplacusis?

 

[DebInAustralia]

Hey all, I'm really curious to know if Dr. Shore's treatment might help with other tinnitus related problems like pulsatile tinnitus, TTTS, hyperacusis, diplacusis?

I don't think we know the answer to that, but I know from my brief email interactions with Dr. Shore over the years, she has indicated this as being helpful for those with somatic tinnitus.

However, I did read that some people can have a somatic element to their tinnitus without realising it, so maybe this could be of some benefit to you.

I also read on the forum here that the device may help those with hyperacusis.

 

[Mnq16]

Would the fact that my tinnitus gets louder when I clench my teeth mean I have somatic tinnitus or is this something everyone can do?

 

[GoatSheep]

Would the fact that my tinnitus gets louder when I clench my teeth mean I have somatic tinnitus or is this something everyone can do?

Yes that means it's somatic.

 

[AfroSnowman]

Yes that means it's somatic.

I've always wondered how this common somatic attribute should color our thoughts about whether long term tinnitus resides primarily in the brain. At first glance it would seem to indicate that it is outside the brain. Can anyone opine?

 

[DebInAustralia]

I've always wondered how this common somatic attribute should color our thoughts about whether long term tinnitus resides primarily in the brain. At first glance it would seem to indicate that it is outside the brain. Can anyone opine?

Interesting question.

Didn't Prof. Shore hypothesise that loss of auditory input to the brain engages the somatic nerves of the face and neck to try to compensate = making everything noisy?

For those who do have somatic tinnitus, can you take advantage of residual inhibition also?

 

[AfroSnowman]

For those who do have somatic tinnitus, can you take advantage of residual inhibition also?

Not really for me. But that is interesting as a concept. For me a I've had remarkably little change in my tinnitus since the moment it happened. Maybe it is a little less variable but that's it. Under that theory that rechanneling to somatic nerves would have occurred basically at onset not as a gradual transition from ears to brain

 

[Mnq16]

I've always wondered how this common somatic attribute should color our thoughts about whether long term tinnitus resides primarily in the brain. At first glance it would seem to indicate that it is outside the brain. Can anyone opine?

Well my tinnitus came about neurologically alongside visual snow (had no hearing loss/ear damage at onset at 20) and it has a somatic component to it, although I can't make it quieter, only louder. This would suggest it doesn't mean it's outside the brain.

 

[BigNick]

For those who do have somatic tinnitus, can you take advantage of residual inhibition also?

My tinnitus is somatic in as far as I can modulate it by clenching my jaw. I agree with the theory that it engages nerves of face and neck making everything noisy because at exactly the same time as my ringing started I started to hear / feel my pulse thudding especially when lying down.

I've also found that if I sleep with just one pillow I tend to have a milder tinnitus next day.

I do experience residual inhibition in as far as some sound therapy will knock my tinnitus back a bit more often than not.

 

[Lilah]

For those who do have somatic tinnitus, can you take advantage of residual inhibition also?

Not sure if this is residual inhibition, but I can alter my tinnitus sound temporarily when I listen to sound therapy (for example from more tonal to more white noise, or to a slightly lower pitch) but I cannot lower the volume. However, that change may be because I may feel more calm after sound therapy. However, sometimes I think my tinnitus increases after noise. Maybe this is reactive tinnitus? I think in the early days I could lower my volume, but not anymore.

 

[Gb3]

I think I have somatic tinnitus.

 

[Harder Calm]

I think I have somatic tinnitus.

Same here. It gets more intense from yawning, and by tensing jaw muscles. Additionally, certain neck movements also seem to have that effect. Afterwards, it gets quickly back to the normal level. Found it weird in the beginning, but from reading posts here many experience this. Well, let's hope that Auricle can do something for us...

 

[Bjjwal]

Just an FYI for anyone wondering, I emailed Dr. Shore asking her if my tinnitus (which gets more intense when yawning) counts as somatic and she confirmed that it does.

It would appear that I am a suitable candidate to try this device...

 

[Mnq16]

Just an FYI for anyone wondering, I emailed Dr. Shore asking her if my tinnitus (which gets more intense when yawning) counts as somatic and she confirmed that it does.

It would appear that I am a suitable candidate to try this device...

It seems the majority of people have a somatic component to their tinnitus.

 

[Gb3]

Just an FYI for anyone wondering, I emailed Dr. Shore asking her if my tinnitus (which gets more intense when yawning) counts as somatic and she confirmed that it does.

It would appear that I am a suitable candidate to try this device...

I could have told you that. You seriously did that?

 

[Mentos]

Just an FYI for anyone wondering, I emailed Dr. Shore asking her if my tinnitus (which gets more intense when yawning) counts as somatic and she confirmed that it does.

It would appear that I am a suitable candidate to try this device...

She is consistent in interpretation, she mailed me the same when I asked about my tinnitus (I can increase my tinnitus by pressing forehead with my hand).

 

[DebInAustralia]

She is consistent in interpretation, she mailed me the same when I asked about my tinnitus (I can increase my tinnitus by pressing forehead with my hand).

Me too.

 

[Bjjwal]

I could have told you that. You seriously did that?

Yes I did, as I wanted to make sure I was a suitable candidate for her device and not have false hope.

As nice as it would have been to have confirmation on this forum, I'd rather get my information from the person who pioneered the device and should know the statistics.

 

[Martin69]

I am not here that often these days.

What is the roadmap (trials, release dates etc.)?

When can we expect to have final trial results and "real world" experiences?

Thanks in advance.