MemberDamn, this is the type of comment I like. (I know, mine is not the most rational point at the end of the day, but hey.)
New University of Michigan Tinnitus Discovery — Signal Timing
- Thread starter Hudson
- Start date
MichaelF6161
Member
From the late 1980's to the current day, I watched advances in medical devices in the cardiac space that even the best biomedical engineer could have only dreamed of back then. It can happen in this area of neurology too.
From my perspective, the biggest obstacle in curing tinnitus is the lack of monetary incentive (at least in the US). If you follow medical advances in the US over the last 40 years, the biggest leaps (cardiac, orthopedic, neurological, etc.) have been in areas where private, and more importantly publicly held, companies can get large payoffs for their R&D. That is just how it works, period.
If you live in the US, call your House and Senate Reps offices, or write them an email, and tell them they need to expand CMS reimbursement for hearing diseases such as tinnitus and NIHL. If that one thing changes, you will have companies competing to get that big payoff, whether it is a medical device or a drug. It will happen.
Every single phone call, every single email can make a difference. You have to act though.
From my perspective, the biggest obstacle in curing tinnitus is the lack of monetary incentive (at least in the US). If you follow medical advances in the US over the last 40 years, the biggest leaps (cardiac, orthopedic, neurological, etc.) have been in areas where private, and more importantly publicly held, companies can get large payoffs for their R&D. That is just how it works, period.
If you live in the US, call your House and Senate Reps offices, or write them an email, and tell them they need to expand CMS reimbursement for hearing diseases such as tinnitus and NIHL. If that one thing changes, you will have companies competing to get that big payoff, whether it is a medical device or a drug. It will happen.
Every single phone call, every single email can make a difference. You have to act though.
- Oct 14, 2016
- 1,270
- Tinnitus Since
- All my life, but got worse 2016
- Cause of Tinnitus
- Noise induced / Concert
If you get a chance, consider reading this article: https://thetruthaboutcancer.com/susan-g-komen-pink-ribbon-facade/
The amount of money that actually goes to cancer research is very small, and even when it does goes into the right hands you are dealing with bad management, bureaucracy, and people who have no idea what they are doing. There is so much profit to be made on the cancer front that they almost don't want to find a cure. This is why you should always do your research before you consider donating to anything.
The amount of money that actually goes to cancer research is very small, and even when it does goes into the right hands you are dealing with bad management, bureaucracy, and people who have no idea what they are doing. There is so much profit to be made on the cancer front that they almost don't want to find a cure. This is why you should always do your research before you consider donating to anything.
1/100th?
Fastest 70's super computer Cray-1:
https://en.wikipedia.org/wiki/Cray-1
80 MHz
8.39MB RAM
303 MB storage
Samsung S9
Octa-core (4×2.7 GHz & 4×1.8 GHz)
4 GB LPDDR4X RAM
Storage 256GB
CPU = 225X faster
RAM = 1,907 more.
Storage = 844 more.
Cray 1 price = $7.9 million inflation = $38,277,698.66 today
Samsung S9 = $720
Just FYI
- Mar 1, 2018
- 871
- Tinnitus Since
- birth/ recent spike 2/2018
- Cause of Tinnitus
- Born with ETD, several acoustic traumas, most recently ETD
- Oct 14, 2016
- 1,270
- Tinnitus Since
- All my life, but got worse 2016
- Cause of Tinnitus
- Noise induced / Concert
Nooo I wasn't talking about you lol
Do you work in Cancer research too? My whole family does and they complain about it all the time...especially my dad when he has to go for monitoring visits.
I should probably say "sometimes" it goes to people who mismanage
I know when the cure for tinnitus will be found. You want to know??
Wait for it... Wait for it...
OK when they find a way to regenerate hair cells... That is in about 1000 years from now.
Wait for it... Wait for it...
OK when they find a way to regenerate hair cells... That is in about 1000 years from now.
MichaelF6161
Member
That's unfortunate for certain. I' can't imagine though that companies looking at this don't see the $$$ at the end of their efforts. Maybe their industry is different, but when there was a viable therapy for a patient population that CMS and private insurance reimbursed generously, companies moved mountains to get their devices to market. By FDA terms, blinding speeds.
I think some of the difference may be (again, I'm not been in the oncology field) where there are companies that are doing the research vs universities/grant fed research facilities doing the research. Pure science vs pure profit is a very, very different atmosphere. A funded trial by a publicly held company will not survive too long if there are not results and fiscal accountability.
- Oct 14, 2016
- 1,270
- Tinnitus Since
- All my life, but got worse 2016
- Cause of Tinnitus
- Noise induced / Concert
MichaelF6161
Member
You bet. Glad I could add a little something to the discussion. Now, how do we get this to move along?
I've got some contacts in the medical device world, not in neurology or hearing. However, some of these companies are multi-disciplinary and maybe if they see another viable patient population that is underserved...
Well, can't help to reach out to some old friends anyway.
@PlsHelpMe refer to the following post regarding FX 322:
Also check out Otonomy's Oto-413, but that's a way's away.
Unfortunately, medicine doesn't always work as expected based on theory. That's why clinical trials are currently a necessity.
FX322 is currently in clinical trials. Refer to the "Frequency Therapeutics" thread.
MichaelF6161
Member
You might want to tell that to these guys, and several other labs/companies that are already doing so in animal models and don't forget to call Columbia university and tell them to stop their human trials too.
https://www.cnbc.com/2018/01/02/hea...oughs-attract-big-pharma-venture-capital.html
http://entcolumbia.org/world-s-first-gene-therapy-trial-hearing-loss
MichaelF6161
Member
Hang in there friend. Maybe not tomorrow, maybe not next year, but there are people and resources working on this hard. All it takes is that one moment, that one breakthrough that comes unexpectedly...and things can change quickly.
It is hope that has always moved man forward, regardless of the obstacle.
MichaelF6161
Member
The clinicaltrials.gov website has the estimated primary completion date as September 2022 and the estimated study completion date as January 2023. Four years from now. How can it possibly take that long?
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